AV Scoping Review Themes by https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv en-us 2024-01-19 20:56:18 UTC 2024-02-23 16:32:37 UTC hello@padlet.com Improving communication among the care team - Kenyon et al., 2012 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130616 lack of timely communication across care settings among clinical staff, leading to delays in care

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130616 Accessibility of clinical information - Kenyon et al., 2012 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130618 want accessible individualized care plans

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130618 Enhancing education and peer support for parents - Kenyon et al., 2012 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130619 what to expect when raising child with SCD

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130619 Description of pain experience - Adegbola et al. 2012 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130620 define acute pain as an unbearable episode of localized pain that exceeds everyday chronic pain, escalates to ED from home care

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130620 Managing pain - Adegbola et al. 2012 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130621 learning how to navigate SCD as they grow up

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130621 Managing relationships (Personal relationships) - Adegbola et al. 2012 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130622 masking condition/needs in certain situations/environments

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130622 Managing relationships (Professional relationships) - Adegbola et al. 2012 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130623 patient difficulty communicating with new/different care teams, concern that patient is believed by provider

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130623 Pain scales do not work - Adegbola et al. 2012 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130624 discussion with clinicians beyond pain scales to accurately assess pain experience

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130624 Dissatisfaction with hospital facilities - Al Saif et al. 2022 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130625 delays in ED, long wait times, lack of space

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130625 Insufficient healthcare services - Al Saif et al. 2022 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130626 caregivers prefer health centers over large hospitals

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130626 Intricacy of caring for SCD patients - Al Saif et al. 2022 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130628 psychological tragedy, caregiver hardships, cost of care

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130628 Anxieties about pethidine - Alleyne and Thomas 1994 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130629 analgesic preferred by patients, but difficulty obtaining

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130629 Lack of individualized care - Alleyne and Thomas 1994 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130630 perceived themselves to have a bad name with the nursing staff

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130630 Lack or loss of control - Alleyne and Thomas 1994 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130632 lack of involvement in pain control

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130632 Playing up - Alleyne and Thomas 1994 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130633 nurses described patients "getting away with it" in regard to pain control/care

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130633 Poor pain management - Alleyne and Thomas 1994 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130634 dissatisfaction with pain management and disease understanding of nurses

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130634 Coping strategies - Atoku et al. 2023 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130635 internal (behavioral and cognitive) and external coping mechanisms by caregivers

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130635 Knowledge of patient's condition, common symptoms, and care - Atoku et al. 2023 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130636 knowing symptoms and suffering of child

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130636 Psychosocial challenges faced by the caretaker - Atoku et al. 2023 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130637 impact on physical/mental wellness and ability to function

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130637 Invisibility of psychological impact of growing up with SCD - Berghs et al. 2022 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130639 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130639 Psychologically distressing experiences in hospitals - Berghs et al. 2022 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130640 lack of SCD knowledge, racism, unethical treatment

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130640 Experiences of discrimination impact caregiver-provider interactions - Blakey et al. 2022 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130641 Having to navigate the added responsibility and subsequent stress associated with the uncertainty of how their child would be treated within healthcare settings

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130641 Families' challenging interactions with providers lead to perceptions of discrimination - Blakey et al. 2022 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130642 being directly spoken to harshly, repeatedly dismissed, or ignored altogether by providers

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130642 Healthcare system factors underlie discrimination - Blakey et al. 2022 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130643 history of racism, inadequate knowledge, stigma/bias impacting perception of healthcare system

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130643 Coping - Booker et al. 2006 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130645 nature of pain and strategies

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130645 Interacting With Others - Booker et al. 2006 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130647 participants likened dealing with healthcare professionals to a battle, whereby the felt that they had to work hard to convince the doctors that they were in genuine pain and in need of help.

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130647 Discussions of Addiction - Brown et al. 2014 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130648 patients worried about what providers think of them, providers uncomfortable with dependency on pain meds

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130648 Pain and Pain Medications - Brown et al. 2014 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130649 described the utility of pain medication and when the medications appeared ineffective

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130649 Patient-Provider Relationship - Brown et al. 2014 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130650 patients feel biased against, providers feel powerless

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130650 Care that family caregivers provide - Brown et al. 2023 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130651 supporting person they care for

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130651 "Their mistakes make me sick" - Campbell et al. 2010 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130652 medical errors from lack of SCD knowledge

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130652 A dichotomy of awareness - Campbell et al. 2010 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130653 despite awareness, still little knowledge of disease by family/medical staff/others

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130653 An unexpected role as teacher - Campbell et al. 2010 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130655 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130655 Convincing the naysayers - Campbell et al. 2010 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130656 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130656 Knowledge of disease through the embodied experience - Campbell et al. 2010 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130657 compelled to become their own experts

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130657 Identification of pain - Campelo et al. 2017 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130658 identification of these painful events is based on the cognitive development of each child

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130658 Identification of the pain of the child with sickle cell disease by the nurse - Campelo et al. 2017 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130660 children use verbal and non-verbal forms to interact

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130660 Impact of pain and hospitalization on the daily life of the child with sickle cell disease - Campelo et al. 2017 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130661 isolation, sadness, denial

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130661 Strategies to evaluate and control pain - Campelo et al. 2017 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130662 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130662 Strategies to evaluate and control the pain of the child with sickle cell disease - Campelo et al. 2017 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130664 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130664 Enabling self-management - Carlson et al. 2022 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130665 promoting patient/family self-management of SCD

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130665 Exchanging information - Carlson et al. 2022 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130667 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130667 Fostering Relationships - Carlson et al. 2022 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130668 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130668 Making decisions - Carlson et al. 2022 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130669 patient/family heard and invovled

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130669 Managing uncertainty and emotions - Carlson et al. 2022 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130670 communication with provider is integral

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130670 Stigma in interactions with health care workers - Carvalho et al. 2021 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130671 doubts about pain narratives and experience from providers

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130671 Stigma coping strategies - Carvalho et al. 2021 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130673 silencing problems to avoid labels and recurrence of discrimination

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130673 Delegitimization as Rendering Invisible in the Hierarchy of Care - Ciribassi et al. 2016 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130674 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130674 Patient agency and making visible - Ciribassi et al. 2016 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130675 pressure to present suffering in a certain way

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130675 Visibility of a marked body - Ciribassi et al. 2016 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130676 mark of disease and care on body

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130676 Stigma and SCD - Cole 2007 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130677 disclosure of disease status, stigma in social institutions

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130677 Stressful Experiences during Hospital Care - Cole 2007 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130678 pain not taken seriously, delays in provision of pain meds, doubts about nature of pain

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130678 Challenges of Readmission - del Pino-Jones et al. 2019 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130679 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130679 Healthcare system factors - del Pino-Jones et al. 2019 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130680 lack of established relationship with PCP, relies more on hematologist

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130680 Importance of patient/provider relationship - del Pino-Jones et al. 2019 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130681 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130681 Relevance of psychosocial factors - del Pino-Jones et al. 2019 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130682 need for social support

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130682 Discharge expectations - Dyal et al. 2019 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130683 wait times

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130683 Hospital Experiences - Dyal et al. 2019 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130684 process of care

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130684 Reasons for admission - Dyal et al. 2019 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130685 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130685 Patient's descriptions of concern-raising behavior in the hospital - Elander et al. 2004 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130686 analgesic delivery

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130686 Instances of justice and injustice interactions - Ezenwa et al. 2015 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130687 racism, bias, micro aggressions

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130687 Interactions are memorable - Ezenwa et al. 2015 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130688 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130688 Facilitators of care - Fearon et al. 2018 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130689 pain plans

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130689 Patient barriers to pain management - Fearon et al. 2018 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130690 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130690 Provider barriers to pain management - Fearon et al. 2018 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130691 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130691 Experience of hospital services - Harris et. Al 1998 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130692 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130692 Patient choice in treatment - Johnson 2003 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130693 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130693 Patient-staff relationships - Johnson 2003 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130694 PCA and provider interactions

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130694 Communication - Knott et al. 2022 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130695 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130695 Delays in accessing analgesia - Knott et al. 2022 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130697 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130697 Reluctance to accept PCA - Lin et al. 2015 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130698 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130698 Reluctance to accept a standard protocol - Lin et al. 2015 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130699 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130699 Management of sickle cell disease was further complicated by pandemic - Matthie et al. 2022 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130700 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130700 Experiences of hospital care -Neglect - Maxwell et al. 1999 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130701 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130701 Experiences of hospital care- Mistrust of patients with sickle cell disease - Maxwell et al. 1999 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130702 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130702 Experiences of hospital care- Stigmatization - Maxwell et al. 1999 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130703 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130703 Experiences of hospital care-Control (including both over- and undertreatment of pain) - Maxwell et al. 1999 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130704 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130704 Strategies of patients frequently admitted to hospital--Aggression - Maxwell et al. 1999 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130705 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130705 Strategies of patients frequently admitted to hospital--use of multiple hospitals - Maxwell et al. 1999 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130706

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130706 Strategies of patients frequently admitted to hospitals - Developing relationships - Maxwell et al. 1999 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130707 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130707 Strategies of patients frequently admitted to hospitals - Passivity - Maxwell et al. 1999 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130709 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130709 Invisible symptoms make it more challenging for needs to be met - Miles et al. 2020 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130710 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130710 Patients' knowledge of their own needs is often disregarded - Miles et al. 2020 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130711 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130711 Interactions with Healthcare providers - O'Connor et al. 2014 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130712 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130712 Outside stressors playing a major role in care - O'Connor et al. 2014 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130713 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130713 Pain Management - O'Connor et al. 2014 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130714 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130714 Chronic Sorrow - Olwit et al. 2018 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130715 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130715 Disparity - Olwit et al. 2018 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130716 caregiver loss

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130716 Internal Coping Strategies - Olwit et al. 2018 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130717 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130717 Trigger Events - Olwit et al. 2018 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130718 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130718 Experiences with the health care system - Owoo and Tadros 2021 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130719 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130719 Initial reaction to the diagnosis - Owoo and Tadros 2021 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130721 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130721 Barriers to receiving good, personalized, and responsive care: not being heard - Renedo et al. 2019 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130722 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130722 Feeling out of place: unwelcoming adult wards - Renedo et al. 2019 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130724 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130724 Trying hard to stay out of hospital/avoiding medical errors - Renedo et al. 2019 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130725 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130725 Insufficient healthcare services - Saif 2022 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130726 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130726 Dissatisfaction with hospital facilities - Saif 2022 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130727 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130727 Intricacy of caring for Patients with SCD which includes the sub-themes: the psychological tragedy, caregiving hardships, and cost of care on families - Saif 2022 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130728 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130728 Patient perceptions of the cause of readmission - Stein et al. 2016 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130729 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130729 Pain assessment - Stewart et al. 2021 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130730 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130730 Patient provider relationships - Stewart et al. 2021 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130731 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130731 Resources for Pain Management - Stewart et al. 2021 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130732 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130732 Treatment of pain - Stewart et al. 2021 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130733 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130733 Experiences of persons with sickle cell disease - Strickland et al. 2001 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130734 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130734 Hospital experiences - Thomas and Taylor 2002 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130736 drug seeking label

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130736 Increased knowledge of disease and management strategies - Utrankar et al. 2018 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130737 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130737 medical racial bias--pain discounted - Wakefield et al alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130738 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130738 medical racial bias--waiting longer than others - Wakefield et al alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130740 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130740 Interpersonal Relationships -- dehumanizing - Weisberg et al alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130741 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130741 Interpersonal Relationships -- discharge discordance - Weisberg et al alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130742 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130742 Interpersonal Relationships -- transition - Weisberg et al alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130743 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130743 Interpersonal relationships--dysfunctional hospitalizations - Weisberg et al alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130744 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130744 Pain and Opioid Medication Use--Inadequate dosing by providers - Weisberg et al alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130745 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130745 personal development--mental health - Weisberg et al alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130746 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130746 Emotional experience of being hospitalized - White et al. 2021 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130747 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130747 Abuse and shame - Williams-Gray and Senreich 2014 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130748 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130748 Difficulties accessing knowledgeable and compassionate health care professionals - Williams-Gray and Senreich 2014 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130749 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130749 Inadequate hospital services - Williams-Gray and Senreich 2014 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130750 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130750 Isolation and Invisibility - Williams-Gray and Senreich 2014 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130752 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130752 Managing pain - Williams-Gray and Senreich 2014 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130753 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130753 Racial issues - Williams-Gray and Senreich 2014 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130754 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130754 Transitioning to adult care - Kenyon et al., 2012 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130755 differences in peds vs adult care were articulated as surprising, unexpected, and/or challenging to deal with

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130755 Availability of clinical decision making tools - Kenyon et al., 2012 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130757 considering diagnostic tools for providers

]]> 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130757 Pain assessment and management - Kenyon et al., 2012 alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130758 2024-01-19 20:56:18 UTC https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2855130758 Colors alejandro_vera3 https://padlet.com/alejandro_vera3/z1dn97awcv0t15zv/wish/2893813440 red - system

yellow - provider

green - patient

blue - caregiver/family

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