News and Media Archive 8/23-3/24 by kc

"We know that reinfection with COVID-19 is not a notional possibility, but the rule. People in frontline positions, including teachers and healthcare workers, have reported being infected three, four or five times. Each bout with COVID-19 can progressively damage major organ systems, including the immune system, the brain and the circulatory system. In other words, allowing COVID-19 to circulate freely steadily increases the population that Fauci describes as vulnerable".

krcoombs — 2023-09-01 15:52:33 UTC

https://www.wsws.org/en/articles/2023/09/01/gqnt-s01.html

“Now is the time for us to be practicing good respiratory etiquette. Now is the time for us to remind ourselves to think about our own individual health status and those individuals that we may be around".

krcoombs — 2023-09-02 03:54:16 UTC

It seems like everyone has Covid-19. Here’s why this wave is probably worse than official data suggests https://www.cnn.com/2023/09/01/health/covid-case-data-wave

"So Covid is still a leading cause of death, yet some of the most powerful medical figures in the country are telling us to ignore it. Shouldn’t that disconnect be a bigger deal"?

krcoombs — 2023-09-03 12:16:32 UTC

https://www.thenation.com/article/society/covid-surge-response-ignored/

"A new study has found that many people with post-COVID syndrome who suffer from fatigue six months after a coronavirus infection are still severely physically impaired up to 20 months afterward ".

krcoombs — 2023-09-04 12:37:29 UTC

https://scitechdaily.com/long-haul-ahead-the-prolonged-impact-of-severe-long-covid/

"However, several of our collaborative teams are working to begin even more SARS-CoV-2 reservoir clinical trials of antivirals, monoclonal antibodies, or other therapeutics in Long COVID" says paper first author Amy Proal, President of PolyBio Research Foundation".

krcoombs — 2023-09-07 18:53:16 UTC

https://finance.yahoo.com/news/scientists-detail-current-evidence-long-100000532.html?guccounter=1&guce_referrer=aHR0cHM6Ly9wYWRsZXQuY29tLw&guce_referrer_sig=AQAAAA_uZ48MIfavnVIb1UuFapqPP_Wn5xrR5QzELt_tENjG8Y6Vg4GyyBPWSIckhxjUMeYlCUsLGXACA7MPu6tn-ZszppHN1p1cuaqzOM4roxmM9aZZ9_78NazXa1kp1oS-wOMOb6s5ePYA-D0EQueiKVSWAjKkDK376nNDkIQNtUyo

"In addition to the complications that can occur during the acute phase of a Covid infection, there appears to be an increased risk of heart attacks, strokes and other problems up to a year after an infection".

krcoombs — 2023-09-08 18:24:32 UTC

How Covid Affects the Heart https://www.nytimes.com/2023/09/07/well/live/covids-heart-health.html?smid=nytcore-android-share

"I've never doubted it — people are suffering," says Harlan Krumholz, a cardiologist at Yale University who's involved in long COVID research. "But we're now seeing imaging evidence, biopsy evidence, physiologic testing evidence of derangements in people who have long COVID."

krcoombs — 2023-09-10 16:27:55 UTC

https://www.npr.org/sections/health-shots/2023/09/09/1198342040/long-covid-causes-treatment-research

"Paul Sax, MD, clinical director of the infectious disease clinic at Brigham and Women’s Hospital in Boston, Massachusetts, acknowledged an absence of clinical trial data on vaccines for people with long COVID. But he said the COVID and flu shots may benefit people with the condition".

krcoombs — 2023-09-11 20:49:35 UTC

https://www.medscape.com/viewarticle/996286

"One of the biggest misperceptions is that vaccination or prior infection protects you, or that you’ll react the same to every COVID infection". Hannah Davis, co-founder of the Patient-Led Research Collaborative

krcoombs — 2023-09-15 03:45:37 UTC

https://cen.acs.org/biological-chemistry/infectious-disease/Long-COVID-hunt-causes-cures/101/i30

"Stories like Zimmerman’s—illness, improvement, exercise, crash—are common in the Long COVID world. And they highlight what many researchers, patients, and advocates say is one of the most powerful tools for managing, and potentially even preventing, Long COVID: rest".

krcoombs — 2023-09-17 19:08:31 UTC

https://time.com/6215346/covid-19-rest-helps/

"What we found is really undeniable: It’s very clear in our data that reinfection contributes additional risk of long Covid".

krcoombs — 2023-09-20 20:30:31 UTC

https://www.statnews.com/2023/09/20/do-long-covid-odds-increase-with-second-infection/

"The political declaration, first, does not appropriately and thoroughly address the best practices to prevent the ongoing spread and evolution of SARS-CoV-2 and the potential spread of emerging pathogens of concern. In addition, this political declaration does not address Long Covid, one of the most mass-disabling events in history".

krcoombs — 2023-09-21 16:39:05 UTC

https://www.pandemies.org/final-letter-un-political-declaration/
The World Health Organization (WHO), the United Nations (UN), Heads of State and Government: Pandemic Prevention, Preparedness and Response

"Without a treaty, the world will remain as unprepared for the next pandemic as it was for COVID-19, which killed roughly 7 million people and cost the global economy more than US$12 trillion. But there can be no compromise on one thing: there must be equity in access to vaccines, medicines and other supplies needed to save lives".

krcoombs — 2023-09-21 16:55:40 UTC

https://www.nature.com/articles/d41586-023-02904-y

"Molnupiravir, an antiviral drug used to treat patients with COVID-19, appears to be driving SARS-CoV-2 to mutate and evolve, with some of these new viruses being transmitted onwards, a new study has shown. It is not clear, however, whether these mutated viruses pose an increased risk to patients or are able to evade the vaccine".

krcoombs — 2023-09-26 13:44:33 UTC

https://www.news-medical.net/news/20230925/COVID-drug-molnupiravir-appears-to-be-driving-SARS-CoV-2-to-mutate-and-evolve.aspx

"Pfizer Inc's chief executive said on Tuesday that almost 250,000 courses of the drugmaker's oral antiviral COVID-19 treatment Paxlovid were being administered per week as cases surged in the United States".

krcoombs — 2023-09-27 00:07:44 UTC

https://www.reuters.com/business/healthcare-pharmaceuticals/about-250000-courses-covid-pill-paxlovid-being-administered-per-week-pfizer-ceo-2023-09-26/

"Long COVID patients had specific differences in immune and hormone function than other people, blood tests showed".

krcoombs — 2023-09-27 00:12:29 UTC

https://www.medpagetoday.com/neurology/longcovid/106485

"Many people with long Covid had much lower levels of cortisol, showed signs of B-cell activation and T-cell exhaustion, other latent viruses were reactivated".

krcoombs — 2023-09-27 17:12:10 UTC

https://www.bloomberg.com/opinion/articles/2023-09-27/long-covid-is-real-now-the-evidence-is-piling-up

"Our aim is to lay the foundation for a broader coalition of organizations, so that our collective efforts may ultimately serve to help improve care and outcomes across the patient populations who are coping with infection-associated chronic illnesses".

krcoombs — 2023-09-29 14:02:30 UTC

https://mailchi.mp/f7a1cbfadde1/join-our-workshop-on-infection-associated-chronic-conditions-9400553?e=1737662aee

"Overall, the survey found that many US adults underestimate the seriousness of these respiratory diseases". Nat'l Foundation of Infectious Diseases:

krcoombs — 2023-09-30 19:50:17 UTC

https://www.nfid.org/resource/2023-national-survey-attitudes-about-influenza-covid-19-respiratory-syncytial-virus-and-pneumococcal-disease/

"To say that this is a textbook virus, it doesn’t mean that it’s not killing people. Objectively, it’s still killing more people than any other infectious disease. What it means is that we could’ve taken action based on what we knew, rather than waiting around to prove everything and publish papers in Nature and Science talking about things we already knew".

krcoombs — 2023-10-06 01:39:38 UTC

https://www.nytimes.com/2023/10/05/opinion/covid-pandemic-michael-mina.html?smid=url-share

“In honour of those patients, we need to ensure that we do not lose the momentum we have in long COVID research, and that we take this opportunity to build our understanding and knowledge of post-infection syndromes more generally.”

krcoombs — 2023-10-06 20:07:30 UTC

There is more to worry about than long Covid, study shows. You could get a long cold, too https://www.cnn.com/2023/10/06/health/long-colds-study-wellness

"Although each reinfection should theoretically be milder than the previous one for most people, doctors said, cases like Keele’s do happen. McComsey estimated that about 20% to 25% of her patients report that their reinfections are more severe".

krcoombs — 2023-10-08 21:01:35 UTC

https://www.nbcnews.com/health/health-news/covid-5-times-people-describe-illnesses-rcna118132

"The studies done thus far on long COVID in children have been limited by small sample size, reliance on parental survey rather than interviews, lack of controls, short duration, poor design, and false assumptions about children's viral loads and antibody responses, experts say".

krcoombs — 2023-10-11 00:51:31 UTC

https://www.cidrap.umn.edu/covid-19/not-little-adults-experts-say-long-covid-undercounted-misdiagnosed-kids

"As a result, the National Institute of Health and Care Excellence cautions against using graded exercise therapy for treating post-COVID fatigue. For POTS patients whose condition wasn’t triggered by a COVID-19 infection, exercise can be helpful, but as many have discovered, it’s not a cure, nor is it an effective first-line treatment".

krcoombs — 2023-10-12 11:25:49 UTC

https://archive.ph/2023.10.02-231608/https://www.nationalgeographic.com/premium/article/pots-exercise-harm-fatigue-long-covid

"But doctors who treat people for active Covid infections say they aren’t widely prescribing Paxlovid, since the medication interacts with several common drugs and is only approved for people vulnerable to severe illness — older adults and people with underlying medical conditions".

krcoombs — 2023-10-13 14:49:17 UTC

https://docs.google.com/document/d/1WgexHAYZQ56R08GtYGL8FeOoPvjtaNtARLteMVZWFlA/edit

"However, at this year’s ID Week conference in Boston, Igho Ofotokun, MD, MSc, FIDSA, Grady Distinguished Professor of Medicine at the Emory University School of Medicine, shared the latest data that COVID-19 research team, RECOVER, has gathered on Long COVID and its symptoms".

krcoombs — 2023-10-17 02:07:41 UTC

https://www.managedhealthcareexecutive.com/view/the-latest-on-long-covid-most-prevalent-symptoms-to-research-underway-idweek-2023

"New research published on Monday in Cell implicates both interferons and serotonin in long Covid in a way that brings together those hypotheses and could also explain “brain fog,” or the neurocognitive difficulties people endure".

krcoombs — 2023-10-17 12:07:13 UTC

https://www.statnews.com/2023/10/16/long-covid-brain-fog-serotonin-interferons/

"By challenging the long-held assumption that treating infectious disease is all about tackling acute infection, a moonshot initiative for long COVID could ultimately change the way all of us think about the effects of pathogens on our health".

krcoombs — 2023-10-18 20:42:07 UTC

https://www.nature.com/articles/d41586-023-03225-w

"Hopefully, corporate memory of COVID-19 will endure and trigger a sustained interest and support of both the scientific and public health buckets. If not, many of us will be spending a lot of time awake in bed or having nightmares when asleep"! Dr. Fauci

krcoombs — 2023-10-22 18:33:28 UTC

https://www.science.org/doi/10.1126/scitranslmed.adj9469

"Rao says he's not sure any drug currently being studied will become a magic bullet, but he’s encouraged by the field’s progress. “My hope is, in the near future, we’ll be able to identify the cause [of Long COVID] and therefore provide more thorough treatment options, rather than treating just the symptoms".

krcoombs — 2023-10-24 11:24:18 UTC

https://time.com/6327296/long-covid-treatments-tests-research/

"These findings indicate that both COVID-19 and AD have synergistic effects; however, further research is required to elucidate their long-term implications".

krcoombs — 2023-10-24 23:35:15 UTC

https://www.nature.com/articles/s41467-023-41879-2

AD= Alzheimer's Disease

"My recommendation in the US is a “warp-speed”-like project between government, industry, and academia and a minimum of five billion per year, a similar world commitment to public health and drug development, and with global clinical trial capabilities in place".

krcoombs — 2023-10-28 15:12:29 UTC

https://www.insideprecisionmedicine.com/news-and-features/can-we-still-contain-and-possibly-eliminate-covid-19-yes-and-here-is-how/

“If we go there, we do have the tools and the capability of quickly mitigating it compared to previously. Those tools, of course, entail the same advice since the beginning of the pandemic: wearing masks in public, testing when exposed or experiencing symptoms, improving indoor air quality and staying up to date on vaccinations".

krcoombs — 2023-10-30 14:54:46 UTC

https://www.salon.com/2023/10/29/has-the-winter-variant-arrived-heres-why-experts-are-closely-monitoring-the-jn1-strain/

"This whole thing taught us that infections can cause chronic disease. That's really the number-one lesson that I take from this pandemic — that infections can cause chronic disease".

krcoombs — 2023-11-07 12:32:34 UTC

https://www.medscape.com/viewarticle/998107

"And if standards of care have slipped to such a low point with respect to COVID-19, why would anyone bother providing the best care possible for other conditions? This is a one-way feed-forward healthcare system degradation that will only continue".

krcoombs — 2023-11-08 00:36:53 UTC

https://johnsnowproject.org/insights/endemic-sars-cov-2-and-the-death-of-public-health/https://johnsnowproject.org/insights/endemic-sars-cov-2-and-the-death-of-public-health/

"This can explain long-term cardiovascular effects seen in some, if not all, COVID-19 patients. SARS-CoV-2 virus has already been found to infect many organs outside the respiratory system. But until now it hadn't been shown to attack the arteries".

krcoombs — 2023-11-08 19:36:32 UTC

Now we know how COVID attacks your heart (archive.ph )

People with post-polio syndrome continued to have symptoms of the disease long after the actual infection had passed. Some patients with post-polio were dismissed by their doctors because the doctors had never heard of the disease. People with post-polio syndrome, like those with long COVID, had to advocate for themselves in medical settings and seek ways to alleviate their symptoms outside of traditional medicine.

krcoombs — 2023-11-09 02:55:12 UTC

https://yaledailynews.com/blog/2023/11/08/a-different-spirit-of-research-yale-clinic-seeks-to-unravel-the-mystery-of-long-covid/

"The stakes are high. Clear communication about what we do and do not know, when we know it and how we know it can help rebuild trust in our health care and public health systems and in society more broadly. And trust is a crucial ingredient to find, stop and prevent health threats".

krcoombs — 2023-11-09 14:53:57 UTC

Dr. Tom Frieden: Covid-19 is still around, and so are these misconceptions https://www.cnn.com/2023/11/09/health/tom-frieden-covid-19-misconceptions

"JOIN US NOV 14! We are demanding $1B+ in annual research funding for Long COVID".

krcoombs — 2023-11-10 03:14:29 UTC

https://longcovidmoonshot.com/

" Long COVID risk and severity can be significantly reduced by immune-modulating drugs and immunizations that attempt to improve immune function. Additionally, given the complexity of symptom trajectories and the unique disease burden, a patient-centered multidisciplinary strategy with an emphasis on tailored treatment programs and continuing symptom monitoring should be necessary to conduct these studies going forward".

krcoombs — 2023-11-12 14:27:21 UTC

https://akjournals.com/view/journals/2060/aop/article-10.1556-2060.2023.00256/article-10.1556-2060.2023.00256.xml

"Researchers compared doctor's online responses to patients questions with those generated by ChatGPT. AI sent responses that were longer and higher in both quality and empathy".

krcoombs — 2023-11-12 14:30:31 UTC

atimes.com/opinion/story/2023-11-12/ai-healthcare-doctors-empathy-chatgpt

"There's growing evidence that even a mild case of COVID can cause long-term changes to the immune system that affect the brain and nervous system".

krcoombs — 2023-11-13 13:31:26 UTC

https://www.npr.org/sections/health-shots/2023/11/13/1211989263/pain-fatigue-brain-fog-long-covid-neurological-effects

"A personalized approach aimed at preventing post-exertional malaise appears to be the right approach for this patient population for now. Further research is needed to understand the specific mechanisms underlying a limited exercise capacity and post-exertional malaise in patients with post-COVID condition".

krcoombs — 2023-11-13 20:08:26 UTC

https://www.scienceopen.com/hosted-document?doi=10.14293/PR2199.000467.v1

"The rise in cognitive issues aligns with a common symptom that plagues many Covid long-haulers: “brain fog".

krcoombs — 2023-11-15 13:14:08 UTC

Can’t Think, Can’t Remember: More Americans Say They’re in a Cognitive Fog https://www.nytimes.com/2023/11/13/upshot/long-covid-disability.html?smid=nytcore-android-share

" I think this is an excellent example highlighting the many layers of complexity surrounding neurotransmitter actions in the nervous system and beyond - and reiterates the point that caution is warranted when initiating therapies that impact serotonin signaling".

krcoombs — 2023-11-16 00:51:49 UTC

https://lcbreakdown.substack.com/?r=a36iw&utm_campaign=pub&utm_medium=web

"Every single provider in the United States is going to have a long COVID patient. So it's not just about educating those at long COVID or post-COVID centers. It's about educating the entire medical community as a whole".

krcoombs — 2023-11-17 21:30:26 UTC

https://www.medscape.com/viewarticle/998615

“There’s no data” that suggests the different variants cause a different length of time in symptoms".

krcoombs — 2023-11-24 15:54:31 UTC

https://www.msn.com/en-us/health/medical/symptoms-of-covid-19-usually-last-around-10-days/ar-AA13Cvwl?cvid=f75522cc059949f594a5c4f8865a9ada&ocid=socialshare&ei=9&sc=shoreline&fbclid=IwAR3-vE4d242E7LV71DzoYJHbWeCyGMKUbK5YmUASpLtU1EaVUiqkaHXL9n8

"On the face of it, it doesn’t make sense. Once you get infected by a pathogen, your body should be better prepared to deal with it the next time it comes around, but instead of being better at fighting off the invader, people with long COVID are getting more hammered by it the second (or third or fourth) time around".

krcoombs — 2023-11-25 03:06:26 UTC

https://www.healthrising.org/blog/2023/11/24/re-infection-long-covid-chronic-fatigue-syndrome/

"While there are currently no treatments for Long Covid that have been approved by the FDA, Dr. Verduzco-Gutierrez says activity modification, Enhanced External Counter Pulsation (EECP), and treatments meant for dysautonomia and POTS can help some patients recover or experience periods of remission".

krcoombs — 2023-11-28 23:06:15 UTC

https://clearhealthcosts.com/blog/2023/11/is-long-covid-a-remitting-relapsing-disease/

"As we enter the fifth year and another surge of the ongoing SARS-CoV-2 pandemic, our understanding of HIV’s overlap with Covid-19 and Long Covid is building, but stigmas surrounding both illnesses have impeded research funding and support".

krcoombs — 2023-12-05 18:36:05 UTC

https://thesicktimes.org/2023/12/05/hiv-may-increase-the-risk-of-long-covid-why-arent-major-advocacy-groups-addressing-it/

What’s happening this week, December 5: most important LC research and Events.

krcoombs — 2023-12-08 23:51:47 UTC

https://thesicktimes.org/2023/12/05/whats-happening-this-week-december-5/

"Getting care is still a struggle, she said.“When I go to the ER or to another doctor’s visit, instead of saying I have chronic fatigue syndrome, I usually say I have long COVID,” Powell said. “And I am believed almost immediately.”

krcoombs — 2023-12-09 22:35:18 UTC

https://www.boston.com/news/health/2023/12/09/chronic-fatigue-syndrome-is-not-rare-says-new-cdc-survey-it-affects-3-3-million-u-s-adults/

"The questions are: Are there similar events in Long Covid? If yes, this may happen also in children. Are they somehow treatable?"

krcoombs — 2023-12-10 17:06:43 UTC

https://open.substack.com/pub/danilobuonsenso/p/endothelial-cess-mecfs-long-covid?r=a36iw&utm_campaign=post&utm_medium=web

"Researchers analyzed data from 388,980 patients who had a positive test for SARS-CoV-2 between October 1, 2021, when the ICD-10 code for PCC was introduced, and January 31, 2023. Patients had an average age of 61 years; 87.3% were men".

krcoombs — 2023-12-11 01:35:00 UTC

https://www.medscape.com/viewarticle/wide-regional-variation-diagnosis-long-covid-2023a1000un0

Recent info about JN.1 Variant, Acute COVID, Long COVID...

krcoombs — 2023-12-11 01:38:02 UTC

https://drruth.substack.com/p/covid-news-and-more-12923

"The response must involve prioritization of research, such as that which led to the fast development of COVID vaccines and antivirals".

krcoombs — 2023-12-12 00:33:50 UTC

https://theconversation.com/could-antivirals-reduce-your-risk-of-long-covid-where-the-research-is-up-to-on-prevention-and-treatment-216529

"In fact, it’s simply good journalistic practice to give weight to the most knowledgeable sources. Long-haulers saw and predicted the rise of long Covid before credentialed academics did.".

krcoombs — 2023-12-12 00:40:47 UTC

https://www.nytimes.com/2023/12/11/opinion/long-covid-reporting-lessons.html

"Understanding the cognitive implications of long COVID is crucial for medical professionals and individuals navigating the complexities of this extended illness".

krcoombs — 2023-12-14 13:17:15 UTC

https://longevity.technology/lifestyle/does-long-covid-cause-cognitive-slowing-new-study-sheds-light/

"We don’t have time. The longer a person’s body is in a state of chronic illness, the harder it can be to recover fully. For many, the pandemic seems over. But the threat is not over. Although vaccination and prior COVID exposure lessen the risk, people can still get long Covid, even a severe, debilitating version like mine".

krcoombs — 2023-12-14 18:18:20 UTC

1,374 Days: My Life With Long Covid https://www.nytimes.com/interactive/2023/12/14/opinion/my-life-with-long-covid.html?smid=nytcore

"Hospitals and emergency rooms could be forced to ration care by the end of this month, the Centers for Disease Control and Prevention warned Thursday, saying recent trends in COVID-19 and influenza are now on track to again strain America's health care system".

krcoombs — 2023-12-15 21:43:46 UTC

https://www.cbsnews.com/news/covid-variant-jn1-flu-surge-hospitals-cdc-warns/

"There were many interesting abstracts about the latest research on Long COVID including these two that showed ongoing SARS-CoV-2 viral replication in people with Long COVID".

krcoombs — 2023-12-17 13:49:42 UTC

https://drruth.substack.com/p/covid-news-and-more-121623?publication_id=713112&utm_medium=email&utm_campaign=email-share&triggerShare=true&r=a36iw

"‘We trivialize COVID infections at our peril. Clearly, long COVID remains a looming threat. Moreover, research shows that with each successive COVID-19 infection, we roll the dice. One can be young, healthy, and vaccinated, having experienced only mild symptoms during initial infections–then, almost inexplicably, develop long COVID on the next infection".

krcoombs — 2023-12-17 13:50:22 UTC

https://fortune.com/2023/12/14/covid-19-v-flu-more-serious-threat-new-study-health-carolyn-barber/

"In the open letter published on Monday, health policy experts, leading Long Covid researchers, clinicians, journalists, chronic illness and health advocacy groups, and many others demand that Biden demonstrate support for the millions of Americans with Long COVID and infection-associated chronic conditions (IACCs)"

krcoombs — 2023-12-18 18:00:29 UTC

https://thesicktimes.org/2023/12/18/policy-experts-scientists-disability-groups-urge-biden-to-address-the-long-covid-crisis/

Open letter: https://patientresearchcovid19.com/wp-content/uploads/2023/12/Letter-to-President-Biden-on-Long-COVID-Funding.pdf

"The linkage between blood vessel dysfunction (but not immune activation) and neuroinflammation suggests blood vessel problems could be playing a really major role in these diseases".

krcoombs — 2023-12-21 02:36:33 UTC

https://www.healthrising.org/blog/2023/12/20/blood-vessel-neuroinflammation-long-covid/

"The idea of this meeting is to try and identify pathways that will be treatable and druggable and really make an impact for patients based on the things that we've learned over the last number of years".

krcoombs — 2023-12-22 15:05:23 UTC

https://www.medscape.com/viewarticle/new-research-aims-unravel-both-me-cfs-and-long-covid-2023a1000w

"I know it's hard, but if you're feeling sick, please stay home. Avoid spreading germs to others, especially your loved ones who are at higher risk of getting very sick." CDC Director 12/22/23

krcoombs — 2023-12-23 03:29:47 UTC

https://www.washingtonexaminer.com/policy/healthcare/cdc-director-warns-people-stay-home-christmas-covid-variant?utm_source=msn&utm_medium=referral&utm_campaign=msn_feed

"This is not a universal resource, and unfortunately reflects a Western, U.S.-centric bias in its current form; part of this is structural and due to the fact that the pandemic itself has largely been driven by the United States and its destructive policy choices from the start".

krcoombs — 2023-12-23 19:32:25 UTC

https://covid.tips/#about-the-authors

"Sadly, the tale of generational progress that we have taken for granted in recent generations is no longer a guarantee for Millennial and Gen Z women. The erosion of rights and protections, a complicated economic reality, and the mental health tolls of the political, ecological, and social climate have contributed to a less uncertain future for today’s young women"

krcoombs — 2023-12-24 18:24:37 UTC

https://www.prb.org/wp-content/uploads/2023/11/Losing-More-Ground_Population-Bulletin-Vol-77-No-1.pdf

"However, to realize this potential, BARDA and Project NextGen must prioritize the development of new oral antivirals to address gaps for vulnerable individuals and give us the best chance to finally turn the page on this pandemic".

krcoombs — 2023-12-26 01:47:58 UTC

https://thehill.com/opinion/4366619-project-nextgen-is-ignoring-new-covid-19-antivirals-when-we-need-them-most/https://thehill.com/opinion/4366619-project-nextgen-is-ignoring-new-covid-19-antivirals-when-we-need-them-most/

Biomedical Advanced Research and Development Authority (BARDA)-led Project NextGen

"The good news is that we know a lot more now about how COVID affects the immune system. The bad news is that it really, really does a number on our immune system".

krcoombs — 2023-12-26 03:17:04 UTC

https://www.dailykos.com/stories/2023/12/25/2213619/-Covid-is-not-done-with-us-It-s-just-getting-started-We-really-should-be-paying-attention

"In light of long COVID possibly being cumulative, many of those involved with the disease, from clinicians and scientists to disability advocates and journalists, are so concerned they've signed an open letter to US President Biden urging for more support for the people facing this condition".

krcoombs — 2023-12-27 02:56:42 UTC

https://www.sciencealert.com/every-covid-infection-increases-your-risk-of-long-covid-study-warns

"For me, podcasts were patient companions who didn’t mind repeating themselves, and a descriptive medium when I couldn’t comprehend multimedia".

krcoombs — 2023-12-28 00:34:08 UTC

https://this.org/2023/12/19/how-tv-podcasts-helped-me-regain-my-memory-after-long-covid/

"People with a history of allergies, anxiety or depression, arthritis, and autoimmune diseases and women are among those who appear more vulnerable to developing long COVID".

krcoombs — 2023-12-28 01:27:21 UTC

https://www.medscape.com/viewarticle/long-covid-new-info-who-most-likely-get-it-2023a1000wq4?ecd=WNL_trdalrt_pos1_231227_etid6200233&uac=123390EZ&impID=6200233

"New-onset alcohol reactions and sensitivity can occur after COVID-19 infection in patients with PASC".

krcoombs — 2023-12-29 16:59:16 UTC

https://www.cureus.com/articles/152512-new-alcohol-sensitivity-in-patients-with-post-acute-sequelae-of-sars-cov-2-pasc-a-case-series#!/ PASC = Post Acute Sequelae of SARS-COV-2

"While researchers are hard at work figuring out causes of and treatments for long COVID, we wanted to give you a window into what it’s like to live with it. Three women share their stories here".

krcoombs — 2024-01-02 22:09:06 UTC

https://www.prevention.com/health/health-conditions/a45786978/living-with-long-covid/

"Guidance issued in 2023 on how to formally report long COVID as a cause of death on death certificates should help get a more accurate count of these fatalities going forward".

krcoombs — 2024-01-04 00:56:32 UTC

https://www.medscape.com/viewarticle/long-covid-has-caused-thousands-us-deaths-new-cdc-data-2024a100006l

Guidance: https://www.cdc.gov/nchs/data/nvss/vsrg/vsrg03-508.pdf

"Many people with long Covid feel tired, unwell and in pain for lengthy periods after exercise, and researchers say they now know why".

krcoombs — 2024-01-05 01:10:17 UTC

https://www.theguardian.com/world/2024/jan/04/people-with-long-covid-should-avoid-intense-exercise-say-researchers

"When you think of up to 2 million Americans getting infected in a day, even if only 1% go on to suffer from chronic Covid, which can be profoundly debilitating, that’s 20,000 eventual new long haulers added to the millions here already affected. In one day".

krcoombs — 2024-01-06 01:01:02 UTC

https://open.substack.com/pub/erictopol/p/sotp-state-of-the-pandemic?r=a36iw&utm_campaign=post&utm_medium=web

"Cuomo announced that he's starting a new series where he'll be bringing experts onto his show to discuss long COVID, so that he and his audience can learn more about it, together".

krcoombs — 2024-01-08 03:24:31 UTC

https://boingboing.net/2024/01/07/journalist-chris-cuomo-opens-up-about-his-struggle-with-long-covid.html

"In the meantime, long Covid patient support groups recommend a “stop, rest, pace” approach to avoid severe crashes triggered by certain levels of physical, mental or emotional activity.

krcoombs — 2024-01-09 21:18:14 UTC

https://www.bloomberg.com/news/articles/2024-01-09/exercise-could-be-harmful-for-some-people-with-long-covid-study-shows

"We had an opportunity to radically reimagine and restructure ways of connecting with and caring for each other when COVID-19 emerged. We can still recommit to this work".

krcoombs — 2024-01-11 02:33:12 UTC

https://communitycentricfundraising.org/2024/01/08/community-care-where/

FULL COMMITTEE HEARING: "Addressing Long COVID: Advancing Research and Improving Patient Care". Date: Thursday, January 18th, 2024 Time: 10:00am

krcoombs — 2024-01-11 23:36:29 UTC

https://www.help.senate.gov/hearings

"But, Davis says, all responsibility shouldn’t fall on individuals. She says it’s a “huge injustice” that the government hasn’t done more to warn the public that people can still get Long COVID, and that reinfections can lead to serious health issues".

krcoombs — 2024-01-13 03:50:36 UTC

https://time.com/6554340/covid-19-surge-2024/

Paywall: “The study provides evidence that ‘LC is a tissue-based disease’ meaning.. dysfunction is happening in different organ systems, said @MichaelPelusoMD.”

krcoombs — 2024-01-13 04:00:40 UTC

https://www.sfchronicle.com/health/article/ucsf-study-reveals-immune-system-anomalies-people-18601228.php

"Notably, they found CD4 T cells were in a more inflammatory state in people with long COVID. Meanwhile, CD8 T cells, which normally kill cells infected by viruses or bacteria, showed signs of exhaustion preferentially in people with long COVID".

krcoombs — 2024-01-13 13:23:01 UTC

https://www.insideprecisionmedicine.com/topics/coronavirus/omics-study-suggests-long-covid-involves-viral-persistence/

"This lack of advocacy- the silencing of demands that governments take responsibility for public health- is, of course, the only real goal of minimizing COVID".

krcoombs — 2024-01-14 22:35:11 UTC

https://www.thegauntlet.news/p/learning-to-live-with-covid-means?r=a36iw&utm_campaign=post&utm_medium=web

"Some BIG LC news this week, the US Senate is holding a hearing on Long Covid on Thursday. This is likely the best opportunity LC has to increase exposure and (try to) get more funding".

krcoombs — 2024-01-15 15:36:26 UTC

https://longcovidweekly.substack.com/p/long-covid-weekly-76-long-covid-senate?publication_id=999185&utm_medium=email&utm_campaign=email-share&triggerShare=true&r=a36iw

"This week, we’re excited to share an extensive story examining how Long Covid deeply impacts the Latino community. Miles also reported this week on CDC Director Mandy Cohen avoiding the spotlight during one of the biggest surges of the pandemic".

krcoombs — 2024-01-16 18:07:44 UTC

https://mailchi.mp/thesicktimes/long-covid-hits-hard-for-latinos-where-is-mandy?e=783aa51ef5

"Now, Long COVID patients are a significant demographic who are tired of being told to stay home and/or die. While thousands of studies show long-term damage to people’s bodies after COVID-19, treatments are still alarmingly far off for a rapidly growing population of disabled and severely ill Americans".

krcoombs — 2024-01-17 21:37:41 UTC

https://www.thegauntlet.news/p/senator-tammy-baldwins-chief-to-long

"People need access to specialized care prepared to meet the needs of a person living with Long Covid, disability accommodations are crucial".

krcoombs — 2024-01-18 18:39:39 UTC

https://open.substack.com/pub/emilymendenhall/p/national-academies-of-science-engineering?r=a36iw&utm_campaign=post&utm_medium=email

"Dr. Al-Aly to room of unmasked Senators: Long COVID comes from COVID Advocates were thrilled when the HELP Committee announced a hearing on Long COVID. But why is basic prevention being ignored"?

krcoombs — 2024-01-19 20:05:26 UTC

https://www.thegauntlet.news/p/dr-al-aly-to-room-of-unmasked-senators?r=a36iw&utm_campaign=post&utm_medium=web

"I was a young person of color. Not elderly and white. Now, even the CDC’s data shows that Latina and LGBTQ+ communities are currently experiencing the highest levels of long COVID in the US.”

krcoombs — 2024-01-19 20:27:36 UTC

https://thehill.com/homenews/senate/4417576-senators-more-investment-long-covid-research/

"Indeed, prevention is the only real solution to the ongoing global crisis whose roots are intimately tied to the crisis of capitalism".

krcoombs — 2024-01-19 23:05:44 UTC

https://www.wsws.org/en/articles/2024/01/19/xlsk-j19.html

"Lighting up Long Covid: An important new mechanistic study and a blitz of other reports that help our understanding".

krcoombs — 2024-01-19 23:06:09 UTC

https://erictopol.substack.com/p/lighting-up-long-covid

"Long COVID represents the constellation of long-term health effects of COVID-19. It is a multisystem disease that can affect almost every organ system. It affects the brain, it affects the heart, it affects the endocrine system, it affects the immune system, it affects the gastrointestinal system".

krcoombs — 2024-01-20 03:39:27 UTC

https://24ssports.com/long-covid-expert-at-us-senate-hearing-the-burden-of-illness-and-disability-from-long-covidequivalent-to-the-burden-of-cancer-and-heart-disease/ Dr. Ziyad Al-Aly

"Several Senators pressed the patients and researchers about what more the federal government can do to ease obstacles to care and add resources for clinicians and scientists".

krcoombs — 2024-01-20 04:43:22 UTC

https://www.cidrap.umn.edu/covid-19/patients-experts-take-center-stage-senate-long-covid-hearing

"Long Covid activists disrupted a Senate HELP Committee Hearing on Jan. 18 chanting for a declaration of a national emergency and more funding and treatments before quickly being escorted out".

krcoombs — 2024-01-20 13:22:51 UTC

https://longcovidactionproject.com/long-covid-activists-disrupt-senate-hearing/

"In her written remarks she noted that the current research landscape is "alarmingly disjointed," and that experts across a range of medical specialties "remain siloed." Additionally, the lack of adequate funding is a disincentive for both scientists and drug companies who might otherwise be investigating potential treatments".

krcoombs — 2024-01-20 22:08:43 UTC

https://www.medpagetoday.com/publichealthpolicy/healthpolicy/108345

"I'll say the testimony really underscored just how hard it is to navigate the health care system with this illness. Many doctors aren't familiar with it. Some patients still aren't believed. Long COVID clinics can be hard to get into. And doctors, they can treat symptoms, but as we said earlier, there are no approved treatments".

krcoombs — 2024-01-21 15:45:15 UTC

https://www.wwno.org/2024-01-20/advocates-push-for-greater-investment-in-long-covid-research-at-senate-hearing

"Media and Research this week: This is the first time I can remember highlighting any LC research in Science".

krcoombs — 2024-01-22 21:51:18 UTC

https://longcovidweekly.substack.com/p/long-covid-weekly-77-senate-hearing?publication_id=999185&utm_campaign=email-post-title&r=a36iw

"Dysautonomia International invites US patients, family members, clinicians, and allies to join us in Washington, DC on Tuesday, March 12, 2024 for Dysautonomia Advocacy Day on Capitol Hill"!

krcoombs — 2024-01-24 00:57:27 UTC

https://dysautonomiainternational.salsalabs.org/2024advocacyday/index.html

"Only a full-scale attempt to find clinical treatments for the disease, along with a continuing effort to prevent the spread of the virus in the first place, will provide the pushback that’s needed to control it".

krcoombs — 2024-01-25 03:27:49 UTC

https://fortune.com/2024/01/24/experts-patients-warn-congress-long-covid-government-blows-through-billion-cure-health-carolyn-barber/

"...the event emulated challenges that people with Long Covid face: navigating spaces without precautions against SARS-CoV-2 infection, a lack of accessibility for people with severe symptoms, and insufficient support for accessing healthcare or other facets of daily life".

krcoombs — 2024-01-25 15:08:33 UTC

https://thesicktimes.org/2024/01/23/senate-hearing-highlights-long-covid-crisis-but-not-covid-19-prevention-while-advocacy-groups-bring-their-demands-to-dc/

"...rather than directing future Long Covid funding away from the NIH, Congress should support a more coordinated and collaborative approach to research. This research currently has no “quarterback,” leading to disorganized and redundant work".

krcoombs — 2024-01-25 19:33:40 UTC

https://www.muckrock.com/news/archives/2024/jan/24/recover-long-covid-senators-criticism/

"Striving for fitness is usually healing. But for most people with long COVID, it can be toxic".

krcoombs — 2024-01-26 02:20:39 UTC

https://www.theatlantic.com/health/archive/2024/01/long-covid-exercise-post-exertional-malaise/677242/

"I am on a mission to shed light on a demographic that has been severely impacted by the Covid-19 pandemic, yet their stories remain unheard — Black women. We are proud to present She: Black & (un)Believed — a Black Woman’s #LongCovid Documentary".

krcoombs — 2024-01-26 02:28:13 UTC

https://www.chimereladawn.com/she-black-unbelieved

"I was very disappointed," referring to the WHO's adherence to what he calls "droplet dogma,'" or the misguided belief that SARS-CoV-2 spreads mainly through droplets rather than aerosols. "It hasn't fully recognized the concept that this novel coronavirus is airborne".

krcoombs — 2024-01-27 13:05:32 UTC

https://www.cidrap.umn.edu/covid-19/updated-who-covid-prevention-guidance-may-endanger-rather-protect-some-experts-say

"COVID-19 Antiviral Drugs Promise Speedier Recoveries. But They’re Not Available in the U.S.".

krcoombs — 2024-01-27 16:03:04 UTC

https://time.com/6588624/covid-19-antiviral-treatments-us/

"Several studies have demonstrated that SARS-CoV-2 persists in the human body, both in adults and children, almost in every organ including the central nervous system".

krcoombs — 2024-01-28 15:21:45 UTC

https://danilobuonsenso.substack.com?utm_source=navbar&utm_medium=web&r=a36iw

"Today, I can mostly manage my symptoms provided I do the following, every day: take my prescription medications; maintain a low-stress environment; get a “sensory break” midday (rest in a dark, quiet room); exercise only when symptoms permit; get adequate sleep; pace my activities (stop to rest before triggering symptoms); and avoid catching a bacterial/viral infection".

krcoombs — 2024-01-29 04:06:06 UTC

I was young and fit, and suddenly too exhausted to get out of bed https://www.washingtonpost.com/wellness/2024/01/28/fibromyalgia-chronic-fatigue-syndrome-challenges-stigma/

"Failures of the US healthcare system in supporting Covid patients, the exorbitant cost of Paxlovid, the pursuit of compensation for long Covid, the potential benefits of probiotics, the association between handgrip strength and functional outcomes in Long Covid patients +"

krcoombs — 2024-01-29 16:31:25 UTC

https://longcovidweekly.substack.com/p/long-covid-weekly-78-low-handgrip?publication_id=999185&utm_campaign=email-post-title&r=a36iw

"While the National Institutes of Health said these can qualify for disability under insurance and social security, it can be hard to prove for patients. It's so new, the insurance companies are really requiring objective medical evidence as well as consistent treatment".

krcoombs — 2024-01-31 19:24:26 UTC

https://www.abc12.com/news/local/long-covid-remains-medical-mystery-while-causing-frustration-for-millions/article_3a8ec76a-bfc8-11ee-bb91-bb72f18295e1.html

"Healthy people forecasted that they would be unlikely to hide harmful illnesses—those that spread easily and have severe symptoms—but actively sick people reported high levels of concealment regardless of how harmful their illness was to others."

krcoombs — 2024-02-01 12:18:58 UTC

https://www.cidrap.umn.edu/misc-emerging-topics/three-fourths-adults-have-hidden-infectious-illness-work-travel-or-socialize

“And, that’s the zombie part — after you destroy this virus that should be dead, it's not. It actually can reassemble into these complexes that can have very strong immune activation ability.”

krcoombs — 2024-02-03 03:29:10 UTC

https://www.salon.com/2024/02/02/zombie-19-fragments-linger-for-some-causing-severe-disease-outcomes-new-research-reveals/

"How long does it take after getting infected to test positive? When can you unmask after testing negative? And when should I get my booster? And if you do get sick, does that give you months of protection against another infection"?

krcoombs — 2024-02-03 13:58:01 UTC

https://www.npr.org/sections/goatsandsoda/2024/01/28/1226882337/coronavirus-faq-how-long-does-my-post-covid-protection-last-when-is-it-booster-t

"She: Black & (un)Believed — a Black Woman’s #LongCovid Documentary, a film in pre-production that aims to unveil the humanity of these women by honoring their experiences, struggles, dreams, and joys".

krcoombs — 2024-02-03 16:12:36 UTC

https://www.chimereladawn.com/she-black-unbelieved

“Kids come to our Long COVID clinic who have been dismissed as being lazy or choosing school avoidance. It’s not the case.”

krcoombs — 2024-02-03 16:32:51 UTC

https://www.psychologytoday.com/us/blog/risking-it/202401/my-sons-long-covid-journey-nearly-crushed-me

"As long as the public remains in the dark, believing that COVID is “mild,” “over,” “a cold,” they will believe mitigation- including vaccines- is totally unnecessary. Communicating COVID’s severity is critical to controlling its spread. Right now, the CDC shows interest in neither".

krcoombs — 2024-02-05 22:06:22 UTC

https://www.thegauntlet.news/p/cdc-hides-replies-referencing-the

"A collection of articles that delve into the prevalence and impact of Long Covid on individuals, cognitive dysfunction, potential relief provided by tech-assisted breathing exercises, and exciting developments in research funding."

krcoombs — 2024-02-06 15:45:03 UTC

https://longcovidweekly.substack.com/p/long-covid-weekly-79-covid-remnants?publication_id=999185&utm_campaign=email-post-title&r=a36iw

"While it provides concrete evidence around the damage the virus is doing to the brains of patients who contracted severe COVID-19, researchers don't know about the impact on those who had less serious cases of the virus".

krcoombs — 2024-02-09 23:33:24 UTC

https://www.medscape.com/viewarticle/new-evidence-suggests-long-covid-could-be-brain-injury-2024a10002v0

"Are we getting closer and closer to the era when we fully elucidate the whole impact of viral infections on humans? It definitely seems so".

krcoombs — 2024-02-11 14:55:17 UTC

https://open.substack.com/pub/danilobuonsenso/p/long-covid-and-viral-persistence?r=a36iw&utm_campaign=post&utm_medium=web

"Part of the body's immune system called the complement system, which normally fights off infection by killing infected cells, remains active in people with long Covid, continuing to attack healthy targets and causing tissue damage".

krcoombs — 2024-02-11 18:04:34 UTC

https://news.yahoo.com/researchers-start-clues-trail-long-091547913.html

"Every time you get infected [with COVID], it does harm to the body in some way,” says Avindra Nath, a neurologist at the National Institutes of Health".

krcoombs — 2024-02-14 12:35:18 UTC

https://www.scientificamerican.com/article/how-risky-are-repeat-covid-infections-what-we-know-so-far/

"If a child does get infected, emerging evidence suggests they should rest as much as possible in hopes of preventing complications. Kids who already have Long COVID can also benefit from extra rest and reduced activity".

krcoombs — 2024-02-15 02:22:14 UTC

https://time.com/6205539/long-covid-kids-symptoms/

"Moreover, the development of promising screening tools to differentiate taste loss from smell loss in COVID-19 patients could be instrumental in providing targeted care and treatment".

krcoombs — 2024-02-15 12:39:59 UTC

https://medriva.com/covid-19/the-impact-of-covid-19-on-olfactory-function-and-possible-neurocognitive-consequences/

"It's now clear that COVID-19 plays some role in impacting the nervous system, and in some cases this impact can continue for an extended period. This new study shows that the effects can be similar to brain injuries".

krcoombs — 2024-02-16 03:29:53 UTC

https://www.sciencealert.com/long-covid-seems-to-be-a-brain-injury-scientists-discover

"The NIH said that the funding would be used to test additional treatments in clinical trials, to study how long Covid affects each part of the body, to examine who fully recovers long term, and to maintain research infrastructure".

krcoombs — 2024-02-16 03:33:25 UTC

https://www.statnews.com/2024/02/15/long-covid-nih-funding-boost/

"Despite its failings thus far, and its weird and late-to-the-party treatment trials (only 4 of which are underway), it’s seemingly ultraconservative approach, the RECOVER Initiative is still an impressive program that everyone with long COVID or ME/CFS or other post-infectious diseases should desperately want to succeed".

krcoombs — 2024-02-16 23:27:59 UTC

https://www.healthrising.org/blog/2024/02/16/struggling-long-covid-recover-initiative-gets-500-million-lifeline/

"A new study, published in the journal Nature Communications, suggests that some of these symptoms may persist or worsen as those with long COVID-19 experience biological changes in their bodies after working out — most notably involving their muscles".

krcoombs — 2024-02-16 23:49:36 UTC

https://nypost.com/2024/02/16/lifestyle/long-covid-can-destroy-your-ability-to-exercise-or-do-simple-tasks-now-we-may-know-why/

"Those who have had COVID-19 are about four times more likely to develop chronic fatigue compared to those who haven't been infected, according to a new study released by the Centers for Disease Control and Prevention (CDC)".

krcoombs — 2024-02-18 16:57:14 UTC

https://dailyvoice.com/new-york/nassau/covid-19-those-infected-with-virus-4-times-more-likely-to-develop-chronic-fatigue-cdc-says/

"The possibility of my contracting COVID, not taking nirmatrelvir/ritonavir, and dying was simply less compelling than the notion that the country might run out of the drug".

krcoombs — 2024-02-18 19:09:23 UTC

https://www.medpagetoday.com/opinion/second-opinions/108763

"Welcome to the COVID Toolbox, the hub where you can find a range of content, such as articles, selected links, helpful graphics, and informative videos".

krcoombs — 2024-02-18 22:30:28 UTC

https://covidtoolbox.com/long-covid/

"The mood was optimistic, Stone said, but when patients said long Covid needed more attention from President Biden, his representatives mentioned a single instance when he had mentioned long Covid".

krcoombs — 2024-02-18 23:22:09 UTC

Could Long Covid Be the Senate’s Bipartisan Cause? https://www.nytimes.com/2024/02/18/opinion/long-covid-research-funding.html?smid

“Our finding that Paxlovid treatment during acute infection is not associated with lower odds of long COVID surprised us, but it is consistent with two other rigorously conducted studies".

krcoombs — 2024-02-19 04:02:39 UTC

https://scitechdaily.com/effectiveness-questioned-study-finds-that-paxlovid-fails-to-reduce-long-covid-risk/

"Dr. Gross says while the research currently indicates that long COVID is more prevalent in adults, it’s a common misconception that children are not at risk".

krcoombs — 2024-02-19 12:43:37 UTC

https://www.parents.com/understanding-long-covid-in-children-8578848

"I was hoping that, like we learned from this pandemic, that they would learn that infections hurt people".

krcoombs — 2024-02-20 01:51:27 UTC

https://theworld.org/stories/2024-02-16/why-kids-struggle-long-covid-0

"It also confirms that the neurological symptoms of Long Covid are measurable with real and demonstrable metabolic and vascular changes in the brain".

krcoombs — 2024-02-23 03:02:00 UTC

https://www.cidrap.umn.edu/covid-19/researchers-identify-mechanism-behind-brain-fog-long-covid

"While we wait for governments to recognize the severity of the problem and the need for action, we recommend people do whatever is reasonably possible to reduce the severity and number of SARS-CoV-2 infections they experience over their lifetime".

krcoombs — 2024-02-23 03:28:17 UTC

https://johnsnowproject.org/primers/long-covid-is-one-of-the-worlds-biggest-challenges/

"While IFN-y production eventually ebbed among folks whose COVID symptoms resolved, IFN-γ levels remained stubbornly high among those with long COVID. Krishna noted that interferon gamma's effects on people are already well-known, since it can be used as a medication".

krcoombs — 2024-02-23 21:48:01 UTC

https://www.upi.com/Health_News/2024/02/22/scientists-key-to-long-COVID/1621708611073/

"COVID news & more, 2/24/24"

krcoombs — 2024-02-25 18:56:56 UTC

https://drruth.substack.com/p/covid-news-and-more-22424?publication_id=713112&utm_campaign=email-post-title&r=a36iw&utm_medium=email

"Doctors say there’s evidence that repeat Covid infections could increase your risk for many other health problems, including diabetes, heart conditions, gastrointestinal diseases, and long Covid".

krcoombs — 2024-02-26 03:05:09 UTC

https://archive.ph/2024.02.22-120254/https://www.menshealth.com/health/a46787039/how-covid-reinfection-impacts-health/

"Like a lot of aspects of SARS-CoV-2 infection, because it [brain fog] doesn’t necessarily manifest during acute disease it tends to be overlooked. This, to me, is another reason why the reluctance of western governments to suppress prevalence of this virus is […] mind-bogglingly negligent”.

krcoombs — 2024-02-26 19:23:06 UTC

https://www.medicalnewstoday.com/articles/what-have-we-learned-about-brain-fog-in-long-covid-so-far

"Fortunately, times are changing. No senator, Democrat or Republican, at the recent hearing questioned the medical reality of long COVID, perhaps because at least three senators, including committee member Tim Kaine (D-Va.), have themselves suffered from it".

krcoombs — 2024-02-26 19:50:36 UTC

https://thehill.com/opinion/healthcare/4488127-the-medical-gaslighting-of-long-covid-patients-could-be-nearing-its-end/

"Instead, researchers need to be testing multiple approaches simultaneously, using complex, cutting-edge clinical trial designs to see which combinations of therapies will help which patients, Putrino said".

krcoombs — 2024-02-27 15:45:36 UTC

https://www.usatoday.com/story/news/health/2024/02/26/long-covid-treatments-out-of-reach/72690587007/

"And because there are so many forms Long COVID can take, it can be difficult for patients and doctors to know what’s going on".

krcoombs — 2024-02-28 15:01:10 UTC

https://time.com/6835566/what-are-long-covid-symptoms/

"The 2 new studies are the largest to date to prospectively assess Covid impact on cognitive function, and both are consistent in showing declines as compared with controls without Covid".

krcoombs — 2024-02-28 22:12:49 UTC

https://erictopol.substack.com?utm_source=navbar&utm_medium=web&r=a36iw

"An NIH study expands on a body of research locating objective markers of ME/CFS in the brain, the immune system, the gut, and beyond".

krcoombs — 2024-02-28 23:21:13 UTC

https://www.health.harvard.edu/blog/is-chronic-fatigue-syndrome-all-in-your-brain-202402283020

"The deficits identified in this study have been associated with other symptoms reported by people with long COVID".

krcoombs — 2024-03-01 04:27:27 UTC

https://www.medpagetoday.com/neurology/longcovid/108965

"The CDC and proponents of reducing isolation don’t mention one critical point—the tissue damage from Covid-19".

krcoombs — 2024-03-02 12:15:29 UTC

https://www.forbes.com/sites/judystone/2024/03/01/cdc-drops-five-day-covid-19-isolation-despite-controversy/?sh=60cc51e19d89

"Morgan and his colleagues have pinpointed an immune system anomaly in the blood of some of these long haulers. A drug that targets that quirk might be one way to treat their disease".

krcoombs — 2024-03-04 21:21:05 UTC

https://www.sciencenews.org/article/long-covid-biomarkers-blood-paxlovid

“He said he felt like he was in prison for not doing anything wrong,” she said. “His mental health declined throughout this time because of his feeling of loneliness".

krcoombs — 2024-03-10 13:11:44 UTC

https://triblive.com/local/regional/understanding-whats-driving-long-covid-is-still-largely-a-mystery-to-doctors/

"Perry Halkitis, dean of the Rutgers School of Public Health and a former member of ACT UP himself, thinks long COVID activists are the best hope now for waking up Americans to the long-term implications of this disease and the need to fund research and better vaccines, when only 20% got the last booster".

krcoombs — 2024-03-10 19:21:04 UTC

https://www.nj.com/opinion/2024/03/we-ignored-aids-lets-not-repeat-the-mistake-on-long-covid-editorial.html

“How do I talk about it when people just want to forget about it?” she says. “I don't get to forget. I live with it every single day. My body lives with it, my mind lives with it. But how do you bring that into conversation?”

krcoombs — 2024-03-12 12:52:15 UTC

https://time.com/6852852/long-covid-pandemic-anniversary/

"For the first time, we have been able to show that leaky blood vessels in the human brain, in tandem with a hyperactive immune system may be the key drivers of brain fog associated with Long COVID".

krcoombs — 2024-03-12 12:59:02 UTC

https://www.newsweek.com/living-long-covid-feel-poisoned-1875191

3/12: "Continuing the tentatively good news from last week, all major Covid-19 metrics are trending toward declining disease spread. But there’s still a lot of this virus going around".

krcoombs — 2024-03-13 21:33:45 UTC

https://thesicktimes.org/2024/03/12/national-covid-19-trends-march-12/

"It was found in connective tissue where immune cells are located, suggesting that the viral fragments could be causing the immune system to attack".

krcoombs — 2024-03-13 22:09:13 UTC

https://www.huffingtonpost.co.uk/entry/scientists-may-have-found-the-underlying-cause-of-long-covid_uk_65f1795ee4b01707c6d275ab

“This resolution is a major step in letting the Long Covid community know that we are not being left behind, that we are seen, that Long Covid is real, and that there are people still fighting for us,” Karyn Bishof, founder and president of C19LAP".

krcoombs — 2024-03-15 15:28:58 UTC

https://thesicktimes.org/2024/03/15/sen-bernie-sanders-introduces-resolution-to-formalize-long-covid-awareness-day/

"A growing number are calling for increased research funding and the creation of a new body at the National Institutes of Health to study chronic conditions that spring from infections".

krcoombs — 2024-03-15 16:17:25 UTC

https://www.statnews.com/2024/03/15/nih-office-for-chronic-disease-post-infections-long-covid/

"It’s very troubling to me that those risks are not being shared with the public,” he continued. “Allow people to make their own decisions, but give them all the information to make their own decisions”.

krcoombs — 2024-03-15 16:46:09 UTC

https://www.theguardian.com/world/2024/mar/15/long-covid-symptoms-cdc

"There's not a one-size-fits-all approach to treat long-COVID symptoms," said Ganesh. "You really need to work with the patient and possibly even cycle through several different medications before you find one that helps".

krcoombs — 2024-03-16 13:49:00 UTC

https://www.medscape.com/viewarticle/five-keys-helping-long-covid-patients-recover-2024a10004v7

"Maybe the blood brain barrier disruption seen in some concussion patients applies to long COVID brain fog, too, the researchers surmised".

krcoombs — 2024-03-17 12:04:27 UTC

https://www.sciencenews.org/article/long-covid-brain-fog-blood-brain-barrier-damage

"As Covid is increasingly treated like any other respiratory disease, those of us with lingering symptoms are being left behind".

krcoombs — 2024-03-17 17:19:17 UTC

https://www.rollingstone.com/culture/culture-features/long-covid-problem-world-moving-on-1234988684/

"People have been calling this the pandemic in the pandemic. And I absolutely believe this is gonna be happening within the next five to 10 years”.

krcoombs — 2024-03-18 17:20:32 UTC

https://www.graydc.com/2024/03/15/patients-advocates-come-washington-long-covid-awareness-day/

"Many protestors shared demands for the federal government: to declare Long Covid a national emergency, for immediate treatments, and for more federal support and acknowledgment of the disease".

krcoombs — 2024-03-18 20:02:27 UTC

https://thesicktimes.org/2024/03/18/photo-essay-long-covid-advocates-gather-in-dc-for-demonstration/

"It’s hard to think of anything more awful than attacking people your policies already disabled. But discrediting victims is the only way to continue to double down on forever COVID infections".

krcoombs — 2024-03-18 20:47:32 UTC

Media celebrated Long COVID Awareness Day by denying its existence (thegauntlet.news )

“Companies would benefit economically by making the buildings safer for their own workers, right? That way there are less sick days and people are more productive, and it’s just better for their health,” Dr. Iwasaki said. “It shouldn’t be up to the individual to have to spend their own money trying to do this.”

krcoombs — 2024-03-22 12:54:13 UTC

https://www.marketplace.org/2024/03/20/protecting-yourself-from-covid-19-these-days-is-hard-and-it-comes-at-a-cost/

“We never have had especially systematic surveillance for respiratory pathogens in the United States, but it’s even less systematic now. Our understanding of the burden of these pathogens, much less their evolution, has been really compromised.”

krcoombs — 2024-03-24 12:37:22 UTC

https://www.nytimes.com/2024/03/22/health/coronavirus-evolution-immunity.html

"Taken together, these studies show that COVID-19 poses a serious risk to brain health, even in mild cases, and the effects are now being revealed at the population level".

krcoombs — 2024-03-25 03:41:32 UTC

https://people.com/covid-linked-lower-iq-poor-memory-other-negative-impacts-brain-health-8619254

"Studies reveal the virus's impact on placental health and potential treatments for post-COVID cognitive deficits. We see advances in understanding long COVID's pathophysiology, including its role in cardiovascular complications and lower urinary tract symptoms".

krcoombs — 2024-03-26 16:12:38 UTC

https://longcovidweekly.substack.com/p/long-covid-weekly-86-predicting-long

"Though it may not feel like it, a significant portion of U.S. adults still care about COVID-19".

krcoombs — 2024-03-28 02:06:51 UTC

https://time.com/6960789/covid-19-cautious-americans/

"Recognizing and dealing with these conceptual and methodologic issues could help guide the construction of a valid, non-stigmatizing, case definition for long Covid".

krcoombs — 2024-03-28 17:21:13 UTC

https://undark.org/2024/03/28/opinion-define-long-covid/

"Dizziness with COVID-19 might be an early symptom of the infection. It can last for days or weeks. For some people, dizziness may go on for weeks or months due to long COVID".

krcoombs — 2024-03-29 20:14:28 UTC

https://www.verywellhealth.com/is-dizziness-a-symptom-of-covid-8373849

"We call on our elected leaders to commit to continued funding of programs for the HIV community, and to creating new programs to support those with ME/CFS or long COVID. As a nation it is essential to prioritize healthcare over warfare".

krcoombs — 2024-03-29 21:08:50 UTC

https://amsterdamnews.com/news/2024/03/27/the-covid-19-pandemic-has-left-millions-disabled-including-many-of-us-with-hiv-its-time-to-fight-for-disability-justice/

"Yet, the Stanford experts say, those diseases receive billions of research dollars annually while long COVID research remains woefully underfunded".

krcoombs — 2024-03-30 12:07:11 UTC

https://scopeblog.stanford.edu/2024/03/27/long-covid-symptoms-sufferers-misdiagnosed/

"The proportion of children infected with COVID-19 while riding a bus to a school in Germany was about four times higher than in peers who didn't ride the bus". N=191 (2021)

krcoombs — 2024-03-31 12:02:55 UTC

https://www.cidrap.umn.edu/covid-19/probe-links-covid-spread-school-bus-riders-sick-driver?utm

"The team discovered that ongoing inflammation – a natural part of the immune response to infection – and low iron levels in blood, contributing to anemia and disrupting healthy red blood cell production, could be seen as early as two weeks post COVID-19 in those individuals reporting long COVID many months later".

krcoombs — 2024-03-31 15:33:11 UTC

https://scitechdaily.com/the-iron-twist-the-unexpected-driver-of-long-covid/

"Just a few months ago in OpenMind, we covered longstanding efforts to label as head cases and confabulators individuals with fibromyalgia, myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), persistent symptoms of Lyme disease, and long covid".

krcoombs — 2024-04-03 02:28:27 UTC

https://goodmenproject.com/featured-content/not-in-your-head/