https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0 en-us 2020-11-05 15:42:35 UTC 2025-10-30 15:03:25 UTC hello@padlet.com https://padlet-uploads.storage.googleapis.com/237536585/b72742041d421eeda4750d53294aaa66/download.jpeg 23felipem1_1 https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/894493800 2020-11-05 15:45:20 UTC https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/894493800 23felipem1_1 https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/894511849 Cystic Fibrosis is a hereditary disorder that is formed by the makeup of genes. Cystic Fibrosis causes the mucus in the patient's lungs to become sticker and thicker. There are many ways that CF patients can be treated, but there is no cure. Some of these treatments include particular medicine, including vitamins, enzymes, and antibiotics. Physiotherapy helps clear out the lungs as well as being massaged. Lastly, a nebulizer helps keep the harmful germs out of the patient's lungs. These harmful germs live and grow in the thick mucus, which causes CF patients to cough more than the average person. When a CF patient coughs, others are unharmed by the germs because CF is not contagious. 

]]> 2020-11-05 15:48:48 UTC https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/894511849 23felipem1_1 https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/894563607 2020-11-05 15:59:23 UTC https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/894563607 23felipem1_1 https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/894568022 Cystic Fibrosis is a chronic lung disease that affects the digestive system, pancreatic, etc. Treatments are needed to be done every day, twice a day, to help with the build up of mucus in those areas. Addy has to perform breathing treatments as-well-as, taking chest pt's to help her live and feel her best and most healthy self.  The Children's Hospital of Richmond has almost found a cure for Addy's specific form of CF through intensive research. ]]> 2020-11-05 16:00:19 UTC https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/894568022 23felipem1_1 https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/904032166 (24 minutes) ]]> 2020-11-09 13:27:44 UTC https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/904032166 23felipem1_1 https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/904041202 Cystic Fibrosis is caused by  an abnormal protein that doesn't let salt in and out of cells normally, which leads to the thick mucus in the lungs lining. It also affects the chloride channel of a cell. This gene is located on chromosome 7 and is the 3rd leading genetic condition that affects live borns. Also, it is the most common in caucasians. To conclude, cystic fibrosis affects sinus, sweat glands, lungs, liver, pancreas, intestines, male reproductive tract, as well as female fertility. 

]]> 2020-11-09 13:30:09 UTC https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/904041202 23felipem1_1 https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/904121551 2020-11-09 13:49:21 UTC https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/904121551 23felipem1_1 https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/904127725  The cells in the body do not manage salt correctly, with affects the mucus membranes.  A lot of medication and preventive care is required to treat CF/manage the salt correctly. On the bright side, a child with CF can have a normal life with medication. (going to school, playing sports, going to college, etc.) ]]> 2020-11-09 13:50:44 UTC https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/904127725 23felipem1_1 https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/916408655 2020-11-12 13:51:55 UTC https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/916408655 23felipem1_1 https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/916416384  A cystic fibrosis patient's airway in the lungs has bacterial growth that crates the thick sticky mucus. This closes in the airway and makes it smaller. This causes 90% of CF patients to have pancreatic deficiency. Pancreatic deficiency can harm a patients growth. But, the brain is not affected by CF. Children's brains  will be able to grow and think just like a healthy individual. Ultimately, 38 years of age is the average predicted life span for someone with CF. 

]]> 2020-11-12 13:53:49 UTC https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/916416384 23felipem1_1 https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/916442723 2020-11-12 13:59:45 UTC https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/916442723 23felipem1_1 https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/916451676 Cystic Fibrosis is caused by a mutation in the cystic fibrosis transmembrane conductance regulatory gene.  This mutation is on Chromosome 7. CF patients have high sweat levels, pancreatic insufficiencies,  and lung infection. But, the severity of the disease ranges with every case. ]]> 2020-11-12 14:01:39 UTC https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/916451676 23felipem1_1 https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/916556582 2020-11-12 14:22:46 UTC https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/916556582 23felipem1_1 https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/916570130 If both parents have the CF gene, there is a 1 in 4 chance that you would be born with the condition, and about 1 in 25 people carry the gene. When a child with CF is waiting for a diagnosis, some symptoms include: 
- Frequent Chest Infections
- Prolonged Coughs 
- Shortness of Breath 
- Abnormal Bowel Movements 
- Difficulty Gaining Weight
- More common in men is Infertility. 
Three ways to help a CF patient from a medical standpoint are physiotherapy, which helps shifts the mucus, enzyme capsules that are needed to be taken with food, and lastly a special high fat diet is needed for a patient with CF to make sure that they are getting all the nutrients that they need. 
To conclude, an interesting fact is every week in the UK 2 people die of CF and 5 more babies are born with it. ]]> 2020-11-12 14:25:30 UTC https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/916570130 23felipem1_1 https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/916621480 2020-11-12 14:35:40 UTC https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/916621480 23felipem1_1 https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/916625954  By detecting Cf early, it can help the babies health in the long run. CF can be detected by screenings. If the screening shows one CF mutation- it is most likely that the baby is just a carrier. Less than 10% that the baby will have a second mutation and have cystic fibrosis. A sweat test is used to have the baby sweat so that they can test and measure the salt content.  If the sweat test shows that the salt levels are high then there is a good chance that the baby has cystic fibrosis. They use a device to collect the sweat, this last for about 30 minutes.  If they don't get enough sweat for the test to be valid, they wait a couple of weeks for the baby to get bigger and re test. They measure the salt content in a lab. And, the results are usually given in the same day. 

]]> 2020-11-12 14:36:34 UTC https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/916625954 23felipem1_1 https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/920021548 2020-11-13 13:37:55 UTC https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/920021548 23felipem1_1 https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/920024129 CF causes chest pain as-well as access mucus in the pancreas on top of the thick sticky mucus located in the lungs. This disease is most prominent in North America, Europe, and Australasia.  Treatments slow some of the lung changes down, so that death comes later. Lastly, gene therapy holds a great promise in treating cystic fibrosis. 

]]> 2020-11-13 13:38:42 UTC https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/920024129 23felipem1_1 https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/920046893 2020-11-13 13:45:22 UTC https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/920046893 23felipem1_1 https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/920049375 Many years ago CF was a childhood disease because patients did not have a high life expectancy. Now, the average life expectancy now in the United States is 43 years. This disease is still prominent, the respiratory symptoms include 
- Frequent coughing 
- Frequent wheezing 
- Frequent lung and sinus infections 
- Poor digestion of food results in
             - frequent diarrhea 
             - poor weight gain

Sadly, Cystic Fibrosis can lead to liver disease and diabetes. 

]]> 2020-11-13 13:46:03 UTC https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/920049375 23felipem1_1 https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/920098937 2020-11-13 13:59:45 UTC https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/920098937 23felipem1_1 https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/920101028 2020-11-13 14:00:16 UTC https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/920101028 23felipem1_1 https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/923548363 2020-11-15 01:43:29 UTC https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/923548363 23felipem1_1 https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/923548767 2020-11-15 01:44:16 UTC https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/923548767 23felipem1_1 https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/923549105 2020-11-15 01:44:47 UTC https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/923549105 23felipem1_1 https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/923549886 2020-11-15 01:46:03 UTC https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/923549886 23felipem1_1 https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/923566486 2020-11-15 02:15:40 UTC https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/923566486 23felipem1_1 https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/923566925 2020-11-15 02:16:22 UTC https://padlet.com/23felipem1_1/ydgmrwtn5yl6dsr0/wish/923566925