TSA Research Priorities Community Ideas Board by TSA Research https://padlet.com/TSA_research/xuteqac4nopbgyok en-us 2025-05-22 14:17:46 UTC 2025-06-16 13:22:35 UTC hello@padlet.com https://padlet-uploads.storage.googleapis.com/3879200016/32a5d70c87b01112ce8a4e35b7fadf52/TSA_Research_Priorities_Ideas_Board_4.png Start here and listen to the message from our research team. You can get in touch with us at: research@tuberous-sclerosis.org or comment any questions below TSA_research https://padlet.com/TSA_research/xuteqac4nopbgyok/wish/3463373487 2025-05-22 14:46:28 UTC https://padlet.com/TSA_research/xuteqac4nopbgyok/wish/3463373487 What is your connection to TSC? TSA_research https://padlet.com/TSA_research/xuteqac4nopbgyok/wish/3463377833 2025-05-22 14:49:54 UTC https://padlet.com/TSA_research/xuteqac4nopbgyok/wish/3463377833 How old is the person living with TSC? TSA_research https://padlet.com/TSA_research/xuteqac4nopbgyok/wish/3463380235 2025-05-22 14:51:47 UTC https://padlet.com/TSA_research/xuteqac4nopbgyok/wish/3463380235 Where do you live? TSA_research https://padlet.com/TSA_research/xuteqac4nopbgyok/wish/3463381989 Please comment below whether you live in:

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]]> 2025-05-22 14:52:53 UTC https://padlet.com/TSA_research/xuteqac4nopbgyok/wish/3463381989 What are the most important unanswered questions in TSC? TSA_research https://padlet.com/TSA_research/xuteqac4nopbgyok/wish/3463392442 2025-05-22 15:00:26 UTC https://padlet.com/TSA_research/xuteqac4nopbgyok/wish/3463392442 What do you wish doctors or researchers better understood about your experience? TSA_research https://padlet.com/TSA_research/xuteqac4nopbgyok/wish/3463392652 2025-05-22 15:00:35 UTC https://padlet.com/TSA_research/xuteqac4nopbgyok/wish/3463392652 What is the hardest part of daily life with TSC? TSA_research https://padlet.com/TSA_research/xuteqac4nopbgyok/wish/3463632195 2025-05-22 18:49:39 UTC https://padlet.com/TSA_research/xuteqac4nopbgyok/wish/3463632195 How does TSC affect your family, work, or emotional well-being? TSA_research https://padlet.com/TSA_research/xuteqac4nopbgyok/wish/3463632426 2025-05-22 18:49:55 UTC https://padlet.com/TSA_research/xuteqac4nopbgyok/wish/3463632426 Are there questions you’ve asked your doctor that didn’t have a clear answer? TSA_research https://padlet.com/TSA_research/xuteqac4nopbgyok/wish/3463633357 2025-05-22 18:51:05 UTC https://padlet.com/TSA_research/xuteqac4nopbgyok/wish/3463633357 If researchers could focus on one thing, what would you choose? Why? TSA_research https://padlet.com/TSA_research/xuteqac4nopbgyok/wish/3463633528 2025-05-22 18:51:19 UTC https://padlet.com/TSA_research/xuteqac4nopbgyok/wish/3463633528 Include any other comments you would like to make here TSA_research https://padlet.com/TSA_research/xuteqac4nopbgyok/wish/3463642068 2025-05-22 19:00:28 UTC https://padlet.com/TSA_research/xuteqac4nopbgyok/wish/3463642068 Include any other comments you would like to make here TSA_research https://padlet.com/TSA_research/xuteqac4nopbgyok/wish/3463642283 2025-05-22 19:00:41 UTC https://padlet.com/TSA_research/xuteqac4nopbgyok/wish/3463642283