https://padlet.com/18sabovica/wxuhloh5tz1p en-us 2017-11-21 01:36:55 UTC 2023-05-01 15:42:47 UTC hello@padlet.com 18sabovica https://padlet.com/18sabovica/wxuhloh5tz1p/wish/208952017 2017-11-21 03:30:00 UTC https://padlet.com/18sabovica/wxuhloh5tz1p/wish/208952017 18sabovica https://padlet.com/18sabovica/wxuhloh5tz1p/wish/208952274 In this video Sofia Sanchez speaks about a commonly misunderstood interpretation of down's syndrome. Going Viral within a month, Sofia's message got across to millions of people that down's syndrome is not something to be afraid of. In fact, this video puts out a message that every person should be treated the same way despite their appearance. In the video Sofia's mother asks her "Is down's syndrome scary and she replies with an enthusiastic "No it's not scary, it's so exciting" This video is very special because it shows how at such a young age Sofia is proud of herself and confident to tell the world that. ]]> 2017-11-21 03:31:39 UTC https://padlet.com/18sabovica/wxuhloh5tz1p/wish/208952274 18sabovica https://padlet.com/18sabovica/wxuhloh5tz1p/wish/208955329 John and Michelle Hibbs talk about raising their son Liam, who has Down syndrome, and their hopes for his future. They both talk about how they fear people will talk to him and treat him because of his down syndrome. One major piece of advice Michelle gives people is to stay up to date and to not read false information from the internet because there is so much potential that is not being accounted for. Both of these parents goals are to have Liam be raised as a typical child. They mention that they want him to have a beer, get in some trouble, and experience things that any teenager or young adult would.]]> 2017-11-21 04:00:09 UTC https://padlet.com/18sabovica/wxuhloh5tz1p/wish/208955329 18sabovica https://padlet.com/18sabovica/wxuhloh5tz1p/wish/208959301 This video is also a part of a series on youtube. Stephanie Thompson narrates the shows and talks about the process of adoption with kids that have down syndrome. Stephanie is the head of the National Down Syndrome Adoption Network who finds families desperate to give babies with Down syndrome a home. At the beginning we meet Megan who plans on having a embryo transplanted into her with the hope of giving birth to a child of her own with down syndrome. If done successfully this would be a worlds first. For the rest of the video, Stephanie and her husband bring us through their journey of raising their own child Chris. At the time Chris is twenty five an lives in a facility where he is cared for by professionals. Chris's main issue is his behaviors, he tends to be very violent and has injured several people which is why he can not be taken care of at home. When Stephanie and Jon go to visit Chris he threw up and attacked Jon. He later talks about how when they have a bad visit like they did, Stephanie tends to act up which causes her to get PTSD which she seeks help for. ]]> 2017-11-21 04:37:51 UTC https://padlet.com/18sabovica/wxuhloh5tz1p/wish/208959301 18sabovica https://padlet.com/18sabovica/wxuhloh5tz1p/wish/209097648 2017-11-21 14:16:04 UTC https://padlet.com/18sabovica/wxuhloh5tz1p/wish/209097648 18sabovica https://padlet.com/18sabovica/wxuhloh5tz1p/wish/209099505 Down Syndrome is not a disease it is not treatable. It is caused by an error in cell division during the development of the embryo. This leads to an extra copy of chromosome 21 or trisomy 21. More than 7 million people have down syndrome today and there is a one in one-thousand chance of having a baby with down syndrome. This condition can be detected before a child is born through many different examinations. Nuchal Translucey can be detected through ultra sound and is seen as a collection of fluid beneath fetal skin in the neck. The other way to detect it is from the view of the fetal nasal bone. There should be 3 distinct lines and if not found it is most likely assumed to be down syndrome.]]> 2017-11-21 14:19:43 UTC https://padlet.com/18sabovica/wxuhloh5tz1p/wish/209099505 18sabovica https://padlet.com/18sabovica/wxuhloh5tz1p/wish/209107383 Claire Farrington was horrified when she discovered her son Theo was diagnosed with Down’s Syndrome at three weeks old, and wished that he had died. However, after getting her baby Theo back home in April her emotions changed and she started to raise him like a typical child. She wants to send the message that no matter your child's condition, all moms are doing the same job of raising their kids. Claires husband was very supportive and told her that Theo is the card they were dealt and they have to deal with it. Claire says that her initial decision was impacted by being a first time mom and she was completely shocked and devastated by the news initially. ]]> 2017-11-21 14:34:30 UTC https://padlet.com/18sabovica/wxuhloh5tz1p/wish/209107383 18sabovica https://padlet.com/18sabovica/wxuhloh5tz1p/wish/209115646 This video is formatted as a presentation slide with a person narrating the discussion in the background. This video mostly covers what the condition actually is and the medical issues associated with it. Down syndrome is one of the most common genetic disorders and cannot be prevented. Many people with down syndrome also experience obesity, thyroid problems, upper neck abnormalities, and a respiratory problems.]]> 2017-11-21 14:49:44 UTC https://padlet.com/18sabovica/wxuhloh5tz1p/wish/209115646 18sabovica https://padlet.com/18sabovica/wxuhloh5tz1p/wish/209323612 2017-11-22 03:41:37 UTC https://padlet.com/18sabovica/wxuhloh5tz1p/wish/209323612 18sabovica https://padlet.com/18sabovica/wxuhloh5tz1p/wish/209328006 This video interviews Biffin and his younger brother Turner who is diagnosed with down syndrome. The person behind the lens asks questions about their relationship and it is evident that these two brothers love each other. When Biffin is asked, "What's your favorite thing about Turner" he replies saying that he is most proud of him being his brother. They then talk about Turner's laughter and Biffin says he has "the best laugh in the world". Turner loves him for this reason which makes their bond even tighter. Despite Turners symptoms they still tackle each other and participate in activities most brothers would. Biffin is fortunate to have a brother that will be his best friend for his whole life.]]> 2017-11-22 04:30:32 UTC https://padlet.com/18sabovica/wxuhloh5tz1p/wish/209328006 18sabovica https://padlet.com/18sabovica/wxuhloh5tz1p/wish/209331284 Because this is an informational video, the first half talks about what down syndrome is and how it is caused. Later the video gives advice on how teachers mostly but students as well should accommodate for students with down syndrome. The first piece of advice is to incorporate more visuals while teaching because people with down syndrome are visual learners. Next, it informs us that many students with down syndrome have short-term memory loss, so patience and repeating directions are key. Further, the student must be given time to respond and be supported because of auditory processing. Lastly, students with down syndrome work most productively one-on-one rather than in large groups. This is how the disability affects children in school.]]> 2017-11-22 05:06:14 UTC https://padlet.com/18sabovica/wxuhloh5tz1p/wish/209331284 18sabovica https://padlet.com/18sabovica/wxuhloh5tz1p/wish/209332277 2017-11-22 05:18:54 UTC https://padlet.com/18sabovica/wxuhloh5tz1p/wish/209332277 18sabovica https://padlet.com/18sabovica/wxuhloh5tz1p/wish/209333087 Down Syndrome is not a choice that parents have, it all happens by luck and could happen to anyone. People that are older though have a higher risk of having a baby with down syndrome. One in every 733 babies is born with the extra chromosome that causes down syndrome. There are people with down syndrome from every race, nationality, background, and religion. It occurs equally in boys and girls and it does not run in families. Many kids with down syndrome are very flexible and they have a great way of reading emotions. Kids with down syndrome have a different shaped mouth and their tongue is much weaker which may cause speech disabilities. Finally, to perform the simple tasks we do, people with down syndrome put in much more effort and is why they often take naps.]]> 2017-11-22 05:28:42 UTC https://padlet.com/18sabovica/wxuhloh5tz1p/wish/209333087 18sabovica https://padlet.com/18sabovica/wxuhloh5tz1p/wish/209334131 2017-11-22 05:42:46 UTC https://padlet.com/18sabovica/wxuhloh5tz1p/wish/209334131 18sabovica https://padlet.com/18sabovica/wxuhloh5tz1p/wish/209334658 This video by the Down Syndrome Research Foundation demonstrates how activities could be used to improve kids skills with words. These activities improve both their reading and speaking skills which children with down syndrome experience. The main idea is that common games typical kids play can be slightly modified to be education but still fun at the same time. For example, when a student knocks down a pin in bowling they read the word on the back side and say it. This works with a popular game like Jenga as well. When a kid pulls a block out of the set, they read the word and then place it back on the top and play till the game is over. These educational techniques can be very useful for kids struggling in this area.]]> 2017-11-22 05:49:36 UTC https://padlet.com/18sabovica/wxuhloh5tz1p/wish/209334658 18sabovica https://padlet.com/18sabovica/wxuhloh5tz1p/wish/209335887 When I chose this topic I thought that I knew everything about down syndrome, however the research I've done and the videos I watched really raised my understanding of the disorder to a new level. I learned that with down syndrome, god has given parents a gift and they need to make the best out of it. Many people think of down syndrome as this scary disease that ruins parent's life when actually they are doing the same exact thing as any other parent does, raising their child.
One thing I learned about down syndrome is that it can be detected before birth. Because of the reactions you here from the internet and people, most assume that parents find out when their baby is born but through ultra sound, doctors can look for certain characteristics on the baby in the womb. One thing I found interesting about many of the children who were interviewed in the videos was that they all felt proud to say they have down syndrome. This is seen in the first video when Sofia Sanchez tells the world that down syndrome is "so exciting" and not something to be afraid of. Also, it was amazing to see the relationship that siblings had with their brother or sister with down syndrome. In the video that is twenty plus minutes, the older sister of the girl with down syndrome says that she could not imagine living without her. Then, in the video with Biffin and Turner, Biffin is seen as a very mature brother that has the utmost respect for his brother and is proud of who he is. He even mentions that he stops people that laugh at his brother or make fun of him. 
This project was very fascinating and educational for my own benefit. Now if someone was to ask me about down syndrome, I would feel very comfortable and confident talking about the basics facts and real world experiences that I learned about in the videos.]]> 2017-11-22 06:05:09 UTC https://padlet.com/18sabovica/wxuhloh5tz1p/wish/209335887