NORD NC State by Neha Suresh https://padlet.com/nsuresh1/wozltw6enl5yfhuk National Organization for Rare Diseases at NC State en-us 2020-09-11 21:33:24 UTC 2020-09-13 17:05:56 UTC hello@padlet.com Phelan-McDermid SyndromeFoundation nsuresh1 https://padlet.com/nsuresh1/wozltw6enl5yfhuk/wish/740448355 Phelan-McDermid Syndrome(PMS) is a rare genetic condition caused by a deletion or other structural change of the terminal end of chromosome 22

https://www.pmsf.org/about_pms/
https://rarediseases.org/rare-diseases/phelan-mcdermid-syndrome/
]]> 2020-09-11 21:35:35 UTC https://padlet.com/nsuresh1/wozltw6enl5yfhuk/wish/740448355 UNC Rare Disease network https://padlet.com/nsuresh1/wozltw6enl5yfhuk/wish/740466479 https://www.med.unc.edu/ncrarediseasenetwork/]]> 2020-09-11 21:52:45 UTC https://padlet.com/nsuresh1/wozltw6enl5yfhuk/wish/740466479 Synthego nsuresh1 https://padlet.com/nsuresh1/wozltw6enl5yfhuk/wish/740583904 Involved in CRISPR Research
https://www.synthego.com/

]]> 2020-09-12 00:09:36 UTC https://padlet.com/nsuresh1/wozltw6enl5yfhuk/wish/740583904 What is NORD? nsuresh1 https://padlet.com/nsuresh1/wozltw6enl5yfhuk/wish/741952696 2020-09-13 16:03:47 UTC https://padlet.com/nsuresh1/wozltw6enl5yfhuk/wish/741952696 Our weekly meetings nsuresh1 https://padlet.com/nsuresh1/wozltw6enl5yfhuk/wish/741956642 Google drive with our weekly meetings-  https://drive.google.com/drive/u/0/folders/1QfxUpX6Dbme4_oXN1vXeddc-vDsRVPpi]]> 2020-09-13 16:09:04 UTC https://padlet.com/nsuresh1/wozltw6enl5yfhuk/wish/741956642 Important dates nsuresh1 https://padlet.com/nsuresh1/wozltw6enl5yfhuk/wish/741967406 September 30- Rare cancer day 
Feb 28/29- Rare disease day]]> 2020-09-13 16:22:50 UTC https://padlet.com/nsuresh1/wozltw6enl5yfhuk/wish/741967406 Our socials nsuresh1 https://padlet.com/nsuresh1/wozltw6enl5yfhuk/wish/741968065 Instagram- @nord_ncstate
Facebook page- https://www.facebook.com/NORD-at-NC-State-114855233689518
LinkedIn page - https://www.linkedin.com/company/69053583/admin/
Email- nord.ncstate@gmail.com 
President's email- nsuresh@ncsu.edu
ksaripa@ncsu.edu 

Ongoing survey-
https://www.surveymonkey.com/r/5SVG2X2]]> 2020-09-13 16:23:44 UTC https://padlet.com/nsuresh1/wozltw6enl5yfhuk/wish/741968065