Introduction to Research Ethics - Week 1 by Sarah Chan https://padlet.com/sarah_chan2/vssjvpgg2eqx Class discussion board en-us 2018-09-19 10:22:25 UTC 2025-09-25 21:59:19 UTC hello@padlet.com Welcome to the course! sarah_chan2 https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283342751 We will use this board to share ideas during the class discussion. Feel free also to add comments or post questions at any time during the lecture.]]> 2018-09-19 10:34:34 UTC https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283342751 Benefit of participation https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283416299 Being heard, having view represented can be a benefit]]> 2018-09-19 13:36:16 UTC https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283416299 Risk of harm to participants https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283417321 2018-09-19 13:37:57 UTC https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283417321 Our group... https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283417554 Talked about giving the participants the opportunity to take a break rather than discontinuing, as a compromise - this would balance the common good and the participant’s needs]]> 2018-09-19 13:38:18 UTC https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283417554 Benefits of the study - https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283417762 to others, public knowledge, other patients]]> 2018-09-19 13:38:38 UTC https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283417762 https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283417895 Consider Address the study patient’s needs ... alleviating pain, giving them resource to address their concerns ]]> 2018-09-19 13:38:53 UTC https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283417895 Agreed framework https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283418090 Agree a framework prior to the interview and having it agreed and communicated between participant and interviewer. Ensure participant understanding during process. i.e ability to stop when ever participant chooses]]> 2018-09-19 13:39:09 UTC https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283418090 Our group... https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283418273 Also talked about the significance of ONE research position in a pool of 75 . Will that one person’s testimony truly be THAT important? ]]> 2018-09-19 13:39:26 UTC https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283418273 https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283418419 Directing the participant to a counselor at the end of the interview could be a good idea ]]> 2018-09-19 13:39:39 UTC https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283418419 Patient's right to choose https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283418505 Self-determination]]> 2018-09-19 13:39:47 UTC https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283418505 Dynamic https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283419315 Consider the power dynamic between research and participant]]> 2018-09-19 13:40:54 UTC https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283419315 Trust in future research https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283421616 2018-09-19 13:44:30 UTC https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283421616 GDPR issues https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283421942 Would you not have to delete data via GDPR requirements?]]> 2018-09-19 13:45:04 UTC https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283421942 GDPR = general data protection regulation https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283426207 2018-09-19 13:51:38 UTC https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283426207 Research Question https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283437933 We considered whether not if someone wanted to focus on breast cancer they should change their experimental question. The effects of a breast cancer diagnosis or the effects of a cancer diagnosis? ]]> 2018-09-19 14:09:36 UTC https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283437933 https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283438136 results could be very different in terms of the severity of the diagnosis (eg. breast cancer can often be removed vs. Leukaemia), therefore the patients reaction would very. So depends on what you want your research question to be.]]> 2018-09-19 14:09:57 UTC https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283438136 Funder https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283439748 Shouldn’t let the funder’s feelings or push for significant results influence recruitment/methodology]]> 2018-09-19 14:12:36 UTC https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283439748 https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283440039 Scientific validity for data
Responsibility to do good science ]]> 2018-09-19 14:13:02 UTC https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283440039 https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283440940 Public funding - maximise the utility of the money we have 
But... the problem of rare diseases. How do we justify spending money on researching rare diseases?
Is the implication that we should only study common diseases?]]> 2018-09-19 14:14:33 UTC https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283440940 Furthest First https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283441787 It is the tension between societal values ... In as much as Public Health should consider things that affect the most people, Public Health efforts should also consider the people who have the most to gain from Public Health efforts (rare diseases).]]> 2018-09-19 14:16:00 UTC https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283441787 https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283443605 Gender biases in research focus and research design have ethical implications.
Would it be fair to focus on a cancer than affects women disproportionately?]]> 2018-09-19 14:18:58 UTC https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283443605 Tutorials / discussions? sarah_chan2 https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283832453 Yesterday in the lecture I asked whether people would be interested in some sort of tutorial or discussion group, to extend our consideration of some of the issues and cases we are covering in the lectures. This could be anything from a timetabled face-to-face session, to a self-organised discussion group (I can provide readings and prompts), to an online discussion board. I'm interested in your ideas as to what would most enhance your learning experience -- let me know in comments below!]]> 2018-09-20 11:29:29 UTC https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/283832453 Discussions in October https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/287382882 Hi, 
I would like to attend the following sessions: 
Tue 9 Oct, 10:00-10:50
Tue 23 Oct, 10:00-10:50 

]]> 2018-09-30 20:45:09 UTC https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/287382882 Tutorial Discussion Sessions https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/287503193 As we are having difficulties with the Blackboard Discussion Board, I have added this post here for tutorial sign-ups:
Tue 2 Oct, 13:00-13:50 Sydney Smith
Tue 9 Oct, 10:00-10:50 Doorway 4, G.16
Tue 23 Oct, 10:00-10:50 Doorway 4, G.16

]]> 2018-10-01 09:41:46 UTC https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/287503193 Sign up for discussion https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/287537346 Hi Sarah and Sonja,
I would like to join all 3 sessions. 
Thanks.
Chanh]]> 2018-10-01 11:49:02 UTC https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/287537346 https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/305536715 2018-11-17 13:23:05 UTC https://padlet.com/sarah_chan2/vssjvpgg2eqx/wish/305536715