Patient Experience by Elaine https://padlet.com/e_parry_jones/v7c5drqgxwzz Feelings en-us 2017-10-04 17:22:32 UTC 2017-10-05 14:49:05 UTC hello@padlet.com e_parry_jones https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/193994555 2017-10-04 17:26:00 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/193994555 Devastating https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194340877 2017-10-05 14:42:22 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194340877 https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194341213 Heartbreaking ๐Ÿ’”๐Ÿ’”]]> 2017-10-05 14:42:52 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194341213 https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194341241 Fear of death
Need support
Depression
Hope
Doubts/Loss
Fear of treatment (side effect)
Confuse of process
Lonely
Cost (private)
Stress
Occurrence rate
Denial


]]> 2017-10-05 14:42:54 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194341241 https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194341277 Overwhelming]]> 2017-10-05 14:42:57 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194341277 Fright marium https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194341320 2017-10-05 14:43:00 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194341320 https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194341394 Can make a patient feel like they have lost their identity through changes to their body ]]> 2017-10-05 14:43:08 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194341394 How the patient will effected https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194341458 the patient will feel shocked
the patients get psychologically affected
scared
feeling empty or numb
they maybe in denial
the patients feel hopeless and sad

what will be important to them?
health
family
life
friends and the loved ones
care support 

]]> 2017-10-05 14:43:14 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194341458 https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194341502 Worrying about their family ]]> 2017-10-05 14:43:17 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194341502 https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194341819 Scary]]> 2017-10-05 14:43:40 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194341819 https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194341868 Hard for the family]]> 2017-10-05 14:43:44 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194341868 https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194341899 Upset]]> 2017-10-05 14:43:47 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194341899 Negative impact on family and carers marium https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194342089 2017-10-05 14:44:02 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194342089 tania_hdlt https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194342117 Can make patient feel dehumanised- like they are their cancer (it has become their identity)]]> 2017-10-05 14:44:05 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194342117 https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194342273 Wants to have as much of a normal life as possible]]> 2017-10-05 14:44:20 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194342273 No https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194342464 2017-10-05 14:44:38 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194342464 No Hope https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194342470 2017-10-05 14:44:38 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194342470 https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194342638 Depressing]]> 2017-10-05 14:44:54 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194342638 tania_hdlt https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194342645 Difficult to manage]]> 2017-10-05 14:44:54 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194342645 https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194342743 Trying to stay positive ]]> 2017-10-05 14:45:04 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194342743 No one can really understand how the patient is feeling until he is diagnosed as well https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194342790 2017-10-05 14:45:08 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194342790 My dad died of cancer luke_timbrell https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194342926 Sad
Alone
Surprised
Lack of a role model
  ]]> 2017-10-05 14:45:22 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194342926 Depression https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194343037 2017-10-05 14:45:33 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194343037 https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194343163 Can feel like you've lost your independence ]]> 2017-10-05 14:45:46 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194343163 https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194343249 Daunting]]> 2017-10-05 14:45:54 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194343249 https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194343348 Dad & Grandad have been affected]]> 2017-10-05 14:46:03 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194343348 Exhausted https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194343658 2017-10-05 14:46:29 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194343658 tania_hdlt https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194343821 May want to keep it a secret to protect their family/loved ones]]> 2017-10-05 14:46:46 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194343821 Weakness https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194343862 2017-10-05 14:46:49 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194343862 mrsdurham1 https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194344058 Angry ๐Ÿ˜ก]]> 2017-10-05 14:47:07 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194344058 https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194344076 Hopeless]]> 2017-10-05 14:47:09 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194344076 Afraid and anxious marium https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194344195 2017-10-05 14:47:19 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194344195 Tiring https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194344203 2017-10-05 14:47:20 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194344203 tania_hdlt https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194344400 Shocked]]> 2017-10-05 14:47:41 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194344400 Supression mrsdurham1 https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194344487 Not sharing feelings, emotions etc.]]> 2017-10-05 14:47:49 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194344487 tania_hdlt https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194344578 May be concerned due to negative previous experience with treatment (maybe themselves or someone they know)]]> 2017-10-05 14:47:57 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194344578 https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194344610 Fighter๐Ÿ‘Š]]> 2017-10-05 14:47:59 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194344610 In denial marium https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194344665 2017-10-05 14:48:05 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194344665 Physically mentally emotionally and psychologically affected https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194344754 2017-10-05 14:48:14 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194344754 tania_hdlt https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194345297 In need of support and encouragement ]]> 2017-10-05 14:49:03 UTC https://padlet.com/e_parry_jones/v7c5drqgxwzz/wish/194345297