- Across all ages

- In different family settings

- As affected by where and how we live, learn, work and play

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Where do we want to be in 3-5 years?
representative of scotland, urban rural, rich and poor. broad backgrounds and incomes.

to have recruited a representation of scottish families including those in devolved nations.

to create a unique resource as a family study. our volunteers are families, we nest studies with GS, a family of studies.

many different kinds of 'families'

Bigger! more data, more data on current volunteers, new volunteers. data from new sources. social media, wearables.

questions we haven't even conceived answering yet being addressed!

translating our work into change or improvement in health by our contributions to research. incremental change.

objective to build on original cohort and using data linkage for public good. policy impact on a level footing with academic impact.

passive use for involvement, also active involvement. Volunteer led, their questions at the right time. enabling supportive relationship

life-course study, following families birth to death aspiration. trans-generational change being identified, beyond environmental and genetic. socio-demographic change.

Tangible, actionable health learnings. e.g. covid susceptible. biomarkers being used as markers of clinical utility.

scalable findings aspirational, to take findings of smaller cohorts to countrywide. capacity to be a demonstrator project. responsive

Longitudinal cohort has depth of data that cant be replicated at a national scale.

the cohort that tech providers see as the place to prove their products to benefit our participants. e.g. new heart monitor tested for predictive testing. an attribute of being the go-to scottish cohort.

Excellent future proof data governance to allow inoovative collaboration

Collegiate, openness and sharing resources

Everyone can be recruited, how would they like to contribute?

-To earn and maintain their trust and our trustworthiness

- To meet and maintain high standards of research ethics and scientific rigour

- To share our research findings widely and openly

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why do we exist?!
improve knowledge of health trajectories of individuals and families.
identifying the differences between individuals and families.

Collaborative conception

NHS scotland opportunity to support data led science

futuristic opportunity! 

ground breaking, building the health data research that could be challenged with lots of questions rather than one.

genetics allows to rule out aswell as understand genetic influence.

creating a resource for anyone to apply to use,  many volunteers, many researchers. openness.

it grows with collaboration, new projects bolster th resoucre, adding their dat.

Partnership

Community 
Collaborative

‘Citizens science’