SEN Data & Research Advisory Group: Collaborative Planning by Illuminate https://padlet.com/IlluminateCO/txvslkacnvif9kgz In thinking about the four focus areas of the SEN Data & Research Advisory Group, what activities should this group take on that would help to advance perinatal substance use prevention, treatment, and support systems and services in Colorado? Put another way, what need(s) should the SEN Data & Research Advisory Group be addressing? en-us 2021-04-07 15:45:07 UTC 2021-04-13 21:38:38 UTC hello@padlet.com https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397733507 Let's think about WHO our audience(s) are...those who need to hear about the results of the two studies, for example.]]> 2021-04-08 21:01:45 UTC https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397733507 https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397733783 Any data analyses should ask the question - "what will be the impact of these results?" before any work is done]]> 2021-04-08 21:01:52 UTC https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397733783 https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397734140 Wondering about collaborating with the poison center as far as monitoring goes. RMPDS (our region's poison center) already does a lot of this work so leveraging that could be useful.]]> 2021-04-08 21:02:01 UTC https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397734140 https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397735538 I'm thinking about connection - as perhaps the summation of these four - how do we translate and disseminate the various efforts around the state in an easily digestible, comprehensive, approachable manner that allows anyone to quickly understand the landscape of activities?

]]> 2021-04-08 21:02:32 UTC https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397735538 https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397735705 Engage stakeholders from the very beginning of data linkage and analysis so that translation to practice and policy change is efficient

]]> 2021-04-08 21:02:36 UTC https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397735705 Help get the key findings from the first report focused on child welfare-involved dyads out there and into the hands of decision-makers and providers coloradolab https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397735962 2021-04-08 21:02:42 UTC https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397735962 https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397737348 To support other SEN work groups, we need a way for those groups to express their research/data-related needs...]]> 2021-04-08 21:03:19 UTC https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397737348 Ask of SEN SC & Work Groups IlluminateCO https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397738058 Data snapshot / issue brief related to perinatal substance use disorders]]> 2021-04-08 21:03:39 UTC https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397738058 https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397738107 to serve as the "go-to" group for perinatal SUD-related data (beyond prevalence estimates offered by CDPHE)]]> 2021-04-08 21:03:40 UTC https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397738107 https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397739673 This may have been addressed elsewhere, but I do think one area worth exploring would be identifying major gaps in perinatal SUD research (not sure if other groups are already working on this)]]> 2021-04-08 21:04:21 UTC https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397739673 How do we curate all the existing data on perinatal SUD into one place? coloradolab https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397740146 2021-04-08 21:04:34 UTC https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397740146 Partnerships IlluminateCO https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397740382 Potential to partner with other orgs doing similar work (e.g., SEOW)]]> 2021-04-08 21:04:41 UTC https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397740382 vgarrison https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397740429 How can we use data systems for short-term monitoring of trends? Continuous (automated) reporting versus large scale, highly resource intensive research?
EMRs, ICD-10 data at state level, prelim. vital stats, etc]]> 2021-04-08 21:04:42 UTC https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397740429 If someone came to SEN and was like, "I need some data or perspectives on xxx", how can we connect them with folks, both professional and personal expertise? (like a consulting directory) coloradolab https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397740895 2021-04-08 21:04:53 UTC https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397740895 https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397741378 how do we make sure that nurses are aware of findings of the part 1 study because it demonstrates our biases. Nurses are interacting with families throughout the pregnancy and when the infant is born

]]> 2021-04-08 21:05:06 UTC https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397741378 https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397742023 creating shared language with a data dictionary so that our internal and external stakeholders are able to utilize and understand the work. We may use different names and/or languages and we need to make sure we're on equal footing.]]> 2021-04-08 21:05:21 UTC https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397742023 Getting the stories of folks out there right alongside the numbers coloradolab https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397742867 2021-04-08 21:05:46 UTC https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397742867 https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397742907 How can we have rapid data turnaround to allow for rapid data review and action? if we rely solely on vital statistics, there is a 4-6 month lag]]> 2021-04-08 21:05:47 UTC https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397742907 Are we missing key data sources for the data linkage project? coloradolab https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397743933 2021-04-08 21:06:17 UTC https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397743933 vgarrison https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397744953 How can we ensure the transformation from data to action is not paralyzed by perfection?]]> 2021-04-08 21:06:44 UTC https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397744953 https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397745161 How to we obtain ongoing funding for this work? Identifying funding mechanisms and grant writing support

]]> 2021-04-08 21:06:50 UTC https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397745161 https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397745558 Just wondering about the boundary between the dissemination piece of this advisory group and the role of the provider education work group in terms of disseminating information (to providers at least - I think there is still some need to disseminate info to non-providers)]]> 2021-04-08 21:07:02 UTC https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397745558 https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397746472 Do we know if we are missing info related to higher socio economic families to provide support. ]]> 2021-04-08 21:07:23 UTC https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397746472 https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397747803 centering harm reduction, not just risk reduction, when translating findings to policy/procedure]]> 2021-04-08 21:07:55 UTC https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397747803 https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397779478 continuing to hold and speak to the potential policy implications by the term SEN]]> 2021-04-08 21:22:25 UTC https://padlet.com/IlluminateCO/txvslkacnvif9kgz/wish/1397779478