C&M Epilepsy by https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0 en-us 2025-02-07 17:13:05 UTC 2026-03-06 08:37:06 UTC hello@padlet.com beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3379449719 This padlet is aimed at children and young people (CYP), parents and carers, and anyone who works with CYP with Epilepsy.

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]]> 2025-03-24 12:22:16 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3379449719 Leave feedback about this padlet beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3379450043 https://forms.office.com/Pages/ResponsePage.aspx?id=G888R1c5sE6Cur6KaqH2So1XKTvILnZNnzc1IwOCf1FUNFY0MUZUQjlYVEdEVlROU0EzNUJMUEFLSi4u

]]> 2025-03-24 12:22:31 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3379450043 Epilepsy Action: I have epilepsy. An explanation. beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3379457316 Basic information/summary on what epilepsy is. Every child is different.

]]> 2025-03-24 12:27:08 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3379457316 Epilepsy Action - Just For Kids beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3379476262 This section may aid discussions with your child about their diagnosis. We also know that their siblings may have lots of questions.

]]> 2025-03-24 12:39:52 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3379476262 Young Epilepsy beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3379478031 2025-03-24 12:41:02 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3379478031 Online learning. beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3379478854 2025-03-24 12:41:34 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3379478854 Epilepsy Action beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3379479305 2025-03-24 12:41:49 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3379479305 Seizure First Aid beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3379480235 2025-03-24 12:42:27 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3379480235 Seizure First Aid for Wheelchair users beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3379480502 2025-03-24 12:42:38 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3379480502 Seizure Triggers: a trigger is something that can make a seizure more likely to happen. beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3379480818 2025-03-24 12:42:50 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3379480818 Alarms and monitors beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3379481375 The epilepsy service are unable to advise on the use of seizure monitors and alarms due to the lack of robust evidence and their efficacy. We do however signpost parents/carers to Epilepsy Action for information and governance.

]]> 2025-03-24 12:43:12 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3379481375 Night Time Monitoring - Further Information beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3379483668 2025-03-24 12:44:38 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3379483668 beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3379484039 2025-03-24 12:44:55 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3379484039 Young Epilepsy Managing Risk beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3379484545 Safety Advice for People with Epilepsy

]]> 2025-03-24 12:45:15 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3379484545 Information on SUDEP, Sudden Unexpected Death in Epilepsy beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3379485106 2025-03-24 12:45:37 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3379485106 Anti-Seizure Medications (ASM). beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3379487411 When medication is commenced, a prescription and plan will be provided by your consultant. Once on a stable dose your GP and local pharmacy will supply your epilepsy medication.


We recommend putting in a repeat prescription with at least 1 week of medication supply left. This is to ensure you do not run out.



]]> 2025-03-24 12:47:02 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3379487411 Epilepsy Action: Tips To Ensure You Do Not Run Out Of Medication beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3421440942 2025-04-23 12:12:15 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3421440942 For more information on your medicine please scan the QR codes below. beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3421442475 If you are unable to access this information, do get in touch with the epilepsy nurse specialist team.

]]> 2025-04-23 12:13:26 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3421442475 Medicines For Children Information Website beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3421443803 Medicines For Children - we provide practical and reliable advice about giving medicine to your child.

]]> 2025-04-23 12:14:31 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3421443803 Education: School, Nursery and Respite beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3421449596 We run general epilepsy recognition training for schools, nursery and respite care. Currently this takes place online via Teams. This is not child specific. We recommend that staff attend annually to update their knowledge.

]]> 2025-04-23 12:19:14 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3421449596 Individual Healthcare Plan (IHCP). beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3421450626 What is an 'Individual Healthcare Plan' and what are the benefits?

An Individual Healthcare Plan (IHP) is a detailed document created for school-age students with medical conditions, such as epilepsy.

]]> 2025-04-23 12:20:13 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3421450626 Education Healthcare Plans (EHCP). beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3421451630 2025-04-23 12:21:07 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3421451630 Find out more about your rights in school. beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3421456398 2025-04-23 12:25:10 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3421456398 Roald Dahl is a UK wide charity providing specialist nurses and support for children with complex conditions. beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3421457604 Marvellous Family Support Service


The Marvellous Family Support Service helps families with a Roald Dahl Nurse access financial and emotional support.


Roald Dahl's Marvellous Children's Charity

]]> 2025-04-23 12:26:10 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3421457604 The Daisy Garland Charity beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3421459629 2025-04-23 12:28:06 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3421459629 Matthew's Friend - further information on Ketogenic diet. beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3421460738 Who can use them and how to prepare yourself and your family for treatment Watch our cooking channel and download recipes and useful information. Meet others in your situation and find out what Keto events are happening in your area.

]]> 2025-04-23 12:28:56 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3421460738 The Brain Charity beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3421462655 The Brain Charity helps people with all forms of neurological condition to lead longer, healthier, happier lives.

]]> 2025-04-23 12:29:35 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3421462655 What benefits may I be entitled to? beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3421485576 2025-04-23 12:47:09 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3421485576 Talk and support groups beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3421488418 2025-04-23 12:49:10 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3421488418 Young Epilepsy Youth Club beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3421489161 2025-04-23 12:49:35 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3421489161 A free, confidential and 24/7 text support service for anyone in the UK who is struggling to cope. beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3421490620 Shout

Young Epilepsy partner with Shout, a free, confidential and 24/7 text support service for anyone in the UK who is struggling to cope.

]]> 2025-04-23 12:50:09 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3421490620 Vagus Nerve Stimulator VNS beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3421491494 2025-04-23 12:50:45 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3421491494 beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3543151149 Disability Living Allowance (DLA) for children

Help for children under 16 with disabilities - DLA rate, eligibility, how to apply, claim form.

]]> 2025-08-14 06:49:49 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3543151149 Transition beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3575807482 Transition in epilepsy care is the process of preparing and planning to move from children’s (paediatric) to adult health services. Here are some key facts.

]]> 2025-09-09 10:22:23 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3575807482 Moving to adult healthcare beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3575809856 Transitioning from paediatric to adult healthcare can be a big step.  This section of The Channel provides practical advice and resources to help prepare you for this change.

]]> 2025-09-09 10:24:26 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3575809856 What to expect at an EEG beyondCYPtransformation https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3814646121 2026-03-06 08:36:05 UTC https://padlet.com/beyondCYPtransformation/s2a2hs803vs6vml0/wish/3814646121