RCNet by Rare Community Network https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z RareQoL: Rare Community Network en-us 2026-09-21 13:43:49 UTC 2026-09-26 10:04:17 UTC hello@padlet.com https://padlet-uploads-usc1.storage.googleapis.com/1145784865/6841d61638897c25f4a31d9df6ff4232/Rareqol_2026.png Ring20 Research Support sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4061672469 2026-09-21 13:45:33 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4061672469 Rare Revolution sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4061682023 2026-09-21 13:49:46 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4061682023 Temple Hypnotherapy sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063341623 2026-09-22 05:54:25 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063341623 Fair Treatment for the women of Wales sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063350250 2026-09-22 06:01:04 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063350250 RDNN - Rare Disease Nurse Network sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063353912 2026-09-22 06:03:53 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063353912 Tango2 sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063356314 2026-09-22 06:05:48 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063356314 Rare Disease Partnership sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063358166 2026-09-22 06:07:10 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063358166 Rare Disease Kenya sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063359277 2026-09-22 06:07:59 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063359277 Intent Health sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063360904 2026-09-22 06:09:00 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063360904 Aisha Seedat sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063369221 Linked in Aisha Seedat | LinkedIn

]]> 2026-09-22 06:13:56 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063369221 Amy and Friends sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063372726 2026-09-22 06:15:45 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063372726 Metabolic Support UK sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063374719 2026-09-22 06:17:01 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063374719 Ataxia and Me sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063376787 2026-09-22 06:18:25 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063376787 RareQoL sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063377822 2026-09-22 06:19:05 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063377822 Timothy Syndrome Alliance sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063382607 2026-09-22 06:21:58 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063382607 Birth and Breastfeeding in Colour sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063388141 2026-09-22 06:25:23 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063388141 Neiman Pic UK sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063389415 Neiman Pic UK

]]> 2026-09-22 06:26:11 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063389415 Behcet's UK sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063391523 2026-09-22 06:27:13 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063391523 Race Council Cymru sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063393658 2026-09-22 06:28:44 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063393658 Cystinosis Foundation UK sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063396704 2026-09-22 06:30:47 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063396704 Sickle Cell Mo'sho Adeosun Health Initiative MAHI sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063399633 2026-09-22 06:32:35 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063399633 Medics 4 Rare Diseases sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063402496 2026-09-22 06:34:26 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063402496 Sickleverse sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063405379 2026-09-22 06:36:22 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063405379 Autistic UK sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063409094 2026-09-22 06:38:24 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063409094 Keira’s Kingdom sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063410369 2026-09-22 06:39:10 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063410369 PTEN sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063411938 2026-09-22 06:40:03 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063411938 Alstrom Syndrome sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063421503 2026-09-22 06:44:58 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063421503 Dazzle4Rare sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063424838 2026-09-22 06:46:48 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063424838 MENCAP sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063426573 2026-09-22 06:47:44 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063426573 Gastroparesis: Fighting for Change sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063427895 2026-09-22 06:48:31 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063427895 Addison's Disease Self Help Group sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063438965 2026-09-22 06:54:40 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063438965 It's Complicated sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063441536 2026-09-22 06:56:12 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063441536 Rose Francis VA sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063443828 2026-09-22 06:57:33 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063443828 PIP UK sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063444769 2026-09-22 06:58:10 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063444769 Menopause Inclusion Collective sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063445840 2026-09-22 06:58:49 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063445840 Pink Gold sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063455147 2026-09-22 07:04:31 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063455147 sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063459546 https://www.linkedin.com/in/hannah-humphrey-78308b41/

]]> 2026-09-22 07:07:00 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063459546 sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063462387 Zainib Hussain | LinkedIn

]]> 2026-09-22 07:08:41 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063462387 Hand in Hand Parenting sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063465153 2026-09-22 07:10:22 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063465153 Humie Webbe sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063471288 Humie Webbe | LinkedIn

]]> 2026-09-22 07:14:16 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063471288 Benjamin James sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063854011 Benjamin James | LinkedIn

]]> 2026-09-22 11:42:12 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063854011 Fez Awan sondrabutterworth https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063870861 2026-09-22 11:55:32 UTC https://padlet.com/sondrabutterworth/s023sevf6js5pgrt3g1z/wish/4063870861