Diagnosis of ADHD by Samantha Hui https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u Made with a warm hug en-us 2022-04-28 10:12:05 UTC 2022-04-28 16:37:53 UTC hello@padlet.com Some parents need the label to begin the process of understanding and managing the child differently (AED) samanthahuiwy https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2161918645 2022-04-28 10:16:02 UTC https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2161918645 Parents are searching for clear and concise information- an absence of which leads to delayed help seeking and diagnosis. Often ADHD is only diagnosed when seeking help for other issues such as Dyslexia samanthahuiwy https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2161921902 2022-04-28 10:19:05 UTC https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2161921902 Diagnosis for ADHD is often not a primary diagnosis- children are flagged for reading issues- the ADHD diagnosis is made along another co-morbidity, or instead of the presenting issues. samanthahuiwy https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2161926534 2022-04-28 10:23:47 UTC https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2161926534 Parents need assistance in managing child’s behaviour, but there is also a need to build the family’s understanding of ADHD, beyond behavioural issues and prepare for the next stage of child management samanthahuiwy https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2161927860 2022-04-28 10:25:06 UTC https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2161927860 Parents need understanding and support from the community, a lack of which contributes to parental stress, and compromises the emotional and physical safety of the child. samanthahuiwy https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2161928053 2022-04-28 10:25:16 UTC https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2161928053 Parents sought diagnosis only after seeing the similarities in behaviour between themselves and their children. samanthahuiwy https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2161938159 2022-04-28 10:35:38 UTC https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2161938159 Parents expressed frustration with the wastage of time – time taken to get an appointment, then the time taken to get a diagnosis, wait for results after seeing the doctor and doing tests, and then the trial and error method of finding a therapy that actually works. samanthahuiwy https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2161938295 2022-04-28 10:35:46 UTC https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2161938295 Parents need help coming to terms with the diagnosis and recalibrating their expectations so as to limit negative impact on the child. samanthahuiwy https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2161938393 2022-04-28 10:35:53 UTC https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2161938393 Fear of going to public health due to records being accessible samanthahuiwy https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2162832875 2022-04-28 15:21:28 UTC https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2162832875 How do you get medical services in an efficient way- waiting times, referral times, test result timings samanthahuiwy https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2162833825 2022-04-28 15:22:02 UTC https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2162833825 Recognition and identification of ADHD is inconsistent across service sectors (health, social services, education)- with obvious disruptive behaviour in boys getting attention, whereas girls lack of focus and distractedness not being identified till much later, or mostly by higher income/ higher families samanthahuiwy https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2162845246 2022-04-28 15:28:06 UTC https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2162845246 Lack of support and guidance for parents- not enough information is being given at the time of diagnosis, especially about long-term management and prognosis samanthahuiwy https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2162852945 2022-04-28 15:32:14 UTC https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2162852945 Most of the diagnosis happens in primary school- with more people involved in primary school. (However executive dysfunction only kicks in later as work increases) samanthahuiwy https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2162854240 2022-04-28 15:32:53 UTC https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2162854240 Not going to diagnose, and preferring to self-diagnose because of the expenses involved samanthahuiwy https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2162854673 2022-04-28 15:33:06 UTC https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2162854673 Sense of loss of time as lack of a clear diagnosis at younger age means time lost when more targeted therapy could have been provided samanthahuiwy https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2162867746 2022-04-28 15:40:09 UTC https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2162867746 The information/remarks that a parent receives at the time of diagnosis or early years influences how the parent perceives the condition and the management of the child samanthahuiwy https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2162872674 2022-04-28 15:42:59 UTC https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2162872674 Improvement in parents marital relationship once a diagnosis was made and understood samanthahuiwy https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2162873447 2022-04-28 15:43:27 UTC https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2162873447 In families with intergenerational ADHD, the behaviour is normalised, and seeking treatment is questioned and considered unnecessary. samanthahuiwy https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2162874382 2022-04-28 15:43:51 UTC https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2162874382 How do you get medical services in an efficient way- waiting times, referral times, test result timings samanthahuiwy https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2162876932 2022-04-28 15:45:18 UTC https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2162876932 members of the group who were diagnosed as children had a lot of unresolved issues regarding their experience as a child/young adult with ADHD (both inside and outside of the home) and this has led to some strong negative feelings which then can be further exacerbated by the influence of the parents in their lives into adulthood. samanthahuiwy https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2162882564 2022-04-28 15:48:16 UTC https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2162882564 For Dyslexia and ADHD, there are large subsidies once the diagnosis is confirmed. However, there is nothing similar for ADHD samanthahuiwy https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2162901066 2022-04-28 15:59:05 UTC https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2162901066 Polyclinic- one participant reported recently going through the polyclinic system where the doctor refused to give a referral for ADHD but was willing to give one for anxiety. The appointment made through the polyclinic took too long and the participant chose to go the private route instead samanthahuiwy https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2162966241 2022-04-28 16:37:53 UTC https://padlet.com/samanthahuiwy/rjsbyb9mog2rtv1u/wish/2162966241