https://padlet.com/kailing_chua93/thoughtquestions en-us 2016-10-12 09:44:14 UTC 2018-08-17 03:07:39 UTC hello@padlet.com kailing_chua93 https://padlet.com/kailing_chua93/thoughtquestions/wish/130068645 As Hwee Suan's parents, how would you feel?]]> 2016-10-12 09:53:13 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/130068645 kailing_chua93 https://padlet.com/kailing_chua93/thoughtquestions/wish/130068677 Should treatment be continued? Why?]]> 2016-10-12 09:53:26 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/130068677 kailing_chua93 https://padlet.com/kailing_chua93/thoughtquestions/wish/130068698 Should her need be prioritised above everything else? Why?]]> 2016-10-12 09:53:34 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/130068698 kailing_chua93 https://padlet.com/kailing_chua93/thoughtquestions/wish/130068718 How can we better prepare Hwee Suan for her future?]]> 2016-10-12 09:53:42 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/130068718 https://padlet.com/kailing_chua93/thoughtquestions/wish/131391688 Sad that my child has to go through pain. Unable to feel the joy of eating as easily as others.]]> 2016-10-18 08:47:05 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131391688 https://padlet.com/kailing_chua93/thoughtquestions/wish/131391749 2016-10-18 08:47:23 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131391749 https://padlet.com/kailing_chua93/thoughtquestions/wish/131391771 The world is unfair]]> 2016-10-18 08:47:34 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131391771 https://padlet.com/kailing_chua93/thoughtquestions/wish/131391797 How can we help her ?]]> 2016-10-18 08:47:42 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131391797 https://padlet.com/kailing_chua93/thoughtquestions/wish/131391814 Scared]]> 2016-10-18 08:47:49 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131391814 https://padlet.com/kailing_chua93/thoughtquestions/wish/131391842 Unfair that this has to happen to her. She's just a baby. ]]> 2016-10-18 08:47:58 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131391842 https://padlet.com/kailing_chua93/thoughtquestions/wish/131391845 2016-10-18 08:47:59 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131391845 https://padlet.com/kailing_chua93/thoughtquestions/wish/131391868 Incompetent and guilty as mother who cannot even feed her own child ]]> 2016-10-18 08:48:07 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131391868 https://padlet.com/kailing_chua93/thoughtquestions/wish/131391872 2016-10-18 08:48:09 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131391872 https://padlet.com/kailing_chua93/thoughtquestions/wish/131391903 mixed emotions]]> 2016-10-18 08:48:18 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131391903 https://padlet.com/kailing_chua93/thoughtquestions/wish/131391963 Is my child going to survive? Probably not since this is a course on death]]> 2016-10-18 08:48:35 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131391963 https://padlet.com/kailing_chua93/thoughtquestions/wish/131391977 2016-10-18 08:48:40 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131391977 https://padlet.com/kailing_chua93/thoughtquestions/wish/131392024 2016-10-18 08:48:56 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131392024 https://padlet.com/kailing_chua93/thoughtquestions/wish/131392071 Blaming self for child condition]]> 2016-10-18 08:49:12 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131392071 https://padlet.com/kailing_chua93/thoughtquestions/wish/131392470 expensive, unsustainable]]> 2016-10-18 08:51:26 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131392470 https://padlet.com/kailing_chua93/thoughtquestions/wish/131392519 If prognosis is not a dead-end prognosis]]> 2016-10-18 08:51:44 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131392519 https://padlet.com/kailing_chua93/thoughtquestions/wish/131392531 Try to explain as best as possible to the child about the non-financial aspects (e.g. pain) of the treatment; ask the child if they still want to pursue it.]]> 2016-10-18 08:51:49 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131392531 https://padlet.com/kailing_chua93/thoughtquestions/wish/131392573 Is it even legal?]]> 2016-10-18 08:52:03 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131392573 https://padlet.com/kailing_chua93/thoughtquestions/wish/131392578 2016-10-18 08:52:05 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131392578 https://padlet.com/kailing_chua93/thoughtquestions/wish/131392605 Life can't be measured in monetary terms]]> 2016-10-18 08:52:14 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131392605 https://padlet.com/kailing_chua93/thoughtquestions/wish/131392638 Start a kick-starter project on social media]]> 2016-10-18 08:52:26 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131392638 https://padlet.com/kailing_chua93/thoughtquestions/wish/131392645 I literally have no more money]]> 2016-10-18 08:52:29 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131392645 https://padlet.com/kailing_chua93/thoughtquestions/wish/131392675 2016-10-18 08:52:38 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131392675 https://padlet.com/kailing_chua93/thoughtquestions/wish/131392726 2016-10-18 08:52:57 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131392726 https://padlet.com/kailing_chua93/thoughtquestions/wish/131392801 No money no baby

]]> 2016-10-18 08:53:19 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131392801 https://padlet.com/kailing_chua93/thoughtquestions/wish/131392944 2016-10-18 08:53:57 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131392944 https://padlet.com/kailing_chua93/thoughtquestions/wish/131393012 Money problem can always be resolved. Life does not work the same way]]> 2016-10-18 08:54:20 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131393012 https://padlet.com/kailing_chua93/thoughtquestions/wish/131393704 Accommodate the child as best they can, but the caregivers do not need to feel guilty for having a life with other priorities.

Also, being blunt: the other children are likely to live longer than her, need just as much if not more care and guidance.]]> 2016-10-18 08:58:06 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131393704 https://padlet.com/kailing_chua93/thoughtquestions/wish/131393734 Not her fault that she's sick ]]> 2016-10-18 08:58:17 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131393734 https://padlet.com/kailing_chua93/thoughtquestions/wish/131393764 :)]]> 2016-10-18 08:58:27 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131393764 https://padlet.com/kailing_chua93/thoughtquestions/wish/131393808 2016-10-18 08:58:47 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131393808 https://padlet.com/kailing_chua93/thoughtquestions/wish/131393819 Balance - not prioritize
The other kids are important too! #equalrights

]]> 2016-10-18 08:58:50 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131393819 https://padlet.com/kailing_chua93/thoughtquestions/wish/131393851 It's a life, that's worth compromising for]]> 2016-10-18 08:59:01 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131393851 https://padlet.com/kailing_chua93/thoughtquestions/wish/131393854 There should be a balance in prioritizing of the needs. Cannot entirely prioritize one above the other]]> 2016-10-18 08:59:02 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131393854 https://padlet.com/kailing_chua93/thoughtquestions/wish/131393873 No, but there isn't really a choice at the moment the parents decide to save the child and put her on artificial life support. ]]> 2016-10-18 08:59:08 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131393873 https://padlet.com/kailing_chua93/thoughtquestions/wish/131394115 But her family will probably prioritise her needs anyway]]> 2016-10-18 09:00:16 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131394115 https://padlet.com/kailing_chua93/thoughtquestions/wish/131394389 She definitely requires more attention due to her condition, but the other children's needs shouldn't be neglected ]]> 2016-10-18 09:01:24 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131394389 https://padlet.com/kailing_chua93/thoughtquestions/wish/131394930 surround her with love and support]]> 2016-10-18 09:05:15 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131394930 https://padlet.com/kailing_chua93/thoughtquestions/wish/131394932 2016-10-18 09:05:16 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131394932 https://padlet.com/kailing_chua93/thoughtquestions/wish/131394937 2016-10-18 09:05:18 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131394937 https://padlet.com/kailing_chua93/thoughtquestions/wish/131394980 Think about what Hwee Suan needs in the future: emotionally-ready for what's to come]]> 2016-10-18 09:05:35 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131394980 https://padlet.com/kailing_chua93/thoughtquestions/wish/131395041 At the end of the day, she is still a person. Don't expect less of her just because she has a dangerous condition.

As she grows, explain the situation to her, and give her control over her bodily autonomy. But don't give in to everything she wants.]]> 2016-10-18 09:06:03 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131395041 https://padlet.com/kailing_chua93/thoughtquestions/wish/131395053 2016-10-18 09:06:08 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131395053 https://padlet.com/kailing_chua93/thoughtquestions/wish/131395129 tell her everything - children can be smarter than we think they are]]> 2016-10-18 09:06:43 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131395129 https://padlet.com/kailing_chua93/thoughtquestions/wish/131395160 She's already going to go

]]> 2016-10-18 09:06:55 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131395160 https://padlet.com/kailing_chua93/thoughtquestions/wish/131395192 Always be open and honest with her, and let her know about her disease progression. ]]> 2016-10-18 09:07:10 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131395192 https://padlet.com/kailing_chua93/thoughtquestions/wish/131395261 Surround her with love. Let her understand that family will always be there for her w]]> 2016-10-18 09:07:44 UTC https://padlet.com/kailing_chua93/thoughtquestions/wish/131395261