RISE UP Delphi Recommendations by Isabel Galic https://padlet.com/isabelgalic7/q59v5ecbxntev56m Community Researchers, Clinicians, and Advocacy Leaders en-us 2021-05-05 20:28:52 UTC 2021-06-29 20:39:41 UTC hello@padlet.com Differentiate Recruitment/Engagement goals isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498008939 2021-05-06 13:21:55 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498008939 Identify community leaders or liaisons early isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498015371 2021-05-06 13:23:08 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498015371 Engage comm. in all stages as active decision makers isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498022675 2021-05-06 13:24:31 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498022675 Hire comm. members to execute research tasks isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498024323 2021-05-06 13:24:50 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498024323 Community Advisory Boards isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498031583 2021-05-06 13:26:16 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498031583 Be present in the community consistently isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498034313 2021-05-06 13:26:49 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498034313 Institutional Innovation: supplemental community eng components to grants/IRBs isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498037948 2021-05-06 13:27:33 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498037948 Compounded systems recognition: Ex. Stakeholder flower map isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498044647 2021-05-06 13:28:52 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498044647 PSAs isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498051014 2021-05-06 13:30:06 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498051014 Partner with community orgs/ BIPOC-led orgs already interfacing isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498052576 2021-05-06 13:30:22 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498052576 Interventions address community-identified needs isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498055423 2021-05-06 13:30:54 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498055423 Accountability structures / community identified metrics of success isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498064660 2021-05-06 13:32:32 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498064660 Built-in opportunities to listen to participants concerns isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498069055 2021-05-06 13:33:19 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498069055 Build community engagement structures into the design of the registry isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498073473 2021-05-06 13:34:07 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498073473 Narrow survey questions to only research questions isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498075336 2021-05-06 13:34:29 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498075336 Connection opportunities for participants isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498077425 2021-05-06 13:34:52 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498077425 Caution with placebo designs isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498081144 2021-05-06 13:35:34 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498081144 Expand eligibility criteria isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498082568 2021-05-06 13:35:50 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498082568 Implicit bias training for research staff isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498086417 2021-05-06 13:36:29 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498086417 Set min requirements for BIPOC representation for approval isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498089898 2021-05-06 13:37:08 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498089898 Appeal to unique FA burdens isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498107957 2021-05-06 13:40:34 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498107957 Communicate ultimate goal, framing research as a tool to get there isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498110787 2021-05-06 13:41:08 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498110787 Highlight importance of BIPOC representation isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498121528 2021-05-06 13:43:17 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498121528 Address longstanding legacy of not inclusive FA community isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498124494 2021-05-06 13:43:53 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498124494 Be transparent about risks/solutions outside of consent form isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498147734 2021-05-06 13:48:16 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498147734 Researcher Oath isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498155068 2021-05-06 13:49:36 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498155068 Identify recruitment gatekeepers isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498156193 2021-05-06 13:49:48 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498156193 In-person recruitment, meeting participants where they are isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498157694 2021-05-06 13:50:06 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498157694 Highlight diverse research team isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498162375 2021-05-06 13:50:58 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498162375 Community health worker model isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498163540 2021-05-06 13:51:11 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498163540 Alt mechanisms of consent isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498164811 2021-05-06 13:51:25 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498164811 Attend to individual, societal, and future benefit isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498166471 2021-05-06 13:51:44 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498166471 Patient testimonials isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498171686 2021-05-06 13:52:37 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498171686 Recruitment material accessibility - multiple languages, visual representation, etc. isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498173655 2021-05-06 13:52:59 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498173655 Ensure BIPOC study staff isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498180076 2021-05-06 13:54:12 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498180076 Identify connections with related conditions e.g. asthma isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498181507 2021-05-06 13:54:29 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498181507 Short term needs - provide resources that are directly responsive to survey answers isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498184098 2021-05-06 13:54:54 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498184098 Intermittent share-back of study results or updates, and opp to give feedback isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498187796 2021-05-06 13:55:36 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498187796 Include dissemination into protocol isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498193101 2021-05-06 13:56:33 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498193101 Provide edu materials in multiple languages (esp Asian languages) isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498197288 2021-05-06 13:57:22 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498197288 Understand disparities in access to treatments that come out of research isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498200796 2021-05-06 13:58:03 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498200796 Highlight impact of FA in BIPOC communities isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498204456 2021-05-06 13:58:45 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498204456 Pair FA education with asthma education isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498206077 2021-05-06 13:59:03 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1498206077 Testing marketing messages with community leaders isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1503020847 2021-05-07 16:16:52 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1503020847 Statement of purpose that includes clear commitment to partnership in community isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1503052173 2021-05-07 16:23:25 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1503052173 Researcher oath isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1503054946 2021-05-07 16:24:02 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1503054946 Specific answer response paired with resource isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1503121258 2021-05-07 16:38:14 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1503121258 idea isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1630584978 2021-06-29 20:39:37 UTC https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1630584978 ijdei isabelgalic7 https://padlet.com/isabelgalic7/q59v5ecbxntev56m/wish/1630585012 2021-06-29 20:39:40 UTC 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