https://padlet.com/jodi_o_rourke/q2x0vlszhr3h #1. CLICK THE PINK PLUS SIGN LOCATED IN THE BOTTOM RIGHT HAND CORNER TO GET A TEXT BOX. TYPE YOUR NAME IN THE TEXT BOX. #2. First Paragraph Introduce: Treacher Collins Syndrome. Use your notes (graphic organizer)and reference information from the article and video. #3. Second Paragraph: Explain how could you choose kind if a neighbor, classmate, or relative had this syndrome. How do you think the person effected by this syndrome wants to be treated? By peers?? By family?? Use the information from the video and/or article to help support your answer. en-us 2017-10-23 19:25:42 UTC 2017-11-13 13:23:50 UTC hello@padlet.com 2024_noah_sacchetti https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200057431 Treacher Collins Syndrome is a disease that you have a 1 in a 50,000 to get.  What it does is it shapes your face bones different. This is caused by TCOF1,POLR1C . It can go from ok to very bad. Kids all across  the world. When a person is born with Treacher Collins Syndrome the person that has it will have eyes that are slanted and have deformed jaw nose and ears . If you are born with this you have a chance to be born with a space behind your nose. Sometimes if you are not lucky you have to get a tube in your throat. So Treacher Collins syndrome is very bad a life  threat .

I would do anything I could to help. I would want to be treated with kindness . I would want to be treated this way from everyone . Especially from my family like parents brother. I would wish that no one would disrecpect me. I would never want to be treated this was. I would never disrespect anyone with this syndrome  .So if anybody I know I would treat them with respect and kindness. ]]> 2017-10-24 15:48:54 UTC https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200057431 2024_juliana_testa https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200057455 Juliana Testa
Teacher Collins Syndrome is a very strong condition that affects the development of bones,other tissues in the face.  Most are born with a opening in the roof of the mouth called a (Cleft palate).  When there born underdevelopment facial bones may restrict affect in the airway which causes problems.  They have eye abnormalities that leads to vision loss.  Hear loss is caused by underdevelopment of the ear canal. Most things Teacher Collins Syndrome affect Facial bones,cheek bones,small jaw,and chin.This syndrome affects 1 in 50,000  people in the world.  TCOF1 , POLR1C , or POLR1D gene can cause this  syndrome. TCOF1 i the most common cause of the disorder for 81 to 93%.POLR1D causes 2%  of the disorder. RNA a chemical is a cousin of DNA. Also some people with this disorder can have no ears when they are born. Some Have 10 to 12 doctor appointments a month. Some have to have a tub that goes through there throat to thee stomach. Also some parents get worried of how others will treat there children with this disorder.
     I think too be kind to anyone with the disorder is to help them feel confident if they don´t . Help them through the way when there by your side. Some people may think these disorder children,adults are scary and  are not supposed to be where you are. You never know those people could surprise u and become your best friend forever.I also think those people would want to be treated with respect and kindness they might show to others because these people didn´t choose to be the way they are.Choose to be kind to everyone.]]> 2017-10-24 15:48:57 UTC https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200057455 2024_kevin_carnevale https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200057635
Treacher Collins Syndrome is a  disease u get when you are born it eats at bones and tissue . also can make u have a cleft palet you can also have slant down eyes. 1 and 50,000 people are born with it you might have mutations in the Mutations in the TCOF1, POLR1C, or POLR1D gene can cause Treacher Collins syndrome.  Some times you will need a tube in your neck and stomach. you may have to have a lot of surgery and doctor appointments.People with Treacher Collins syndrome usually have normal intelligence or sometimes a little bit less. Some times u can be born with no ears or you will have under devolved ear canals.The proteins produced from the TCOF1, POLR1C, and POLR1D genes all appear to play important roles in the early development of bones and other tissues of the face.


If i was born with i  would want to be treated the same as i am now because.People would look at me and  act not normal .i would  like to be treated kind and respected .people might make fun of me if i had it. i would get a lot of gifts from family.people would star at me and i would not like it. that how i wold like to be treated]]> 2017-10-24 15:49:16 UTC https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200057635 2024_ja_qwan_burrill https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200057707      Treacher Collins Syndrome is a syndrome that shapes your bone and tissues differently. Your jaw might be small, "an opening in the roof of the mouth"(cleft palate), et cetera. This syndrome happens in 1 in 50,000 people in the world. Treacher Collins syndrome is caused by TCOF1, POLR1C, and/or POLR1D gene mutations. " TCOF1 mutations causes 83-93% of this disorder. POLR1C and POLR1D cause 2% of this disorder. These genes reduces production of "ribosomal RNA(rRNA)." " Decrease in rRNA may trigger the victim's cells to self-destruct." " This abnormal cell deaths can lead to the specific problems with facial development in T.C.D.(example: may cause eye and/or ear problems). Children might get this syndrome from their parents. Say there were a mom and dad and four kids. If one of the parents carry this syndrome, half of the children may have this syndrome. If both parents carry this syndrome but don't have it, two children may carry this syndrome and one would be affected. If both parents have T.C.S., most of the children may be affected.
     I would be kind to someone who had this syndrome by supporting them if they had a hard time around other people. I know that people would judge people by their looks anywhere. "On social media, people helped support the parents with Cassidy's journey with her T.C.D." in Cassidy's Crusaders. Someone  with T.C.D may want to be treated with respect. People usually judge T.C.D victims by their looks. They may get bullied. These victims need support by other people so that they can fit in like the others. The T.C.D victims' family would help them the most than all of the people in the world. They do more things for the T.C.D affected  people than the others by helping them guide their way through the rough life they have ahead of them.]]> 2017-10-24 15:49:23 UTC https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200057707 2024_rangsey_polanco https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200057737 Treacher Collins syndrome affects the devlopment of facial bones and tissues in the face. it affects cheek bones,undevlop bones and have a small jaw and chin.undevlopment facial bones block a babies airway.1 in 50,000 people get Treacher Collins syndrome.hearing loss occurs. can have no ears.eyes slant downward,sparse eyelashes,notch in lower eyelids called a eyelid coloboma. Treacher Collins syndrome is made byTcof1,POLR1C,POLR1D. rRna self destruct cells involved in devlopment in facial bones and tissues in the face and rRna is limited in facial devlopment.
People who hae Treacher Collins syndrome was born with it.

If a neighbor,classmate,or relative had this syndrome. the person effected will wants to be treated kindly and friendly  and nonjudemental of how they look. you have to be supportive like people support Cassidy on social media and about her life with Treacher Collins Syndrome and  Glasgow Coma Sacle. people that suffer from this need people to be supportive for them like raising a charity. they need supportive people and people that acutally care about them they need supportive so they don't fell like they don't matter and that there just like any ordinary person.]]> 2017-10-24 15:49:26 UTC https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200057737 2024_dareeyin_barrette https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200057769 Treacher Collins Syndrome is a syndorome that affects the development of bones and other tissues of the face.Plus this  condition affects 1 in 50,000 as an estimate of people in the world.And some people with this condition are also born with an opening on the roof of its mouth is called  a cleft palate.People with treacher Collins  syndrome often have eyes that slant downward,sparse eyelashes, an a notch in the lower eyelids colobomaThe  condition  is caused by the TCOF1, POLRx1C and POLR1D.]]> 2017-10-24 15:49:30 UTC https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200057769 2024_matthew_miller https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200057881 Treacher collins syndrome is a rare disease that can happen to anyone but is not cuntagest to other people.]]> 2017-10-24 15:49:40 UTC https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200057881 2024_stacy_gaspar https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200057890 Treacher  Collins Syndrome is a disease where it affects the development of your bones in your body.  This condition affects an estimate in 1 in 50,000. Treacher Collins Syndrome mostly affects the cheek bones and small jaw bones. If there was a chance of getting it, you will get it when you were born with it. Treacher Collins Syndrome is made of  TCOF1, POLR1C, or POLR1D . Most people that are affected by this condition can not breathe on their own. Most often (if you are not really lucky) you will be born with a cliff palate which is an opening in the top of your mouth. Three small bones in the middle of your ears can lead to lost of hearing and cause you to have no ears. 

For and example of a child, a girl named Cassidy that has this syndrome. Cassidy has her throat which means she needs a trach plug for her to breathe. She has to be watched no matter what is happening if something goes wrong with her breathing. Cassidy has G.C.S. which she can't hear out of her ears. Her ears are deformed so she only has little buds for ears. She can't sleep correctly or not at all. Her face deformed so that her nose is in between her eyes. ]]> 2017-10-24 15:49:41 UTC https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200057890 2024_ronald_tanksley https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200057905 2017-10-24 15:49:42 UTC https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200057905 2024_austin_kenney https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200057986   Treacher Collins Syndrome
This condition affects an estimate 1 in 50,000 people in the world. The proteins proceed from the TCOF1, POLR1C, and POlR1D. TCOF1 means that gene mutations are the most common  cost of the disorder accounting from 81 of 93 percent of all cases. POLR1C and POIR1D are gene mutations cause an additional 2 percent of the cases. This is also affects the development of bones and other tissues of the face. The signs of symptoms of this discover vary greatly, ranging from almost unnoticeable to severe. Also with my back round knowledge from the video you have no ears or something like that. The most affected individuals have underdeveloped facial bones particularly the cheek bones an a very small jaw and chin. 

]]> 2017-10-24 15:49:53 UTC https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200057986 2024_joselyn_rodriguez https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200058024 teacher Collin syndrome it affects the developments of the bones and other tissue of the face. Particularly the cheek bone ,and a very small jaw and chain. people with this condition were also born with an opening  in the roof of the mouth called craft palate  characterized by absent small ,or unusually  formed ears in the middle ear. Cassidy crusaders Cassidy has no ears and dad was happy that he got a daughter but,he was so sad.Cassidy is born Collin syndrome and her mom take care of her.Cassidy  mom knew what she was all ready going to happen and the mom said that she will be happy mother for her child.People making fun of her and she is so cute but,people making fun of people are not right for them. Cassidy was at the hospital for 6 weeks. she had a lot surgery for a little girl. mom and dad love her so much of there daughter hat they have in there life.]]> 2017-10-24 15:49:58 UTC https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200058024 2024_antonio_leonard https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200058285  Treacher collins syndrome is a disorder where your muscles or bones get messed up like you might get an underdeveloped facial bone.It can be unnoticeable or severe.An affected person may have eyes that slant downward or have a cleft plate.Every one in fifty thousand people have this disease.Some affected by this have ears that go into the head and are flat against the head.People have also had sparse eyelashes.That is what  treacher collins syndrome is.
If someone I know or love had this disease I think he or she would want to be treated like normal.I think they would want everyone to ignore appearance and not treat him or her like everyone else.Not like she is weird and extremely sick.Just act like yourself around them.That is what I would want if I had treacher collins.That is how I would want to be treated. ]]> 2017-10-24 15:50:22 UTC https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200058285 2024_julian_ames https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200058554 They would want to be treated the way you want to be treated. I  would help the student in school.On any school work. And act normal around them. And be their best friend. And if a family member had this disease I would help them all day. And do anything they need help with.  That's what Treacher Collins syndrome is.]]> 2017-10-24 15:50:53 UTC https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200058554 2024_mia_bardoussi https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200061412  Treacher Collins Syndrome is a disease  that affects the development of tissue and bone structure in the facial region. This can only happen at birth. it affects about 1 in every 50,000 people. It could be barely noticeable to major or severe. An example of this is an opening of the cleft pallet (roof of the mouth) or A small jaw. Also a notch in the lower eyelid called Coloboma. In severe cases they would need surgery to help if things like there nose isn't connected to their throat or ear problems. 
 I think these children are truly amazing and brave. No one should ever make fun of or be mean to them. ]]> 2017-10-24 15:56:04 UTC https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200061412 2024_katrina_theth https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200116094 There is a severe disease in this world that is not contagious. It is called Treacher Collins Syndrome. Treacher Collins Syndrome is very rare but extremely dangerous. 1 in 50,000 is diagnosed with Treacher Collins Syndrome. People get this syndrome at birth.This condition affects the development of bones and  other tissues. Most people with this condition have an opening in the roof  of the mouth called a cleft palate. The underdevelopment of facial bones may restrict an affect on infants. For infants it can cause life threatening problems and lunges blocked.The reformation of eyes can be absent or petite eyes. Also a reformation of the ears can affect the hearing. Some diagnosed have additional abnormalities that can lead to loss of vision. Cassidy has hearing problems, she is deaf because of the syndrome. Treacher Collins Syndrome affects particularly parts of the cheek bones and a very small jaw or chin.  Going to surgeries and appointment happen in the first few years. 10-12 appointments per month. This syndrome can happen to anyone, no one is immune to Treacher Collins Syndrome. In conclusion everyone with Treacher Collins Syndrome with probably struggle for the rest of their life]]> 2017-10-24 17:33:16 UTC https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200116094 2024_isabella_clary https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200117842 Treacher Collins Syndrome affects who a person's face looks.]]> 2017-10-24 17:36:17 UTC https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200117842 2024_lillian_chauvette https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200117922 2017-10-24 17:36:25 UTC https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200117922 https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200117985 2017-10-24 17:36:33 UTC https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200117985 2024_hannah_carolan https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200768739  Treach Collins Syndrome is a condition that affects development in the face when a baby is born. This syndrome causes the victim to have series  of surgeries. Some of the affects of Treacher Collins syndrome are Cleft Plate ,slanted eyes or sparse eyelashes. A possibility could be Notch in lower eye lid. This syndrome could give a helpless child vision loss. ]]> 2017-10-26 12:26:18 UTC https://padlet.com/jodi_o_rourke/q2x0vlszhr3h/wish/200768739