Justlife Lived Experience Padlet by Gail Butler

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https://www.jrf.org.uk/narrative-change/talking-about-homes-framing-stories-from-lived-experience

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A Roadmap for Creating Trauma-Informed and Responsive Change: Guidance for Organisations, Systems and Workforces in Scotland (2023)

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Guiding questions that go with a workshop for peer researchers on intersectionality

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Workshop originally produced for Peer Researchers on intersectionality, not peer research specific

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This column introduces you to lived experience engagement in practice and gives you the essential foundations you need before getting started. Here, you’ll find guidance on safe and effective ways of working, how to begin a project, and the key benefits of meaningful lived experience engagement.

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Understanding power is central to meaningful lived experience engagement. This column provides resources on how power operates, how it shapes projects, and ways to navigate it to promote fairness and inclusion.

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This column focuses on ethical practice when working with lived experience. It provides guidance on minimising harm and working responsibly with people who may be vulnerable. Familiarising yourself with these principles will help ensure that research and materials produced with people are handled ethically in all external activities, including communications and media work.

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When working with people with lived experience, it is important to remunerate people fairly for their time, expertise, and contributions, which is an essential part of working equitably. Careful consideration is needed to ensure this does not create risks for people receiving benefits, and it is a question often raised at the start of a project. Below is a list of guidance and resources to help you navigate this.

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Trauma-informed approaches are key to co-production. They help ensure that the ways we work with people do not inadvertently retraumatise them, creating a safer and more supportive environment for meaningful collaboration. This column provides guidance and resources to help embed trauma-informed principles into your practice.

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Co-creating group agreements gives everyone ownership over how a group works together. Establishing clear agreements and boundaries helps ensure that interactions are respectful, safe, and productive. This column includes examples of group agreements and guidance on setting boundaries to support safe and effective collaboration.

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Participation is about giving communities a real say in the decisions that affect their lives. This column explores different ways to involve people, from consultation to co-production, highlighting approaches that empower communities and ensure their voices shape outcomes.

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One approach to involving lived experience is peer or community research. While it can be a powerful way to give people decision-making power and recognise their expertise, it needs to be carefully considered and thoughtfully set up. This column explores how to establish peer research groups, involve people meaningfully, and shares examples of community-led research in practice.

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This column explores co-production as an approach to lived experience involvement. It provides guidance on how to work as equal collaborators so that outcomes reflect everyone’s expertise and perspectives.

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Anti-racism is essential in co-production and participation. There is often a lack of understanding and acknowledgement of racism and the experiences of racialised communities in these spaces. Racism is a systemic issue, and some environments may lack adequate representation. This column provides guidance on creating safe, accessible, and meaningfully inclusive spaces, ensuring that all voices are heard and valued.

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This column shares guidance on using case studies; personal stories shared for learning, teaching, or professional development. They must be presented respectfully, with consent and without identifiable details, to ensure ethical and safe use.

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This column explores asking people with lived experience to share personal stories. Stories can humanise conversations, highlight what isn’t working, and make a compelling case for change. However, if not handled carefully, sharing stories can cause psychological harm, place blame on individuals, reveal identities, or create real-life risks such as losing housing. This column provides guidance on sharing stories safely, respectfully, and effectively, while protecting the people involved.

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This column explores the importance of positive endings in lived experience engagement. Ending involvement can be difficult, so it’s essential to plan carefully, provide support, and ensure that endings are clear, respectful, and safe for everyone involved.

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This column highlights the importance of reflective practice across the health and social care sector, for both the workforce and communities. Reflection can take place individually, in meetings, group sessions, or one-to-one conversations, supporting wellbeing and fostering shared learning.

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Below you can find out what intersectionality is and how it shapes people’s experiences of the world. Understanding it is essential for inclusive engagement, ensuring all voices are recognised, valued, understood, and meaningfully involved.

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alexprocter — 2025-12-17 12:44:41 UTC

Taking time to have thoughtful, honest conversations about roles, expectations, support, and payment during recruitment helps create conditions where people can participate confidently. This column focuses on the internal preparation and the quality of conversations needed to recruit well, supporting inclusive, transparent, and effective lived experience involvement.

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Why language matters

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https://thinklocalactpersonal.org.uk/blog/words-build-worlds-why-language-matters-in-inclusive-social-care/

The LGBT Great Inclusive Language Guide

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This column brings together a range of resources to help you navigate language, including reflections on its power and impact, guidance on engaging with people who have different language and communication needs, and examples of phrases to use or avoid. Use this collection to explore, learn, and reflect, with the aim of communicating in ways that are respectful, inclusive, accessible, and grounded in lived experience.

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