BMS07 - Interpretive frames by Bart Bloemen https://padlet.com/bbloemen30/o0o1uqy76d5b1oes en-us 2020-11-09 13:35:17 UTC 2025-11-19 03:08:07 UTC hello@padlet.com https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2425799880 Funding and performing research on how the brain works, how dementia develops and what can be a therapy target ultimately leads to a therapy that can stop or slow the development of dementia/Alzheimer's or cure dementia/Alzheimer’s]]> 2022-12-20 13:47:44 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2425799880 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2425800842 Pfizer/Big pharma is no longer giving money to research for therapies to cure Alzheimer’s ]]> 2022-12-20 13:48:49 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2425800842 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2425800970 Alzheimer’s is a disease that can be cured with pharmaceuticals]]> 2022-12-20 13:48:59 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2425800970 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2425801476 A cure needs to be found for diseases with a high burden on people and society]]> 2022-12-20 13:49:35 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2425801476 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2425822491 Better science communication will lead to a better policy in pandemics ]]> 2022-12-20 14:12:00 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2425822491 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2425823204 Science communication around COVID-19 was not proper, leading to unnecessary deaths]]> 2022-12-20 14:12:49 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2425823204 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2425823668 Science is the main reliable source of information. 
A lot of deaths from COVID-19 could have been prevented if governments had initiated measures in time. 
Vaccines are the solution for COVID-19. ]]> 2022-12-20 14:13:19 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2425823668 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2425823985 Protecting health and preventing deaths is more important than freedom and economics ]]> 2022-12-20 14:13:32 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2425823985 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426038091 Keep researching and funding research on potential targets for Alzheimer's disease; not giving up ]]> 2022-12-20 18:02:14 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426038091 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426039004 Companies like big Pharma are stopping the research on Alzheimer's as there are no results while a lot of money has been invested already. However, the global cost of Alzheimer's is only rising and in the future we will have to deal with these consequences if research does not continue]]> 2022-12-20 18:03:21 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426039004 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426040604 Research on Alzheimer's relies on big Pharma companies to invest, since they are necessary for development of potential treatments]]> 2022-12-20 18:05:18 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426040604 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426041488 Alzheimer's is a severe disease that nobody deserves to suffer from, and therefore we should never stop researching how we can tackle this disease. Both for patients on a personal level, as for society as a whole, who have to pay for it]]> 2022-12-20 18:06:28 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426041488 "Pharmaceutical companies are absolutely crucial in our war against Alzheimer’s and other dementias, and their input, financial muscle and insight hold the key to better treatments and prevent" https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426516427 2022-12-21 08:47:27 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426516427 "The economic burden of dementia is truly frightening." https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426517047 2022-12-21 08:48:41 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426517047 "There is currently no cure for any of the neurodegenerative conditions that give rise to dementia" "The World Health Organisation predicts 82 million patients worldwide by 2030. Alzheimer’s accounts for 60-70% cases of dementia." "According to Alzheimer’s Disease International, the global cost is an eye-watering $818bn; that’s 1% of global GDP" https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426518076 2022-12-21 08:50:22 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426518076 "Pharmaceutical companies must look at the long-term potential. It is essential that all of us make long-term commitments to dementia research if we are to conquer it." https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426518617 2022-12-21 08:51:33 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426518617 "Communication failures and the rise of misinformation have cost lives." https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426520404 2022-12-21 08:55:10 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426520404 "good science communication can save many lives" https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426527460 2022-12-21 09:07:32 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426527460 "The global spread of the COVID-19 pandemic was swiftly followed by a tsunami of information related to the disease, much of it essential, some unhelpful, and some downright dangerous." "As the disease spread around the world and case numbers grew exponentially, so did the scientific studies. Containment and eradication of the disease, which had succeeded with the original SARS coronavirus in 2004, looked increasingly unlikely, so the focus shifted towards treatment options and possible vaccines" "For any possible candidates, procedures for clinical trials and data sharing had to be accelerated accordingly. Inevitably, this haste led to wrong or insufficiently checked" "The government repeatedly claimed to be “following the science” — but was it cherry-picking bits of science that turned out to be the wrong ones?" https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426528195 2022-12-21 09:08:48 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426528195 Due to bad communication by scientists (a tsunami wave of new info, seemingly ever changing), bad communication by politicians (not listening to scientists, possibly cherry picking), many lives were lost to the disease. https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426528971 2022-12-21 09:10:11 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426528971 Big pharma should start invest into research studying the basic biology of Alzheimer’s disease. Thereby, companies should look more at the long-term potential and not invest mainly in expensive clinical trials. https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426532867 2022-12-21 09:16:46 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426532867 Companies (in particular Pfizer) are withdrawing its investments into research for a drug against Alzheimer. https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426533279 2022-12-21 09:17:27 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426533279 Investing billions into research into finding a drug for Alzheimer has not resulted into an effective treatment. https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426533539 2022-12-21 09:17:54 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426533539 Alzheimer is a wide disease that induces a lot of suffering and therefore companies should keep investing into Alzheimer research to eventually develop a treatment. https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426533710 2022-12-21 09:18:14 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426533710 Better communication between scientists and the public is needed. https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426535714 2022-12-21 09:21:52 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426535714 There is a lot of misinformation surrounding COVID-19. https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426535810 2022-12-21 09:22:03 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426535810 The lack of good science communication has lead to the spread of more misinformation surrounding COVID-19. https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426535931 2022-12-21 09:22:18 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426535931 Scientists/medical experts should improve their communication with the public as part of improving public health. https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426536235 2022-12-21 09:22:38 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426536235 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426562244 We need to learn more about the fundamental molecular underpinnings of dementia ]]> 2022-12-21 10:08:23 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426562244 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426562337 There is still no cure or preventative treatment for dementia. ]]> 2022-12-21 10:08:33 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426562337 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426562735 The costly phase three clinical trials of the pharmaceutical industry have not yielded any cures. But we learned a lot and quitting now would be disadvantageous.   ]]> 2022-12-21 10:09:13 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426562735 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426562869 Dementia slowly strips a person of what makes him human, which is devastating. ]]> 2022-12-21 10:09:27 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426562869 To protect public health, science had to obtain knowledge about new diseases at record speed and efficiently communicate it to political leaders, health professionals and the general public. https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426563037 2022-12-21 10:09:40 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426563037 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426563185 Communication failures and the rise of misinformation are costing lives]]> 2022-12-21 10:09:54 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426563185 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426563312 Transferring the right scientific information out of an enormous sea of accumulated information to the policy makers is difficult, and in order to get it to the general public a clear communication method is needed. Without a clear method the information won’t get picked up/believed, since there is a toxic amount of falsehoods being spread, undermining the trust in scientific evidence. ]]> 2022-12-21 10:10:09 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426563312 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426563483 This situation is downright dangerous, it costs lives and as many lives as possible need to be saved. ]]> 2022-12-21 10:10:24 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426563483 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426664106 Pharmaceutical companies must look at the long-term potential of dementia research. Right now, we should focus on understanding the basic biology of these diseases. ]]> 2022-12-21 13:02:18 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426664106 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426664355 The pharmaceutical company Pfizer quits dementia research, because their (phase III) trials keep failing. ]]> 2022-12-21 13:02:43 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426664355 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426664613 Dementia is a common disease, and will increase even more in prevalence the following years. In addition, the economic burden of dementia is very high. Even though we have already learned a lot about the disease, there still is no drug on the market that can help people with dementia.]]> 2022-12-21 13:03:05 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426664613 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426664946 It is unjust that Pfizer quits dementia research, when dementia is inflicting blow after blow, day after day, on millions of people.]]> 2022-12-21 13:03:39 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426664946 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426665362 Good science communication towards the policy makers and the general public is essential in the time of a pandemic.]]> 2022-12-21 13:04:14 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426665362 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426665507 The cooperation and communication between scientists and policy makers did not always go well during the COVID-19 pandemic, leading to a higher infection rate and even deaths of people. Additionally, science communication towards the general public was a big challenge because of the increasing amount of misinformation. ]]> 2022-12-21 13:04:30 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426665507 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426665843 During the pandemic, science had to obtain knowledge about the new disease at record speed and efficiently communicate it to political leaders, health professionals and the general public. Transferring the scientific information from the research front to the policy makers is already a challenge, but getting the general public on board is
where it becomes even more complicated. 
]]> 2022-12-21 13:04:55 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426665843 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426666090 The communication towards the policy makers and the general public did not always go well during the previous pandemic, and should be improved when something like this happens again. ]]> 2022-12-21 13:05:18 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426666090 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426680197 It is a tragedy (for the millions suffering from Alzheimer’s and Parkinson’s and the many more who are at risk for developing one of these devastating diseases) that Pfizer is pulling out of neuroscience research. Pharmaceutical companies are essential to the effort. ]]> 2022-12-21 13:25:34 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426680197 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426680743 Dementia is one of the toughest medical and economic challenges facing not just the UK, but the global population. The number of people having dementia will more than double over the next 30 years. Moreover, the economic burden of the disease is very big and the disease is emotionally draining even more people. Lastly, the author has devoted his career to beating the disease. ]]> 2022-12-21 13:26:20 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426680743 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426681200 Pharmaceutical companies must look at the long-term potential. It is essential that all of us make long-term commitments to dementia research if we are to conquer it. Pfizer should stick with us. Millions of patients are looking to us for help.]]> 2022-12-21 13:26:54 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426681200 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426681373 Good science communication can overcome the problems of misinformation/false information and poor decision making by the government. Helpful in overcoming problems of science communication is analysis of proceedings that provide valuable levels on how the communication between scientific experts and governments in crisis situations can be improved. ]]> 2022-12-21 13:27:08 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426681373 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426681520 Problematic is that errors have been made by the government in the communication and decision making in the COVID-19 pandemic. ]]> 2022-12-21 13:27:20 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426681520 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426681979 Transferring scientific information from research front to policy makers is a challenge. Moreover, getting the general public on board is where it becomes even more complicated. Communicators are confronted with a rising tide of misinformation. And false information with the aim to destabilize democracies has become a growing problem. ]]> 2022-12-21 13:27:58 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426681979 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426682289 Good science communication can save many lives. It is desirable to have good science communication to gain public trust in the COVID-19 vaccine that might come. 
It is important in that people take the vaccine. In wealthy countries public trust may be the factor deciding the vaccine’s success. 
]]> 2022-12-21 13:28:21 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426682289 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426682881 Society cannot afford to throw in the towel. The economic burden of dementia is frightening. Not all economic risks. It is emotionally draining and devastating to witness the gradual loss of everything that makes us human. ]]> 2022-12-21 13:29:10 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426682881 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426712320 The writer strongly disagrees with the ‘solution’ of the pharmaceutical companies, which is to stop investing in Alzheimer’s and Parkinson’s treatment research. While the clinical trials were not successful, more fundamental research should still be invested in.]]> 2022-12-21 14:06:33 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426712320 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426714014 Pfizer is stopping research into Alzheimer’s and Parkinson’s disease treatment, which is a tragedy for those suffering from those diseases and those that might develop it in the future.]]> 2022-12-21 14:08:40 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426714014 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426716046 Alzheimer’s and Parkinson’s disease are very severe on those suffering from it, those around them, and is a significant burden on society as well. As such, research should focus on treatment for these diseases.]]> 2022-12-21 14:11:26 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426716046 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426718799 Alzheimer’s and Parkinson’s disease are already common diseases, and the amount of people suffering from them will increase over time. Research is ongoing, though no effective treatment has been found as of yet.]]> 2022-12-21 14:14:40 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426718799 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426809742 We cannot throw in the towel as a society, and pharmaceutical companies should keep a long-term perspective. They should NOT pull out of research.]]> 2022-12-21 16:07:46 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426809742 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426810693 Dementia has a large economic impact and is devastating for many families worldwide. Pharmaceutical companies pulling out is a problem, and the impact dementia has will only grow in the years to come.]]> 2022-12-21 16:09:07 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426810693 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426811810 Although it we need many more years and much more money, pharmaceutical companies should keep investing. We're getting closer.]]> 2022-12-21 16:10:42 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426811810 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426919363 Good research communication is very important during crises, and can save lives.]]> 2022-12-21 18:42:46 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426919363 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426919525 Poor science communication has lead to loss of life during the COVID-19 pandemic. ]]> 2022-12-21 18:43:03 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426919525 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426919832 There have been examples of both good and bad science communication during the pandemic, with clear consequences; in some areas, the death toll fell very low, in other places it grew enormously.]]> 2022-12-21 18:43:30 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426919832 https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426919979 We should strive to save as many lives as possible by keeping the population properly informed (such as why certain measures should be taken). ]]> 2022-12-21 18:43:48 UTC https://padlet.com/bbloemen30/o0o1uqy76d5b1oes/wish/2426919979