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      <title>Caregiving Support (Schieloh Wolfe) by Schieloh Wolfe</title>
      <link>https://padlet.com/schielohwolfe/nf92jx4lzonin3et</link>
      <description>This bookshelf can be generalized, but it has information specifically pertaining to the African American Caregiving Community.</description>
      <language>en-us</language>
      <pubDate>2024-12-10 00:54:44 UTC</pubDate>
      <lastBuildDate>2024-12-10 00:54:46 UTC</lastBuildDate>
      <webMaster>hello@padlet.com</webMaster>
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      <item>
         <title>Family Caregiver Alliance</title>
         <author>tonisoccer622</author>
         <link>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253276992</link>
         <description><![CDATA[<ul><li><p>Resources are free, online, and easy to access for all caregivers</p></li><li><p>Longtime advocates for caregivers in policies, health, research, and public awareness on all levels ​</p></li><li><p>Have a variety of well researched articles published</p></li></ul>]]></description>
         <enclosure url="https://www.caregiver.org/" />
         <pubDate>2024-12-10 00:54:44 UTC</pubDate>
         <guid>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253276992</guid>
      </item>
      <item>
         <title>Georgia Department of Human Services Division of Aging Services</title>
         <author>tonisoccer622</author>
         <link>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253276993</link>
         <description><![CDATA[<ul><li><p>State Organization</p></li><li><p>Provides a variety of resources for caregivers like assistances, educations, reporting abuse, and more</p></li></ul>]]></description>
         <enclosure url="https://aging.georgia.gov/" />
         <pubDate>2024-12-10 00:54:44 UTC</pubDate>
         <guid>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253276993</guid>
      </item>
      <item>
         <title>River Valley Regional Commission Area on Aging</title>
         <author>tonisoccer622</author>
         <link>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253276994</link>
         <description><![CDATA[<ul><li><p>Local Caregiving Agency to Sumter County</p></li><li><p>Are partnered with many other programs like Habitat for Humanity. All Ways Caring Homecare, and more</p></li></ul>]]></description>
         <enclosure url="https://rivervalleyaging.org/" />
         <pubDate>2024-12-10 00:54:44 UTC</pubDate>
         <guid>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253276994</guid>
      </item>
      <item>
         <title>Rosalynn Carter Institute for Caregivers</title>
         <author>tonisoccer622</author>
         <link>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253276995</link>
         <description><![CDATA[<ul><li><p>Based out of Americus, GA​ and was founded 35 years ago by the Former First Lady Rosalynn Carter​</p></li><li><p>Offer caregiving support, advocacy, and strategic initiatives research</p></li><li><p>Provides a crisis help line and a course on managing your stress as a caregiver to help promote health, strength, and resilience in caregivers​</p></li></ul>]]></description>
         <enclosure url="https://rosalynncarter.org/" />
         <pubDate>2024-12-10 00:54:44 UTC</pubDate>
         <guid>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253276995</guid>
      </item>
      <item>
         <title>AARP</title>
         <author>tonisoccer622</author>
         <link>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253276996</link>
         <description><![CDATA[<ul><li><p>Nonprofit, Nonpartisan Organization​</p></li><li><p>Information available about how a caregiver can cope with certain situations, supporting caregivers, and care at skilled facilities​</p></li><li><p>Useful information that explains how a caregiver can care for someone with a specific problem. </p></li></ul>]]></description>
         <enclosure url="https://www.aarp.org/" />
         <pubDate>2024-12-10 00:54:44 UTC</pubDate>
         <guid>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253276996</guid>
      </item>
      <item>
         <title>Administration for Community Living</title>
         <author>tonisoccer622</author>
         <link>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253276998</link>
         <description><![CDATA[<ul><li><p>Government offered program​</p></li><li><p>Believe all people, regardless of age or disability, should be able to live independently and participate fully in their community.​</p></li><li><p>Offers programs, councils, and research projects </p></li><li><p>Some of the programs are: National Family Caregiver Support Program, Lifespan Respite Care Program, RAISE Family Caregiving Advisory Council​</p></li></ul><p>​</p>]]></description>
         <enclosure url="https://acl.gov/" />
         <pubDate>2024-12-10 00:54:44 UTC</pubDate>
         <guid>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253276998</guid>
      </item>
      <item>
         <title>Education</title>
         <author>tonisoccer622</author>
         <link>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253277000</link>
         <description><![CDATA[<ul><li><p>Caregivers need to be educated on self-care, the medical side of patient's needs, and how to communicate with healthcare workers.​</p></li><li><p>There are many different resources that are available to caregivers, the Rosalynn Carter Institute for Caregiver is one that is local to Americus, however, a lot of these resources can be easily accessed online </p></li><li><p>There are online course for how to handle situations and what a caregiver should know, there are articles explaining the best ways to communicate with healthcare, and there are different methods posted for how a caregiver can take care of themselves.</p></li></ul>]]></description>
         <enclosure url="https://www.aarp.org/caregiving/hands-on-care/" />
         <pubDate>2024-12-10 00:54:44 UTC</pubDate>
         <guid>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253277000</guid>
      </item>
      <item>
         <title>Financial Assistance</title>
         <author>tonisoccer622</author>
         <link>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253277001</link>
         <description><![CDATA[<ul><li><p>Financial assistance programs​</p></li></ul><ul><li><p>Budget and plan for care expenses​</p></li><li><p>Consult a financial advisor​</p></li><li><p>These are all effective tools a caregiver can use to help better manage their expenses</p></li><li><p>They vary in how accessible they are and what exactly they do, however there is an option that can be best suited for any caregivers situation</p></li></ul>]]></description>
         <enclosure url="https://www.usa.gov/disability-caregiver" />
         <pubDate>2024-12-10 00:54:44 UTC</pubDate>
         <guid>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253277001</guid>
      </item>
      <item>
         <title>Evidence Based Interventions</title>
         <author>tonisoccer622</author>
         <link>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253277003</link>
         <description><![CDATA[<ul><li><p>Join support groups​: allow a caregiver to relate to other people in similar situations​ and surrounds a caregiver with a group of people that understand​</p></li><li><p>Family and loved ones: provides a different level of comfort &amp; security​ and can help caregiver better manage personal life ​</p></li></ul>]]></description>
         <enclosure url="https://www.caregiver.org/connecting-caregivers/support-groups/" />
         <pubDate>2024-12-10 00:54:44 UTC</pubDate>
         <guid>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253277003</guid>
      </item>
      <item>
         <title>Advocacy</title>
         <author>tonisoccer622</author>
         <link>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253277004</link>
         <description><![CDATA[<ul><li><p>Be more involved in actively advocating consistently​</p></li><li><p>Send more letter to government official, be persistent​</p></li><li><p>Support groups​</p></li><li><p>Signing petitions​</p></li><li><p>Utilize social media</p></li></ul>]]></description>
         <enclosure url="http://www.house.gov/representatives/find-your-representative" />
         <pubDate>2024-12-10 00:54:44 UTC</pubDate>
         <guid>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253277004</guid>
      </item>
      <item>
         <title>Utilize Resources</title>
         <author>tonisoccer622</author>
         <link>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253277005</link>
         <description><![CDATA[<ul><li><p>Know what is out there and available to caregivers</p></li><li><p>There are so many listed online resources in this bookshelf, and they all contain helpful knowledge for a caregiver</p></li><li><p>It is important to be actively looking for resources to help</p></li></ul>]]></description>
         <enclosure url="https://pixabay.com/get/g09f68c4c6653656c7b1192b451d5db78e42c313ae445642c7debffda1fd27815ee3816125acd9beb9873dc93babf4615.jpg" />
         <pubDate>2024-12-10 00:54:44 UTC</pubDate>
         <guid>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253277005</guid>
      </item>
      <item>
         <title>Prioritize Selfcare</title>
         <author>tonisoccer622</author>
         <link>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253277006</link>
         <description><![CDATA[<ul><li><p>This is the most important thing a caregiver can do </p></li><li><p>How could caregivers help someone to the best of their ability if they are not helping make themselves the best they can be​</p></li><li><p>Meditation, managing stress, general self-care, and counseling</p></li><li><p>Barriers: Being honest and making time for self-care activities</p><ul><li><p>Can be hard for caregivers to accept that they might need help​. Caregivers overlook their own struggles and burdens because they are supposed to be fine all the time​</p></li><li><p>Making time for self-care activities​ because they already have very limited time so caregivers give up on ideas of self-care before they even tried ​</p></li></ul></li></ul>]]></description>
         <enclosure url="https://www.nia.nih.gov/health/caregiving/taking-care-yourself-tips-caregivers" />
         <pubDate>2024-12-10 00:54:44 UTC</pubDate>
         <guid>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253277006</guid>
      </item>
      <item>
         <title>Be Ready to Step Up</title>
         <author>tonisoccer622</author>
         <link>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253277008</link>
         <description><![CDATA[<ul><li><p>There are many different, unexpected situations a caregiver could face </p></li><li><p>It's impossible to prepare for every situation that might be faced, so having an open mind is important​</p></li><li><p>Any kind of help is better than no help!</p></li><li><p>Be able to think logically in times of crisis</p></li></ul>]]></description>
         <enclosure url="https://pixabay.com/get/gde6247cd39589868315775d7f860f3f9f07bd9e27c7ce549df9f01b403232d3e868cd69c5ee17a6eef4f8411f59b0157.jpg" />
         <pubDate>2024-12-10 00:54:44 UTC</pubDate>
         <guid>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253277008</guid>
      </item>
      <item>
         <title>Zarit Burden Interview</title>
         <author>tonisoccer622</author>
         <link>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253277009</link>
         <description><![CDATA[<ul><li><p>Very popular 22 question self-report assessment​</p></li><li><p>It does not include many common factors like age, gender, location, language, living situation, marital status, or employment status, it is just asking questions pertaining to all care givers</p></li><li><p>It would be easy to gain broad information about caregivers and solutions without the additional stress these factor put on it</p><p><br></p></li></ul>]]></description>
         <enclosure url="https://wai.wisc.edu/wp-content/uploads/sites/1129/2021/11/Zarit-Caregiver-Burden-Assessment-Instruments.pdf" />
         <pubDate>2024-12-10 00:54:44 UTC</pubDate>
         <guid>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253277009</guid>
      </item>
      <item>
         <title>Evidence based practices</title>
         <author>tonisoccer622</author>
         <link>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253277010</link>
         <description><![CDATA[<ul><li><p>It is made up of three things​: best available evidence​, clinician's knowledge and skills​, and patients wants/needs</p></li><li><p>It is a six-step process approach that is a systematic circle​: assess, ask, acquire, appraise, apply, and evaluate. (this cycle can be repeated if the outcome is not what was wanted)</p><p><br></p></li></ul>]]></description>
         <enclosure url="https://www.ncoa.org/article/evidence-based-program-powerful-tools-for-caregivers/" />
         <pubDate>2024-12-10 00:54:44 UTC</pubDate>
         <guid>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253277010</guid>
      </item>
      <item>
         <title>Human Centered Designs</title>
         <author>tonisoccer622</author>
         <link>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253277012</link>
         <description><![CDATA[<ul><li><p>Prioritizes the needs, experiences, and behaviors of people in a creative problem-solving way​</p></li><li><p>Multiple benefits like enhanced outcomes, improved usability, accessibility, and more</p></li><li><p>Centers around the idea that caregivers just not know what resources are out there. </p></li></ul>]]></description>
         <enclosure url="https://x.osfhealthcare.org/Blog/Posts/human-centered-design-instilling-sense-humanity-health-care-innovation" />
         <pubDate>2024-12-10 00:54:44 UTC</pubDate>
         <guid>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253277012</guid>
      </item>
      <item>
         <title>Stakeholders Roles</title>
         <author>tonisoccer622</author>
         <link>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253277014</link>
         <description><![CDATA[<ul><li><p>Stakeholders can be program staff, participants, funders, and policy makers​</p></li><li><p>In a study that was done, they found that the more stakeholders were involved in a program, the more successful the program was</p></li><li><p>If stakeholder are not very involved in programs, even if it is just one group, then it will negatively impact the program</p></li></ul>]]></description>
         <enclosure url="https://pmc.ncbi.nlm.nih.gov/articles/PMC9338493/" />
         <pubDate>2024-12-10 00:54:44 UTC</pubDate>
         <guid>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253277014</guid>
      </item>
      <item>
         <title>Take Time to Research</title>
         <author>tonisoccer622</author>
         <link>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253277015</link>
         <description><![CDATA[<ul><li><p>Taking your time with research is important to get the most effective results with less attempts at repeating the evidence-based systemic cycle.</p></li><li><p>If the time is taken to make sure that there is substantial research in one ways favor, then it will be more effective.​</p></li></ul>]]></description>
         <enclosure url="https://pmc.ncbi.nlm.nih.gov/articles/PMC6641093/" />
         <pubDate>2024-12-10 00:54:44 UTC</pubDate>
         <guid>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253277015</guid>
      </item>
      <item>
         <title>Communication</title>
         <author>tonisoccer622</author>
         <link>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253277016</link>
         <description><![CDATA[<ul><li><p>Communication is huge because if there is no communication, there is no program </p></li><li><p>Programs rely heavily on effective communication because if there is effective communication, the program is most likely doing well</p></li></ul>]]></description>
         <enclosure url="https://bmchealthservres.biomedcentral.com/articles/10.1186/s12913-023-09869-8" />
         <pubDate>2024-12-10 00:54:44 UTC</pubDate>
         <guid>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253277016</guid>
      </item>
      <item>
         <title>Enterprise Data Management</title>
         <author>tonisoccer622</author>
         <link>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253277017</link>
         <description><![CDATA[<ul><li><p>Organize, secure, and govern data​</p></li><li><p>Various stakeholders need to work together​ (stakeholders encompasses all participating members in the caregiver organization)​</p></li><li><p>If there is not a good flowing, efficient relationship between each stakeholder, then the organization will fail even if they have a good program​</p></li><li><p>Stakeholders that need to be involved: insurance companies, community organizations​, and educational institutions​</p></li><li><p>​Potential Barriers: lack of communication, lack of awareness​, hard to understand​, and people in organization not willing to change</p></li></ul>]]></description>
         <enclosure url="https://www.wolterskluwer.com/en/solutions/health-language" />
         <pubDate>2024-12-10 00:54:44 UTC</pubDate>
         <guid>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253277017</guid>
      </item>
      <item>
         <title>Burnout</title>
         <author>tonisoccer622</author>
         <link>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253277018</link>
         <description><![CDATA[<ul><li><p>Causes mental, emotional, and physical exhaustion</p></li><li><p>Can be caused by a variety of things: to little sleep, try to do more than they can handle, little to no support, feeling overwhelmed, lack of privacy, and more</p></li><li><p>Symptoms of burnout are not limited to: feeling tired, stressed, anxious, anger/irritability, hopeless, gaining or losing weight, withdrawing from friends and family, having difficulty making decisions/trouble concentrating, or misusing drugs or alcohol</p></li></ul>]]></description>
         <enclosure url="https://my.clevelandclinic.org/health/diseases/9225-caregiver-burnout" />
         <pubDate>2024-12-10 00:54:44 UTC</pubDate>
         <guid>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253277018</guid>
      </item>
      <item>
         <title>Isolation and Depression</title>
         <author>tonisoccer622</author>
         <link>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253277019</link>
         <description><![CDATA[<ul><li><p>Caregiver are highly affected by these two things, 40-70% of all caregiver have experienced clinical signs of depression</p></li><li><p>Caregiver experience feelings of loneliness because of depression which can lead to serious medical health effects</p></li></ul>]]></description>
         <enclosure url="https://www.caregiver.org/news/caregiver-isolation-and-loneliness/" />
         <pubDate>2024-12-10 00:54:44 UTC</pubDate>
         <guid>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253277019</guid>
      </item>
      <item>
         <title>Financial</title>
         <author>tonisoccer622</author>
         <link>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253277022</link>
         <description><![CDATA[<ul><li><p>Financial, African Americans struggle the most and have the lowest overall income​</p></li><li><p>African American caregivers struggle significantly more than other racial groups when it comes to finances, overworked, and low support</p></li><li><p>All caregivers are overlooked and under-paid​</p></li><li><p>Most of the time, caregivers are not paid, and they must take time off their paying job to be a caregiver​</p></li><li><p>There needs to be raised awareness and implementation of financial assistance programs for caregivers </p></li></ul>]]></description>
         <enclosure url="https://www.aarp.org/caregiving/basics/info-2021/african-american-caregivers-cope-better.html" />
         <pubDate>2024-12-10 00:54:44 UTC</pubDate>
         <guid>https://padlet.com/schielohwolfe/nf92jx4lzonin3et/wish/3253277022</guid>
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