National Resources and Organisations by

Bliss

neonatalpsychology2 — 2023-08-25 15:47:11 UTC

Offer emotional and practical support for families during and after a stay on the neonatal unit

Asthma + Lung UK

neonatalpsychology2 — 2023-08-31 11:48:08 UTC

Provide information and guidance to support those living with a lung condition. They provide a free helpline, as well as online or local support groups.

Brain & Spine Foundation

neonatalpsychology2 — 2023-08-31 11:56:12 UTC

Offer information and guidance on injury or damage to the brain, spine or nerves. They provide a free helpline, online or local support groups, and sign posting to related services.

British Heart Foundation

neonatalpsychology2 — 2023-08-31 11:58:03 UTC

Provide information and support relating to heart and circulatory conditions.

Contact

neonatalpsychology2 — 2023-08-31 12:01:44 UTC

Provide information for families with disabled children, including guidance on early years, financial and educational support. Also offer a free helpline for parents/carers with a disabled child under 25 on the number 0808 808 3555.

Disability, Pregnancy and Parenthood

neonatalpsychology2 — 2023-08-31 12:05:10 UTC

Provide information and support for disabled parents and professionals. This includes support when considering, during and after pregnancy.

Down's Syndrome Association

neonatalpsychology2 — 2023-08-31 12:07:01 UTC

Information and support for families and individuals living with Down's Syndrome.

Metabolic Support UK

neonatalpsychology2 — 2023-08-31 12:08:40 UTC

Provide information and support for families and individuals with Inherited Metabolic Disorders.

Rainbow Trust

neonatalpsychology2 — 2023-08-31 12:48:57 UTC

Support for families who have a child aged 0-18 years with a life-threatening or terminal illness.

Unique

neonatalpsychology2 — 2023-08-31 12:51:14 UTC

Raise awareness and provide support and information for anyone affected by a rare chromosome disorder or an autosomal dominant single gene disorder.

Child Bereavement UK

neonatalpsychology2 — 2023-08-31 12:54:21 UTC

Help for children, young people, parents, and families to rebuild their lives when a child grieves or when a child dies. Also provide training to professionals, equipping them to provide the best possible care to bereaved families.

The Ectopic Pregnancy Trust

neonatalpsychology2 — 2023-08-31 14:14:49 UTC

Offers information and support around ectopic pregnancy, and provides access to online forums to connect with others with similar experiences

The Miscarriage Association

neonatalpsychology2 — 2023-08-31 14:17:07 UTC

Information and support for those affected by miscarriage, ectopic pregnancy or molar pregnancy. Also offer a free helpline and online chat.

Petals

neonatalpsychology2 — 2023-08-31 14:18:31 UTC

Petals provides and promotes specialist counselling for parents across the UK following baby loss

Sands

neonatalpsychology2 — 2023-08-31 14:24:14 UTC

Provide bereavement support for families and healthcare professionals following stillbirth or neonatal death. They offer support via a helpline, online forums, and app, and also run football teams around the UK for bereaved families to come together.

SiMBA

neonatalpsychology2 — 2023-08-31 14:25:49 UTC

Offer virtual support groups to bereaved parents across the UK and Ireland. They also donate memory boxes to maternity and neonatal units across the UK.

Child Death Helpline

neonatalpsychology2 — 2023-08-31 14:26:58 UTC

Offers support to anyone affected by the death of a child of any age, from pre-birth to adult, under any circumstances, however recently or long ago.

neonatalpsychology2 — 2023-08-31 14:29:24 UTC

Offers information and support for bereaved families, including online support forums, retreats for bereaved individuals and a ‘Grief Companion Scheme’ providing one-to-one support for newly bereaved parents.

The Lullaby Trust

neonatalpsychology2 — 2023-08-31 14:30:45 UTC

Offer safe sleep advice and bereavement support. They also work with health visitors to deliver the Care of Next Infant (CONI) programme, an intensive health visiting programme for families having another baby after a sudden infant death.

Tommy's

neonatalpsychology2 — 2023-08-31 14:31:58 UTC

Provides information and support during pregnancy, and following miscarriage, stillbirth or premature birth

Winston's Wish

neonatalpsychology2 — 2023-08-31 14:33:37 UTC

Provides services to bereaved children, young people and their families and offer practical support and guidance to anyone concerned about a grieving child. Offer a free helpline on the number 08088 020 021.

Action on Pre-eclampsia

neonatalpsychology2 — 2023-08-31 14:35:58 UTC

Provide information and support for anyone affected by pre-eclampsia, including a confidential helpline available on 01386 761 848

AIMS

neonatalpsychology2 — 2023-08-31 14:39:36 UTC

AIMS support maternity service users to navigate the system as it exists and campaigns for improvements to the system. They offer a helpline for information and support on pregnancy and birth issues. They offer a listening space and practical support for those who are unhappy with their experiences of maternity services.

Antenatal Results & Choices

neonatalpsychology2 — 2023-08-31 14:40:44 UTC

Offer information and support before, during and after antenatal screening. Also provide a free helpline on the number 02074437895.

Best Beginnings

neonatalpsychology2 — 2023-08-31 14:43:24 UTC

Offer a free NHS approved Baby Buddy app, which provides 24/7 support including daily information, access to more than 300 films and other interactive features. The 'Get Help' button offer access to the 'Baby Buddy Crisis Messenger', a free 24/7 confidential text support service for pregnant families and new parents in emotional pain or crisis.

Birthrights

neonatalpsychology2 — 2023-08-31 14:45:19 UTC

Campaign for respectful and safe maternity care that protects women's fundamental rights. Provide advice and information to women, as well as training for doctors and midwives

Group B Strep Support

neonatalpsychology2 — 2023-08-31 14:51:51 UTC

Information and support on Group B Strep infection. On the charity's website is information for new or expectant parents about Group B Strep during pregnancy, labour and the first few months after birth, with links to where you can find out more.

ICP Support

neonatalpsychology2 — 2023-08-31 14:53:22 UTC

UK research-based charity offering information and support to women affected by intrahepatic cholestasis of pregnancy.

Kicks Count

neonatalpsychology2 — 2023-08-31 14:54:20 UTC

Provides a pregnancy information guide for expectant parents focussing on baby movement monitoring and a range of support options.

MAMA Academy

neonatalpsychology2 — 2023-08-31 14:55:05 UTC

MAMA Academy provides information for mums on how to have a safer pregnancy, as well as links to training, research and innovations in stillbirth prevention for professionals.

Pregnancy Sickness Support

neonatalpsychology2 — 2023-08-31 14:56:23 UTC

Aim to improve care, treatment and support for people suffering with Nausea and Vomiting in pregnancy (NVP) and the severe form of the condition - Hyperemesis Gravidarum (HG)

Pelvic Partnership

neonatalpsychology2 — 2023-08-31 15:01:04 UTC

Provide support and information about pregnancy-related pelvic girdle pain (PGP) to women experiencing it, their families and healthcare professionals.

Twins Trust

neonatalpsychology2 — 2023-08-31 15:02:29 UTC

Provides information about pregnancy and parenting for families with twins, triplets and more. Also offers virtual clubs and courses for those expecting or parenting twins, and provides support via their helpline ‘Twinline’.

Association of Breastfeeding Mums

neonatalpsychology2 — 2023-08-31 15:13:01 UTC

A breastfeeding support charity training volunteer peer supporters and breastfeeding counsellors. They also provide information and training for healthcare professionals, search facilities for local support groups and breastfeeding counselling via email.

La Leche League

neonatalpsychology2 — 2023-08-31 15:15:49 UTC

A breastfeeding support charity run by volunteer breastfeeding counsellors, providing support and information from pregnancy through to weaning. Provide support via telephone, email, online forums and local support groups.

Lactation Consultants of Great Britain

neonatalpsychology2 — 2023-08-31 15:16:52 UTC

Lactation Consultants of Great Britain (LCGB) are trained to provide practical and emotional support through expert clinical management of common and complex breastfeeding issues.

Breastfeeding Network

neonatalpsychology2 — 2023-08-31 15:20:01 UTC

Offer independent information and support for breastfeeding women and others. They provide a helpline from 9:30am-9:30pm daily, available in English, Welsh and Polish, as well access to peer support groups, a live chat and regional drop-in services.

Approachable Parenting

neonatalpsychology2 — 2023-08-31 15:22:57 UTC

Offer virtual psychological parenting programmes for BAME communities from pregnancy to 3 years, including breastfeeding support and access to support through befriending or mentoring.

Baby Sleep Information Source

neonatalpsychology2 — 2023-08-31 15:39:14 UTC

Provides evidence-based information about 'biologically normal' infant sleep for parents and practitioners, aiming to support parents to make informed choices about infant sleep and night-time care.

Carers Trust

neonatalpsychology2 — 2023-08-31 15:40:50 UTC

Provide information, advice, discussion and support for carers, including guidance on care services available near you and forums to connect with other carers.

Carers UK

neonatalpsychology2 — 2023-08-31 15:43:08 UTC

Provides information, advice and support for carers and their families, including a directory of local care organisations and sources of support near you.

CPotential

neonatalpsychology2 — 2023-08-31 15:45:05 UTC

Offers conductive education and a range of therapies for children with movement disorders such as cerebral palsy, acquired brain injury, or global development delay.

Cry-sis

neonatalpsychology2 — 2023-08-31 15:46:29 UTC

Provide support, advice and information for parents with crying and sleepless babies.

Dad Info

neonatalpsychology2 — 2023-08-31 15:48:11 UTC

Dad Info gives advice for parents from a dad’s perspective, including articles and ‘dad guides’ on pregnancy, birth and financial issues.

neonatalpsychology2 — 2023-08-31 15:52:45 UTC

Provides support for dads with attachment and bonding, as well as general support with parental mental health and guidance on how to access appropriate services.

Family Links - The Centre for Emotional Health

neonatalpsychology2 — 2023-08-31 15:55:56 UTC

Provide training and resources for families, schools and professionals working with parents and children to promote emotional wellbeing.

Family Lives

neonatalpsychology2 — 2023-08-31 15:58:40 UTC

Provide information and advice relating to a range of family matters. They also offer a free helpline, online chat, and access to forums.

Happy Steps

neonatalpsychology2 — 2023-09-12 15:04:36 UTC

Provide support for stepfamilies or blended families on a range of topics through self-help resources, workshops, coaching and mediation services.

HENRY

neonatalpsychology2 — 2023-09-12 15:08:30 UTC

Provide support for families on topics including nutrition, parenting skills, breastfeeding, emotional wellbeing and increasing activity levels. Support is offered through family programmes, workshops, groups and 1 to 1.

Home Start

neonatalpsychology2 — 2023-09-12 15:14:47 UTC

A national organisation with local branches of trained volunteers who support families with young children through challenging times. Offer both individual and group support.

Institute of Health Visiting

neonatalpsychology2 — 2023-09-12 15:16:09 UTC

The Institute of Health Visiting is a charity, an academic body and a UK Centre of Excellence supporting the development of universally high-quality health visiting practice. It promotes excellence in health visiting practice to benefit all children, families and communities with the aim of reducing health inequalities.

IPSEA

neonatalpsychology2 — 2023-09-12 15:17:50 UTC

Provide free legally-based advice to families who have children with special educational needs. Offer a range of helplines for advice and tribunal support.

Gingerbread

neonatalpsychology2 — 2023-09-12 15:18:49 UTC

Information and support for single parents, offered through a helpline, webchat, groups, forums and information pages

NCT

neonatalpsychology2 — 2023-09-12 15:20:03 UTC

Offer information and support relating to pregnancy, birth and feeding your baby. NCT provide live antenatal courses, local online support groups and activities for parents through their volunteer branch network, and reliable, up-to-date information for pregnant women and parents on their website.

Netmums Forum

neonatalpsychology2 — 2023-09-12 15:29:30 UTC

A supportive online community for parents, families or carers of babies born premature or sick. Netmums offers a unique Parent Supporter Service (PSS), which provides free one-to-one support for thousands of the UK's most vulnerable parents via a specially trained team of Parent Supporters, including Health Visitors and staff from Women's Aid. They also offer a daily drop-in clinic that operates every weeknight in the Netmums forum.

OnePlusOne

neonatalpsychology2 — 2023-09-12 15:33:06 UTC

Provide digital self-help resources for parents, both together and separated. Content and interventions are designed to help parents manage the stressors in their relationships, such as during the transition to parenthood, or how to approach arguments.

Patients Association

neonatalpsychology2 — 2023-09-12 15:36:43 UTC

Information and advice on healthcare services, dealing with problems and handling complaints

Relate

neonatalpsychology2 — 2023-09-12 15:37:13 UTC

Offers advice and support on relationships

Lullaby Trust

neonatalpsychology2 — 2023-09-12 15:37:55 UTC

Information and support on safer sleep for babies, including information on how to reduce the risk of sudden death syndrome (SIDS), and bereavement support.

Working Families

neonatalpsychology2 — 2023-09-12 15:39:06 UTC

Information on employment rights, childcare and flexible working. Parents and carers helpline 03000120312.

ACAS

neonatalpsychology2 — 2023-09-12 15:46:55 UTC

Provides free and impartial information and advice to employers and employees on all aspects or workplace relations and employment law, including specific guidance for parents with premature or sick babies.

Citizens Advice Bureau

neonatalpsychology2 — 2023-09-12 15:47:41 UTC

Free, independent, confidential and impartial advice on issues including benefits, employment and debt. National phoneline: 0800144 8848.

Gov.uk

neonatalpsychology2 — 2023-09-12 15:48:22 UTC

Information on government services; including registering a birth, tax benefits, employment and tax credits

Family Fund

neonatalpsychology2 — 2023-09-12 15:49:07 UTC

Offers grants for families raising a disabled or seriously ill child.

Maternity Action

neonatalpsychology2 — 2023-09-12 15:49:30 UTC

Work to promote, protect and enhance maternity rights at work, in healthcare and in tax credits.

National Debtline

neonatalpsychology2 — 2023-09-12 15:50:44 UTC

Free, confidential and independent advice about debt problems.

Turn2Us

neonatalpsychology2 — 2023-09-12 15:51:05 UTC

Helps people in financial hardship gain access to benefits, grants and support services.

Angelcare

neonatalpsychology2 — 2023-09-12 15:52:20 UTC

This company produces a range of sound and movement monitors as well as nappy disposal systems

Child Accident Prevention Trust

neonatalpsychology2 — 2023-09-12 15:52:58 UTC

Information on how to avoid injury and serious accidents involving children

Child Car Seats

neonatalpsychology2 — 2023-09-12 15:53:19 UTC

Information and advice around suitable car seats for children

Pampers

neonatalpsychology2 — 2023-09-12 15:54:05 UTC

Produces a range of nappies, including for those born premature.

Vija Design

neonatalpsychology2 — 2023-09-12 15:54:41 UTC

Produces a range of skin-to-skin clothing, with a specialist range for parents of babies born premature.

Action for Postpartum Psychosis

neonatalpsychology2 — 2023-10-02 10:04:10 UTC

Provide support and information for women and families affected by postpartum psychosis. Also offer peer support which can be accessed online or face-to-face, individually or in group settings.

Anna Freud Centre

neonatalpsychology2 — 2023-10-02 10:07:33 UTC

Working to improve the quality, effectiveness and accessibility of mental health provision in the UK through research activity, training and consultation with children, families and professionals.

Association of Postnatal Illness

neonatalpsychology2 — 2023-10-02 10:12:22 UTC

Provide information for professionals and individuals affected by postnatal illness. Offer support from volunteers via email or a telephone helpline.

Best Beginnings

neonatalpsychology2 — 2023-10-02 10:23:34 UTC

Provide an NHS approved 'Baby Buddy' app, which offers information and support for looking after your baby through pregnancy and the first year after birth, with over 300 videos on topics such as mental health, prematurity, breastfeeding, and support for dads. This includes a 24 hour emotional support text messaging service. They have also produced a series of films to help raise awareness of maternal mental health called 'Out of the Blue'.

Birth Trauma Association

neonatalpsychology2 — 2023-10-02 10:25:49 UTC

Offer information and support to birth parents who have had a traumatic birth experience, as well as family members who have also been affected. Peer support can be accessed via telephone or email.

British Association of Counselling and Psychotherapy

neonatalpsychology2 — 2023-10-02 10:26:56 UTC

Provide a search to help you find a local counsellor or therapist.

Campaign Against Living Miserably (CALM)

neonatalpsychology2 — 2023-10-02 10:36:04 UTC

Provide information on a range of issues involving emotional distress, as well as a service directory for accessing additional support. They also provide a webchat and telephone helpline (0800 585858).

Maternal Mental Health Alliance

neonatalpsychology2 — 2023-10-02 10:41:50 UTC

Provide information for women, families and professionals on perinatal mental health problems through their online resource hub. They also provide information for women around accessing additional support, and run campaigns to improve accessibility and quality of support for mums and their families.

Mind

neonatalpsychology2 — 2023-10-02 10:45:52 UTC

Provide information and support around a range of mental health difficulties. They have over 130+ local hubs that offer direct support for those who need it. Offer a free helpline on 0300 123 3393.

PANDAS

neonatalpsychology2 — 2023-10-02 10:48:52 UTC

Provide information and support for people coping with pre- and post-natal mental illnesses. Provide support via a free helpline (0808 1961 776), WhatsApp, email and face-to-face or online support groups.

Samaritans

neonatalpsychology2 — 2023-10-02 10:51:36 UTC

Offer a 24-hour confidential listening service via their helpline (166 123). Also provide support via email on jo@samaritans.org.

Young Minds

neonatalpsychology2 — 2023-10-02 10:54:33 UTC

Provide information and guidance for young people on a range of topics to support with mental health.

National Maternity Voices

neonatalpsychology2 — 2023-10-02 10:55:41 UTC

National Maternity Voices is the national group of Maternity Voices Partnerships in England. A Maternity Voices Partnership (MVP) is a NHS working group: a team of women and their families, commissioners and providers (midwives and doctors) working together to review and contribute to the development of local maternity care.

NSPCC

neonatalpsychology2 — 2023-10-02 11:01:05 UTC

Work to protect children and prevent abuse. Provide support to children via their helpline Childline (0800 1111). They also provide a range of resources for parents, including 'Look, Say, Sing, Play' (provides fun and easy tips to support with infant development), 'Pregnancy in Mind' (service supporting mild to moderate mental health conditions), and 'Baby Steps' (a psycho-educational programme for new parents to support with parenthood).

Women's Aid

neonatalpsychology2 — 2023-10-02 11:06:13 UTC

Provide support for women who are currently or have previously experienced domestic abuse. Offer support via online chat, email, forums and online resources, including their 'survivors handbook'. Also offer support through their local hubs.

Scope

neonatalpsychology2 — 2023-10-17 10:41:54 UTC

Offer a range of advice and support for disabled people and their families. Also offer emotional support (6 sessions) for parents/carers who are finding out about their child’s additional needs (on a diagnostic pathway or within 1 year of diagnosis).

By You Side Perinatal

neonatalpsychology2 — 2023-10-17 10:45:59 UTC

Charity offering peer support to people experiencing perinatal mental health difficulties. Whilst their website is being developed, information can also be accessed via: www.facebook.com/ByYourSidePerinatal

Muslim Women's Network

neonatalpsychology2 — 2023-10-17 10:48:59 UTC

Offer a telephone helpline for those suffering from or at risk of abuse or facing problems on a range of issues. Provides a confidential and non-judgmental specialist faith and culturally sensitive service, offering information, support, guidance and referrals. Primarily for Muslim women, but will accept calls from women/girls of any or no faith. Support offered in English, Urdu, Punjabi, Mirpuri, Putwari, Hindko, and Bengali.
Helpline: 0800 9995786 (10am-4pm, Monday-Friday).

Lily Mae Foundation

2023-11-23 16:20:44 UTC

Offer support for parents and families following baby loss. This includes access to 1:1 and group support.

Our Sam

2023-11-23 16:23:12 UTC

Provide a directory of services to help bereaved families find support most suited to them.

Child of Jannah

2023-11-23 16:26:26 UTC

Offer Islamic faith-based bereavement support for families who experience baby loss, including a helpline and support groups

The Smallest Things

2023-11-23 16:44:33 UTC

A charity working to promote good health of premature infants and their parents and to raise awareness of the needs of families after a stay on the neonatal unit.

Together for Short Lives

2023-11-23 16:47:20 UTC

Provide emotional, practical and financial support to families of children diagnosed with a life limiting condition

Unexpected Beginnings: The Neonatal Unit

2023-11-23 16:52:01 UTC

A podcast focusing on the experience of having a baby in the neonatal unit through talking to parents, doctors, and allied health professionals

Grief Encounter

neonatalpsychology2 — 2023-11-24 11:47:34 UTC

Provide resources and support to bereaved children and young people. They have a free helpline, as well as a Family Liaison Team who can provide advice on support available.