Welcome To Our HUGS of Florida, Inc. Family by Hugs of Florida, Inc. https://padlet.com/hugsflorida/Home We are a group of families supporting others who have Neurological Conditions. We were originally brought together by hydrocephalus and have expanded to include and support others with conditions such as Cerebral Palsy and Epilepsy. We are located in the Tampa Bay area in West Central Florida. HUGS of Florida, Inc. was formed for charitable and educational purposes to Connect, Support, Educate and Advocate with individuals and families who are affected by these conditions. We are a volunteer based 501(c)(3) non-profit organization. en-us 2021-08-31 13:57:47 UTC 2026-06-03 19:20:29 UTC hello@padlet.com Group supports families affected by hydrocephalus burnsdancefitness https://padlet.com/hugsflorida/Home/wish/1775183735 April 2006]]> 2021-09-28 16:01:46 UTC https://padlet.com/hugsflorida/Home/wish/1775183735 Hydrocephalus support group kicks off program burnsdancefitness https://padlet.com/hugsflorida/Home/wish/1775192874 March 2007]]> 2021-09-28 16:04:47 UTC https://padlet.com/hugsflorida/Home/wish/1775192874 Walk raises awareness of hydrocephalus burnsdancefitness https://padlet.com/hugsflorida/Home/wish/1775197146 September 2007]]> 2021-09-28 16:06:05 UTC https://padlet.com/hugsflorida/Home/wish/1775197146 Hydrocephalus group celebrates anniversary burnsdancefitness https://padlet.com/hugsflorida/Home/wish/1775202700 April 2009]]> 2021-09-28 16:07:49 UTC https://padlet.com/hugsflorida/Home/wish/1775202700 Fox 13 Story About Hydrocephalus Walk 2010 burnsdancefitness https://padlet.com/hugsflorida/Home/wish/1775212935 2021-09-28 16:11:02 UTC https://padlet.com/hugsflorida/Home/wish/1775212935 Fox 13 Whats Right With Tampa Bay Segment burnsdancefitness https://padlet.com/hugsflorida/Home/wish/1775216104 2021-09-28 16:11:59 UTC https://padlet.com/hugsflorida/Home/wish/1775216104 Click the Link Below to View Photos from all our Events burnsdancefitness https://padlet.com/hugsflorida/Home/wish/1775236120 www.facebook.com/hugsflorida/photos/]]> 2021-09-28 16:18:26 UTC https://padlet.com/hugsflorida/Home/wish/1775236120 Click the Link Below to Join Our Mailing List burnsdancefitness https://padlet.com/hugsflorida/Home/wish/1775277209 http://eepurl.com/c1T9cf

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]]> 2021-09-28 16:39:37 UTC https://padlet.com/hugsflorida/Home/wish/1775301419 About Us burnsdancefitness https://padlet.com/hugsflorida/Home/wish/1775346183 When our son Jeremy was born in 2001, we felt very alone. We had never heard of Hydrocephalus before, and suddenly, this was something that we, and Jeremy would have to deal with for the rest of his life. We searched the internet, and purchased books to gather the most information and get the most knowledge on this incurable, but treatable condition.
We decided, after we were out of the woods, to start a local support group for families who have to deal with Hydrocephalus and other neurological conditions. We had our first picnic in April 2004; and have had picnics two or three times a year at our house to get together and we also hold an annual event in Largo Central Park to raise funds. We just have one goal, and that is for no person to have to go through what we did and feel like they are alone. Jeremy is now an adult and he is doing awesome! We have been very lucky as he has only had to endure four brain surgeries for his shunt. Jeremy does also have mild hemiplegic Cerebral Palsy and in 2010 started having seizures that resulted in a diagnosis of Epilepsy. Jeremy is now in an Extended Transition internship with Project Search.
]]> 2021-09-28 16:54:01 UTC https://padlet.com/hugsflorida/Home/wish/1775346183 14th Annual HUGS Family Fun Day 2018 Video Highlights burnsdancefitness https://padlet.com/hugsflorida/Home/wish/1775356489 2021-09-28 16:57:18 UTC https://padlet.com/hugsflorida/Home/wish/1775356489 Meet Huggles burnsdancefitness https://padlet.com/hugsflorida/Home/wish/1775366291 In April 2017, Jeremy presented the idea of having a mascot for our local support group. Jeremy has Sensory Processing Disorder and wanted the mascot to be a strategy to try to overcome some of the challenges with SPD.

Huggles was born.

 If you would like to request Huggles for an appearance, send an email to info@hugsflorida.org
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