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      <title>Respectful Data Sharing by Suzy S</title>
      <link>https://padlet.com/suzystyles/respectful_data_sharing</link>
      <description>A sharing space for resources discussed at SIPS 2022</description>
      <language>en-us</language>
      <pubDate>2022-06-28 15:42:00 UTC</pubDate>
      <lastBuildDate>2022-07-04 13:40:45 UTC</lastBuildDate>
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      <item>
         <title>Models of Consent</title>
         <author>suzystyles</author>
         <link>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232580228</link>
         <description><![CDATA[]]></description>
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         <pubDate>2022-06-28 15:42:57 UTC</pubDate>
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      <item>
         <title>Two-Part Consent</title>
         <author>suzystyles</author>
         <link>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232581228</link>
         <description><![CDATA[]]></description>
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         <pubDate>2022-06-28 15:44:36 UTC</pubDate>
         <guid>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232581228</guid>
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      <item>
         <title>Models of Data Sharing</title>
         <author>suzystyles</author>
         <link>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232581657</link>
         <description><![CDATA[]]></description>
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         <pubDate>2022-06-28 15:45:16 UTC</pubDate>
         <guid>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232581657</guid>
      </item>
      <item>
         <title>Creative Commons Licenses</title>
         <author>suzystyles</author>
         <link>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232640911</link>
         <description><![CDATA[<div><strong>Origin:</strong><br>• Basic copyright is held by a creator (e.g., artist, musician) unless the work was created under contract (e.g., a commission). In general, some time after the death of a creator, their works will be passed into the public domain (different rules for different jurisdictions), after which time their work can be used freely without payment. A creator can assert that they want their work to be used freely before this time period is open by stating a <strong>license for use</strong>. This is called applying a license, or asserting a license.<br><br><strong>Good things</strong><br>• Clear guidelines on reuse<br>• Different types available<br>• Now considered an international standard<br><strong>Less good things</strong><br>• Not designed for participant data<br>• Not editable for special reuse circumstances (e.g., no way to add 'assurance of respect')</div>]]></description>
         <enclosure url="https://creativecommons.org/about/cclicenses/" />
         <pubDate>2022-06-28 17:14:03 UTC</pubDate>
         <guid>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232640911</guid>
      </item>
      <item>
         <title>Data Ownership</title>
         <author>suzystyles</author>
         <link>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232646672</link>
         <description><![CDATA[]]></description>
         <enclosure url="" />
         <pubDate>2022-06-28 17:23:39 UTC</pubDate>
         <guid>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232646672</guid>
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      <item>
         <title></title>
         <author>suzystyles</author>
         <link>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232683221</link>
         <description><![CDATA[]]></description>
         <enclosure url="https://twitter.com/leslieblaha/status/1115395967321350145?s=20&amp;t=vIlGZ7TznJQDyj5bezMyig" />
         <pubDate>2022-06-28 18:21:51 UTC</pubDate>
         <guid>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232683221</guid>
      </item>
      <item>
         <title>Richly Informed Consent</title>
         <author>suzystyles</author>
         <link>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232698880</link>
         <description><![CDATA[]]></description>
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         <pubDate>2022-06-28 18:48:47 UTC</pubDate>
         <guid>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232698880</guid>
      </item>
      <item>
         <title>Consent to *participate* in research</title>
         <author>suzystyles</author>
         <link>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232768423</link>
         <description><![CDATA[]]></description>
         <enclosure url="" />
         <pubDate>2022-06-28 21:11:56 UTC</pubDate>
         <guid>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232768423</guid>
      </item>
      <item>
         <title>Image/Voice/Video release agreements</title>
         <author>suzystyles</author>
         <link>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232768715</link>
         <description><![CDATA[]]></description>
         <enclosure url="" />
         <pubDate>2022-06-28 21:12:29 UTC</pubDate>
         <guid>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232768715</guid>
      </item>
      <item>
         <title>Extra Release Agreements</title>
         <author>suzystyles</author>
         <link>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232770453</link>
         <description><![CDATA[<div><em>Identifiable/reidentifiable data</em><br>From: <a href="https://doi.org/10.3389/fpsyg.2021.734936">https://doi.org/10.3389/fpsyg.2021.734936</a></div>]]></description>
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         <pubDate>2022-06-28 21:16:46 UTC</pubDate>
         <guid>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232770453</guid>
      </item>
      <item>
         <title>&#39;Terms of Use&#39;</title>
         <author>suzystyles</author>
         <link>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232771134</link>
         <description><![CDATA[]]></description>
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         <pubDate>2022-06-28 21:18:53 UTC</pubDate>
         <guid>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232771134</guid>
      </item>
      <item>
         <title>Audio Release Form</title>
         <author>suzystyles</author>
         <link>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232772300</link>
         <description><![CDATA[<div>Link: https://doi.org/10.21979/N9/I6KXC6</div>]]></description>
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         <pubDate>2022-06-28 21:22:09 UTC</pubDate>
         <guid>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232772300</guid>
      </item>
      <item>
         <title>Permission to Retain &amp; Present</title>
         <author>suzystyles</author>
         <link>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232773342</link>
         <description><![CDATA[<div>Fine print for each of the items is presented on the back of the form so a participant can find out more, but a plain language summary is sufficient for most participants.</div>]]></description>
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         <pubDate>2022-06-28 21:24:49 UTC</pubDate>
         <guid>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232773342</guid>
      </item>
      <item>
         <title>Permission to Share</title>
         <author>suzystyles</author>
         <link>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232773745</link>
         <description><![CDATA[<div>Fine print for each of the items is presented on the back of the form so a participant can find out more, but a plain language summary is sufficient for most participants.</div>]]></description>
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         <pubDate>2022-06-28 21:25:54 UTC</pubDate>
         <guid>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232773745</guid>
      </item>
      <item>
         <title>Choice of self-identity</title>
         <author>suzystyles</author>
         <link>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232773934</link>
         <description><![CDATA[<div>Fine print for each of the items is presented on the back of the form so a participant can find out more, but a plain language summary is sufficient for most participants.</div>]]></description>
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         <pubDate>2022-06-28 21:26:27 UTC</pubDate>
         <guid>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232773934</guid>
      </item>
      <item>
         <title>Assurance of Respect</title>
         <author>suzystyles</author>
         <link>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232774276</link>
         <description><![CDATA[<div>Fine print for each of the items is presented on the back of the form so a participant can find out more, but a plain language summary is sufficient for most participants.</div>]]></description>
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         <pubDate>2022-06-28 21:27:19 UTC</pubDate>
         <guid>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232774276</guid>
      </item>
      <item>
         <title>+ Open Science Promise</title>
         <author>suzystyles</author>
         <link>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232774670</link>
         <description><![CDATA[<div>Helping participants understand what happens to their data and why.</div>]]></description>
         <enclosure url="" />
         <pubDate>2022-06-28 21:28:24 UTC</pubDate>
         <guid>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232774670</guid>
      </item>
      <item>
         <title>Open Science Promise </title>
         <author></author>
         <link>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232783359</link>
         <description><![CDATA[]]></description>
         <enclosure url="https://padlet-uploads.storage.googleapis.com/1715606266/f03a2ac0ded4dfe75d7741481753d0fa/openscience.png" />
         <pubDate>2022-06-28 21:52:21 UTC</pubDate>
         <guid>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232783359</guid>
      </item>
      <item>
         <title>Indigenous data sovereignty</title>
         <author></author>
         <link>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232785513</link>
         <description><![CDATA[<div>Link:&nbsp; <a href="https://www.stateofopendata.od4d.net/chapters/issues/indigenous-data.html">https://www.stateofopendata.od4d.net/chapters/issues/indigenous-data.html</a></div>]]></description>
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         <pubDate>2022-06-28 21:58:42 UTC</pubDate>
         <guid>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232785513</guid>
      </item>
      <item>
         <title>Consent to share anonymous study data</title>
         <author>suzystyles</author>
         <link>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232802376</link>
         <description><![CDATA[]]></description>
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         <pubDate>2022-06-28 22:43:36 UTC</pubDate>
         <guid>https://padlet.com/suzystyles/respectful_data_sharing/wish/2232802376</guid>
      </item>
      <item>
         <title>Image &#39;Release&#39; (Photography)</title>
         <author>suzystyles</author>
         <link>https://padlet.com/suzystyles/respectful_data_sharing/wish/2233479373</link>
         <description><![CDATA[<div><strong>Origin:</strong><br>• Some states have laws allowing a person autonomy over the use of their images <strong><em>for profit</em></strong>, but they can enter a contract that specifies certain uses.<br><br><strong>Good things:</strong><br>• Release often sought <strong><em>after</em></strong> a shoot<br>•This is <strong><em>fully informed</em></strong><br>• Templates for contracts are available<br>• Completely editable<br><strong>Less good things:<br></strong>• Not required in law in all places<br>• Not always suitable for research data</div>]]></description>
         <enclosure url="https://www.format.com/magazine/resources/photography/photo-release-forms" />
         <pubDate>2022-06-29 14:54:44 UTC</pubDate>
         <guid>https://padlet.com/suzystyles/respectful_data_sharing/wish/2233479373</guid>
      </item>
      <item>
         <title>Code Licenses in GitHub</title>
         <author>suzystyles</author>
         <link>https://padlet.com/suzystyles/respectful_data_sharing/wish/2233498765</link>
         <description><![CDATA[<div>• A number of 'standards' exist<br>• GitHub retains other permissions over data stored on their site<br>• Users don't necessarily see/check the license</div>]]></description>
         <enclosure url="" />
         <pubDate>2022-06-29 15:22:51 UTC</pubDate>
         <guid>https://padlet.com/suzystyles/respectful_data_sharing/wish/2233498765</guid>
      </item>
      <item>
         <title>CC licenses in OSF</title>
         <author>suzystyles</author>
         <link>https://padlet.com/suzystyles/respectful_data_sharing/wish/2233499862</link>
         <description><![CDATA[<div>• Only one license type exists as a default (the most open)<br>• Any other license info can be hard to find in a supplementary file<br>• A future user can skip/miss the relevant details</div>]]></description>
         <enclosure url="" />
         <pubDate>2022-06-29 15:24:40 UTC</pubDate>
         <guid>https://padlet.com/suzystyles/respectful_data_sharing/wish/2233499862</guid>
      </item>
      <item>
         <title>&#39;Authorization&#39; based reuse agreements</title>
         <author>suzystyles</author>
         <link>https://padlet.com/suzystyles/respectful_data_sharing/wish/2233504340</link>
         <description><![CDATA[<div>• Only 'registered' members of a specific community can reuse<br>• To become a member, you must create a log-in/account and agree to the terms of use at account creation <br>• Additional qualifications for membership can also exist (e.g., affiliated with an academic research institution; Ethics training)<br><br><strong>Good bits:</strong><br>• Often clearer than most data use agreements between informal collaborators<br>• Precise wording can be incorporated into consent forms to allow/enable this kind of protected future reuse&nbsp; <br><strong>Less good bits</strong><br>• Participants unlikely to be able to access their own data<br>• Depending on implementation, data reuse agreements can be forgotten at time of download<br><br><strong>Examples:</strong><br>Databrary</div>]]></description>
         <enclosure url="" />
         <pubDate>2022-06-29 15:31:57 UTC</pubDate>
         <guid>https://padlet.com/suzystyles/respectful_data_sharing/wish/2233504340</guid>
      </item>
      <item>
         <title>Open data license examples</title>
         <author>suzystyles</author>
         <link>https://padlet.com/suzystyles/respectful_data_sharing/wish/2233504879</link>
         <description><![CDATA[]]></description>
         <enclosure url="" />
         <pubDate>2022-06-29 15:32:45 UTC</pubDate>
         <guid>https://padlet.com/suzystyles/respectful_data_sharing/wish/2233504879</guid>
      </item>
      <item>
         <title>Point-of-download reuse agreements </title>
         <author>suzystyles</author>
         <link>https://padlet.com/suzystyles/respectful_data_sharing/wish/2233505588</link>
         <description><![CDATA[<div>Before you can perform a download the license info is presented and you have to actively agree to the license for reuse before you’re download can begin<br><br><strong>Good Bits</strong><br>• Don’t have to look for it<br>• Active agreement (not passive/tacit)<br><strong>Less good bits</strong><br>• Few ’standard examples’ exist<br>• Not possible on many platforms<strong><br><br>Examples:</strong><br>Hacked Dataverse 'Guestbook' feature</div>]]></description>
         <enclosure url="" />
         <pubDate>2022-06-29 15:33:52 UTC</pubDate>
         <guid>https://padlet.com/suzystyles/respectful_data_sharing/wish/2233505588</guid>
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      <item>
         <title>Stated/Asserted reuse agreements</title>
         <author>suzystyles</author>
         <link>https://padlet.com/suzystyles/respectful_data_sharing/wish/2233660887</link>
         <description><![CDATA[<div>A data archive contains specific information about licensing and re-use which is asserted in text or logo at the data storage site.<br><br><strong>Good bits:</strong><br>• There is a clear declaration about future reuse <br>• Many 'standard' licenses or templates exist<br>• Users can often choose or assert a license that suits their particular needs.<br><strong>Less good bits:</strong><br>• License information <strong><em>may or may not</em></strong> be visible in the section of the website where the download button is located<br>• A future user needs to know about and actively look for license info<br>• License info <strong><em>may or may not</em></strong> be embedded in downloaded data objects.</div>]]></description>
         <enclosure url="" />
         <pubDate>2022-06-29 20:31:42 UTC</pubDate>
         <guid>https://padlet.com/suzystyles/respectful_data_sharing/wish/2233660887</guid>
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      <item>
         <title>Pinboard Map</title>
         <author>suzystyles</author>
         <link>https://padlet.com/suzystyles/respectful_data_sharing/wish/2234019397</link>
         <description><![CDATA[]]></description>
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         <pubDate>2022-06-30 05:46:52 UTC</pubDate>
         <guid>https://padlet.com/suzystyles/respectful_data_sharing/wish/2234019397</guid>
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      <item>
         <title>Data Ownership vs IP</title>
         <author>suzystyles</author>
         <link>https://padlet.com/suzystyles/respectful_data_sharing/wish/2236464237</link>
         <description><![CDATA[<div>Link: <a href="https://data.research.cornell.edu/content/intellectual-property">https://data.research.cornell.edu/content/intellectual-property</a></div>]]></description>
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         <pubDate>2022-07-04 12:56:50 UTC</pubDate>
         <guid>https://padlet.com/suzystyles/respectful_data_sharing/wish/2236464237</guid>
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      <item>
         <title></title>
         <author>suzystyles</author>
         <link>https://padlet.com/suzystyles/respectful_data_sharing/wish/2236487931</link>
         <description><![CDATA[<div>Must fill in a form before download is possible</div>]]></description>
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         <pubDate>2022-07-04 13:32:53 UTC</pubDate>
         <guid>https://padlet.com/suzystyles/respectful_data_sharing/wish/2236487931</guid>
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      <item>
         <title>Databrary</title>
         <author>suzystyles</author>
         <link>https://padlet.com/suzystyles/respectful_data_sharing/wish/2236491157</link>
         <description><![CDATA[<div>Different projects have different levels of permission for potential future users. Users can apply for authorization on particular datasets.</div>]]></description>
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         <pubDate>2022-07-04 13:38:15 UTC</pubDate>
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