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      <title>Ormskirk Epilepsy Padlet by </title>
      <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh</link>
      <description>Welcome to the Ormskirk Epilepsy Padlet - a collection of resources aimed at supporting the care of your child or young person with Epilepsy. </description>
      <language>en-us</language>
      <pubDate>2025-04-24 13:06:14 UTC</pubDate>
      <lastBuildDate>2026-01-09 19:30:08 UTC</lastBuildDate>
      <webMaster>hello@padlet.com</webMaster>
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         <title>Epilepsy Action - Just For Kids</title>
         <author>beyondCYPtransformation</author>
         <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423380169</link>
         <description><![CDATA[<p>This section may aid discussions with your child about their diagnosis. We also know that their siblings may have lots of questions. </p>]]></description>
         <enclosure url="https://www.epilepsy.org.uk/living/parents-and-children/just-for-kids" />
         <pubDate>2025-04-24 13:13:05 UTC</pubDate>
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      <item>
         <title>Young Epilepsy</title>
         <author>beyondCYPtransformation</author>
         <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423381757</link>
         <description><![CDATA[]]></description>
         <enclosure url="https://www.youngepilepsy.org.uk/" />
         <pubDate>2025-04-24 13:14:10 UTC</pubDate>
         <guid>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423381757</guid>
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      <item>
         <title>Online learning.</title>
         <author>beyondCYPtransformation</author>
         <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423381912</link>
         <description><![CDATA[]]></description>
         <enclosure url="https://learn.epilepsy.org.uk/" />
         <pubDate>2025-04-24 13:14:15 UTC</pubDate>
         <guid>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423381912</guid>
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      <item>
         <title>Epilepsy Action</title>
         <author>beyondCYPtransformation</author>
         <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423382002</link>
         <description><![CDATA[]]></description>
         <enclosure url="https://www.epilepsy.org.uk/" />
         <pubDate>2025-04-24 13:14:20 UTC</pubDate>
         <guid>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423382002</guid>
      </item>
      <item>
         <title>Seizure First Aid</title>
         <author>beyondCYPtransformation</author>
         <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423382162</link>
         <description><![CDATA[]]></description>
         <enclosure url="https://www.epilepsy.org.uk/info/first-aid" />
         <pubDate>2025-04-24 13:14:27 UTC</pubDate>
         <guid>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423382162</guid>
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      <item>
         <title>Seizure First Aid for Wheelchair users</title>
         <author>beyondCYPtransformation</author>
         <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423382392</link>
         <description><![CDATA[]]></description>
         <enclosure url="https://www.epilepsy.org.uk/info/first-aid/seizures-in-a-wheelchair" />
         <pubDate>2025-04-24 13:14:37 UTC</pubDate>
         <guid>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423382392</guid>
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      <item>
         <title>Seizure Triggers: a trigger is something that can make a seizure more likely to happen. </title>
         <author>beyondCYPtransformation</author>
         <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423382595</link>
         <description><![CDATA[]]></description>
         <enclosure url="https://www.youngepilepsy.org.uk/about-epilepsy/epileptic-seizures/seizure-triggers" />
         <pubDate>2025-04-24 13:14:45 UTC</pubDate>
         <guid>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423382595</guid>
      </item>
      <item>
         <title>Information on SUDEP, Sudden Unexpected Death in Epilepsy</title>
         <author>beyondCYPtransformation</author>
         <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423383404</link>
         <description><![CDATA[]]></description>
         <enclosure url="https://www.youngepilepsy.org.uk/about-epilepsy/sudden-unexpected-death-sudep" />
         <pubDate>2025-04-24 13:15:17 UTC</pubDate>
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      </item>
      <item>
         <title>Epilepsy Action: Tips To Ensure You Do Not Run Out Of Medication</title>
         <author>beyondCYPtransformation</author>
         <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423385024</link>
         <description><![CDATA[]]></description>
         <enclosure url="https://www.epilepsy.org.uk/news/medicine-shortages-tips-to-help-make-sure-you-dont-run-out" />
         <pubDate>2025-04-24 13:16:32 UTC</pubDate>
         <guid>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423385024</guid>
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      <item>
         <title>Medicines For Children Information Website</title>
         <author>beyondCYPtransformation</author>
         <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423385322</link>
         <description><![CDATA[<p>Medicines For Children - we provide practical and reliable advice about giving medicine to your child. </p>]]></description>
         <enclosure url="https://www.medicinesforchildren.org.uk/" />
         <pubDate>2025-04-24 13:16:44 UTC</pubDate>
         <guid>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423385322</guid>
      </item>
      <item>
         <title>Individual Healthcare Plan (IHCP).</title>
         <author>beyondCYPtransformation</author>
         <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423385714</link>
         <description><![CDATA[<p><strong>What is an 'Individual Healthcare Plan' and what are the benefits?</strong></p><p>An Individual Healthcare Plan (IHP) is a detailed document created for school-age students with medical conditions, such as epilepsy.</p>]]></description>
         <enclosure url="https://www.youngepilepsy.org.uk/news/what-individual-healthcare-plan-and-what-are-benefits" />
         <pubDate>2025-04-24 13:16:59 UTC</pubDate>
         <guid>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423385714</guid>
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      <item>
         <title>Education Healthcare Plans (EHCP).</title>
         <author>beyondCYPtransformation</author>
         <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423385827</link>
         <description><![CDATA[]]></description>
         <enclosure url="https://contact.org.uk/help-for-families/information-advice-services/education-learning/education-england/ehc-plans-assessments/what-is-an-ehc-plan/" />
         <pubDate>2025-04-24 13:17:04 UTC</pubDate>
         <guid>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423385827</guid>
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      <item>
         <title>Find out more about your rights in school. </title>
         <author>beyondCYPtransformation</author>
         <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423385906</link>
         <description><![CDATA[]]></description>
         <enclosure url="https://www.youngepilepsy.org.uk/your-rights-school" />
         <pubDate>2025-04-24 13:17:08 UTC</pubDate>
         <guid>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423385906</guid>
      </item>
      <item>
         <title>Roald Dahl is a UK wide charity providing specialist nurses and support for children with complex conditions.</title>
         <author>beyondCYPtransformation</author>
         <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423386039</link>
         <description><![CDATA[<p><strong>Marvellous Family Support Service</strong></p><p><br></p><p>The Marvellous Family Support Service helps families with a Roald Dahl Nurse access financial and emotional support.</p><p><br></p><p>Roald Dahl's Marvellous Children's Charity</p>]]></description>
         <enclosure url="https://www.roalddahlcharity.org/what-we-do/family-support-service/" />
         <pubDate>2025-04-24 13:17:14 UTC</pubDate>
         <guid>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423386039</guid>
      </item>
      <item>
         <title>Matthew&#39;s Friend - further information on Ketogenic diet.</title>
         <author>beyondCYPtransformation</author>
         <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423386311</link>
         <description><![CDATA[<p>Who can use them and how to prepare yourself and your family for treatment Watch our cooking channel and download recipes and useful information. Meet others in your situation and find out what Keto events are happening in your area.</p>]]></description>
         <enclosure url="https://www.matthewsfriends.org/" />
         <pubDate>2025-04-24 13:17:23 UTC</pubDate>
         <guid>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423386311</guid>
      </item>
      <item>
         <title>The Brain Charity</title>
         <author>beyondCYPtransformation</author>
         <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423386432</link>
         <description><![CDATA[<p>The Brain Charity helps people with all forms of neurological condition to lead longer, healthier, happier lives.</p>]]></description>
         <enclosure url="https://www.thebraincharity.org.uk/" />
         <pubDate>2025-04-24 13:17:28 UTC</pubDate>
         <guid>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423386432</guid>
      </item>
      <item>
         <title>What benefits may I be entitled to?</title>
         <author>beyondCYPtransformation</author>
         <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423386537</link>
         <description><![CDATA[]]></description>
         <enclosure url="https://epilepsysociety.org.uk/living-epilepsy/benefits" />
         <pubDate>2025-04-24 13:17:32 UTC</pubDate>
         <guid>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423386537</guid>
      </item>
      <item>
         <title></title>
         <author>beyondCYPtransformation</author>
         <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423386626</link>
         <description><![CDATA[<p><strong>Disability Living Allowance (DLA) for children</strong></p><p>Help for children under 16 with disabilities - DLA rate, eligibility, how to apply, claim form.</p>]]></description>
         <enclosure url="https://www.gov.uk/disability-living-allowance-children" />
         <pubDate>2025-04-24 13:17:36 UTC</pubDate>
         <guid>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423386626</guid>
      </item>
      <item>
         <title>Talk and support groups</title>
         <author>beyondCYPtransformation</author>
         <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423386771</link>
         <description><![CDATA[]]></description>
         <enclosure url="https://www.eventbrite.co.uk/o/epilepsy-action-talk-amp-support-virtual-groups-44103175193" />
         <pubDate>2025-04-24 13:17:41 UTC</pubDate>
         <guid>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423386771</guid>
      </item>
      <item>
         <title>Young Epilepsy Youth Club</title>
         <author>beyondCYPtransformation</author>
         <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423386956</link>
         <description><![CDATA[]]></description>
         <enclosure url="https://www.youngepilepsy.org.uk/support-you/i-have-epilepsy/virtual-youth-groups" />
         <pubDate>2025-04-24 13:17:48 UTC</pubDate>
         <guid>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423386956</guid>
      </item>
      <item>
         <title>A free, confidential and 24/7 text support service for anyone in the UK who is struggling to cope.</title>
         <author>beyondCYPtransformation</author>
         <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423387076</link>
         <description><![CDATA[<p><strong>Shout</strong></p><p>Young Epilepsy partner with Shout, a free, confidential and 24/7 text support service for anyone in the UK who is struggling to cope.</p>]]></description>
         <enclosure url="https://www.youngepilepsy.org.uk/shout" />
         <pubDate>2025-04-24 13:17:53 UTC</pubDate>
         <guid>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423387076</guid>
      </item>
      <item>
         <title>Vagus Nerve Stimulator VNS</title>
         <author>beyondCYPtransformation</author>
         <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423387388</link>
         <description><![CDATA[]]></description>
         <enclosure url="https://www.livanova.com/epilepsy-vnstherapy/en-us/children" />
         <pubDate>2025-04-24 13:18:01 UTC</pubDate>
         <guid>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3423387388</guid>
      </item>
      <item>
         <title>Ormskirk Epilepsy Team</title>
         <author>hayleymurphy3</author>
         <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3468975864</link>
         <description><![CDATA[<p>Our team consists of our Consultant Paediatrician with Epilepsy Interest, Epilepsy Nurse Specialist and Physician Associate</p><p><br/></p><p><strong>Dr Shyam Mariguddi </strong>Consultant Paediatrician with Epilepsy Interest</p><p><strong>Hayley Murphy </strong>Paediatric Epilepsy Nurse Specialist</p><p><strong>Andrew Bowness </strong>Paediatric Physician Associate </p><p><br/></p><p>To make contact with the team call 01695 656355 (voicemail facility available) or email us on <a rel="noopener noreferrer nofollow" href="mailto:soh-tr.childrens-epilepsy@merseywestlancs.nhs.uk">soh-tr.childrens-epilepsy@merseywestlancs.nhs.uk</a></p><p>It can take up to 5 working days to respond to your call or email.</p><p>If you would like to send videos of episodes please send them to our WhatsApp on 07721 219608 with your child's name and DOB.</p><p><br/></p><p><strong>Please note we are not an emergency service and we do not work bank holidays or weekends. </strong></p><p><br/></p><p><strong>It is our role to support you and your family with your diagnosis of Epilepsy. If you come to clinic for an appointment you will be seen by our colleagues in the Children's Outpatient Department first. They will measure your height and weigh you prior to being seen by ourselves.</strong></p><p><br/></p><p><strong>We ask lots of questions which help to build a picture about your Epilepsy. It would be helpful if you or your parent/carer could bring along any videos of your seizures and a seizure diary. </strong></p>]]></description>
         <enclosure url="" />
         <pubDate>2025-05-27 08:31:55 UTC</pubDate>
         <guid>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3468975864</guid>
      </item>
      <item>
         <title>Photosensitive Epilepsy</title>
         <author>hayleymurphy3</author>
         <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3469009864</link>
         <description><![CDATA[<p>Photosensitive epilepsy is rare. Around 1 in 100 people in the UK have epilepsy. And of these people, 3 in every 100 have photosensitive epilepsy.</p>]]></description>
         <enclosure url="https://www.epilepsy.org.uk/info/seizure-triggers/photosensitive-epilepsy" />
         <pubDate>2025-05-27 08:58:36 UTC</pubDate>
         <guid>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3469009864</guid>
      </item>
      <item>
         <title>Epilepsy alarms and monitors</title>
         <author>hayleymurphy3</author>
         <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3469017096</link>
         <description><![CDATA[<p>The Epilepsy team cannot give advice or recommendations on alarms and monitors. However we are able to sign post you to the information and guidance on Epilepsy Action.</p>]]></description>
         <enclosure url="https://www.epilepsy.org.uk/living/safety-equipment/alarms-and-monitors" />
         <pubDate>2025-05-27 09:05:01 UTC</pubDate>
         <guid>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3469017096</guid>
      </item>
      <item>
         <title>Seizure diary example</title>
         <author>hayleymurphy3</author>
         <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3469029698</link>
         <description><![CDATA[]]></description>
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         <pubDate>2025-05-27 09:17:20 UTC</pubDate>
         <guid>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3469029698</guid>
      </item>
      <item>
         <title>HOPE for Epilepsy</title>
         <author>hayleymurphy3</author>
         <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3469099565</link>
         <description><![CDATA[<p>Helping families with children affected by Epilepsy</p>]]></description>
         <enclosure url="https://www.hopeforepilepsy.org.uk/" />
         <pubDate>2025-05-27 10:35:02 UTC</pubDate>
         <guid>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3469099565</guid>
      </item>
      <item>
         <title></title>
         <author>beyondCYPtransformation</author>
         <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3489363960</link>
         <description><![CDATA[<p>This padlet is aimed at children and young people (CYP), parents and carers, and anyone who works with CYP with Epilepsy. </p><ul><li><p>Each column is titled with its contents and who it is aimed for (parents/carers, children and young people, professionals.)</p></li><li><p>Scroll right to see all the columns and topics.</p></li><li><p>Scroll down each column to find additional information.</p></li><li><p>Click on website links or images to open the web page or document.</p></li><li><p>A search bar at the top right corner can be used to search the padlet for specific content you are looking for.</p></li><li><p>New content is always being added. </p></li><li><p>Content is reviewed bi-annually and any out of date information, or broken links are removed/replaced.</p></li></ul>]]></description>
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         <pubDate>2025-06-13 09:01:23 UTC</pubDate>
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      </item>
      <item>
         <title>Epilepsy Action: I have epilepsy. An explanation. </title>
         <author>beyondCYPtransformation</author>
         <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3489364127</link>
         <description><![CDATA[<p>Basic information/summary on what epilepsy is. Every child is different. </p>]]></description>
         <enclosure url="https://www.epilepsy.org.uk/info/what-is-epilepsy" />
         <pubDate>2025-06-13 09:01:29 UTC</pubDate>
         <guid>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3489364127</guid>
      </item>
      <item>
         <title>Epilepsy Action - Just For Kids</title>
         <author>beyondCYPtransformation</author>
         <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3489364530</link>
         <description><![CDATA[<p>This section may aid discussions with your child about their diagnosis. We also know that their siblings may have lots of questions. </p>]]></description>
         <enclosure url="https://www.epilepsy.org.uk/living/parents-and-children/just-for-kids" />
         <pubDate>2025-06-13 09:02:02 UTC</pubDate>
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      </item>
      <item>
         <title>What is Epilepsy?</title>
         <author>hayleymurphy3</author>
         <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3506160792</link>
         <description><![CDATA[]]></description>
         <enclosure url="https://www.epilepsy.org.uk/info/what-is-epilepsy" />
         <pubDate>2025-06-30 14:04:36 UTC</pubDate>
         <guid>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3506160792</guid>
      </item>
      <item>
         <title>Safety advice</title>
         <author>hayleymurphy3</author>
         <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3506162961</link>
         <description><![CDATA[]]></description>
         <enclosure url="https://www.epilepsy.org.uk/living/safety" />
         <pubDate>2025-06-30 14:07:24 UTC</pubDate>
         <guid>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3506162961</guid>
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      <item>
         <title>Helping your child to swallow tablets</title>
         <author>hayleymurphy3</author>
         <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3527854708</link>
         <description><![CDATA[]]></description>
         <enclosure url="https://www.medicinesforchildren.org.uk/advice-guides/helping-your-child-to-swallow-tablets/" />
         <pubDate>2025-07-24 11:32:26 UTC</pubDate>
         <guid>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3527854708</guid>
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      <item>
         <title>Information on your medication</title>
         <author>hayleymurphy3</author>
         <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3738951722</link>
         <description><![CDATA[<p>Please use this link and scan the QR code using your smart phone to access useful information for your anti-seizure medication</p>]]></description>
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         <pubDate>2026-01-05 08:54:04 UTC</pubDate>
         <guid>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3738951722</guid>
      </item>
      <item>
         <title>Night Time Monitoring - further information</title>
         <author>hayleymurphy3</author>
         <link>https://padlet.com/shyammariguddi/ku68gzig7l4dynvh/wish/3738957034</link>
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