Materiais: Doenças e Síndromes Raras by Aliança Paranaense de Doenças e Síndromes Raras https://padlet.com/rarasparana/ihsfwtt3toudhumq Materiais Aliança - Shirley Ordônio en-us 2023-03-23 12:29:11 UTC 2025-10-12 02:24:38 UTC hello@padlet.com Caderneta Nacional dos Raros rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748647 2023-03-23 12:29:11 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748647 rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748649 2023-03-23 12:29:11 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748649 rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748650 2023-03-23 12:29:11 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748650 rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748651 2023-03-23 12:29:11 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748651 rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748653 2023-03-23 12:29:11 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748653 rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748654 2023-03-23 12:29:11 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748654 rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748656 2023-03-23 12:29:11 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748656 rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748658 2023-03-23 12:29:11 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748658 Materiais Fibrose Cistica para Profissionais da Saúde rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748659 2023-03-23 12:29:11 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748659 Conversa de pais para pais sobre fibrose cística - Unidos pela Vida rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748660 2023-03-23 12:29:11 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748660 Cartilhas Fibrose Cística rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748662 2023-03-23 12:29:11 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748662 Cartilha Raros rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748663 2023-03-23 12:29:11 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748663 Portaria 199 rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748667 2023-03-23 12:29:11 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748667 Lei Fevereiro Lilás - PR rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748668 2023-03-23 12:29:11 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748668 Lei 27/2015 - Politica Tratamento Doenças Raras - Paraná rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748670 2023-03-23 12:29:11 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748670 Linha de Cuidados rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748671 2023-03-23 12:29:11 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748671 Audiência Púb “Estratégias de Atenção às Pessoas com Doenças e Síndromes Raras” (02/07/21) rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748673 2023-03-23 12:29:11 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748673 Audiência pública “Cuidados e Tratamentos para Pacientes com AME” (18/10/2021) rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748674 2023-03-23 12:29:11 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748674 Dia Nacional da Triagem Neonatal rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748675 2023-03-23 12:29:11 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748675 FLUXO DE INCORPORAÇÃO DE TECNOLOGIA rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748676 2023-03-23 12:29:11 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748676 CONITEC - COMISSÃO NACIONAL DE INCORPORAÇÃO DE TECNOLOGIAS NO SISTEMA ÚNICO DE SAÚDE rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748677 http://conitec.gov.br/entenda-a-conitec-2]]> 2023-03-23 12:29:11 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748677 rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748678 2023-03-23 12:29:11 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748678 rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748679 2023-03-23 12:29:11 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748679 Lei Notificação Compulsória de Doenças Raras rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748680 2023-03-23 12:29:11 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748680 Revistinha TM - Duchenne rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748682 2023-03-23 12:29:11 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748682 rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748683 2023-03-23 12:29:11 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748683 Campanha Duchenne rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748684 2023-03-23 12:29:11 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748684 Raras - Tribuna Colombo rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748685 2023-03-23 12:29:11 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748685 Campanha Hospital Pequeno Príncipe rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748686 2023-03-23 12:29:11 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748686 AME - Atrofia Muscular Espinhal rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748687 2023-03-23 12:29:11 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748687 ALD - Adrenoleucodistrofia rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748688 2023-03-23 12:29:11 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748688 Síndrome do XFrágil rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748690 2023-03-23 12:29:11 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528748690 rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528764895 2023-03-23 12:39:59 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528764895 Síndrome de Lhon - Neuropatia Otica Hereditária rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528778783 2023-03-23 12:49:36 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528778783 Cadastro de Doenças e Síndromes no Paraná - Carteira dos Raros rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528787592 2023-03-23 12:55:38 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528787592 Distrofia muscular congênita https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528966281 2023-03-23 14:36:51 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2528966281 Questionário para auxiliar na identificação de Sinais de Alerta rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2922150597 2024-03-17 21:30:59 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2922150597 Caderneta da Criança de Saúde - Menino rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2922152132 2024-03-17 21:34:02 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2922152132 Caderneta da Criança de Saude - Menina rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2922152394 2024-03-17 21:34:37 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2922152394 rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2922159769 2024-03-17 21:49:33 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2922159769 rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2922160085 2024-03-17 21:50:18 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2922160085 rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2922160329 2024-03-17 21:50:51 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2922160329 rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2922160439 2024-03-17 21:51:05 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2922160439 rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2922160541 2024-03-17 21:51:21 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2922160541 rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2922160894 2024-03-17 21:52:07 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2922160894 rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2922161100 2024-03-17 21:52:36 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2922161100 rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2922161256 2024-03-17 21:52:57 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2922161256 rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2922161472 2024-03-17 21:53:26 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2922161472 rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2922161599 2024-03-17 21:53:45 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2922161599 rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2922161713 2024-03-17 21:54:01 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2922161713 AME - Atrofia Muscular Espinhal rarasparana https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2922163462 2024-03-17 21:57:57 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2922163462 Junto de uma médica, mãe luta contra doença degenerativa ALD. https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2953102234 2024-04-12 23:52:08 UTC https://padlet.com/rarasparana/ihsfwtt3toudhumq/wish/2953102234