https://padlet.com/cullingfordagne/noordinarylife1 Choose one blog and describe the barriers to an ordinary life en-us 2016-09-29 09:02:33 UTC 2026-03-19 03:39:58 UTC hello@padlet.com cullingfordagne https://padlet.com/cullingfordagne/noordinarylife1/wish/127186117 A difficult time for a young man with Autism. His parents need to supervise him 24-7. They are unable to go out as a family which put pressure on the family. Did you know that there is a mass of paperwork to complete and we have little say in what happens. They noted at one point that he was suitable as he wasn't into team d- really. Not all the activities were accessible for example an all day session at the bowling alley.
What would help!
Clear information about short breaks with a support worker
Support for siblings - time to meet other siblings
Inviting parents/carers to suggest suitable activities
To ensure that paperwork is manageable or some support to fill it in? 
Professionals are aware of the wide range of need
To personalise the activities around individual needs and support with volunteers who have a good induction to SEND
Professionals to understand the stress that families are are under during the summer and the emotional stress it can cause]]> 2016-09-29 09:18:13 UTC https://padlet.com/cullingfordagne/noordinarylife1/wish/127186117 dlaberasmus https://padlet.com/cullingfordagne/noordinarylife1/wish/132098250 No family support, 
No support with paper work or pressures of family life,
Even with support not suitible for his needs,
Not communicating sufficiently,
No training or support for parents or family on the needs of there son and stratergies to help and support there son.
No support for daily living for their son as well as them as a family.
The family may feel isolated due to lack of support for themselves for them to be able to function normally within society.
With the right support such as a support worker then the family is lickley to fumction more effectivly within society.





]]> 2016-10-20 14:59:30 UTC https://padlet.com/cullingfordagne/noordinarylife1/wish/132098250 https://padlet.com/cullingfordagne/noordinarylife1/wish/132103019 Positives:
The fact the service is there
Dedicated workers 
Trips 
Variety of activities
Good commitment from carers

Negatives:
Trips are a one off
Activities don't always suit the child
Not always affordable 
Not all workers are experienced
Parents weren't aware of the support available 
Accessibility 

In the companies defence:
Trips are expensive as transport for staff and kids is needed and entry fee for all going 
Services are in high demand over the holidays 
Workers may be on holiday
The company is not in control of the accessibility that the Public or community buildings offer


]]> 2016-10-20 15:10:21 UTC https://padlet.com/cullingfordagne/noordinarylife1/wish/132103019 https://padlet.com/cullingfordagne/noordinarylife1/wish/132103685 + There are some experiences available, ran by charities
+ Staff/volunteers were 'bright' and helpful
+ Activities based around team building which helps with social interaction

- Most experiences aren't accessible to those who aren't 'suitable'
- No support for the family (parents and children)
- Processes before people, more concerned with the budget rather than the individual and their family
- Lack of awareness for experiences, parents were unaware for a long time
- Increased stress upon parents 
- Not every candidate enjoys team building activities, whether that is due to social impairments or other reasons.]]> 2016-10-20 15:11:49 UTC https://padlet.com/cullingfordagne/noordinarylife1/wish/132103685 https://padlet.com/cullingfordagne/noordinarylife1/wish/132104443 Contact social services to access government funds, respite services and family support from charitable organisations.]]> 2016-10-20 15:13:26 UTC https://padlet.com/cullingfordagne/noordinarylife1/wish/132104443 https://padlet.com/cullingfordagne/noordinarylife1/wish/132104753 + they are aware of the services available 
+ the service is catered for their child 
+ staff work well to accommodate their child's needs 
+ siblings have increased support now the support is in place 

- parent's were not aware of services prior to breaking point 
- not all activities were suited to the child 
- stress on the family: cannot experience days out as a whole
- jargon used by other professionals e.g. paperwork ]]> 2016-10-20 15:14:04 UTC https://padlet.com/cullingfordagne/noordinarylife1/wish/132104753