https://padlet.com/exss/oecad 17.04.2020 en-us 2021-05-19 01:21:04 UTC 2021-06-07 07:09:05 UTC hello@padlet.com https://padlet.net/icons/png/1f6b6-2642.png exss https://padlet.com/exss/oecad/wish/1537971307 impact of treatment - fatigue ('brushes off' it of as inevitable SE)
- minimal

]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971307 exss https://padlet.com/exss/oecad/wish/1537971308 Caring responsibilities - not able to focus on self
Time it takes]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971308 exss https://padlet.com/exss/oecad/wish/1537971309 Sexual side effects (libido and/or function)(expected)
Weight gain (expected)
urinary symptoms (pain/burning)]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971309 exss https://padlet.com/exss/oecad/wish/1537971310 well informed about treatments
doing research about treatment]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971310 exss https://padlet.com/exss/oecad/wish/1537971311 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971311 exss https://padlet.com/exss/oecad/wish/1537971312 reprioritisation about what can achieve
RT disruptive to routine
caring responsibilities (both impacted & impacting)]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971312 exss https://padlet.com/exss/oecad/wish/1537971313 Awareness of lifestyle 
interaction between PA & diet]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971313 exss https://padlet.com/exss/oecad/wish/1537971314 level of acceptance of impact of treatment on life]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971314 exss https://padlet.com/exss/oecad/wish/1537971315 knows needs treatment to improve outcomes]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971315 exss https://padlet.com/exss/oecad/wish/1537971316 reinforcing how disruptive treatment has been to lifestyle (but knows important)]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971316 exss https://padlet.com/exss/oecad/wish/1537971318 Understanding of reason for treatment & bigger picture of why it matters]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971318 exss https://padlet.com/exss/oecad/wish/1537971319 Changes in treatment side effects
- Recovery
- tolerable because know will resolve
reduces impact psychologically (helps with coping)]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971319 exss https://padlet.com/exss/oecad/wish/1537971320 SEs are package related to disease/ treatment but not distinguishing btw symptoms of different treatments
Negative impact on patient]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971320 exss https://padlet.com/exss/oecad/wish/1537971321 If only hormone Rx & no RT routine would not be disrupted & could be exercising]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971321 exss https://padlet.com/exss/oecad/wish/1537971322 burden of treatment
 - logistics/travel/time out of day]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971322 exss https://padlet.com/exss/oecad/wish/1537971323 impact of fatigue
 - afternoon nap (necessity)
- very tired in afternoons]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971323 exss https://padlet.com/exss/oecad/wish/1537971324 perceiving benefits of PA 
  - both physically & mentally (good for mental health)
- reinforcing exercise
- perceived benefit of weight loss]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971324 exss https://padlet.com/exss/oecad/wish/1537971326 finishing RT meant he had more time available enabling more physical activity]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971326 exss https://padlet.com/exss/oecad/wish/1537971327 - awareness of need to rest/ pace activity]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971327 exss https://padlet.com/exss/oecad/wish/1537971328 focus on weight & need to loose weight for overall health
- food & exercise relationship
reduce food exercise more to loose weight]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971328 exss https://padlet.com/exss/oecad/wish/1537971330 limited capacity to focus on other health issues]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971330 exss https://padlet.com/exss/oecad/wish/1537971331 Healthy lifestyle is not the 'norm'
- requires effort]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971331 exss https://padlet.com/exss/oecad/wish/1537971332 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971332 exss https://padlet.com/exss/oecad/wish/1537971333 weather 
time of day
treatment (RT)
carer responsibilities (needing respite)]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971333 exss https://padlet.com/exss/oecad/wish/1537971334 benefits of exercise
 stress reliever
  relieves pain
weight management]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971334 exss https://padlet.com/exss/oecad/wish/1537971335 predominant exercise is walking
- limited knowledge or accessibility of other forms of exercise]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971335 exss https://padlet.com/exss/oecad/wish/1537971336 psychological impact of caring
- worries about mother]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971336 exss https://padlet.com/exss/oecad/wish/1537971337 change (reduction) in PA
 - not doing as often 
  - for doing for as long
- impact of fatigue]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971337 exss https://padlet.com/exss/oecad/wish/1537971338 Aortic valve replacement
Diabetes II
blood pressure reduction]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971338 exss https://padlet.com/exss/oecad/wish/1537971339 knowledge of PA benefits for management of co-morbidities]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971339 exss https://padlet.com/exss/oecad/wish/1537971341 Experience of RT is better than anticipated (expectancy & education)
- lower than Dr's expected]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971341 exss https://padlet.com/exss/oecad/wish/1537971342 perceptions of treatment/disease are individual]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971342 exss https://padlet.com/exss/oecad/wish/1537971343 - exercise (duration)
- distinguish btw PA and incidental exercise]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971343 exss https://padlet.com/exss/oecad/wish/1537971345 Exercise is necessary 
but not enjoyable]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971345 exss https://padlet.com/exss/oecad/wish/1537971346 Planning exercise around knowing when more likely to adhere]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971346 exss https://padlet.com/exss/oecad/wish/1537971347 sufficiently active
incidental activity is PA
IA is supporting hobby (motivator)]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971347 exss https://padlet.com/exss/oecad/wish/1537971348 importance of what is not said
- resistance training
- specifics of exercise e.g. intensity]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971348 exss https://padlet.com/exss/oecad/wish/1537971349 moving (walk around every 30 mins for 2-3)
conscious of need to avoid being sedentary]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971349 exss https://padlet.com/exss/oecad/wish/1537971350 Hip pain
- avoiding stiffness and pain if keeps moving]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971350 exss https://padlet.com/exss/oecad/wish/1537971352 interaction with comorbid conditions & SE of ADT]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971352 exss https://padlet.com/exss/oecad/wish/1537971353 control]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971353 exss https://padlet.com/exss/oecad/wish/1537971354 adherent to health advice for follow-up visits (Specialist)
proactively managing co-morbid conditions]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971354 exss https://padlet.com/exss/oecad/wish/1537971356 increased CV event risk
disincentive to PA
attraction of low intensity hobbies/activities]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971356 exss https://padlet.com/exss/oecad/wish/1537971358 lived experience of direct benefits of exercise on health outcomes
- old school medicine
- trial walking & impact on blood pressure]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971358 exss https://padlet.com/exss/oecad/wish/1537971359 previous experience motivates to continue exercise

]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971359 exss https://padlet.com/exss/oecad/wish/1537971360 Understanding of benefits of exercise perceived very as holistic]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971360 exss https://padlet.com/exss/oecad/wish/1537971361 weather motivator
- environment]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971361 exss https://padlet.com/exss/oecad/wish/1537971362 need for respite from caring
 - more time to focus on self
- caring has had major impact on life]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971362 exss https://padlet.com/exss/oecad/wish/1537971364 resistance exercise
  - more than walking]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971364 exss https://padlet.com/exss/oecad/wish/1537971365 healthcare professional advice - not specific or prescriptive]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971365 exss https://padlet.com/exss/oecad/wish/1537971366 advice is insufficient]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971366 exss https://padlet.com/exss/oecad/wish/1537971368 limits activity to what has been advised?]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971368 exss https://padlet.com/exss/oecad/wish/1537971369 Drs not taught about exercise - don't have knowledge
systemic issue
? confidence in advice]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971369 exss https://padlet.com/exss/oecad/wish/1537971371 toward commencing exercise
need more support to change exercise behaviour]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971371 exss https://padlet.com/exss/oecad/wish/1537971372 HCP are there for medical solutions (not lifestyle)
lack of relationship with HCP
'empty episodes of care']]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971372 exss https://padlet.com/exss/oecad/wish/1537971373 GP & Cardiologist most likely to be helpful]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971373 exss https://padlet.com/exss/oecad/wish/1537971381 from HCP - esp cardiologist seen as most relevant
but not seeing regularly - ? how meaningful is this?]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971381 exss https://padlet.com/exss/oecad/wish/1537971382 GP is main HCP, seeing them more frequently
- more aware of his situation]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971382 exss https://padlet.com/exss/oecad/wish/1537971383 insufficient time in consultations for exercise to be addressed by specialists
- GP role]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971383 exss https://padlet.com/exss/oecad/wish/1537971384 & other HCP
GP is care coordinator (central)]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971384 exss https://padlet.com/exss/oecad/wish/1537971385 - booklet]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971385 exss https://padlet.com/exss/oecad/wish/1537971387 Who's job is it anyway?]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971387 exss https://padlet.com/exss/oecad/wish/1537971389 perception of length of consultations
 - limit what is discussed
 - limit what the patient raises
- suggests dissatisfaction]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971389 exss https://padlet.com/exss/oecad/wish/1537971391 no social support
- socially isolated
- no girlfriend/partner
- mum not capable of supporting]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971391 exss https://padlet.com/exss/oecad/wish/1537971392 weight limits movement
- awkward
- can't do as much for as long
- physical conditioning (fitness/strength)]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971392 exss https://padlet.com/exss/oecad/wish/1537971394 - not always beneficial
- judging HCPs
- need for tailoring (patient-centred)
- guidance on 'how to' ie tailoring advice]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971394 exss https://padlet.com/exss/oecad/wish/1537971395 Hobbies motivator for activity.]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971395 exss https://padlet.com/exss/oecad/wish/1537971397 Walking up hill - understands intensity]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971397 exss https://padlet.com/exss/oecad/wish/1537971398 rehabilitation from previous heart surgery
 - value for PA
 - early engagement
- motivation to prove people wrong in their preconceptions of him]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971398 exss https://padlet.com/exss/oecad/wish/1537971400 Getting out of hospital to rehab ASAP
Risks of being in hospital (infection)]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971400 exss https://padlet.com/exss/oecad/wish/1537971401 Parking (a barrier)]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971401 exss https://padlet.com/exss/oecad/wish/1537971402 impact on mother
- not wanting to tell her or do more than necessary for treatment]]> 2021-05-19 01:21:04 UTC https://padlet.com/exss/oecad/wish/1537971402