https://padlet.com/sydney13stoltz/fa48fnrndtpt1wuy en-us 2020-10-09 00:58:12 UTC 2020-10-16 01:58:17 UTC hello@padlet.com sydney13stoltz https://padlet.com/sydney13stoltz/fa48fnrndtpt1wuy/wish/815758290 - T.S. 
- 9 months 1 day old 
- 7.9kg
- PEWS Score: 1 
- Shwachman-Diamond Syndrome (SDS) 
- Neutropenia
- Fever

]]> 2020-10-09 01:02:02 UTC https://padlet.com/sydney13stoltz/fa48fnrndtpt1wuy/wish/815758290 sydney13stoltz https://padlet.com/sydney13stoltz/fa48fnrndtpt1wuy/wish/815766614 - IV D5NS @ 10cc/hr 
- Piptazo 592.5mg Q6H]]> 2020-10-09 01:09:06 UTC https://padlet.com/sydney13stoltz/fa48fnrndtpt1wuy/wish/815766614 sydney13stoltz https://padlet.com/sydney13stoltz/fa48fnrndtpt1wuy/wish/815768330 - Lipase/Protease/Amylase PO with every feed
- Omeprazole 10mg PO once daily 
- Acetaminophen 15mg/dose Q4H PRN 
- Ibuprofen 10mg/dose Q6-8H PRN ]]> 2020-10-09 01:10:33 UTC https://padlet.com/sydney13stoltz/fa48fnrndtpt1wuy/wish/815768330 sydney13stoltz https://padlet.com/sydney13stoltz/fa48fnrndtpt1wuy/wish/815775835 WBC: 3.3 (L)
Neutrophils: 1.8 (L)
RBC: 4.6 (H)
Hgb: 130 (H)
Hct: 0.37 (N)
Platelets: 126 (L)
AST: 279 (H)
GGT: 38 (N)
ALT: 431 (H)
Total Protein: 50 (L)
Bilirubin: 6 (N)  ]]> 2020-10-09 01:16:51 UTC https://padlet.com/sydney13stoltz/fa48fnrndtpt1wuy/wish/815775835 sydney13stoltz https://padlet.com/sydney13stoltz/fa48fnrndtpt1wuy/wish/815789623 HR: 139
RR: 37 
Temperature: 36.7 C
O2 Saturation: 98% on RA]]> 2020-10-09 01:29:24 UTC https://padlet.com/sydney13stoltz/fa48fnrndtpt1wuy/wish/815789623 sydney13stoltz https://padlet.com/sydney13stoltz/fa48fnrndtpt1wuy/wish/815800132 - Voided & had watery diarrhea @ 0830 - mom voiced concern
Na: 139 (N)
K: 4.7 (N) ]]> 2020-10-09 01:38:38 UTC https://padlet.com/sydney13stoltz/fa48fnrndtpt1wuy/wish/815800132 sydney13stoltz https://padlet.com/sydney13stoltz/fa48fnrndtpt1wuy/wish/815810975 Feeds (Goodstart 23 kcal)
- 0730: 90mL
- 1020: 130mL 
- Mom voiced concern about T.S. feeding less than normal
- Mom also stated that is common for babies with SDS. ]]> 2020-10-09 01:49:03 UTC https://padlet.com/sydney13stoltz/fa48fnrndtpt1wuy/wish/815810975 sydney13stoltz https://padlet.com/sydney13stoltz/fa48fnrndtpt1wuy/wish/815820941 - Mom is always present and very involved in patient's care.
- Mom is very knowledgable about patient's diagnosis of SDS. 
- Dad also visits during the day, but goes back home during the evenings to be with their 3 year old son.


]]> 2020-10-09 01:58:24 UTC https://padlet.com/sydney13stoltz/fa48fnrndtpt1wuy/wish/815820941 sydney13stoltz https://padlet.com/sydney13stoltz/fa48fnrndtpt1wuy/wish/815825473 - Mom (primarily at the hospital).
- Dad (visits during the day).
- 3 year old brother.]]> 2020-10-09 02:02:31 UTC https://padlet.com/sydney13stoltz/fa48fnrndtpt1wuy/wish/815825473 sydney13stoltz https://padlet.com/sydney13stoltz/fa48fnrndtpt1wuy/wish/815827843 - Grandma takes care of 3 year old son during the day while Mom and Dad are at the hospital. Grandma is very supportive and helpful because she always helps the family with childcare. 
- Mom has joined a Facebook group with other parents who have children with SDS. She has connected with a member who also lives in the Fraser Valley. She feels very supported by this group. 

]]> 2020-10-09 02:04:31 UTC https://padlet.com/sydney13stoltz/fa48fnrndtpt1wuy/wish/815827843 sydney13stoltz https://padlet.com/sydney13stoltz/fa48fnrndtpt1wuy/wish/815838701 - Family moved from Alberta in March to be closer to family. 
- Dad still works in Alberta (works for 3 weeks and comes home for 1 week). 
- Dad is the family's primary source of income. He denied any job or finically difficulties related to COVID-19 this year. Dad said that he didn't like being away from his family, but was happy to still have work. 
- Dad and Mom both said that they are happy with the move, despite the stress of COVID. Living closer to family decreases most of their child care stress. ]]> 2020-10-09 02:14:35 UTC https://padlet.com/sydney13stoltz/fa48fnrndtpt1wuy/wish/815838701