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      <pubDate>2020-10-19 20:06:21 UTC</pubDate>
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         <title>Lila Platt-Fanconi Anemia</title>
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         <description><![CDATA[<div>https://www.hoacny.com/patient-resources/blood-disorders/what-fanconi-anemia/who-risk-fanconi-anemia#:~:text=Fanconi%20anemia%20(FA)%20occurs%20in,people%20being%20born%20with%20FA.<br>https://www.stjude.org/disease/fanconi-anemia.html<br>https://www.childrenshospital.org/conditions/fanconianemia#:~:text=The%20average%20lifespan%20for%20people,solid%20tumors%20as%20young%20adults.<br>https://rarediseases.org/rare-diseases/fanconi-anemia/<br>https://medlineplus.gov/ency/article/000334.htm#:~:text=Fanconi%20anemia%20is%20a%20rare,syndrome%2C%20a%20rare%20kidney%20disorder.</div>]]></description>
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         <pubDate>2023-04-11 18:42:23 UTC</pubDate>
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         <title>Ian James- Usher Syndrome</title>
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         <title>Miles VanDoren - Tay-Sachs disease</title>
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         <pubDate>2023-04-11 18:44:50 UTC</pubDate>
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         <title>Haley Lockton- Prader willi syndrome</title>
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         <pubDate>2023-04-11 18:55:45 UTC</pubDate>
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         <title>Alice Feldmiller- Canavan Disease</title>
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         <description><![CDATA[<div>https://www.ninds.nih.gov/health-information/disorders/canavan-disease#:~:text=What%20is%20Canavan%20disease%3F,makes%20an%20enzyme%20called%20aspartoacylase.<br><br>https://medlineplus.gov/genetics/condition/canavan-disease/<br><br>https://rarediseases.org/rare-diseases/canavan-disease/#affected<br><br>https://www.canavanfoundation.org/research</div>]]></description>
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         <pubDate>2023-04-11 18:57:00 UTC</pubDate>
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         <title>Lanie Tietjen - Duchenne Muscular Dystrophy</title>
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         <description><![CDATA[<div>Stanford Medicine<br>https://stanfordhealthcare.org/medical-conditions/brain-and-nerves/duchenne-muscular-dystrophy/treatment.html<br><br>Rare Diseases<br>https://rarediseases.info.nih.gov/diseases/6291/duchenne-muscular-dystrophy/living<br><br>Duchenne Research Fund<br>https://www.duchenne.org.uk/duchenne-facts/<br><br>News 24<br>https://www.news24.com/life/archive/10-muscular-dystrophy-facts-20120721<br><br><br></div>]]></description>
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         <pubDate>2023-04-12 01:58:53 UTC</pubDate>
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         <title>Tegegne Jones- Marfan Syndrome</title>
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         <description><![CDATA[<div><br><a href="https://www.cdc.gov/heartdisease/marfan_syndrome.htm#:~:text=What%20is%20Marfan%20syndrome%3F,%2C%20feet%2C%20and%20rib%20cage.">https://www.cdc.gov/heartdisease/marfan_syndrome.htm#:~:text=What%20is%20Marfan</a><br><br><a href="https://www.mayoclinic.org/diseases-conditions/marfan-syndrome/symptoms-causes/syc-20350782">https://www.mayoclinic.org/diseases-conditions/marfan-syndrome/symptoms-</a></div>]]></description>
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         <pubDate>2023-04-13 01:00:15 UTC</pubDate>
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         <title>Miriam Cortes - Cri du Chat Syndrome</title>
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         <description><![CDATA[<div>https://medlineplus.gov/genetics/condition/cri-du-chat-syndrome/#:~:text=Cri%2Ddu%2Dchat%20(cat's,like%20that%20of%20a%20cat.<br><br>http://www.criduchatresearch.org/about-us<br><br>https://rarediseases.org/rare-diseases/cri-du-chat-syndrome/<br><br>http://www.criduchatresearch.org/</div>]]></description>
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         <pubDate>2023-04-13 03:43:18 UTC</pubDate>
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         <title>Alexei Sutkin: Angelman Syndrome</title>
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         <description><![CDATA[<div>https://www.mayoclinic.org/diseases-conditions/angelman-syndrome/diagnosis-treatment/drc-20355627<br><br>https://medlineplus.gov/genetics/condition/angelman-syndrome/#:~:text=Angelman%20syndrome%20is%20a%20complex,movement%20and%20balance%20(ataxia).<br><br>https://www.angelman.org/as-clinics/<br>https://rarediseases.org/rare-diseases/angelman-syndrome/#affected<br>https://www.nhs.uk/conditions/angelman-syndrome/#:~:text=Angelman%20syndrome%20is%20a%20rare,need%20support%20throughout%20their%20life.</div>]]></description>
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         <pubDate>2023-04-13 14:55:35 UTC</pubDate>
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         <title>Adam Dear-Friedreich&#39;s ataxia</title>
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         <pubDate>2023-04-13 15:28:39 UTC</pubDate>
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