Brochure by

Klein-Levin Syndrome (Sleeping Beauty Syndrome)

b5vxw2znkd — 2024-11-04 04:14:21 UTC

Did you know that about 200-1000 people have sleeping beauty syndrome? That causes a huge change into our bodies?

Our Mission

b5vxw2znkd — 2024-11-04 04:14:21 UTC

Our mission on making one understand the Kleine-Levin Syndrome is highly important! Making sure that people are understanding the syndrome on its own to due to it being rare but seeing the impact it does to one’s family and the patient themselves. Knowing that there isn’t a 100% diagnoses (whats causing the patient to have these conditions) we want to make sure that everyone is keeping up with their health.

Background

b5vxw2znkd — 2024-11-04 04:14:21 UTC

A rare neurological condition known as Kleine-Levin Syndrome can be recognized by recurrent episodes of excessive sleep, behavioral imperfections and hyperphagia (over eating).The illness, which was initially identified in the 1960s, primarily affects teenagers and can cause bouts that last anywhere from a few days to several weeks. It frequently goes away in adulthood, while the precise cause is still unknown.

Symptoms

b5vxw2znkd — 2024-11-04 04:45:07 UTC

There are many symptoms that go along with the syndrome that someone has to deal / adapt to. Being around my cousin that hs KLS. I noticed that when he says “I don’t feel good i’m going to lay down” and covers up completely is when I know that he isn’t going to wake up for hours due to the episode that he is about to have. With being diagnosed there is a change in not being able to eat big portions…These so called “episodes” happen for at least 12 hours or even up to 20. While receiving the episodes one can only wake up to use the restroom or having to eat

Triggers

b5vxw2znkd — 2024-11-04 04:46:12 UTC

There are many types of triggers that are causing an episode just like your head hurting , stress, being sick, and etc…When I see these triggers. I think back to when my mom had experienced the Flu while her not being able to move from one place to another or even not being able to eat. There is many research saying that hypothalamus is part of the brain injury. Due to hypothalamus controlling the way we sleep, eat, and our body temperature.

Sleeping Beauty

b5vxw2znkd — 2024-11-04 04:51:03 UTC

Here is a video of what someone goes through with the KLS

Treatment

b5vxw2znkd — 2024-11-04 04:54:43 UTC

As much as we all hope for a treatment there isn’t for KLS but there can be chances of being able to control the symptoms other than staying home and having to sleep off the episode to get all the rest the body needs. I recommend staying at home going to the monthly doctor appointments to see how your body is doing is the best way to take care of your body while recovering from each symptom. Making sure that your body is fully functioning.

b5vxw2znkd — 2024-11-04 05:00:25 UTC

Diagnoses

b5vxw2znkd — 2024-11-04 05:03:07 UTC

When hearing for a disorder you quickly think of “what’s causing for this to happen?” If you don’t know what a diagnosis is its identifying what’s causing someone to have these conditions/ diseases. It’s important to know why something is having to our body’s! The diagnosis for KLS is super hard to find due to not having a specific test that can diagnose the condition.

How to support

b5vxw2znkd — 2024-11-04 05:15:51 UTC

There are many ways to support someone that goes through KLS. Starting off by listening making sure that we are listening to there feelings and what they need to let out. Second making sure that we educate ourselves with the syndrome to see a better understanding of what the family and patients are experiencing. Lastly Making sure that we are a helpful resource to make sure they are needed with help that they can’t get to themselves.

b5vxw2znkd — 2024-11-04 05:18:02 UTC