Intent of CG Support

- To mitigate caregiving stress, allowing sustainable caregiving journey

- Emotional, financial, mental, physical stress

- Use of mental well-being skill

Framework

2024's Outcome

- total of 81 caregivers in 2024.

- Objective of CG, to provide safe and therapeutic space for caregiver to share their exp and build an organic community of support

Feedback gathered from Caregivers:

- I got to learn new way for caregiver challenges

- Safe space for cg to interact and learn

- Learnt helpful strategies

- Enhance caregiver skills

- Make friend, draw support.

Survey finding:

- 17 participants, survey administered

CG Profile:

Age range 40-64 (avg), Mostly children caring for their parents, mostly CA dx

- Tertiary education lvl

- Caregivers are more educated

- more aware of pt condition thru research

- more curiosity about pt trajectory

Challenges faced by cg:

• needing help with changing and draining stoma (practical caregiver needs)

• Unable to communicate and understand pt's needs,

• Frustration over non-medical compliance

• Low awareness on resources

• Feeling of burnt-out, anxiety, hopelessness

• spirituality issues

• feeling helpless

• unaware of what to do for last rites

how to talk to patient about religion and spirituality matter

• Use of chatbot on portal

• FAQ on what most caregivers would ask

• Simple checklist to filter needs

• Pictorial form - more palatable

• Resources

  • Last rites

  • Equipment rental

  • Means-test (?)

  • Caregiver videos for guide

  • Financial schemes

  • Community resource mapping

  • Private nursing & MET

• QR code to be pasted around DPH vicinity

• Tabs on website by broad category of framework

  • Self-care

  • Financial Support

  • Education & Training

    • Suggest for use of pictorial / video form to cater to Kinesthetic / Visual people

  • Spiritual

Artificial Intelligence

• Use of chatbot to assess psychological distress (pick up nuances of "hopelessness")

  • Red flag triggered for survey to find out more

  • helpline provided as a first-aid

• Providing caregiving resources

• Voice to text input

• Multiple language packs to tailor to different demography

• "AI DPH"

• How to refine info churned out by AI (Possible threats that needs to be mitigated)

  • Test out common questions asked

  • See if responses can be succinct

  • Accuracy of information

• Form-filling (?) - Potential threat may be capturing sensitive info ??

• "Log-in" idea

  • Interim bill idea ?