CMHF - Eating Disorders - Engagement Session 10.11.21 by Alycia Hanson (RRE) MPFT https://padlet.com/alyciahanson/e2oqguterp14u302 To help shape the vision and direction of the Eating Disorders Pathway for Staffordshire. en-us 2021-11-04 18:26:48 UTC 2021-11-14 18:32:07 UTC hello@padlet.com Taking several attempts to access treatment https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882124270 2021-11-10 18:29:03 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882124270 Waiting times https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882124843 2021-11-10 18:29:17 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882124843 https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882125160 The rigid criteria to access pathways. (not ill enough...too ill etc) 
Unsuitable (not trauma informed) therapy and no other options. 

]]> 2021-11-10 18:29:26 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882125160 Lack of knowledge/understanding from GP. https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882125307 2021-11-10 18:29:29 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882125307 My own education of what an eating disorder was fionamoore2 https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882131032 2021-11-10 18:32:02 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882131032 Stigma around an ED https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882131499 2021-11-10 18:32:14 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882131499 https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882134302 Very little services do for any ED with another mh condition (co-morbidities). Lack of skills/ treatment options - end up being referred back and forth from different services with nobody to help. ]]> 2021-11-10 18:33:21 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882134302 Lack of recognition in males https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882134962 2021-11-10 18:33:38 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882134962 services not working together https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882136823 2021-11-10 18:34:21 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882136823 Believing that change was possible as a loved one of the person trying to access the service fionamoore2 https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882141158 2021-11-10 18:36:07 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882141158 https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882143055 Better discharge planning with the possibility of being stepped down in lower acuity ED services, suppose the transformation project might deliver on this which would be great as a response to reduce revolving door patients ]]> 2021-11-10 18:36:56 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882143055 are services easily accessible? https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882143182 2021-11-10 18:37:00 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882143182 https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882145804 "treatment" becomming more traumatising because its inappropriate for the person. ]]> 2021-11-10 18:38:05 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882145804 https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882149634 more accessible support. Its easier for carers (family) to access support groups than it is for someone suffering with an ED. ]]> 2021-11-10 18:39:36 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882149634 Is it essential that people are weighed at every session? fionamoore2 https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882150511 2021-11-10 18:39:54 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882150511 https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882151472 Transition which isn’t always about moving from CAMHS to adults but also needs to recognise that people move to other areas, especially when starting university or moving for work]]> 2021-11-10 18:40:17 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882151472 Peer support https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882152091 2021-11-10 18:40:34 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882152091 An understanding and consistent approach. https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882154053 2021-11-10 18:41:23 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882154053 Challenging you to come out of your comfort zone. https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882154967 2021-11-10 18:41:45 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882154967 BEAT facebook page (facebook messenger) helped me whilst waiting for support fionamoore2 https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882159318 2021-11-10 18:43:14 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882159318 https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882160761 More hope. ]]> 2021-11-10 18:43:41 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882160761 discharge being too focused on your weight instead of your mental health as a whole. I felt abandoned by services as my weight had become stable but I was still engaging in ED behaviours & knew I was still unwell. https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882161657 2021-11-10 18:44:04 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882161657 General mental health team having more knowledge and knowing how support that person struggling instead of leaving them because they didn’t have a clue. Having treatment for other diagnosis as that made eating worse. fionamoore2 https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882163853 2021-11-10 18:44:50 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882163853 https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882167438 Being heard. As an actual person (not as a series of criteria)]]> 2021-11-10 18:46:18 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882167438 General MH services being reluctant to refer to specialist ED services https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882168516 2021-11-10 18:46:44 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882168516 feel like I can only have support for one thing at a time instead of having help from several different areas. fionamoore2 https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882168851 2021-11-10 18:46:54 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882168851 I think this should also be incorporated into adult nursing because lots of adult nurses do not have an idea on eating disorder and how to offer support whilst being admitted into a general hospital. https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882170147 2021-11-10 18:47:26 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882170147 Need support at a much earlier stage - right time, right place fionamoore2 https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882171313 2021-11-10 18:47:57 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882171313 Continued support 'Keeping Warm Programme' fionamoore2 https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882173513 Keep the person asking for help engaged until treatment is available]]> 2021-11-10 18:48:55 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882173513 https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882175161 not having to get to crisis/critical point for anyone to help. ]]> 2021-11-10 18:49:22 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882175161 Regular sessions with the same person. https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882178271 2021-11-10 18:50:40 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882178271 https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882178375 DBT group which is ED specific (general MH DBT groups are not suitable and triggering) ]]> 2021-11-10 18:50:43 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882178375 'Check ins' outside of sessions... (out of hours support) https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882180210 2021-11-10 18:51:27 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882180210 https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882181709 holisitc care - looking at other skills based things that are benefical and can be integrated on a personal proactive level - like art therapy/ yoga therapy/ mindfullness specific group/ body image work. etc. ]]> 2021-11-10 18:52:06 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882181709 Quick response to request to help, someone who understands what it is like to live with this issues, not someone who has done the studying only fionamoore2 https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882183152 2021-11-10 18:52:42 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882183152 https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882183243 Trauma informed care. ]]> 2021-11-10 18:52:44 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882183243 https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882186769 Genuine care. ]]> 2021-11-10 18:54:11 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882186769 https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882192238 Standardised acute medical care. ie. not being sent by medical professionals to A&E over and over again with a "potluck" outcome of what acute care you recieve. ]]> 2021-11-10 18:56:17 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882192238 Making sure loved ones/carers are supported - not expecting carer just to 'pick up' support - education for carers needed fionamoore2 https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882197708 2021-11-10 18:58:42 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882197708 Ongoing support for carers - signposting to support groups/organisations fionamoore2 https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882204905 2021-11-10 19:01:48 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882204905 People will want different support at different times - menu of options for contact - not just telephone, e.g. Messenger fionamoore2 https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882207017 2021-11-10 19:02:43 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882207017 https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882208964 different options of contact/ support. ie. messaging not phone calls. ]]> 2021-11-10 19:03:18 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882208964 Person centred https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882209274 2021-11-10 19:03:25 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882209274 Knowing what is available is an issue fionamoore2 https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882209537 2021-11-10 19:03:32 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882209537 Peer support https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882212181 2021-11-10 19:04:43 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882212181 holistic care https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882213044 2021-11-10 19:05:07 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882213044 Being able to pick services back up if needed, without starting from scratch. https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882216960 2021-11-10 19:06:52 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882216960 do you develop ED at any age and how do you recognise the symptoms quick https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882217745 2021-11-10 19:07:14 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882217745 general education because i am a student nurse and had patient with history of ED but majority of the hcp don't look into that yet they keep putting "declining meals" https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882223106 2021-11-10 19:09:26 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882223106 Why are discharged options being discussed? Should a person with an ED be entitled to life long support? (Even at a light touch when the ED is controlled). https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882224533 2021-11-10 19:10:04 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882224533 https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882225610 recognision from services that EDs evolve/ change/ adpat (especially when the ED is challenged in recovery) and this does not necessarily equate to "lack of engagement" or "not wanting to recover"

]]> 2021-11-10 19:10:33 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882225610 Carer support to manage relapse https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882226439 2021-11-10 19:10:52 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882226439 educating family members like you said would help with the process https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882237460 2021-11-10 19:15:11 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882237460 creating more awareness https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882239580 2021-11-10 19:16:07 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882239580 Support about speaking to employers- removing the stigma. https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882245483 2021-11-10 19:18:35 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882245483 not making people feel guilty but rather providing support https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882247805 2021-11-10 19:19:35 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882247805 Why is it 'all' or 'nothing' - e.g. light-touch support, telephone, call, text, email - stepped approach to care/scale of support fionamoore2 https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882260064 2021-11-10 19:24:29 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882260064 Idea of zoom meetings / drop in monthly .. bring cuppa and your pets … keep the door to a safe space open fionamoore2 https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882265189 2021-11-10 19:26:49 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882265189 Even (though might be triggering) something around shopping, planning meals, cooking in a safe space with others who might be in the same boat - e.g. via Zoom sessions to create safe space to work together fionamoore2 https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882268370 Equivalent to what support is available as an in-patient, e.g. occupational therapist-type activities]]> 2021-11-10 19:28:17 UTC https://padlet.com/alyciahanson/e2oqguterp14u302/wish/1882268370