ethics in research by lauren gilbert https://padlet.com/autisticgirl1722/d141qullz5wt en-us 2017-01-03 13:06:11 UTC 2017-01-03 13:57:46 UTC hello@padlet.com confidential and integral autisticgirl1722 https://padlet.com/autisticgirl1722/d141qullz5wt/wish/145051138 "many people are willing to disclose a lot of information during the research so we need to ensure the participant and their information are kept confidential and integral

Dawson, C (2009) research methods a practical guide, Exeter UK, edition 4]]> 2017-01-03 13:09:05 UTC https://padlet.com/autisticgirl1722/d141qullz5wt/wish/145051138 autisticgirl1722 https://padlet.com/autisticgirl1722/d141qullz5wt/wish/145051705 “research is only of value if it is carried out honestly"

Williamson, n (2011) research methods the basics, New York us, Routledge, pg. 42





]]> 2017-01-03 13:11:29 UTC https://padlet.com/autisticgirl1722/d141qullz5wt/wish/145051705 confidentiality autisticgirl1722 https://padlet.com/autisticgirl1722/d141qullz5wt/wish/145052784 Researchers often give assurances of confidentiality to protect the privacy of research participants. This means that information shared with researchers will not be disclosed in a way that can publicly identify a participant or source]]> 2017-01-03 13:16:53 UTC https://padlet.com/autisticgirl1722/d141qullz5wt/wish/145052784 what it is autisticgirl1722 https://padlet.com/autisticgirl1722/d141qullz5wt/wish/145053809 Research that involves human subjects or participants raises unique and complex ethical, legal, social and political issues. Research ethics is specifically interested in the analysis of ethical issues that are raised when people are involved as participants in research]]> 2017-01-03 13:22:24 UTC https://padlet.com/autisticgirl1722/d141qullz5wt/wish/145053809 autisticgirl1722 https://padlet.com/autisticgirl1722/d141qullz5wt/wish/145053958 There are three objectives in research ethics. Thefirst and broadest objective is to protect human participants. The second objective is to ensure that research is conducted in a way that serves interests of individuals, groups and/or society as a whole. Finally, the third objective is to examine specific research activities and projects for their ethical soundness, looking at issues such as the management of risk, protection of confidentiality and the process of informed consent.]]> 2017-01-03 13:23:15 UTC https://padlet.com/autisticgirl1722/d141qullz5wt/wish/145053958 objectives autisticgirl1722 https://padlet.com/autisticgirl1722/d141qullz5wt/wish/145054194 https://researchethics.ca/what-is-research-ethics/]]> 2017-01-03 13:24:17 UTC https://padlet.com/autisticgirl1722/d141qullz5wt/wish/145054194 autisticgirl1722 https://padlet.com/autisticgirl1722/d141qullz5wt/wish/145055260 Ethical considerations in research are critical.  Ethics are the norms or standards for conduct  that distinguish between right and wrong.  They help to determine the difference between acceptable and unacceptable behaviors.  Why are ethical considerations so important in research?  First, ethical standards prevent against the fabrication or falsifying of data and therefore, promote the pursuit of knowledge and truth which is the primary goal of research.  Ethical behavior is also critical for collaborative work because it encourages an environment of trust, accountability, and mutual respect among researchers.  This is especially important when considering issues related to data sharing, co-authorship, copyright guidelines, confidentiality, and many other issues.  Researchers must also adhere to ethical standards in order for the public to support and believe in the research.  The public wants to be assured that researchers followed the appropriate guidelines for issues such as human rights, animal welfare, compliance with the law, conflicts of interest, safety, health standards and so on.  The handling of these ethical issues greatly impact the integrity of the research project and can affect whether or not the project receives funding. ]]> 2017-01-03 13:28:30 UTC https://padlet.com/autisticgirl1722/d141qullz5wt/wish/145055260 autisticgirl1722 https://padlet.com/autisticgirl1722/d141qullz5wt/wish/145058529 A lot of valuable information can be gained through an interview, especially in non-literate populations.  Interviews allow researchers, in partnership with an effective interpreter, to delve deeper into issues of interest and follow up on conversational cues in a way that simple survey research simply does not allow.  Interviews also strengthen the relationship between the interpreter and the researcher, as well as the relationship between the researcher and the participants in the study.  Interviews allow the researcher much greater insight into the population of interest, but this insight comes with certain risks that the researcher must address before and during the interview process.  Remember, a researcher who is proactive in addressing possible complications will be more successful and will conduct his or her project in a more ethical manner than a researcher who is not as vigilant]]> 2017-01-03 13:40:24 UTC https://padlet.com/autisticgirl1722/d141qullz5wt/wish/145058529 harm autisticgirl1722 https://padlet.com/autisticgirl1722/d141qullz5wt/wish/145058744 Psychological Trauma: discussion of traumatic experiences or private experiences that the participants might not wish to discuss.
Breach of confidentiality and privacy.
Stigmatisation, either through breach of confidentiality or inadequate attention to gender issues.
Increasing vulnerability through inadequate attention to confidentiality and privacy issues
]]> 2017-01-03 13:41:16 UTC https://padlet.com/autisticgirl1722/d141qullz5wt/wish/145058744 harm 2 autisticgirl1722 https://padlet.com/autisticgirl1722/d141qullz5wt/wish/145058935 It is clear that breach of confidentiality/privacy issues make up the core of this potential harm.  As we observed in Module 5, the language barrier exacerbates these issues because it brings an interpreter into the interviewing room.  Furthermore, cultural practices may entail the interviewee’s family members being present for the interview.  It is impossible to overemphasize the importance of the researcher doing everything in his or her power to maintain confidentiality of information, even in these circumstances.]]> 2017-01-03 13:41:56 UTC https://padlet.com/autisticgirl1722/d141qullz5wt/wish/145058935 harm 3 autisticgirl1722 https://padlet.com/autisticgirl1722/d141qullz5wt/wish/145059028 Violating a participant’s privacy by accessing records or files with private information without the interviewee’s consent
Secretly observing the behavior of a participant
Failing to respect cultural traditions and values
]]> 2017-01-03 13:42:16 UTC https://padlet.com/autisticgirl1722/d141qullz5wt/wish/145059028 autisticgirl1722 https://padlet.com/autisticgirl1722/d141qullz5wt/wish/145059154 http://www.uniteforsight.org/research-course/module6]]> 2017-01-03 13:42:43 UTC https://padlet.com/autisticgirl1722/d141qullz5wt/wish/145059154 what to consider autisticgirl1722 https://padlet.com/autisticgirl1722/d141qullz5wt/wish/145060123 harm
why it is important
why they are used 
the link between interviews and ethics

]]> 2017-01-03 13:45:52 UTC https://padlet.com/autisticgirl1722/d141qullz5wt/wish/145060123 definition autisticgirl1722 https://padlet.com/autisticgirl1722/d141qullz5wt/wish/145061453 ‘Research ethics’ refers to the moral principles guiding research


from its inception through to completion and publication of results
]]> 2017-01-03 13:51:08 UTC https://padlet.com/autisticgirl1722/d141qullz5wt/wish/145061453