Co-production and involvement methodology RESOURCE: inclusive working with Children and Young People by Vanessa Bennett

NIHR Involving children and young people as advisors in research: Top tips and essential key issues for researchers (2021)

vanessabennett1 — 2023-06-18 13:59:21 UTC

Young researchers guidance (Brady & Graham 2022)

vanessabennett1 — 2023-06-18 14:03:43 UTC

Evaluation of Young People's Advisory Group (Brady et al. 2023)

vanessabennett1 — 2023-06-18 14:05:46 UTC

Co-production to understand online help-seeking for young people experiencing emotional abuse and neglect: Building capabilities, adapting research methodology and evaluating involvement and impact (Bennett et al. 2022)

vanessabennett1 — 2023-06-18 14:11:36 UTC

National Centre for Research Methods (NCRM)

vanessabennett1 — 2023-06-18 14:14:07 UTC

‘From their own words’: A co-produced study interpreting children and young people's experiences of emotional abuse and neglect expressed in anonymous, online peer-peer message forums (Bennett et al 2023)

vanessabennett1 — 2023-06-18 14:16:41 UTC

Co-producing research with youth: The NeurOx young people's advisory group model (Pavarini et al. 2019)

vanessabennett1 — 2023-06-19 06:50:58 UTC

YPAG model - flexible co-production

Developing a novel co-produced methodology to understand ‘real-world’ help-seeking in online peer–peer communities by young people experiencing emotional abuse and neglect

vanessabennett1 — 2023-06-19 06:54:45 UTC

Methodology case study - qualitative

The Youth Patient and Public Involvement Café—A youth-led model for meaningful involvement with children and young people (Thomson et al 2022)

vanessabennett1 — 2023-06-19 06:57:36 UTC

Young Researchers: Toolkit (Brady and Graham 2022)

vanessabennett1 — 2023-06-19 07:00:11 UTC

Barnados

NCB: Involving Children and Young People

vanessabennett1 — 2023-06-19 07:02:24 UTC

Youth Justice Resource Hub: Participation in Practice and Co-creation Project - Peer Power Project (July 2021)

vanessabennett1 — 2023-06-19 07:04:56 UTC

Ethical research: 'a state of being, not a state of doing'? (Co-production Collective blog 2022)

vanessabennett1 — 2023-06-19 07:08:52 UTC

Ethical research involving children (ERIC database)

vanessabennett1 — 2023-06-19 07:14:08 UTC

Lots of guidance and case studies etc

HRA Public Involvement

vanessabennett1 — 2023-06-19 07:18:10 UTC

NCCPE

vanessabennett1 — 2023-06-19 07:21:07 UTC

NSPCC: research with children ethics (participation focus)

vanessabennett1 — 2023-06-19 07:24:04 UTC

Social research with children and young people/Chapter 3: Involving Children and Young People in Research (Brady and Graham, Book, 2018)

vanessabennett1 — 2023-06-19 07:28:49 UTC

Involving young people in drug and alcohol research (Brady 2018)

vanessabennett1 — 2023-06-19 07:34:56 UTC

Proposed 'Hub and spoke' model to involve YP with youth support/community

How to build a game for empirical bioethics research: The case of ‘Tracing Tomorrow’ (Lyreskog et al. 2021)

vanessabennett1 — 2023-06-19 07:38:15 UTC

Twitter thread from Jim Elliot @drakesyard on journals

vanessabennett1 — 2023-06-19 07:43:57 UTC

Twitter thread from @dr_know on RECs and journals regarding patient involvement

vanessabennett1 — 2023-06-19 07:45:50 UTC

Orygen: Youth Partnership Toolkit

vanessabennett1 — 2023-06-19 07:50:00 UTC

NIHR: Guidance on co-producing a research project (Coldham, 2021)

vanessabennett1 — 2023-06-19 07:58:34 UTC

NIHR: involvement vs co-production

vanessabennett1 — 2023-06-19 08:00:55 UTC

Wellcome: Review of YPs involvement in health research

vanessabennett1 — 2023-06-19 08:06:01 UTC

Co-production Collective Resource Library

vanessabennett1 — 2023-06-19 08:07:29 UTC

Reflections, impact and recommendations of a co-produced qualitative study with young people who have experience of mental health difficulties

vanessabennett1 — 2023-06-19 08:08:58 UTC

How do we know what works? Evaluating data on the extent and impact of young people’s involvement in English health research (Brady and Preston 2020)

vanessabennett1 — 2023-06-19 12:07:08 UTC

NSPCC and NeurOX YPAG

vanessabennett1 — 2023-06-19 12:09:35 UTC

EPPI centre blog: Involving young people with lived experience of adverse childhood experience (ACEs) in a systematic review (Brady, Lester 2018)

vanessabennett1 — 2023-06-19 12:14:43 UTC

Ethical and safe: Research with children about domestic violence (Morris et al 2012)

vanessabennett1 — 2023-06-19 12:20:50 UTC

Conceptualising children and young people’s participation: examining vulnerability, social accountability and co-production (Tisdall, 2016)

vanessabennett1 — 2023-06-19 12:22:22 UTC

Conceptualizing Youth Participation in Children’s Health Research: Insights from a Youth-Driven Process for Developing a Youth Advisory Council (Arunkumar et al. 2019)

vanessabennett1 — 2023-06-19 12:30:49 UTC

NeurOX Young People's Advisory Group

vanessabennett1 — 2023-06-19 12:33:01 UTC

Co-produuction and involvement at University of Oxford/Oxford Health Biomedical Research Centre

GenerationR: National Network (GenerationR Alliance) of Young People’s Advisory Group’s (YPAGs) based across the UK

vanessabennett1 — 2023-06-19 12:34:58 UTC

Framework to help design and review research involving children (Phillips et al. 2019)

vanessabennett1 — 2023-06-19 12:38:09 UTC

How to involve children and young people in what is, after all, their research (Preston et al 2019)

vanessabennett1 — 2023-06-19 12:41:57 UTC

Nothing about us without us: A co-production strategy for communities, researchers and stakeholders to identify ways of improving health and reducing inequalities (Albert et al 2023)

vanessabennett1 — 2023-06-19 12:50:17 UTC

Ethical research involving children (ERIC): Charter

vanessabennett1 — 2023-06-19 12:56:20 UTC

Young People in Research: Guidance for researchers from the PEAR young people’s public health group (2010)

vanessabennett1 — 2023-06-19 13:01:57 UTC

Generation R Alliance/eYPAGnet Toolkit

vanessabennett1 — 2023-06-19 13:03:03 UTC

Young people and an NHS participation worker reflect on their involvement in a creative, collaborative mental health research project (Allan et al. 2017)

vanessabennett1 — 2023-06-19 13:11:24 UTC

Association for Young People's Health (AYPH): YPs perspectives on ethics of engagement and co-production

vanessabennett1 — 2023-06-19 17:16:59 UTC

NIHR: Research with children and young people

vanessabennett1 — 2023-06-21 07:32:18 UTC

What is the value of co-production? Co-production Collective (2022)

vanessabennett1 — 2023-06-21 07:37:40 UTC

Interactive summary:
https://assets.website-files.com/5ffee76a01a63b6b7213780c/635f0138190b083a3858f43d_ValueCoPro_InteractiveSummary31Oct22.pdf

Value of Co-production: Rapid Critical Review

vanessabennett1 — 2023-06-21 07:42:15 UTC

Co-production Collective payment policy

vanessabennett1 — 2023-06-21 07:43:48 UTC

vanessabennett1 — 2023-06-22 07:48:33 UTC

ICO: Children and GDPR

vanessabennett1 — 2023-06-22 07:49:11 UTC

Ethical Research Involving Children, ERIC, Child Ethics

vanessabennett1 — 2023-06-22 07:50:20 UTC

Research with children: ethics, safety and promoting inclusion | NSPCC Learning

vanessabennett1 — 2023-06-22 07:51:32 UTC

Gillick competence and Fraser guidelines | NSPCC Learning

vanessabennett1 — 2023-06-22 07:52:55 UTC

HRA: Research involving children (clinical trials for medicinal products/consent)

vanessabennett1 — 2023-06-22 07:54:45 UTC

NIHR/HRA Decision Tool: Consent

vanessabennett1 — 2023-06-22 07:55:30 UTC

The Ethics of Research with Children and Young People (Alderson & Morrow 2020)

vanessabennett1 — 2023-06-22 07:57:10 UTC

Blagrave Trust: Payment policy for YP

vanessabennett1 — 2023-06-22 07:58:17 UTC

Blagrave Trust: Involving Young Londoners (participatory approaches in Youth Sector)

vanessabennett1 — 2023-06-22 08:00:11 UTC

Recruiting young people to sensitive research: turning the ‘wheels within wheels’ (Turner & Almack 2016)

vanessabennett1 — 2023-06-22 08:30:04 UTC

Ethical Research with Children: untold narratives and taboos (Clark & Boggis 2015)

vanessabennett1 — 2023-06-22 08:31:40 UTC

The Ethics of involving Young People Directly in the Research Process (O'Brien et al 2021)

vanessabennett1 — 2023-06-22 08:33:23 UTC

NeurOX YPAG Terms of Reference (+ co-produced payment policy)

vanessabennett1 — 2023-06-22 08:55:06 UTC

NeurOX YPAG Co-produced website and content

vanessabennett1 — 2023-06-22 08:55:24 UTC

Lots of stuff including YP designed involvement strategies, podcasts, different project communications, research

Evidencing the Impact of Web-Based Coproduction With Youth on Mental Health Research (Fernandes et al 2023)

vanessabennett1 — 2023-06-22 11:18:17 UTC

Trauma-informed co-production: guidance (Cherry/West Yorkshire H&C Partnership 2022)

vanessabennett1 — 2023-06-22 12:12:22 UTC

NeurOX YPAG blogs

vanessabennett1 — 2023-06-22 12:15:24 UTC

Generation R blogs

vanessabennett1 — 2023-06-22 14:19:42 UTC

Digital Youth Blogs

vanessabennett1 — 2023-06-22 14:22:25 UTC

YPs blog: YPAG payment and emotional labour

vanessabennett1 — 2023-06-22 14:24:16 UTC

Strategies to Engage Systematically Marginalized Youth and Their Families in Research Using High-Tech Methods (Hardin et al. 2022)

vanessabennett1 — 2023-06-22 14:32:31 UTC

Participation in Children and Young People's Mental Health

vanessabennett1 — 2023-06-22 15:05:58 UTC

Guidelines for Involving Young People with Lived and Living Experience of suicide in suicide research

vanessabennett1 — 2023-06-23 08:50:01 UTC

Involving young people in sexual health research and service improvement: conceptual analysis of patient and public involvement (PPI)in three projects (Lewis et al. 2022)

vanessabennett1 — 2023-06-23 10:57:45 UTC

Re-conceptualising youth participation: A framework to inform action (Cahill & Dadvand 2018)

vanessabennett1 — 2023-06-23 10:59:39 UTC

A square peg in a round hole: Patient and public author affiliations in academic journals (blog)

vanessabennett1 — 2023-06-28 16:21:01 UTC

Co-Production Collective: All about Ethics (Blog and link to report) June 2023

vanessabennett1 — 2023-06-29 12:12:48 UTC

Working in partnership with people outside of the university system: Co-Production Collective (June 2023)

vanessabennett1 — 2023-06-29 12:14:25 UTC

Declaration of Helsinki Ethical Principles (Medical Research)

vanessabennett1 — 2023-06-29 12:16:58 UTC

A framework for public involvement at the design stage of NHS health and social care research: time to develop ethically conscious standards (Pandya-Wood et al 2017)

vanessabennett1 — 2023-06-29 12:19:14 UTC

The complexities and contradictions in participatory research with vulnerable children and young people: A qualitative systematic review (Bradbury-Jones et al 2018)

vanessabennett1 — 2023-07-03 13:52:11 UTC

Research with children: ethics, safety and promoting inclusion | NSPCC Learning

vanessabennett1 — 2023-07-07 10:23:00 UTC

Webinar on Research ethics in childhood research (leading to discussion paper)

vanessabennett1 — 2023-12-08 11:33:47 UTC

The following paper was developed from this: https://journals.sagepub.com/doi/epub/10.1177/09075682231205505

Research Ethics in Childhood

vanessabennett1 — 2023-12-08 11:37:20 UTC

Moderated discussion: includes tensions between situated vs institutional ethics (and participation and protection rights) and supporting/challenging IRBs to see children and young people as competent research participants and co-researchers.

Also anonymity vs recognising contribution, co-authorship, digital footprints & relational ethics approaches

Involving children in sensitive research (and benefits)

Reimagining institutional ethics procedures in research partnerships with young people... (Powell et al 2023; paper)

vanessabennett1 — 2023-12-08 11:42:37 UTC

Explores...role of institutional ethic procedures in light of power imbalances and tensions within three areas: (1) research co-production with young people, (2) collaborative cross-country research with partners, and (3) the relevance of ethical guidelines in diverse research contexts

Children’s images online: exploring ethical issues in participatory research projects

vanessabennett1 — 2023-12-08 11:55:26 UTC

Includes discussion around 'digital footprints' or 'digital tattoo' and questions around ownership, consent and the legacy of images, particularly when images are shared through the internet and social media. Also discussion around disability and rights and consent around use of children's images online

Participation works: renumerating young people's involvement

vanessabennett1 — 2023-12-10 15:06:45 UTC

NIHR guidance on payment for involvement (includes children and young people)

vanessabennett1 — 2023-12-10 15:07:33 UTC

Rights for those under 18 re payment - general not specifically focussed on involvement

vanessabennett1 — 2023-12-10 15:09:33 UTC

‘Do no harm’? Rethinking risk and harm narratives in abuse-focused research with children

vbennett28 — 2024-10-01 10:04:48 UTC

Helen Beckett and Camille Warrington - excellent paper on ethical decision making in sensitive research with children and young people.

"....highlight some of the current shortcomings in how risk of harm in research is understood and assessed, in relation to ethical decision-making around abuse-focused research with children, and to articulate the dangers of the risk exclusionary practices that can ensue. We, like others working in related fields, emphasise the need for broader adoption of a more holistic, nuanced and dynamic approach to assessing and managing risk of harm. Such an approach considers risks of inclusion alongside risks of exclusion, including risks of replicating existing structural marginalisation and harm..."

Revisions to Declaration of Helsinki (2024)

vbennett28 — 2024-10-23 16:29:03 UTC