Five Brave Spirits Forum for Expression and Discussion by

rowenarichie1 — 2023-05-27 18:38:38 UTC

I remember her,

that warm dusty

smell. She would

have treats in

her kitchen just

for us. there was

never a dull moment.

I remember her. I was her

dolly, I would play

with her for hours.

But when it happened

I thought it

would all be

the same. But

it wasn't. Soft

sweet memorys

slipped away but

still, I will remember

her.

Poem written by Heather Losee's granddaughter, recited at Heather's memorial. Heather's response to her Alzheimer's diagnosis was, We'll face this head-on, just like we've faced all the other challenges.

rowenarichie1 — 2023-05-27 18:58:29 UTC

It breaks my heart that more people aren't educated about dementia and for the most part it's hidden from view.

It breaks my heart feeling alone; feeling like you have no resources to turn to; feeling like you're not doing enough for your loved one; feeling progressively drained.

It breaks my heart to not be able to spend more time with my mom because I have and want to work.

It breaks my heart that professional caregivers are often not paid fairly for the incredible work they do.

It breaks my heart that people living with dementia are often overmedicated leading to a diminishment of dignity.

rowenarichie1 — 2023-05-27 19:06:04 UTC

It's got to be more than feel good. It's got to be gritty.

Engage other people who are far removed.

Empathy and validation for care partners.

Raw honesty, vulnerability.

Kind witness.

A place to unwind.

Learning what you don't know (you can't know what you don't know).

A place that fosters the seeds of change.

Compassion--I can't be well if you're not well, too.