Healthy Life: Personal Care and medical/physical support challenges by Michael Stoehr https://padlet.com/mstoehr4/a3ccbw9gl40kkfng en-us 2023-07-31 15:51:13 UTC 2023-08-01 18:57:36 UTC hello@padlet.com Healthy Relationships https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654317488 2023-08-01 18:31:13 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654317488 Communicating Health Needs https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654317820 2023-08-01 18:32:08 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654317820 Nick https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654317990 Nursing shortage at all levels, everywhere....]]> 2023-08-01 18:32:36 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654317990 Importance of self-care, and having that in mind as students are receiving services. https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654318057 2023-08-01 18:32:47 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654318057 Lack of Accessibility in Society https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654318073 2023-08-01 18:32:49 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654318073 State Initiatives to Provide Community Supports Like Adult Changing Tables roweda1 https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654318234 https://www.tn.gov/didd/for-consumers/adult-size-changing-tables.html]]> 2023-08-01 18:33:15 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654318234 Health clinics/offices not always fully accessible https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654318357 This includes sensory welcoming as well as physically accessible (pathways, tables, exam equipment, adult changing tables)]]> 2023-08-01 18:33:34 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654318357 Partnering with the Department of Public Health https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654318460 Georgia: Transitioning Youth to Adult Care | Georgia Department of Public Health]]> 2023-08-01 18:33:49 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654318460 Changing the Narrative https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654318469 Connecting families, youth and advocates to address barriers to access. We all need to expect inclusivity]]> 2023-08-01 18:33:50 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654318469 Ignoring Mental Health Needs https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654318725 We get focused on the disability label and do not realize people have co-occurring needs]]> 2023-08-01 18:34:28 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654318725 Educating Youth on their Rights https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654318967 Learning about their civil rights (ADA, etc.)]]> 2023-08-01 18:35:02 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654318967 VALID Study on Fitness and Well-Being LifespanTransitionCenter https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654319043 A reminder to focus on fitness, well-being, healthy living, and mental health as a focus and avenue for community inclusion]]> 2023-08-01 18:35:14 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654319043 To build a healthy life balance we need to start earlier with our students with significant challenges. https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654319062 2023-08-01 18:35:16 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654319062 One-Page Profile for Medical appts...sample from a man with CP https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654319305 See previous padlet regarding one page profile to help medical professionals effectively support folks with more intense disability.]]> 2023-08-01 18:35:55 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654319305 Cross Train Staff roweda1 https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654319455 2023-08-01 18:36:21 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654319455 lack of 'adult' doctors/specialists https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654319470 difficult to find specialists and doctors accepting patients with complex disabilities...those who use medicaid...]]> 2023-08-01 18:36:23 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654319470 My Supports https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654319615 Supports should not stand in the way of access. Personal care not being a barrier, it is a need a service that can be met]]> 2023-08-01 18:36:51 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654319615 Universally designed spaces, accessible spaces in the community https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654319983 2023-08-01 18:38:02 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654319983 Develop more programs that allow life-stream waivers across programs for individuals receiving these services. https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654319990 2023-08-01 18:38:03 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654319990 All youth are educated on their physical/structural rights! https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654320067 Knowing how to advocate for yourself to better know ADA, etc]]> 2023-08-01 18:38:15 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654320067 Lack of training of Medical Professionals especially in preventative care https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654320125 Current program we have implemented in Oklahoma - https://www.bing.com/search?pglt=41&q=SAME+FAME%2C+UCEDD&cvid=881ee7e509ec47c7ba6c13692563b1c4&aqs=edge..69i57j69i64.9730j0j1&FORM=ANAB01&PC=U531#]]> 2023-08-01 18:38:27 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654320125 Access to One-to-One Nurses https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654320148 Students have to miss school because the nurses are not available]]> 2023-08-01 18:38:31 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654320148 Advocate accessibility (physical) in new construction/ public buildings (e.g., adult changing) https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654320447 Use social media to this advantage
Inform others]]> 2023-08-01 18:39:10 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654320447 Structural Building Issues https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654320448 Constant barriers]]> 2023-08-01 18:39:10 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654320448 Support Workforce https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654320712 Address the shortages and build teams]]> 2023-08-01 18:39:54 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654320712 Help people see individuals who are helpers like OT, PT, etc., similar to how we view sign language interpreters, and encourage more folks to engage in these occupations. https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654320812 2023-08-01 18:40:12 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654320812 lack of consumer directed personal care attendants https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654320912 not an attractive job so people with disabilities who want to hire their own support providers through medicaid programs struggle to find and keep attendants. ]]> 2023-08-01 18:40:26 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654320912 electronic health records https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654321159 2023-08-01 18:41:05 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654321159 Transportation https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654321184 2023-08-01 18:41:08 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654321184 Anyone who wants to live independently can do so with easily available and accessible supports! https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654321517 2023-08-01 18:42:03 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654321517 Capacity Building https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654321617 Changes in policies. Sharing family/youth stories so that this becomes a more visible issue]]> 2023-08-01 18:42:20 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654321617 Focus on physical accessibility needs in all buildings that these students must access https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654321619 2023-08-01 18:42:20 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654321619 Physicians and other medical providers with knowledge of serving this population https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654321625 2023-08-01 18:42:21 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654321625 Health portfolios theresacarroll1 https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654321667 Can be electronic (app) or physical (binder). Adolescent creates a health portfolio (with support if needed) to help them engage in conversations with others about their health care and needs. ]]> 2023-08-01 18:42:30 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654321667 overmedication of people with disabilities https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654322519 2023-08-01 18:44:27 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654322519 Empowering voice to make choices and lean into self-advocacy https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654322611 2023-08-01 18:44:41 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654322611 Empowering Voice https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654322629 Speaking up for rights to be included]]> 2023-08-01 18:44:43 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654322629 Self-Advocacy and Self-Determination Training as a core part of the curriculum for all students https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654323195 2023-08-01 18:45:56 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654323195 Rural communities and access to services/ care https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654323566 2023-08-01 18:46:56 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654323566 Reimbursement Costs for Agency roweda1 https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654324310 Increase staff reimbursement to cover one-to-one nurse]]> 2023-08-01 18:49:08 UTC https://padlet.com/mstoehr4/a3ccbw9gl40kkfng/wish/2654324310