Its All About YOU - Supporting your Wellbeing by https://padlet.com/melanieadekale/a03j9k6jrs8psh41 We would welcome discussion on these 7 questions from those with caring responsibilities now or in the future about how best to support their health and wellbeing. Carers have a statutory right to support under the Care Act 2014. If you are affected by any of the themes raised and would like support for yourself or someone you know, you will find information on www.warwickshire.gov.uk/carers en-us 2021-09-10 14:49:41 UTC 2026-02-26 04:53:55 UTC hello@padlet.com There is no support - just left to our own devices to manage in extremely challenging circumstances https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1770498733 2021-09-27 08:55:21 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1770498733 Respite care https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1770499013 2021-09-27 08:55:30 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1770499013 There are no breaks from caring - it is 24/7 365 days a year https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1770499794 2021-09-27 08:55:53 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1770499794 GP's should provide advice about support available. My GP is well aware of my caring responsibilities but has never offered any support or advice https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1770501611 2021-09-27 08:56:46 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1770501611 Carers allowance needs to be increased to a reasonable amount to show the value of the service provided by the carer - it should be paid regardless of other income. https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1770503362 2021-09-27 08:57:33 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1770503362 Have a proper understanding of the impact of caring for a loved one https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1770504473 2021-09-27 08:58:05 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1770504473 I don't know anything about the support available https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1770505146 2021-09-27 08:58:26 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1770505146 E-Young Adult Carer (18) https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1803924401 I have recently completed sixth form and unfortunately my secondary school were made aware that I am a Young Carer but offered no support- and some of my teachers were not even forwarded this information. The school preferred to comment on my lower attendance record than to offer me assistance. From my own experiences, carers don't get enough support in educational settings.]]> 2021-10-09 10:59:49 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1803924401 https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1818283125 No, the burden on carers is huge. Not enough support - financial, emotional or practical help is there. Just lip service once a year in patronising messages from Izzi Seccombe and Monica Foggarty. Like a cup of tea is really going to cut it when you’re a full time family carer. Honestly! Wake up!]]> 2021-10-14 23:14:57 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1818283125 https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1818287390 Ask me what I need, what would make a difference and deliver it without conditions. Do not undermine me or disempower me from making my choices. Do not remove my dignity by offering meaningless tidbits of ‘support’. Help me with paperwork when I can’t think straight. Understand I don’t want the burden or stress of managing hiring help. I need respite, support, understanding. I need to feel seen and accepted as I am. ]]> 2021-10-14 23:18:51 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1818287390 https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1818288419 Don’t have enough time. It’s exhausting. I can’t even imagine what I’d do with free time. It’s too overwhelming. ]]> 2021-10-14 23:19:46 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1818288419 https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1818289649 Carers allowance is ridiculous. Parent carers assessment is awful. And you have to keep going back to go through it again. Horrendous. ]]> 2021-10-14 23:20:55 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1818289649 Do Carers get enough support - no. It's minimal - I only have experience of caring for someone with mental health problems but support has dwindled. My son has a long term illness which mean he and I need long term support which at times has been sadly lacking and it has been a fight to get support for him when needed. Obviously this impacts on me and my wellbeing https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1819118933 2021-10-15 07:43:06 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1819118933 Quality of life improvement - for me just someone to talk to who knows my situation can tell me what I am doing is ok - or not. Financial help for one off needs. The fact I have been doing this for a long time doesn't make it easier https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1819122841 2021-10-15 07:45:45 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1819122841 Breaks - I am able to get away from time to time as my youngest son also lives with us. A double edged sword as he has MS https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1819124700 2021-10-15 07:47:01 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1819124700 Support - just something as simple as an email that says hello how are you doing. From a person who knows me not an app would be really helpful. I feel very isolated at times https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1819127715 2021-10-15 07:49:02 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1819127715 Acknowledge that I'm here - what I do and listen to my concerns https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1819128515 2021-10-15 07:49:37 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1819128515 All of the previous https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1819129261 2021-10-15 07:50:08 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1819129261 support for carers https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1822243338 I do not think that there is enough help for carers - it is difficult to find out required information. I had a bad experience at Carers Trust - they wanted a key to obtain access to my property from a woman who only spoke broken english and she was very insistent about having a key. Our personal details were circulated after this conversation and we extremely worried about our bank details, personal medical records being circulated to all and sundry. It was a very worrying and upsetting time!]]> 2021-10-17 15:38:47 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1822243338 disabled equipment https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1822245145 I have been trying for 4 month to obtain a chair to go over the bath and then lower the disabled person into the bath but without success. We are having to manage with a strip down wash so the patient gets chilled by the end of the session. This is not a good idea! ]]> 2021-10-17 15:40:33 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1822245145 support from G.P. https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1822246263 G.P surgeries does not seem to know how or where to get information to assist. The district nurse knows more and points in the right direction but with covid no further action has been obtained.]]> 2021-10-17 15:41:44 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1822246263 further help https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1822247610 Why can't all the relevant services communicate with one another - instead of having to repeat oneself every time? This would not happen in private practice!]]> 2021-10-17 15:42:59 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1822247610 K Young Adult Carer, age 22 https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1825248814 GPS & their reception & admin staff should recognise young carers & not be so dismissive because we are young. I was accused of just "doing a bit of shopping" when I tried to get my Covid jab when I am the primary carer for someone with stage 2 respiratory failure which is a 24/7 job.]]> 2021-10-18 20:25:14 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1825248814 K, Young Adult Carer, age 22 https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1825257856 Young carers need a card or something to prove they are the main carer for someone. We shouldn't be battling with hospital staff to get all the information we need to continue care at home after a stay in hospital & I shouldn't have to take my support worker from Young Carers with me to meetings with hospital social workers just so they'll take me seriously & treat me like I'm important in meeting my dad's care needs.]]> 2021-10-18 20:30:54 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1825257856 D-YAC, 19 https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1825267052 If I had a break it would be good if it was for more than a couple of hours. Sit in carers usually only come for 2 hours max & by the time I get to where I want to go I'm there a few minutes before my mum's texting me the carer's going & I'm rushing back.]]> 2021-10-18 20:36:26 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1825267052 J Young Adult Carer aged 20 https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1825277584 I've struggled loads to get professionals to listen. It's a shame we have to go through our worker at WYC to get anyone to listen & take us seriously. If I didn't have them I think I'd be in prison now or something because it's so frustrating & I think I'd have flipped!]]> 2021-10-18 20:42:25 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1825277584 S age 23 young adult carer https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1825286452 I would really like there to be more mental health support that you can get quickly because caring when you have mental health problems can mean the stress of caring makes your MH problems worse & we sometimes need immediate support from someone who understands the pressure on us.]]> 2021-10-18 20:48:03 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1825286452 Good support in some schools, WYC support excellent wider support can be better... melanieadekale https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1834088125 2021-10-21 16:21:07 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1834088125 Assembly sessions about young carers would be useful to share the information on support. Posters are available but to talk about it would be good. melanieadekale https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1834127331 2021-10-21 16:34:27 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1834127331 More publicity to reduce stigma, using different marketing, social media, ,bus adverts, regular campaigns through out the year for awareness raising... melanieadekale https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1834142863 2021-10-21 16:39:58 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1834142863 WYC Enhanced support for young carers accessing services, card discounts etc... would help melanieadekale https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1834159833 2021-10-21 16:46:01 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1834159833 Mental health support is needed for young people with caring esp during covid... melanieadekale https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1834200745 2021-10-21 17:00:42 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1834200745 recognition of caring role for young carers in school and services, training for teachers to be more sensitive melanieadekale https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1834206289 2021-10-21 17:02:55 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1834206289 pastoral care in high school would good or having a go to person melanieadekale https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1834209557 2021-10-21 17:04:12 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1834209557 YC Share information so not have to repeat myself to professionals and practitioners can be bit more approachable melanieadekale https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1834215788 2021-10-21 17:06:35 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1834215788 Having a named to go to that will advocate for me melanieadekale https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1834219592 2021-10-21 17:08:07 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1834219592 YC having a break I can be myself and act my age and hang out with friends or just a sleep in melanieadekale https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1834226062 2021-10-21 17:10:29 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1834226062 Before I start college I a exhausted as had to plan the whole day and not forget anything... melanieadekale https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1834235303 2021-10-21 17:12:56 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1834235303 YP GPs can do better to understand young carers melanieadekale https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1834246688 2021-10-21 17:17:42 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1834246688 Pharmacies need more awareness, some professional distrust young people melanieadekale https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1834250812 2021-10-21 17:19:21 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1834250812 YC sometimes where you are from can be treated differently... want to be respected melanieadekale https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1834255605 2021-10-21 17:21:17 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1834255605 Having an award to work to by schools like the Gold Award for carers is really good melanieadekale https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1834258499 2021-10-21 17:22:32 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1834258499 YC there is an expectation that we should be looking after family members lack of understanding of caring melanieadekale https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1834264158 2021-10-21 17:24:40 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1834264158 https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1839272830 From my perspective, as the carer to my 88yr old mother, no, there isn’t enough support. There’s certainly a lot of lip service from GP practices and various organisations, but no action to help people like me.]]> 2021-10-24 13:50:20 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1839272830 https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1839284449 I’ve never had a break from caring in over 10yrs. It would be nice to go away for a weekend or a week, but that is impossible. My real break is when my mum goes to bed and I can watch some tv for an hour or so, after I’ve completed the cleaning.]]> 2021-10-24 13:57:18 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1839284449 https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1839304342 I’m not recognised by the authorities as a carer who could get carers allowance because I work full time and get paid a certain salary.  Carers allowance should be paid to ALL carers, irrespective of their employment status. ]]> 2021-10-24 14:06:38 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1839304342 https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1844298490 No - there is never enough support at work.  You're stuck between having to take unpaid time off, or using up annual leave. What happens if we become ill and need time off?

]]> 2021-10-26 08:13:08 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1844298490 https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1844305097 Having someone to guide you through everything, especially during and after emergencies.]]> 2021-10-26 08:16:37 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1844305097 https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1844311362 At the moment, I do have breaks but I know things will change in the future as my mum's health deteriorates. Already I can see that when family help out, all I want to do is sleep. Even making plans to go anywhere such as a holiday, take too much energy.]]> 2021-10-26 08:20:05 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1844311362 https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1844316052 A central point, desk, contact number where you can call 24/7 and speak to a real person.]]> 2021-10-26 08:21:59 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1844316052 https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1844321257 Not having to use up annual leave for appts etc, and then having no annual leave left for ourselves. It is a vicious circle.]]> 2021-10-26 08:24:45 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1844321257 https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1844325841 Having an advocate, who can fight our corner when professionals just fob us off.]]> 2021-10-26 08:27:06 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1844325841 https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1844333643 I agree with all of the above. Services working together so that we do not have to repeat ourselves would be a start.]]> 2021-10-26 08:31:00 UTC https://padlet.com/melanieadekale/a03j9k6jrs8psh41/wish/1844333643