The Missing Understandings of Chronic Illnesses by Katie Willis

Activity

katiewillisywst — 2024-05-06 03:57:21 UTC

Use the Canva link above to design a Chronic Illness Awareness flyer or poster focussing and highlighting the important facts about what people go through privately when dealing with chronic health issues. Consider using the ideas I provided for you into your activity, and feel free to add even more ideas. Click the link above to access Canva.

Living with a chronic disease

katiewillisywst — 2024-05-06 04:22:40 UTC

Informational Source

Rhetorical Situation:

Writer: Inger Benkel.
Text/Subject: It aims to provide insights into the real-world experiences of individuals grappling with chronic illnesses, as well as shed light on the implications of these conditions on various aspects of their lives.
Audience: The audience of the article includes a diverse range of stakeholders interested in improving the quality of life, care, and support for individuals living with chronic diseases.
Context: The context of the article reflects a multidimensional exploration of the impact of chronic diseases on individuals.

MLA Citation:

Benkel, Inger, et al. “Living with a Chronic Disease: A Quantitative Study of the Views of Patients with a Chronic Disease on the Change in Their Life Situation.” SAGE Open Medicine, U.S. National Library of Medicine, 20 Apr. 2020, www.ncbi.nlm.nih.gov/pmc/ articles/PMC7171994/.

Chronic illness is not widely viewed

katiewillisywst — 2024-05-06 04:25:40 UTC

Informational Source

Rhetorical Situation:

Writer: Ria Mukherji.
Text/Subject: It focuses on the societal perception of chronic illnesses as disabilities. It discusses how chronic illnesses are often overlooked or not recognized as disabilities, despite the significant impact they can have on an individual's daily life and functioning. The central message is that there is a need for a shift in perspective and understanding regarding chronic illnesses and how they are perceived in relation to disabilities.
Audience: This article is broad and diverse, but specifically targets individuals and groups involved in healthcare, advocacy, policy-making, and social awareness initiatives.
Context: It is situated within the intersection of healthcare, social perceptions, advocacy, and policy-making related to disabilities.

MLA Citation:

Mukherji, Ria. “Chronic Illness Is Not Widely Viewed as Disability. This Needs to Change.”

HGSE Office of Student Affairs, osa.gse.harvard.edu/chronic-illnesses-not-widely-viewed -disability-needs-change. Accessed 6 May 2024.

"Chronic illness doesn't have an end date"

katiewillisywst — 2024-05-06 04:28:33 UTC

Creative Source

Rhetorical Situation:

Writer: Miranda Hart.
Text/Subject: A quote about what chronic illness really is and how it feels. It is an ongoing thing, it ever ends, and it is so painful. One day you might feel great, and then the next you are the worst you have been in weeks.
Audience: The audience that would be reading this are people who can relate for any type of chronic illness. Relating to each other is a big thing with chronic illnesses, it builds a community and makes you more confident.
Context: A condensed yet poignant expression of the multifaceted aspects of living with a long-term health condition.

MLA Citation:

Hart, Miranda. “Chronic Illness Doesn’t Have an End Date.” Facebook, 22 Apr. 2020, www.facebook.com/meassociation /photos/a.176956002362066/2962228963834742/?type=3.

Improving understanding about chronic illness

katiewillisywst — 2024-05-06 04:32:12 UTC

Creative Source

Rhetorical Situation:

Writer: Lauran Hardin.
Text/Subject: Hardin deeply explains the understanding the causes of chronic illness and the needs of complex-care patients can radically transform outcomes for not only those most at-risk, but for communities as a whole.
Audience: Individuals from various educational backgrounds who are all united in their interest in understanding, supporting, and making a positive impact on the lives of those affected by chronic health conditions.
Context: It aims to foster understanding, empathy, and empowerment among the audience, while advocating for improved care and support for individuals living with chronic health conditions.

MLA Citation:

Hardin, Lauran. “Why Understanding Chronic Illness Improves Community Health | Lauran Hardin | Tedxmidatlantic.” Youtube, Youtube, 12 Jan. 2021, www.youtube.com/watch?v= y4YJTazkLn4.

POTS poem

katiewillisywst — 2024-05-06 04:37:52 UTC

Creative Source

Rhetorical Situation:

Writer: Jules.
Text/Subject: This is explaining the exact emotion, feeling, and insight of what POTS is. It has physical and emotional symptoms, it is a long journey to feeling good, and it never ends. You take advantage of the good times.
Audience: The audience of this poem are people who are suffering with POTS, people scrolling on TikTok that come across it, and people who follow the account to read these kinds of poems.
Context: Reading this poem, it sounds very sad and miserable and that is how people feel in there day to day lives. I can relate to this poem because I have POTS and this is exactly how I feel.

MLA Citation:

Jules. “Poems about POTS.” TikTok, 9 Feb. 2022, www.tiktok.com/@poetry_writtenbyj/video/7062933617210789167is_from_webapp=1&sender_device=pc&web_id=7356689241651054122.

The Missing Understandings of Chronic Illnesses Overview

katiewillisywst — 2024-05-06 19:54:24 UTC

Summary of: Living with a chronic disease

katiewillisywst — 2024-05-07 05:37:07 UTC

The impact of chronic diseases on the daily lives of patients is explored through a quantitative study, shedding light on the challenges and adjustments faced by individuals living with such conditions. Examining the experiences and perspectives of individuals with chronic diseases provides valuable insights into the adjustments and coping strategies employed to navigate the challenges posed by their health conditions. In Inger Benkel’s article about this topic, she talks about in many different ways, having a chronic disease that isn’t just impacting you, it is changing your life. Here’s what she says: “The patients are forced to change their lifestyle, which they often experience as losing control, and to minimize loss of control they feel a need to mobilize resources, and plan and prioritize their life” (Inger introduction paragraph). Chronic diseases often require individuals to make significant adjustments to their daily routines, habits, and activities in order to manage their condition effectively. As a result, patients may feel a sense of loss of control over their lives as they navigate these necessary lifestyle modifications. The feeling of losing control can be distressing for individuals living with chronic illnesses. To counteract this sense of powerlessness, patients often strive to mobilize various resources available to them. The significance of this quote lies in its portrayal of the multifaceted impact of chronic diseases on individuals, encompassing not only the physical aspects but also the emotional and psychological dimensions. It underscores the resilience and agency of patients in proactively addressing the challenges brought about by their health conditions, emphasizing the importance of holistic care and support in managing chronic illnesses.

Summary of: Chronic illness is not widely viewed

katiewillisywst — 2024-05-07 05:38:55 UTC

In contemporary society, the perception of chronic illness often falls outside the traditional framework of disability, leading to a lack of recognition and understanding of the multifaceted challenges faced by individuals living with long-term health conditions. In an article from Harvard University, Ria Mukherji goes into deep detail about it, and talks about four main points about chronic illnesses that a lot of people may not know. In “Chronic illness is not widely viewed as disability. This needs to change,” Mukherji describes these three points like this: “Firstly, the similarities between chronic illness and impairment are not well understood. … Secondly, chronic illness is commonly seen as ‘sickness’ rather than ‘disability’. … In truth, the experience of the chronically ill cannot be fully understood or imagined by healthy people. … Thirdly, most chronic illnesses are invisible, which can lead to misunderstandings. We usually can’t tell from someone’s appearance that they suffer from chronic pain, fatigue, or mental health conditions that may limit their life activities. As a result, people with invisible chronic illnesses are often accused of faking their impairments and continually face trying to prove that their impairments are real. … Lastly, chronic illness symptoms are multi-causal, unpredictable and unstable. … There are days when an individual can function normally, days when they cannot, and many days with limited functionality; and bad days can’t be predicted” (Mukherji paragraph 2-5). Chronic illnesses are often viewed through the lens of temporary sickness rather than as long-term disabilities. Many chronic illnesses are invisible to others, meaning that the symptoms and limitations experienced by individuals are not readily apparent from their outward appearance. The quote serves to draw attention to the nuanced and often misunderstood aspects of chronic illnesses, highlighting the importance of fostering greater awareness, empathy, and education to bridge the gap in understanding and support for individuals living with chronic conditions.

Summary of: "Chronic illness doesn't have an end date"

katiewillisywst — 2024-05-07 05:42:46 UTC

Living with a chronic illness brings forth a continuous cycle of emotional pain and disillusionment that individuals must navigate each day. The persistent sorrow and dissatisfaction that accompany chronic illness shape a profound emotional landscape for those affected, influencing their daily experiences and outlook on life. In a quote that I found called “Chronic illness doesn’t have an end date” by Miranda Hart, she says this: “Everyday there is something to miss. Everyday there is something you want to do that you can’t. Everyday there’s a feeling of when is it going to end…. Chronic illness doesn’t have an end date” (Hart). This captures the perpetual challenges, unmet desires, and emotional turmoil that individuals living with chronic illnesses face on a daily basis. It emphasizes the relentless nature of chronic illness and the enduring impact it has on various aspects of individuals’ lives, from daily routines to long-term aspirations. This sheds light on the profound impact of chronic illness on various aspects of individuals’ lives, from their emotional well-being to their sense of agency and fulfillment.

Summary of: Improving understanding about chronic illness

katiewillisywst — 2024-05-07 05:43:58 UTC

Lauran Hardin’s discussion sheds light on the profound influence of gaining deeper insights into chronic illnesses, illustrating how such knowledge can lead to healthier communities. Hardin dives into the transformative power of understanding chronic illnesses and its positive impact on overall well-being. Lauran Hardin’s TED Talk, “Why understanding chronic illness improves community health,” delves into the critical connection between awareness of chronic illnesses and community health enhancement. Hardin underscores the profound impact that a deeper understanding of chronic conditions can have on overall well-being. By emphasizing the importance of awareness, support systems, and targeted interventions, the talk highlights how these elements play a pivotal role in improving the health outcomes of individuals grappling with chronic illnesses. Hardin’s discussion elucidates how knowledge about chronic illnesses serves as a cornerstone for bolstering public health efforts. By shedding light on the significance of providing effective support to those affected by chronic conditions, the talk advocates for a more empathetic and informed approach toward managing these health challenges. Ultimately, the message conveyed is that by increasing understanding and support for individuals with chronic illnesses, communities can work towards fostering healthier environments and better outcomes for all members. Through discussions on awareness, support systems, and targeted interventions, Hardin underscores the critical role these elements play in improving the well-being of individuals living with chronic illnesses. The talk underscores the significance of knowledge about chronic illnesses as a catalyst for enhancing public health efforts and providing essential support to those affected by such conditions.

Summary of: POTS poem

katiewillisywst — 2024-05-07 05:44:47 UTC

In a life overshadowed by sickness, I find solace in the unwavering presence of my affliction, forging an alliance with despair, fury, and pain as my unlikely allies in the battle against my own body’s betrayal. The relentless grip of illness consumes my days, leaving me to navigate a world filled with sorrow, rage, and heartache as my steadfast companions in this harrowing journey through life. In a poem I found under “POTS Poems” on TikTok, a user wrote this poem about how it feels having POTS. Since I have this chronic illness, I can relate very well to this. Jules writes: “I fall asleep feeling sick, I wake up and it’s the same. I am the plague, in my own life. It is inescapable. Sickness is the one constant in my life. This feeling may stay until the day I die. Maybe I can take comfort in that fact. Something found my body, habitable, and I am determined to be a good host. My sickness and I will survive off melancholy, anger, or grief. We will survive despite my countless protests” (Jules). For this poem, I couldn’t just pick 3 or 4 lines because the whole thing relates to me and explains POTS so well. This poem conveys a sense of deep emotional distress and a feeling of being overwhelmed by a constant state of sickness or negativity in one’s life. The significance of this poem lies in its portrayal of profound emotional struggles and the complex relationship between an individual and their own suffering.