https://padlet.com/kconcepcion5/7mkvxezlhbvsdqhi Please paste your response from the "Final Decision" Section of your case study document. To add a post, click the "+" button at the bottom right. Make sure to add your name! en-us 2021-10-13 18:16:13 UTC 2026-01-15 05:02:32 UTC hello@padlet.com https://padlet.com/kconcepcion5/7mkvxezlhbvsdqhi/wish/1821332556 I think they shouldn't go through with this experimental procedure. There hasn't been enough applicable experiments done to prove this a safe procedure. I think Kim and Todd should also consult a variety of unbiased experts in the field. Ofcourse Dr Hidi will try and convince them to do it because he can make a lot of money if the procedure is successful so he is biased. I understand that other people may be trying to sabotage his research but the fact still remains that you need a well funded team of researchers in order to successfully develop treatment like this. I think the fact that the doctor is now conducting research out of an office building instead of the university is troubling. I wouldn't go into this treatment at this stage but definitely keep it in mind in the future, i just think it is to risky at this point. ]]> 2021-10-16 18:17:40 UTC https://padlet.com/kconcepcion5/7mkvxezlhbvsdqhi/wish/1821332556 https://padlet.com/kconcepcion5/7mkvxezlhbvsdqhi/wish/1821362601 I do not think that Kim and Todd should proceed with this treatment. It is a little worrisome that they are being pressured into making an immediate decision over the phone, and it might suggest that Henrietta and Dr. Hidi want Kim and Todd to agree to the trial before they have time to read the article criticizing the trial and credentials of Dr. Hidi. Secondly, there just hasn’t been enough research or experimentation with this treatment, and I don’t think that it is safe trying the treatment on 2 children after only ever testing it on mice, and a small group of healthy volunteers. The whole experiment doesn’t seem reliable enough or fully developed yet. Also, the whole ‘political’ excuse is weary, because reliable research is usually backed up by multiple scientists, and if other people are posing questions or concerns, it is probably not safe to risk young children for it. Overall, I would suggest Kim and Todd wait until the treatment is more developed and investigate more into Dr. Hidi and his research. ]]> 2021-10-16 19:09:14 UTC https://padlet.com/kconcepcion5/7mkvxezlhbvsdqhi/wish/1821362601 https://padlet.com/kconcepcion5/7mkvxezlhbvsdqhi/wish/1821439919 I think Kim and Todd should enroll their children in the treatment plan of Dr. Hidi. My reasoning behind this is the current state of the children, the positive results in animal testing, the negligable status of Dr. Hidi, and the scientific reasoning of the treatment. Mark and Johnny are nearing teenage years, already needing assistance and wheelchairs, and currently suffering from respiratory affecting colds, they are heavily impacted by DMD already. Therefore I think there is less time to accept these treatments and less risk of making their conditions worse. I also think the promising nature of the animal testing trials is worth exploring. I, personally, would investigate the conditions of the trials and negative cases in the trials but initially the data appears positive and hopeful. The concerns about Dr. Hidi are minimal. His desire to publish and be individually recognized is a non unique wish and the biggest issue behind his separation with the University is the lack of resources he can have on his own. Still, I think with outside observation (regular wellness visits and check ins with medical doctors) this could be remedied if necessary. Finally, I think the reasoning the trail follows is logical. The condition causes the slowed loss of muscle fibers, which the myoblasts will help to restore. Managing this loss will logically reduce the symptoms and severity of symptoms. ]]> 2021-10-16 21:28:16 UTC https://padlet.com/kconcepcion5/7mkvxezlhbvsdqhi/wish/1821439919 https://padlet.com/kconcepcion5/7mkvxezlhbvsdqhi/wish/1821479671 Kim and Todd should have the boys join the treatment group if they agree to it. Frankly they don’t have much of an option. This choice is a very forced one but crucial to make and I believe it would be a lot more beneficial to take the risk. The quality of life for these boys currently is not a high one. Living with muscle dystrophy makes it hard to accomplish simple tasks and is in a way demanding of their caretakers and other people in their lives (parents, teachers, etc). Technically they could continue living the way they do but how long will this work? For how long will their parents be able to care for them? As the parents age it will become harder for them to care for Johnny and Mark and eventually they might not be able to at all. It would be better if Johnny and Mark had a sort of remedy for their troublesome condition. This means Kim and Todd must end up trusting Dr.Hidi despite the controversy he has stirred. A reason to look past the critics is weighing in the information about their envy and jealousy towards Dr.Hidi. These critics are praying for Dr.Hidis downfall so their bad talk could simply be in efforts to prevent him from excelling in his work. Taking their bad talk of Dr.Hidi with a grain of salt is advised. Also to weigh in is, Dr Hidi’s reputation is at stake so surely he wishes his treatment works! Dr.Hidis offer is a rare opportunity. If the treatment works this would make such a big positive necessary change in the boy's life. It is THEIR life though so it must be up to them. If Johnny and Mark want to join the treatment, I would highly recommend Kim and Todd agree as well.]]> 2021-10-16 23:03:02 UTC https://padlet.com/kconcepcion5/7mkvxezlhbvsdqhi/wish/1821479671 https://padlet.com/kconcepcion5/7mkvxezlhbvsdqhi/wish/1821554184 I do not think Kim and Todd should proceed with this treatment option. There is a lot of uncertainty and a lot of unknowns surrounding this case. For example, Dr. Hidi tested his experiment on a small group of healthy individuals and notes that there are no SERIOUS side effects. This does not mean there aren’t any side effects. These side effects can have a greater impact on a child suffering from muscular dystrophy. If a child suffering from muscular dystrophy can die from a cold, these side effects can have severe consequences as well. It is also unknown whether or not the body can handle injected myoblasts. Again, there can be side effects if Mark and Johnny’s body can’t take in the myoblasts and it can possibly be fatal. It is also important to note that  Dr. Hidi is moving really quickly through his protocols making it seem like he is eager to advance with his research theories. It seems like he is desperate to have Kim and Todd’s children for this experiment. Additionally, Mark and Johnny would be the FIRST trial of the experiment. There are too many unknown factors and given the children’s young age, I think it is best to wait till Dr. Hidi makes further developments with his research and it is proven to work on people  suffering from muscular dystrophy. ]]> 2021-10-17 01:51:47 UTC https://padlet.com/kconcepcion5/7mkvxezlhbvsdqhi/wish/1821554184 https://padlet.com/kconcepcion5/7mkvxezlhbvsdqhi/wish/1821609542 I do not think that Kim and Todd should enroll Johnny and Mark into the experimental trial. This treatment is very new and Johnny and Mark are still quite young. While the myoblasts did not have any serious side-effects on the small group of healthy trial subjects, the possible side effects on the boys is unknown. Something that is not serious for the healthy subjects could be serious and even fatal for the boys. The research on mice was also based around nerve degeneration, something different than what the boys actually have. The fact that Dr. Hidi wants Kim and Todd to make a decision so quickly suggests that he does not want to give them time to consider all sides and get opinions from other doctors. We also do not know the full story of why Dr. Hidi is no longer doing this research at the university. Henrietta says that it is for “political reasons”, but what exactly that entails is known, I think that Kim and Todd should know what happened before they trust Dr. Hidi or the critics from the university. Johnny and Mark are young, although they are already struggling from the symptoms of DMD, they can still have years before the symptoms become too much or fatal. Even one more year could give enough time for this treatment to be more researched and tested so that Kim and Todd can understand the full risks and possible rewards of this treatment. ]]> 2021-10-17 03:30:19 UTC https://padlet.com/kconcepcion5/7mkvxezlhbvsdqhi/wish/1821609542 https://padlet.com/kconcepcion5/7mkvxezlhbvsdqhi/wish/1822353555 This is a very complicated situation because there are many factors to take into account. We need to recognize how new Dr. Hidi’s study is, and the risks that that could bring. Is that a risk that Kim and Todd really want to take? It is also possible that Dr. Hidi is maybe jumping the gun on this experimental process, it is clear that it is a very competitive market and right now he is ahead (but he’s going to want it to stay that way. It would be irresponsible to make this decision without more information about Dr. Hidi and the study which would take time, time that Kim and Todd don’t have. It is also important to acknowledge the risks of not treating Johnny and Mark. They will have a noticeably shorter lifespan because of DMD - but is the treatment even going to fix that? There is no guarantee and that is what’s scary. Kim and Todd need to do more research to look into this and fully inform themselves before making this decision. But that just might not be possible. It is also Johnny and Marks decision though. It is their bodies and we need to acknowledge that they might not want to do this. Kim and Todd shouldn’t do this study. If this experiment moves forward positively and has success stories, maybe then they can reconsider. But at this point in the experimentation process, it would be irresponsible to subject Johnny and Mark to this injection without more knowledge. If this study proves to be successful, they will have opportunities in the future to do this.]]> 2021-10-17 17:31:29 UTC https://padlet.com/kconcepcion5/7mkvxezlhbvsdqhi/wish/1822353555 https://padlet.com/kconcepcion5/7mkvxezlhbvsdqhi/wish/1822378218 Based​​ on the case, Kim and Todd should not immediately go through with the treatment. The decision from this perspective is not an immediate no, but instead a request for more time for the parents to look into all the factors and do more of their research so they can feel secure about their decision. So many aspects, including the rushed feeling that Kim has, the motive of Dr. Hidi, the lack of the parents' research, and the things the parents need to consider to decide to go through with this make Dr. Hidi's treatment very sketchy. Kim is very unsure of what to do. She appears to have many unanswered questions and many doubts regarding the safety of the treatment and Dr. Hidi as a person. To make their decision, the parents need to do more research from objective sources regarding Dr. Hidi as this treatment is for research and not for a medical practice. As stated before, when reading sources that express no personal opinions or feelings towards the professional, the parents can decide based on their feelings of that information and not on someone else's emotions. As for the treatment, it would be beneficial for Todd and Kim to research the condition, the treatment and even get second opinions from other professionals about their situation. Even addressing Dr. Hidi directly and asking questions such as "how long will it take for the healthy muscle cell to rebuild and strengthen the children's muscles?" or "does it take only one injection for this treatment to work, or will it be recurring? Why is that?" can help the parents clear up any confusion. Once they can do this, I believe that they will decide what works best for them. As for the motive of Dr. Hidi, I think that Henrietta's emphasis on the political side of this treatment is very strange, which is one of the reasons why they should wait longer to make a decision. She seemed to prioritize clearing Dr. Hidi's name in the medical field rather than assuring Kim that if this treatment is successful, her children's lives could be changed forever. From a perspective that is not the parents, it seems like Dr. Hidi will be using Kim and Todd's children to prove his opponents wrong if his treatments are successful. Lastly, many things about the children's livelihoods need to be considered before going through with the treatment. The children probably do not fully understand their condition or treatment, meaning that they shouldn't be 100% included in Todd and Kim's decision. However, it is still important to remember that whatever decision they make will affect the kids somehow. Mark and Johnny are two of the first DMD patients that this treatment will be tested on, and the parents nor Dr. Hidi know how this will affect their bodies or health. Even if the treatment has been tested on human patients, it has not been tested on people with DMD. Therefore, anything about the treatment of bodies with DMD is unknown. On the other hand, if they decided against going through with this treatment even after their research and expanded understanding of everything, nothing about the condition of the children will change. Overall, I think that Kim and Todd should not go through with the treatment right now. They need to do more research of their own based on their hesitant nature and uncertainty. If that means that Dr. Hidi needs to look for other test subjects or wait for the Davises to make a confident decision, then so be it. ]]> 2021-10-17 18:02:29 UTC https://padlet.com/kconcepcion5/7mkvxezlhbvsdqhi/wish/1822378218 https://padlet.com/kconcepcion5/7mkvxezlhbvsdqhi/wish/1823095458 Considering the majority of boys who have DMD do not live past their teens, I would go through with the treatment, as Johnny and Mark are already approaching their life expectancy.  The fact that Dr. Hidi is gaining this much publicity from his work must mean that his research can prove to be groundbreaking.  Also the fact that Henreitta is trusting Dr. Hidi with her own child means that he already has someone on board.  Additionally, the quality of life would greatly be improved for Mark and Johnny if they could have their DMD treated.  The pros outweigh the risk for cons in this scenario.]]> 2021-10-18 03:41:20 UTC https://padlet.com/kconcepcion5/7mkvxezlhbvsdqhi/wish/1823095458 https://padlet.com/kconcepcion5/7mkvxezlhbvsdqhi/wish/1823259938 Kim and Todd should get the treatment for both boys. It seems that they need to look into this more but they are pressed for time because the registration is tomorrow. Duchenne muscular dystrophy (DMD) weakens skeletal and heart muscles until they are lost. It also can have life threatening complications as the boys get older. Since the treatment went well for healthy individuals, it has a chance of going well for the boys as well. Also, while Dr. Hidi is not a medical doctor, he is doing everything correctly. Because of all there is to lose if the disease continues, as well as no problems surrounding the treatment, going through with it is the optimal choice. ]]> 2021-10-18 05:23:33 UTC https://padlet.com/kconcepcion5/7mkvxezlhbvsdqhi/wish/1823259938