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      <title>Ciera Okeefe  by </title>
      <link>https://padlet.com/Cieraokeefe/5wo4mjin7zx0sdy2</link>
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      <language>en-us</language>
      <pubDate>2025-09-21 21:23:23 UTC</pubDate>
      <lastBuildDate>2025-09-22 01:55:23 UTC</lastBuildDate>
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         <title></title>
         <author>Cieraokeefe</author>
         <link>https://padlet.com/Cieraokeefe/5wo4mjin7zx0sdy2/wish/3596374854</link>
         <description><![CDATA[<p>Sickle Cell Disease: The Power of Data. Michigan Department of  Health and Human Services (YouTube). https://youtu.be/FDRdyseo9vU</p><p><br/></p><p>Target Audience: Healthcare professionals, policymakers and community members.</p><p><br/></p><p>Evidence-Based: The content is evidence-based as it draws on surveillance data and research from the health dept and CDC. Research supports the importance of data in improving outcomes for people with SCD (Piel et al., 2017, New England Journal of Medicine).</p><p><br/></p><p>Application: Demonstrates how accurate data collection informs decision-making, funding, and targeted interventions. </p><p><br/></p><p>DEI: Recognizes that SCD disproportionately affects African American and Hispanic populations and how data can assist in reducing health disparities. </p>]]></description>
         <enclosure url="https://www.youtube.com/watch?v=FDRdyseo9vU" />
         <pubDate>2025-09-22 01:04:40 UTC</pubDate>
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         <title></title>
         <author>Cieraokeefe</author>
         <link>https://padlet.com/Cieraokeefe/5wo4mjin7zx0sdy2/wish/3596386760</link>
         <description><![CDATA[<p>Podcast episode from BloodStream Media featuring patient stories, health disparities and more.</p><p><br/></p><p>Target Audience: Patients, families, and healthcare providers</p><p><br/></p><p>Evidence-Based: While anecdotal, aligns with research on quality of life issues in SCD (Yawn et al., 2014, JAMA).</p><p><br/></p><p>Application: Highlights real-world struggles with pain management, improving empathy, and informing clinical practice.</p><p><br/></p><p>DEI: Elevates patient voices, particularly from marginalized communities.</p>]]></description>
         <enclosure url="https://youtu.be/Ez3t4_s5wZc?si=Ec1HKzsQEa5mpTVt" />
         <pubDate>2025-09-22 01:10:58 UTC</pubDate>
         <guid>https://padlet.com/Cieraokeefe/5wo4mjin7zx0sdy2/wish/3596386760</guid>
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         <title></title>
         <author>Cieraokeefe</author>
         <link>https://padlet.com/Cieraokeefe/5wo4mjin7zx0sdy2/wish/3596398953</link>
         <description><![CDATA[<p>A blog post and a poem from a mother describing her experience with her child with SCD. </p><p><br/></p><p>Target audience: Parents, Caregivers, Healthcare workers</p><p><br/></p><p>Evidence-Based: Though it is a personal experience, it reflects research findings on frequent hospitalizations in pediatric SCD (Kanter et al.,2020).</p><p><br/></p><p>Application: Builds community support and validates patient experiences.</p><p><br/></p><p>DEI: Highlights disparities in pediatric pain management. </p>]]></description>
         <enclosure url="https://sicklecellwarriors.com/a-world-without-sickle-cell/" />
         <pubDate>2025-09-22 01:16:45 UTC</pubDate>
         <guid>https://padlet.com/Cieraokeefe/5wo4mjin7zx0sdy2/wish/3596398953</guid>
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         <title></title>
         <author>Cieraokeefe</author>
         <link>https://padlet.com/Cieraokeefe/5wo4mjin7zx0sdy2/wish/3596416765</link>
         <description><![CDATA[<p>Tik Tok video raising awareness of SCD.</p><p><br/></p><p>Target Audience: Teens, Young adults, General Public</p><p><br/></p><p>Evidence-Based: While not scholarly, it aligns with awareness goals supported by the CDC.</p><p><br/></p><p>Application: Engages younger audiences and spreads awareness through viral content.</p><p><br/></p><p>DEI: Provides a platform for minority youth to engage with health messaging. </p>]]></description>
         <enclosure url="https://www.tiktok.com/@hersickledjourney/video/7382283566085901601?is_from_webapp=1&amp;sender_device=pc&amp;web_id=7552717267185550878" />
         <pubDate>2025-09-22 01:25:00 UTC</pubDate>
         <guid>https://padlet.com/Cieraokeefe/5wo4mjin7zx0sdy2/wish/3596416765</guid>
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         <title></title>
         <author>Cieraokeefe</author>
         <link>https://padlet.com/Cieraokeefe/5wo4mjin7zx0sdy2/wish/3596427301</link>
         <description><![CDATA[<p>CDC Sickle Cell Disease page.</p><p><br/></p><p>Target Audience: General public and healthcare providers.</p><p><br/></p><p>Evidence-Based: Maintained by CDC with peer-reviewed medical references.</p><p><br/></p><p>Application: Comprehensive accessible info on SCD diagnosis, treatment, and management. </p><p><br/></p><p>DEI: Addresses disparities in care and encourages equitable health access.</p>]]></description>
         <enclosure url="https://www.cdc.gov/sickle-cell/index.html" />
         <pubDate>2025-09-22 01:29:44 UTC</pubDate>
         <guid>https://padlet.com/Cieraokeefe/5wo4mjin7zx0sdy2/wish/3596427301</guid>
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         <title></title>
         <author>Cieraokeefe</author>
         <link>https://padlet.com/Cieraokeefe/5wo4mjin7zx0sdy2/wish/3596439656</link>
         <description><![CDATA[<p>NPR Health Article (2023) covering FDA approval of new gene therapy for sickle cell disease.</p><p><br/></p><p>Target Audience: Patients and families exploring treatment advances.</p><p><br/></p><p>Evidence-Based: Based on peer-reviewed clinical trials and FDA announcements.</p><p><br/></p><p>Application: Informs decision-making about future treatment options.</p><p><br/></p><p>DEI: Discusses access to gene therapy and equity in availability.</p>]]></description>
         <enclosure url="https://www.npr.org/sections/health-shots/2023/12/08/1217123089/fda-approves-first-gene-editing-treatments-for-human-illness" />
         <pubDate>2025-09-22 01:36:13 UTC</pubDate>
         <guid>https://padlet.com/Cieraokeefe/5wo4mjin7zx0sdy2/wish/3596439656</guid>
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         <title></title>
         <author>Cieraokeefe</author>
         <link>https://padlet.com/Cieraokeefe/5wo4mjin7zx0sdy2/wish/3596457793</link>
         <description><![CDATA[<p>Infographic from the NIH website titled "What Happens in Sickle Cell Disease?"</p><p><br/></p><p>Target Audience: Patients, students, and caregivers seeking simple explanations.</p><p><br/></p><p>Evidence-Based: NIH resources are peer-reviewed and accurate.</p><p><br/></p><p>Application: Visualizes how red blood cells change shape, improving understanding for non-medical audiences.</p><p><br/></p><p>DEI: Accessible design benefits diverse literacy levels.</p>]]></description>
         <enclosure url="https://www.nhlbi.nih.gov/health/sickle-cell-disease" />
         <pubDate>2025-09-22 01:47:44 UTC</pubDate>
         <guid>https://padlet.com/Cieraokeefe/5wo4mjin7zx0sdy2/wish/3596457793</guid>
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      <item>
         <title></title>
         <author>Cieraokeefe</author>
         <link>https://padlet.com/Cieraokeefe/5wo4mjin7zx0sdy2/wish/3596469872</link>
         <description><![CDATA[<p>IG Post from @sicklecell101 during SCD awareness month.</p><p><br/></p><p>Target Audience: Young adults and caregivers active on social media. </p><p><br/></p><p>Evidence-Based: Sickle Cell 101 is a nonprofit organization that shares content supported by CDC and NIH guidelines.</p><p><br/></p><p>Application: Raises awareness of the importance of newborn screening and preventative care.</p><p><br/></p><p>DEI: Uses culturally relevant language and imagery to reach minority communities most affected. </p>]]></description>
         <enclosure url="https://www.instagram.com/sicklecell101/" />
         <pubDate>2025-09-22 01:54:45 UTC</pubDate>
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