CSID Steering Group Meeting Feb 2022 by Marie Murphy https://padlet.com/mariekmurphy/CSIDSM1 Important notes en-us 2022-02-25 11:28:34 UTC 2022-03-15 11:51:46 UTC hello@padlet.com Add a note of anything we must remember after the meeting mariekmurphy https://padlet.com/mariekmurphy/CSIDSM1/wish/2066228136 Click on the pink circle in the bottom right corner and a textbox for your comment, idea, or question will appear.]]> 2022-02-25 11:39:06 UTC https://padlet.com/mariekmurphy/CSIDSM1/wish/2066228136 Easy read materials and advising on need for cervical screening mariekmurphy https://padlet.com/mariekmurphy/CSIDSM1/wish/2069278042 2022-02-28 11:11:39 UTC https://padlet.com/mariekmurphy/CSIDSM1/wish/2069278042 More formal education on what happens during cancer screening mariekmurphy https://padlet.com/mariekmurphy/CSIDSM1/wish/2069278619 e.g. mock tests]]> 2022-02-28 11:12:12 UTC https://padlet.com/mariekmurphy/CSIDSM1/wish/2069278619 How will the project report on differences in access between different groups of people with learning disabilities? mariekmurphy https://padlet.com/mariekmurphy/CSIDSM1/wish/2069280510 e.g. different needs for people with mild and with severe learning disabilities]]> 2022-02-28 11:14:00 UTC https://padlet.com/mariekmurphy/CSIDSM1/wish/2069280510 How do we ensure that we include people with profound and complex learning disabilities? mariekmurphy https://padlet.com/mariekmurphy/CSIDSM1/wish/2069281858 2022-02-28 11:15:19 UTC https://padlet.com/mariekmurphy/CSIDSM1/wish/2069281858 How can we make the project even better? mariekmurphy https://padlet.com/mariekmurphy/CSIDSM1/wish/2069283721 2022-02-28 11:16:42 UTC https://padlet.com/mariekmurphy/CSIDSM1/wish/2069283721 How can we support people with learning disabilities to access breast screening and reduce anxiety? mariekmurphy https://padlet.com/mariekmurphy/CSIDSM1/wish/2069285353 2022-02-28 11:18:24 UTC https://padlet.com/mariekmurphy/CSIDSM1/wish/2069285353 How do we empower NHS medical staff to support/arrange support that patients with learning disabilities need using the NHS? mariekmurphy https://padlet.com/mariekmurphy/CSIDSM1/wish/2069286653 e.g. arranging double appointments]]> 2022-02-28 11:19:34 UTC https://padlet.com/mariekmurphy/CSIDSM1/wish/2069286653 Are we able to involve participants who lack capacity in this research? mariekmurphy https://padlet.com/mariekmurphy/CSIDSM1/wish/2069287401 2022-02-28 11:20:18 UTC https://padlet.com/mariekmurphy/CSIDSM1/wish/2069287401 How to ensure access to screening for people with learning disabilities given the lack of data? mariekmurphy https://padlet.com/mariekmurphy/CSIDSM1/wish/2069288604 2022-02-28 11:21:27 UTC https://padlet.com/mariekmurphy/CSIDSM1/wish/2069288604 How to heighten awareness in care sector about need to check for cancer/screening? mariekmurphy https://padlet.com/mariekmurphy/CSIDSM1/wish/2069289276 2022-02-28 11:22:03 UTC https://padlet.com/mariekmurphy/CSIDSM1/wish/2069289276 How do we embed informed decision making about screening into routine practice? mariekmurphy https://padlet.com/mariekmurphy/CSIDSM1/wish/2069290644 2022-02-28 11:23:08 UTC https://padlet.com/mariekmurphy/CSIDSM1/wish/2069290644 How to make easy read information more accessible? mariekmurphy https://padlet.com/mariekmurphy/CSIDSM1/wish/2069297853 2022-02-28 11:29:14 UTC https://padlet.com/mariekmurphy/CSIDSM1/wish/2069297853 How do we prepare health services (incl screening programmes, PC) for implementing the findings of this study? mariekmurphy https://padlet.com/mariekmurphy/CSIDSM1/wish/2069300200 2022-02-28 11:30:56 UTC https://padlet.com/mariekmurphy/CSIDSM1/wish/2069300200 How do we bring together intersectionality? mariekmurphy https://padlet.com/mariekmurphy/CSIDSM1/wish/2069301048 ethnicity and socioeconomic inequalities, for example]]> 2022-02-28 11:31:45 UTC https://padlet.com/mariekmurphy/CSIDSM1/wish/2069301048 mariekmurphy https://padlet.com/mariekmurphy/CSIDSM1/wish/2069318651 In the world of social care personal and intimate care policies and procedures would be central as they guide staff on what is acceptable or otherwise and necessary safeguards....

]]> 2022-02-28 11:48:48 UTC https://padlet.com/mariekmurphy/CSIDSM1/wish/2069318651 Steering group members with medical background mariekmurphy https://padlet.com/mariekmurphy/CSIDSM1/wish/2069321839 to input on how to implement change]]> 2022-02-28 11:52:02 UTC https://padlet.com/mariekmurphy/CSIDSM1/wish/2069321839 Need for clinical record keeping of learning disabilities mariekmurphy https://padlet.com/mariekmurphy/CSIDSM1/wish/2069323958 structural barrier to improving access
need to know who needs support we can make available
need to be able to idenify who needs to be sent easy read information]]> 2022-02-28 11:54:06 UTC https://padlet.com/mariekmurphy/CSIDSM1/wish/2069323958 Screening programmes work in different ways mariekmurphy https://padlet.com/mariekmurphy/CSIDSM1/wish/2069339878 need to find ways to slot in support measures for each programme individually
e.g. 12 o'clock appointment for breast screening]]> 2022-02-28 12:09:19 UTC https://padlet.com/mariekmurphy/CSIDSM1/wish/2069339878 Learning disability nurses mariekmurphy https://padlet.com/mariekmurphy/CSIDSM1/wish/2069350135 able to provide effective support]]> 2022-02-28 12:18:43 UTC https://padlet.com/mariekmurphy/CSIDSM1/wish/2069350135 sensory stories for people with profound learning disabilities mariekmurphy https://padlet.com/mariekmurphy/CSIDSM1/wish/2069354843 approach to prepare people for difficuld doctors/dentist appointments
possibility to develop for cancer screening]]> 2022-02-28 12:23:01 UTC https://padlet.com/mariekmurphy/CSIDSM1/wish/2069354843 reaching people through service providers mariekmurphy https://padlet.com/mariekmurphy/CSIDSM1/wish/2069359391 to provide easy read information]]> 2022-02-28 12:26:59 UTC https://padlet.com/mariekmurphy/CSIDSM1/wish/2069359391 Need for increased awareness of cancer screening mariekmurphy https://padlet.com/mariekmurphy/CSIDSM1/wish/2069363264 among people with LD and families
using videos, campaigns, etc.
needed currently, because people required to ask for support]]> 2022-02-28 12:30:15 UTC https://padlet.com/mariekmurphy/CSIDSM1/wish/2069363264 Practical adjustments of screening procedures need to be looked at mariekmurphy https://padlet.com/mariekmurphy/CSIDSM1/wish/2069365106 need for sedation/ general anaesthetic increases risk of screening]]> 2022-02-28 12:31:53 UTC https://padlet.com/mariekmurphy/CSIDSM1/wish/2069365106 awareness of screening staff to give opportunity to people with learning disabilities/their carers to make screening decision mariekmurphy https://padlet.com/mariekmurphy/CSIDSM1/wish/2069367956 risk factors change over course of life]]> 2022-02-28 12:34:23 UTC https://padlet.com/mariekmurphy/CSIDSM1/wish/2069367956 Opportunities to speak to people to test ideas mariekmurphy https://padlet.com/mariekmurphy/CSIDSM1/wish/2069369986 2022-02-28 12:36:05 UTC https://padlet.com/mariekmurphy/CSIDSM1/wish/2069369986 Identifying people with learning disablities mariekmurphy https://padlet.com/mariekmurphy/CSIDSM1/wish/2069374550 with key stakeholders incl primary care
working on strategy with legal services
adding requirement to annual health checks to report on learning disabilities]]> 2022-02-28 12:39:35 UTC https://padlet.com/mariekmurphy/CSIDSM1/wish/2069374550