https://padlet.com/PSR2Pegasus/ontheotherside From NICU to Adjusting to this new life en-us 2021-09-15 05:59:52 UTC 2025-09-26 00:03:47 UTC hello@padlet.com https://padlet.net/icons/png/1f49a.png PSR2Pegasus https://padlet.com/PSR2Pegasus/ontheotherside/wish/1769664237 Everything has changed. The perfect picture you envisioned of your labor & delivery has been shattered. Replaced instead by images of your newborn covered in wires, tubes & the incessant beeping of a million machines. Your excitement and joy has been replaced by terror, confusion & more questions than answers. What do you do now? Where do you go? Who can you turn to. 

You have never felt more othered or alone than in this moment.]]> 2021-09-27 02:03:53 UTC https://padlet.com/PSR2Pegasus/ontheotherside/wish/1769664237 PSR2Pegasus https://padlet.com/PSR2Pegasus/ontheotherside/wish/1769801036 If you haven't heard of NAPA Center then I highly recommend that you check them out. They offer 3 week intensive therapies,
State-of-the-art therapies such as Dynamic Movement Intervention, HBOT, Neurosuit, Spidercage and many more.]]> 2021-09-27 03:01:13 UTC https://padlet.com/PSR2Pegasus/ontheotherside/wish/1769801036 PSR2Pegasus https://padlet.com/PSR2Pegasus/ontheotherside/wish/1769819623 For families new to this life, an amazing resource to look into is HOPE FOR HIE. They offer support, information & resources to help you navigate through.]]> 2021-09-27 03:09:06 UTC https://padlet.com/PSR2Pegasus/ontheotherside/wish/1769819623 PSR2Pegasus https://padlet.com/PSR2Pegasus/ontheotherside/wish/1907729255 "At some point you must learn to let go of what you thought should happen and live in what is happening". - Heather Hepler



]]> 2021-11-23 06:47:35 UTC https://padlet.com/PSR2Pegasus/ontheotherside/wish/1907729255 PSR2Pegasus https://padlet.com/PSR2Pegasus/ontheotherside/wish/2171868268 We were honored to be asked by Amber Rojas of Diversity & Down The Podcast to shared our story & advice for families that have been newly diagnosed & anyone interested in learning more about HIE and Cerebral Palsy. We had such a great time & it really felt like talking to an old friend. We laughed, cried and got real.

Hope you enjoy!]]> 2022-05-05 18:04:30 UTC https://padlet.com/PSR2Pegasus/ontheotherside/wish/2171868268 PSR2Pegasus https://padlet.com/PSR2Pegasus/ontheotherside/wish/2316416473 Currently serving as the Adjunct Assistant Professor of Clinical Occupational Therapy at USC, Joan Surfus is known as the feeding expert of the South Bay. Working with many families over the years in OT and Feeding at Pediatric Therapy Network she has helped infants to elementary aged kids.]]> 2022-09-27 22:32:12 UTC https://padlet.com/PSR2Pegasus/ontheotherside/wish/2316416473 PSR2Pegasus https://padlet.com/PSR2Pegasus/ontheotherside/wish/2350177797 For many they discover intensive therapies too late to be able to get into any. Wait lists are rampant and time is of the essense for kiddos.
Blogger Our Life After NICU was kind enough to compile this list for families searching for better therapies.]]> 2022-10-21 05:02:21 UTC https://padlet.com/PSR2Pegasus/ontheotherside/wish/2350177797 PSR2Pegasus https://padlet.com/PSR2Pegasus/ontheotherside/wish/2350191102 You can apply to this grant to cover costs for intensive therapies.]]> 2022-10-21 05:17:48 UTC https://padlet.com/PSR2Pegasus/ontheotherside/wish/2350191102 PSR2Pegasus https://padlet.com/PSR2Pegasus/ontheotherside/wish/2350193323 This grant will cover equipment, toys or My Gym classes up to $500.

]]> 2022-10-21 05:19:49 UTC https://padlet.com/PSR2Pegasus/ontheotherside/wish/2350193323 PSR2Pegasus https://padlet.com/PSR2Pegasus/ontheotherside/wish/2350195708 A few other grants you can apply for the help with various therapies, equipment and even service dogs!]]> 2022-10-21 05:22:36 UTC https://padlet.com/PSR2Pegasus/ontheotherside/wish/2350195708 PSR2Pegasus https://padlet.com/PSR2Pegasus/ontheotherside/wish/2462500200 A wonderful series that helps to explain various diagnoses and conditions to school age children. Each book is dedicated to children with the disability featured in the book.]]> 2023-01-31 05:48:57 UTC https://padlet.com/PSR2Pegasus/ontheotherside/wish/2462500200 PSR2Pegasus https://padlet.com/PSR2Pegasus/ontheotherside/wish/2642885526 Providing Grants for equipment & therapies.

https://varietysocal.org/how-we-help/grants/]]> 2023-07-11 18:55:58 UTC https://padlet.com/PSR2Pegasus/ontheotherside/wish/2642885526 PSR2Pegasus https://padlet.com/PSR2Pegasus/ontheotherside/wish/2642886360 Providing bikes for disabled teens and kids.]]> 2023-07-11 18:59:02 UTC https://padlet.com/PSR2Pegasus/ontheotherside/wish/2642886360 https://padlet.com/PSR2Pegasus/ontheotherside/wish/2872115184 https://form.jotform.com/231983741810054?fbclid=PAAaanVubgBvqeiJw99DrayMX82Hu8LjI_-hxAWs1WHYvaMH90kUYhKoOBn_I]]> 2024-02-03 16:50:14 UTC https://padlet.com/PSR2Pegasus/ontheotherside/wish/2872115184 PSR2Pegasus https://padlet.com/PSR2Pegasus/ontheotherside/wish/2915047161 https://www.kidswaivers.org/ca/]]> 2024-03-12 05:28:05 UTC https://padlet.com/PSR2Pegasus/ontheotherside/wish/2915047161