Data protection and research ethics - what needs to change or be clarified in our materials? by Alison Fox https://padlet.com/alison_fox1/46eesl9feja652z8 Please write your thoughts by clicking on the black cross on the blue circle at the bottom right of the screen to open a post. You can include weblinks in your post. You can move your post around by dragging it. You could choose the same colour as the starter posts by choosing an option indicated when you click on the three dots on the top right of your post. You can also connect it with other posts by clicking on the three dots in the top right corner and choosing another post. You can show support for another post by clicking the heart icon. You can edit or delete your post, by clicking on the same top right three dots. en-us 2023-01-22 16:03:20 UTC 2023-06-06 15:36:42 UTC hello@padlet.com STARTER POST: The current data protection advice on the HREC website is hosted here...what do you think should change and how? alison_fox1 https://padlet.com/alison_fox1/46eesl9feja652z8/wish/2452390047 2023-01-22 16:10:07 UTC https://padlet.com/alison_fox1/46eesl9feja652z8/wish/2452390047 STARTER POST: Key advice on the Data Protection Team about Information Security is hosted at (you will need to sign in to access this link)...do we need to change how we refer to any aspect of this and, if so, where on our site? alison_fox1 https://padlet.com/alison_fox1/46eesl9feja652z8/wish/2452391509 2023-01-22 16:12:39 UTC https://padlet.com/alison_fox1/46eesl9feja652z8/wish/2452391509 STARTER POST: The Data Protection Team also has advice about Information and Records Management here (you will need to sign in to access this)...should we point to this more explicitly and, if so, where/how? alison_fox1 https://padlet.com/alison_fox1/46eesl9feja652z8/wish/2452392581 2023-01-22 16:14:23 UTC https://padlet.com/alison_fox1/46eesl9feja652z8/wish/2452392581 STARTER POST: The Data Protection Team have a link to useful advice and resources at (you will need to sign in to access this)...should we point to this more than we do? alison_fox1 https://padlet.com/alison_fox1/46eesl9feja652z8/wish/2452393719 2023-01-22 16:16:22 UTC https://padlet.com/alison_fox1/46eesl9feja652z8/wish/2452393719 STARTER POST: Please identify questions about data protection we should a) agree a consistent response to and b) communicate on our website/resources eg under our FAQs? alison_fox1 https://padlet.com/alison_fox1/46eesl9feja652z8/wish/2452395971 2023-01-22 16:20:23 UTC https://padlet.com/alison_fox1/46eesl9feja652z8/wish/2452395971 STARTER POST: The Library Research Team also have advice on Data Protection...should we point to this more explicitly and, if so, where/how? alison_fox1 https://padlet.com/alison_fox1/46eesl9feja652z8/wish/2452397645 2023-01-22 16:22:58 UTC https://padlet.com/alison_fox1/46eesl9feja652z8/wish/2452397645 Where should advice on data sharing (as opposed to data transferring) across institutions fit on the website? alison_fox1 https://padlet.com/alison_fox1/46eesl9feja652z8/wish/2488565997 Need to start thinking about this at the very beginning/grant proposal stage. ]]> 2023-02-20 14:37:00 UTC https://padlet.com/alison_fox1/46eesl9feja652z8/wish/2488565997 Should we be giving advice about anonymisation, pseudonymisation and deidentification and, if so, where? alison_fox1 https://padlet.com/alison_fox1/46eesl9feja652z8/wish/2488572064 2023-02-20 14:41:28 UTC https://padlet.com/alison_fox1/46eesl9feja652z8/wish/2488572064 It seems we need to check whether this document is up to date/how often updated... alison_fox1 https://padlet.com/alison_fox1/46eesl9feja652z8/wish/2488575159 Age of children re: consent refers to under/over age 13. The European agreed age is 18 with negotiation between 16 and 18 as to how consent (as well as assent) is best gained according to the setting. ]]> 2023-02-20 14:43:12 UTC https://padlet.com/alison_fox1/46eesl9feja652z8/wish/2488575159 https://padlet.com/alison_fox1/46eesl9feja652z8/wish/2491303654 Suggest data sharing with other organisations should be covered in the DP 'Research guidance' website, so that everything is in one document and we do not duplicate.]]> 2023-02-22 15:16:49 UTC https://padlet.com/alison_fox1/46eesl9feja652z8/wish/2491303654 https://padlet.com/alison_fox1/46eesl9feja652z8/wish/2491307284 Yes – again, in the DP 'Research guidance' document, to avoid multiple sources.]]> 2023-02-22 15:19:27 UTC https://padlet.com/alison_fox1/46eesl9feja652z8/wish/2491307284 https://padlet.com/alison_fox1/46eesl9feja652z8/wish/2491317202 One possibility is a pop-up index of things that people need to consider - a way of navigating the site for people who've never done an application before. It could start with the two basic forms (Checklist and full Application Form), which I always struggle to find, and then have clickable links to Data Protection, Research Data Management, etc.

It's arguable that RDM should be under a separate heading from DP on the front page, since more applicants seem to master DP than RDM.]]> 2023-02-22 15:25:05 UTC https://padlet.com/alison_fox1/46eesl9feja652z8/wish/2491317202 FAQs should contain content rather than simply links to other documents. (which also have links to links..) https://padlet.com/alison_fox1/46eesl9feja652z8/wish/2492360707 2023-02-23 10:23:13 UTC https://padlet.com/alison_fox1/46eesl9feja652z8/wish/2492360707 is there an FAQ about the withdrawal of participants' data and guidance to help the applicant think about the effect of withdrawal on their data processing/management if withdrawal happens at certain stages of data collection? https://padlet.com/alison_fox1/46eesl9feja652z8/wish/2492364947 2023-02-23 10:27:45 UTC https://padlet.com/alison_fox1/46eesl9feja652z8/wish/2492364947 Ethics and data protection from Library Research Support payamrezaie https://padlet.com/alison_fox1/46eesl9feja652z8/wish/2492376961 Ethics and data protection | Library Research Support (open.ac.uk)]]> 2023-02-23 10:41:36 UTC https://padlet.com/alison_fox1/46eesl9feja652z8/wish/2492376961 Application form https://padlet.com/alison_fox1/46eesl9feja652z8/wish/2492377501 Needs to have links that match those on the HREC website]]> 2023-02-23 10:42:10 UTC https://padlet.com/alison_fox1/46eesl9feja652z8/wish/2492377501