Autism Understood Website Feedback & Suggestions by Bobbie Gilham https://padlet.com/bobbie23/3zxnuvu0zh2loyt1 en-us 2023-08-19 14:46:29 UTC 2023-08-19 17:05:13 UTC hello@padlet.com bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666344099  Thank you so so so much for creating this awesome website. I have shared it with lots and lots of people already  Well done]]> 2023-08-19 10:09:21 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666344099 Sensory bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666344295 Thank you for these definitions and the way they are presented. It's very informative and helpful to see the breakdowns.


]]> 2023-08-19 10:10:39 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666344295 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666344391 I know this site is for young people, and I will share it with my son, but I wanted to say as a 40+ woman recently diagnosed autistic, it's a brilliant resource and so much clear information that will help me understand myself and explain things to people about how I feel, thank you

]]> 2023-08-19 10:11:13 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666344391 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666344777 I’m absolutely loving the new website, it’s incredibly helpful!

]]> 2023-08-19 10:12:03 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666344777 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666344847 Thanks so much for creating this website and for being the most amazing advocate for children and young people.

]]> 2023-08-19 10:12:43 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666344847 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666345087 Hi, this website looks great and easy to navigate.]]> 2023-08-19 10:14:18 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666345087 Additional languages bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666345212 I would however like to know if you plan to translate any of the content into other languages. I have recently worked with Autistic people and their families from South Asian communities and they all commented about the lack of information in languages other than English. It would be a game changer if you do this.]]> 2023-08-19 10:14:52 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666345212 Eating disorders bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666345416  Our daughter was recently diagnosed with autism. She has also suffered from anorexia since shd was 17. I understand that research has discovered an overlap between autism and eating disorders. Maybe this merits a section.]]> 2023-08-19 10:16:31 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666345416 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666345563 Such a fab resource. Many thanks for creating this. I know it is really going to help some of the youngsters I work with to understand and to accept themselves more positively. Many thanks]]> 2023-08-19 10:17:37 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666345563 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666345816 I love this site - thank you so much. Honestly well done. I'll be recommending this x x

]]> 2023-08-19 10:19:34 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666345816 Additional languages bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666346068 'm interested in a Dutch translation of your content, if you plan on publishing such a translation. I'm a native Dutch speaker, and I volunteer at the Dutch national helpline for children. We can only point children to your website if the information is available in Dutch.]]> 2023-08-19 10:21:36 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666346068 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666407945 what a great idea to launch this fab website!!
It's colourful and easy to navigate with lots of great info.

]]> 2023-08-19 14:37:16 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666407945 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666408387 I just wanted to say how great autism understood is and how helpful I'm sure it is/will be to Autistic young people in particular. I wish this was around when my son was diagnosed as I searched through a minefield of negative misinformation looking for anything that said it's okay to be autistic and spoke directly to autistic people in a way that did not constantly state that it was a disorder and all aspects of CYP's future lives would be disastrous. ]]> 2023-08-19 14:38:41 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666408387 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666408424  At last, something that promotes understanding and positivity about being awesomely autistic. Absolutely Fantastic resource!

]]> 2023-08-19 14:38:50 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666408424 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666408749 Hi love the new website. I work for Family Voice Surrey - a parent carer forum. I run an ADHD/Autism Group. Would someone like to join one of online meetings to talk about Autism Understood.]]> 2023-08-19 14:40:07 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666408749 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666409059 I had to comment on this, it’s fabulous. I have shared it with my family and friends to help them
Understand my daughter who is currently in burnout. Thank you so much this is actually brilliant 

]]> 2023-08-19 14:40:56 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666409059 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666409410 Just wanted to say thank you -a brilliant site xx]]> 2023-08-19 14:42:33 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666409410 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666409523 Thankyou for this resource, once again you create just exactly what is needed, so excited to be sharing this far and wide.


]]> 2023-08-19 14:43:06 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666409523 Epilepsy bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666411987 Could the website have a section on epilepsy in co-occurring conditions because the NHS and websites about both epilepsy and autism say that it is more common in autistic people and i have epilepsy and i think information on it would be a good idea

]]> 2023-08-19 14:51:33 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666411987 Printouts bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666412284  I think it would be great to have some printable handouts on the website!]]> 2023-08-19 14:52:39 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666412284 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666412801 I really love your website design and comic-style approach, I think my son will really love it.]]> 2023-08-19 14:54:34 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666412801 Book recommendations bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666413014 Hi, Fab website such a great resource! I would love to see more ASC recommendations for Young Adult books, social media accounts, TV shows etc - and maybe some reviews from other Autistic young people too? That would be really cool. Thank you so much for all your hard work on this website!

]]> 2023-08-19 14:55:28 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666413014 Additional Languages bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666413196 Is this available in Thai?]]> 2023-08-19 14:56:11 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666413196 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666413350
Big thank you for this website! I found this so helpful for me to learn more and better understand autism enabling me to hopefully be supportive in my work as a counsellor with students in a secondary school (yr 10, 11 and Sixth Form).
I like the way all the information was set out and the cartoons and video contributions kept me engaged. I will signpost to your website to anyone I think might find it useful!.

]]> 2023-08-19 14:56:51 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666413350 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666413555 I'm from Italy and I'm a mother of a 3y autistic child. Just a big THANK YOU. Thanks for your effort. Disclosure on this topic is a great prop for newbies like me. We need to be less afraid and have more informazioni. Greetings from Italy.

]]> 2023-08-19 14:57:31 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666413555 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666413715 Hi there, love the website! ]]> 2023-08-19 14:58:08 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666413715 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666413933 I shared the website on Mastodon and it’s getting a great response - some late-dx adults have been commenting on how useful they are finding it! People have also been talking about how much they like it in an unschooling group I’m in]]> 2023-08-19 14:58:52 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666413933 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666414302 I found this page lovely and validating. As an autistic and MH professional will be definitely recommending it to people.


]]> 2023-08-19 14:59:35 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666414302 Booklet bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666414612 Wow what can I say you are all amazing for making this site. It includes a lot of information and tips. I think maybe it would help if there was a simple booklet also with all this information but simplified with illustrations. I’m a mum of 5 autistic/ADHD children and myself and my husband also have traits but not diagnosed yet.
I have shared the website with lots of other parents.
X


]]> 2023-08-19 15:00:37 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666414612 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666414759  Amazing website thankyou my son is only 6 we are on his journey of helping him understand the world he is living in he is the most amazing funniest child, you website will hopefully help some family understand him a little better. So thankyou am amazing jib well done wishing you all yhe best with the website


]]> 2023-08-19 15:01:12 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666414759 Printout bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666415014 is it possible to get a printed copy of Autism Understood for my Autistic Sons Library?]]> 2023-08-19 15:01:57 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666415014 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666415214 your new site is very good. well done. it not only accommodates what we've been needing for so long for a younger generation, however, it also meets my needs too as an older 40 something autistic person from what i've read so far. it's going to be useful for all ages. 


]]> 2023-08-19 15:02:41 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666415214 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666415618  I've found lots of the info and explanations really helpful, and will certainly direct students at work (I work in a secondary school) your way.]]> 2023-08-19 15:04:03 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666415618 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666415771 Hello, your website is fantastic. I am planning on telling my 9 yr old daughter about her autism over the summer holidays]]> 2023-08-19 15:04:40 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666415771 Learning Disability bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666416633 Talking about having a LD and autism and having some content that is a bit less complicated to understand would be great for young autistic and LD people. Young people with a diagnosis of both LD and autism often don’t find the information they need on sites that are targeted towards learning disabled people because they’re autistic, then find they’re not represented on sites targeted towards autistic people because they’re learning disabled.

]]> 2023-08-19 15:07:47 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666416633 OCD bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666416857 I love this website! It is an encyclopaedia of autistic lived experience knowledge for our younger neurokin. Thanks for creating this website. I am autistic too and love this site. I just wondered whether OCD could be included under the co-occurring conditions section? I would be happy to write about OCD as I also experience it.]]> 2023-08-19 15:08:33 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666416857 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666417259 Hi, I'm a parent to a burnt out autistic daughter, aged 13. I love your website! Thank you so much for all the positive framing of autism and great advice too.

]]> 2023-08-19 15:10:01 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666417259 More on education bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666417486 Is there any plan to add a section about home education or other alternative ways to navigate education? My daughter is unable to attend school. She's academically really capable, but the school environment is just not set up in a way she can handle]]> 2023-08-19 15:10:51 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666417486 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666417719 This is a brilliant resource for autistic young people and very much needed. All the essentials of the neurodiversity model and very accessible. Thank you for putting this website together, I'll be recommending it.]]> 2023-08-19 15:11:18 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666417719 Dyslexia bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666417843 What about including dyslexia as a co-occuring condition.


]]> 2023-08-19 15:11:50 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666417843 Additional languages bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666418069 Hi, I'm a speech and language therapist conducting autism assessments in Manchester - We are struggling to find information about autism that we can share with our families for whom English is an additional language - are any of your resources (or your webpages) available in alternative languages please?

]]> 2023-08-19 15:12:43 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666418069 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666418389 Thank you so much for explaining a lot of the complexities of what I am trying to understand. Being a self-diagnosed autist, of 52yrs of age, please be aware that this content is still extremely useful for people, like me, who have slipped throught the net and are trying to figure things out for themselves!!
I have found this super helpful and would be more than interested if there was more material geared towards others that have fallen from the radar. I, also, hope that this will help my partner to understand me a little better and understand that the acceptance/adapting shouldn`t just come from me to "fit in". Once again, please understand the extent to which you have assisted me on my journey of self-discovery, and my gratitude for this.....after which, I actually now realise, isn`t just about me adapting myself to the world around me , but others needing to do the same too!!!!! :)

]]> 2023-08-19 15:13:58 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666418389 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666418531 Thank you for this amazing website, my only wish is that we’d had access to it a year ago to when my Grandson was really struggling to navigate, understand and make any sense of his Autism identification. Thank you , wishing you every success and keep up your amazing work.

]]> 2023-08-19 15:14:31 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666418531 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666418768 Hi, I love your website.! Having a 3 children in my family with ASD and working in school through well being]]> 2023-08-19 15:15:20 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666418768 Other formats bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666418946 Hi, this is such a great resource is it available in any other formats other than online. i.e in a word or PDF document?

]]> 2023-08-19 15:15:57 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666418946 Dyslexia friendly options bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666421276 I have heard great things about your website but I would like to feedback that an accessible way to make more dyslexia friendly could be to have an option to change the background / font colour when on the home page.

]]> 2023-08-19 15:24:32 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666421276 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666444586 It's very much helpful and colourful.]]> 2023-08-19 16:55:18 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666444586 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666444724 Amazing! ]]> 2023-08-19 16:55:53 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666444724 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666444898 Brilliant. It is one of the only helpful ones I have used.]]> 2023-08-19 16:56:19 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666444898 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666444999 Love the concept, clear sections and use of colours. Content looks amazing to dip in and out of. ]]> 2023-08-19 16:56:47 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666444999 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666445105 Fabulous, really accessible and full of resources for me to support my students and own children.]]> 2023-08-19 16:57:17 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666445105 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666445187 Looking brilliant, so easy to navigate, visually really accessible and fun whilst sharing some really pertinent information. Great to have so many voices too]]> 2023-08-19 16:57:42 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666445187 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666445299 Absolutely awesome!]]> 2023-08-19 16:58:14 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666445299 Keep promoting it! bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666445529 This needs to be promoted in local authorities, to schools, camhs, and GP surgeries.]]> 2023-08-19 16:59:04 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666445529 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666445649 Fantastic - content, accessibility & appearance all great!]]> 2023-08-19 16:59:40 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666445649 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666445734 Fantastic! I love that it is dark themed and the graphics chosen work really well. There is so much information, I am looking forward to exploring it and sharing with my YP. ]]> 2023-08-19 17:00:08 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666445734 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666445875 Great - my daughter aged 11 loved the section on burnout as she’s going through this at the moment. The website made her feel less alone.]]> 2023-08-19 17:00:49 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666445875 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666445967 Great, clear, modern, up-to-date and informative]]> 2023-08-19 17:01:16 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666445967 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666446113 The website is an amazing resource for our young people. Thank you for taking the time to improve the lives of our young people. It is very much appreciated. ]]> 2023-08-19 17:01:59 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666446113 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666446205 Fantastic. Such a wonderful (and required) resource... and not just for children and young people.]]> 2023-08-19 17:02:21 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666446205 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666446276 Fantastic; really comprehensive, attractive to look at and easy to use.]]> 2023-08-19 17:02:49 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666446276 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666446391 I love it! It isnt like anything I have seen before! I love the comic strips and the different sections and headings.]]> 2023-08-19 17:03:17 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666446391 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666446451 So grateful for this website!]]> 2023-08-19 17:03:35 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666446451 bobbie23 https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666446749 What an amazing resource! Really well laid out, with thought to sensory differences (my kid liked that is was dark!) So much info. Easily searchable. Top work, thank you to all involved.]]> 2023-08-19 17:05:03 UTC https://padlet.com/bobbie23/3zxnuvu0zh2loyt1/wish/2666446749