1983 -  Asmodeus was born 

1984 -  unfortunately Lilith’s mother wasn’t aware of the connection between passive smoke exposure and asthma. So asmodeus was diagnosed with asthma , breathing secondhand smoke at home.

1985 -  Asmodeus was prescribed to have daily medications that he had to take throughout the day and when his symptoms flare up, an inhaler had to be used repeatedly throughout the next 48 hours.

1986 - Adam was diagnosed with diabetes type 2

Because of the serious family trauma Lilith was frustrated and over stressed and couldn’t attend the needs of Adam or Asmodeus . 

1988 -  after a series of fights and miscommunications Adam and Lilith were divorced 

And the ownership of the young boy was taken by Lilith

 

1990 -  Adam married Eve , a 30 year old autistic woman who owned an apple farm.

 

1992 -  they gave birth to twins ; Kane and Abel

1993 - Lilth was unable to get over her marraige & was diagnosed with severe depression. She was given adequate medication & was recommended to weekly counselling. Because of Lilth's condition Asmodeus was given to his grandmother to raise.

1994 - Asmodeus's asthema symptoms decreased considerably since Lilth' s mother has stopped smoking.

1995 - At the age of 3 Adam's son Kane was diagnosed with autism & was recommended to adequate therapy.

1996 - Influenced by both mother & brother, Abel also developed mild introvert habits. He was recommended to have more social interactivity.

1997 - There was no improvement on Adam's diabetes symptoms. He was prescribed to have insulin injection. 

1999 - Kane's autism symptoms decreased with continuous therapy, but Eve's condition worsened. Because of constant pressure from her children's stituation she developed severe communication problems. Her medication dosage was increased and was advised against having anymore children.

2000 - Lilth's mother developed a severe cough. After series of tests she was diagnosed with late stage lung cancer & was recommended to do radiotherapy. 

2001 - Lilth's mother was unable to continue the treatment due to financial difficulties. She died on 17 April 2001.

  

But this time Manju’s condition was severe so he had to admit in the hospital for 1 month.

But as Manju is still small he had to looked after by someone at the hospital, but that would lead to Kamal to leave his job so Susi decides to put Ravindu in a day care and she looked after Manju in the hospital while Kamal resigned from his job in Saudi and he found a temporary job in a press as a graphic designer. But this job was in comparison to his foreign job was less paid one, so they couldn’t afford the cost of living in their current apartment, so they decided to rent a small house in suburbs. This small house was very far from the city so they had to use public transportation every day. Kamal would put Ravindu in the school in the morning and accompany Susi to the hospital to tend to Manju. Then at evening he would get them back home. This was their everyday routine.

I can see their life was hard right now, their faces were so uncheerful and miserable in those few months even after Manju got released from hospital. 

 

1991 – Mr.Ravindu Akalanka Perera,3 year old child has been admitted into General Hospital Kurunagala. Symptoms were blood in his urine and stool. The case was given to Dr.Ariyadasa for inspection. After preliminary caring was done the child was tested several times and was diagnosed with hemophilia, a genitical disorder. Therefore, doctor asked for the history of his parents.

 

Childs mother is Mrs.Susila Manjula Perera,born in kurunagala,a 28 years old women has educated upto A/Ls and currently isn’t employed. She has 4 brothers who haven't diagnosed with any medical problems.
 Child’s father is Mr.Kamal Nishnatha Perera,born in kurunagala,a 36 years old man, who is employed as a computer engineer. Only child in his family. 
 Mr and Mrs Perera got married in 1988.
 Mr.Ravindu Perera was born in 1990 in Kurunagala General Hospital as a healthy baby without and complications.
 in further questioning it revealed that Father’s side has hemophilia genes in the previous generations.

 

In 1992, Ravindu Akalanka Perera has felt the recurrent bleeding to his joints. He takes three factor VIII injections per months. Took medications till 1993.

 

Kamal Nishnatha  Perera and Susila Manjula have been avoiding their further pregnancy because they were having financial problems. In 1995 Kamal has gone to work in Saudi. He has been visiting the family frequently. He is getting enough money

In 1997 june, an unexpected conception occurred, their second child was causing them a worry. The doctors predicted a 50% chance of the baby being female. If it so they won’t be hemophilia consequences.
 1997 August The ultra sound scan report showed that they were having a female fetus.
 However in 1998 April The second baby bornt. A normal baby boy. They named him Lahiru Manju Perera. Manju had a 50% chance of being normal. But parents were instructed to come to clinics every 3 months. There are reports of coming to the clinics in Kurunagala General Hospital till  1999.

Family moved to Colombo in 1999.

Yesterday 2002.11.10 Mr.Lahiru Manjus Perera was admitted.Today manju has developed severe joint swelling. Medications and treatments will continue till Doctor in charge says otherwise.

June of 1997 marked the unexpected conception of the second child and the couple was worried. However, there was still a 50% chance of the baby being a female. In August, happy news arrived when the ultrasound scan reported it as a female fetus. In April of the year 1998, Manju was born. He was a normal baby boy but surprisingly, a boy! And yet, the chance of being normal was 50%! Because Susi was a carrier for haemophilia, and it was possible for the baby to have either inherited it or not.

On November 9^th,2001, yesterday, 3-year old Manju had a fall and started developing a swelling in his elbow. His mother was unable to take him to hospital as there was no way she could leave Ravindu alone, because any injury could end up being fatal to him. Today, Manju has developed severe joint swelling and Susi has come to realize that he too has haemophilia. 

   Kamal and Susi are worried sick because both their children are victims of Haemophilia. They have lost all hopes of having another child because of this, and their financial situation. Kamal has a job with decent wages already. Susi has decided to take up self-employment or a job she can do from home that would fit her qualifications, in order to pay the medical bills. Haemophilia is sometimes referred to as “the Royal disease” because several members of European royalty have had this disease. Even now, there are many like Kamal and Susi, who live among us with silent pain and unheard voices.

After two years, in 1990 Ravindu was born. When Ravindu was a 1 year old baby, doctors diagnosed that he has Haemophilia. Haemophilia is a mostly inherited genetic disorder that impairs the body's ability to make blood clots, a process needed to stop bleeding. This results in people bleeding for a longer time after an injury, easy bruising, and an increased risk of bleeding inside joints or the brain. 

In his 2^nd or 3^rd year he had recurrent bleeding to his joints and started three factor V111 injections per month. 5 years after the birth of Ravindu, Kamal and Susi had to avoid pregnancy. This was made because of the financial crisis they went through at that time.

In 1995 Kamal went to Saudi and started working there. He was earning adequate money and was able to visit his family quite often. 

2 years later the family was in a deep sorrow as they got to know about the unexpected conception for the second child. At that time they were hoping for the chance of 50% of getting a baby girl. They were hoping for this because, a baby girl could only be a vector of Haemophilia or a healthy child. 

Their dream was fulfilled by the ultra sound scan which reported a female fetus.

Another year later they got a baby boy named Manju, and was reported as a normal child, but still 50% chance to a haemophilic child. 

After 3 years, Manju had fallen and because of that he developed swelling in his elbow. Mother Susi was unable to go to the hospital as there was no way to keep Ravindu alone, because injuries to Ravindu could be fatal to him. With time Manju has developed severe joint swelling. Then only Susi realized the truth that both of their boys are heamophilic