https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8 Add ONE idea to ONE column. It's ok to expand or give an example based on another post. Do NOT repeat ideas. en-us 2022-02-16 22:46:01 UTC 2025-10-18 13:42:55 UTC hello@padlet.com https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2091203001 Increased dependancy on parent and exposure to painful experiences. A toddler with chronic illness may be consistently exposed to pain. A toddlers normal development includes a period of autonomy vs shame&doubt. They are trying to create a greater sense of self control and individualization. Children with chronic illness may lack in this area as their pain causes them to be more dependent on their parent for needs and emotional support. The child may not want to leave their side to go play with others (decrease socialization, play time), or may not want to get up and be active due to pain (physical &motor growth).
-fallon]]> 2022-03-11 23:38:44 UTC https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2091203001 https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2091302013       Siblings may experience guilt for not having the same condition as the child. This may be influenced by how they perceive their sibling and parents' reaction and behaviour as they can be very sensitive to them. 
      For instance, a younger adolescent sibling may be able to attend prom/their graduation (which are seen as normal events during that developmental period) while knowing that their sick brother/sister was unable to do the same and feel unworthy of the experience. 
- Naur ]]> 2022-03-12 02:34:08 UTC https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2091302013 https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2091311437 Parents may experience poorer mental health (for example anxiety, fear, and/or depression) for fear of not being able to care for their child. This may be influenced by their coping mechanisms and added responsibility of taking care of a chronically ill or disabled child.
-Paige]]> 2022-03-12 02:50:14 UTC https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2091311437 https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2092241256 Parents may suffer burnout from constant Dr. appointments, follow ups, taking care of diet, personal care etc. They often have to give up quality time with spouse or family members, own choices and interest.
- Niraja ]]> 2022-03-13 11:25:01 UTC https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2092241256 grenzmann5 https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2094623504 multiple care givers during hospitalization deprives the infant of consistent nurturing. This may impact bonding and attachment between the infant and primary care givers (parents). Chronic illness may also impact  development by restricting freedom of movement, and exposure to stimulus that is not developmentally supportive ie. painful procedures, lights, & noises.

-Gina R.]]> 2022-03-14 20:28:57 UTC https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2094623504 https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2094690048 Having a sibling with a chronic condition can have negative effects on the sibling
- increased responsibility and caregiving as a child 
- differential treatment by parents/caregivers 
-decreased family resources and recreational time 
- might feel that sibling takes away from opportunities or time
- might feel that sibling is a burden on family 
- might feel guilty for having negative thoughts about sibling
- might feel confused (especially when younger) about siblings condition 
-Melissa Jongedijk


]]> 2022-03-14 21:35:48 UTC https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2094690048 rochellesingh https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2094947290 Parents stressors increase because they need to provide care for the child that is ill and it affects them financially as well. Depending on the income of the family, married or single this could take a toll on them psychologically. They could be dealing with their own health issues as well and tend to neglect themselves because they are busy taking care of their child, and this could cause them deteriorate if they don't take care of their own health.]]> 2022-03-15 01:38:48 UTC https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2094947290 https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2096339494 To elaborate on some other posts, if parents already have poor coping mechanisms to manage the stress of caring for a child with chronic illness, they could result to using (for example) substances/gambling and other maladaptive coping strategies or maybe even end up abusing/ neglecting the child/children or their partner ( if they have one) that could cause even more damage to the family. 

E.g. Parent starts drinking more to cope and is working less in order to care for the child --> financial stress --> parent is stressed out and may act out against the child --> physical and emotional harm to the child that could impact their current and future lives--> further harm being done/poor health outcomes.

- Faith




]]> 2022-03-15 16:22:02 UTC https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2096339494 https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2096455086 Developmental tasks of a school-age child include developing a sense of accomplishment and forming peer relationships. When a child has a chronic illness or a complex condition, their ability to achieve these developmental tasks can be affected. For example, through many school absences and a potential inability to join regular athletic activities, these children will have limited opportunities for socialization. This can also impact their sense of accomplishment. 

- Rionna V.]]> 2022-03-15 17:23:26 UTC https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2096455086 larissagoudzwaard https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2096995257 Having a child who is chronically ill can cause the relationship of the parents to change (for example if they are married). It can be caused by increased stressors, worries, disagreements for treatments, or family disfunction due to the constant care giving role of both parents for their sick child. It is really hard for the parents to take a vacation, go on a date, or take time to re-energize themselves. Nurses can help parents by exploring support systems that make it attainable for the parents to nurture their relationship with one another. 
- Larissa]]> 2022-03-16 00:54:05 UTC https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2096995257 https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2097021979 Parents might feel that the demands upon them have no end (such as regular trips to the doctor's office or preparation of special meals or performing skills/treatments that may be time consuming). Parents may feel constantly tired and never able to find energy to do anything else other than care for their child. They may find that time spent with a spouse and one's own personal interests and hobbies is often given up as they must increase the attention and time devoted to helping that child cope effectively with their illness.
- Ruth]]> 2022-03-16 01:11:21 UTC https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2097021979 https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2097097064 Building on the previous points about parental mental health. 
PTSD can result from re-experiencing the trauma of your child being in pain etc. 
Parents of a chronically ill child are also more likely to deal with their own chronic illnesses that develop due to high stress levels and poor sleep. The economic burden can also result in increased levels of physical and mental health issues.
-kerre]]> 2022-03-16 01:59:21 UTC https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2097097064 anmolshoker0 https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2097418356  siblings play an important role in the development of children's understanding of each others' minds, so if a child is suffering from a chronic illness and has become anxious, lethargic, and overall less happy, it is likely these feelings or attitudes can rub off on the siblings.
-Anmol Shoker]]> 2022-03-16 06:22:09 UTC https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2097418356 jaddelg6 https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2098561700 2022-03-16 17:55:27 UTC https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2098561700 https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2098629835 -The child w/ chronic illness may not be able to spend a lot of time with other siblings (due to spending a lot of time at the hospital or there may be limited contact w/ siblings esp if the child is very immunocompromised)
--> this can lead to poor bonds w/ other siblings and a sense of isolation

-Other siblings (esp. younger ones) may feel jealous that their sibling "seems" to get more attention from parents --> they may resent sick sibling which can lead to poor relationship development

-Other siblings (esp older ones) may feel that they have to be over protective of their sicker sibling (and they may see how tired parents are and want to help out by taking care of their other siblings- similar to eldest daughter syndrome??) --> could lead to burnout 

-Sumjana G]]> 2022-03-16 18:35:30 UTC https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2098629835 https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2099004406 Siblings can have many reactions to their brother/sister with a chronic illness:
- they could feel guilty as to why their sibling is sick and they are not
- they could be anxious that they might also become sick
- they could be jealous of all the attention their sick sibling is receiving
- they can be resentful if additional responsibilities are given to them
- can be embarrassed or angry if other children make fun of their sick sibling

- Alden]]> 2022-03-17 00:32:46 UTC https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2099004406 https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2100592394 Parents will go through difficulties regardless of whether their child has a chronic illness or not. These difficulties could include finances, sibling relationships, child-care, parenting and marital stress, handling their children's developmental milestones and trying to maintain their own social life. These are difficulties that can occur in normal life. However, when there is a child with a chronic illness, normal family functioning may be disturbed and these difficulties may be further heightened.
- Olivia

]]> 2022-03-17 18:12:40 UTC https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2100592394 https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2100692367 To elaborate on other posts regarding financial difficulties, parents would likely experience financial strains due to the cost of gas to transport their children to appointments, treatment expenses, and hiring a caregiver. Being financially unstable would cause stress and harm their emotional well-being, leading to poor sleep patterns and increasing their risk for anxiety and depression.
-Linda



]]> 2022-03-17 19:26:37 UTC https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2100692367 https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2100803474 A child with a chronic illness often misses a lot of school for a variety of different reasons. When this happens, children can feel "different" from others kids causing them to feel socially isolated and restricted in social activities. This can affect a child's social developmental skills, resulting in them having few friends, possible problems with bullies at school, and feelings of being overprotected by their parents. These feelings can cause the child to do poorly in school, exhibit angry or rebellious behaviour, or possibly even cause them to may interfere with their scheduled medication and treatments.
-Halle]]> 2022-03-17 21:11:35 UTC https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2100803474 estherlynnsnyder https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2100862352 Siblings may be worried about their sibling's disability or condition because they have not received adequate information about the condition. They may wonder if they can "catch it". They may also worry about how their sibling will do in the future
-Esther]]> 2022-03-17 22:18:01 UTC https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2100862352 https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2100862410 When a child is diagnosed with a chronic illness, the parents may end up grieving the loss of the child they thought they had. Parenting a child with special needs can be "unrewarding" and end up resulting in feelings of failure. 
-Sadie ]]> 2022-03-17 22:18:06 UTC https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2100862410 https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2100911005 Although negative impacts are seen more commonly in chronic illness of a child affecting their family, there are some positives. One for instance, is that siblings can learn to become more compassionate when a brother or sister is living with a chronic illness. This can be due to them having to support and uplift their sibling as they are learning to live with a life long physical condition.
- Armaan]]> 2022-03-17 23:27:10 UTC https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2100911005 danirichert https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2101031045 When a child is diagnosed with a chronic illness, they have to manage the huge adjustment they have to make to accommodate treatments and lifestyle disruptments. They also have to navigate being "different" than their peer and potentially not being able to do the same things or look the same way as their friends. They will also have to deal with the challenges that can come from not fully understanding their diagnosis and being confused as to why their parents or siblings may be treating them differently.]]> 2022-03-18 00:56:29 UTC https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2101031045 https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2101219547 - can be difficult time for teenager. main developmental task includes developing autonomy. 
- there are enormous physical and emotional changes in this time period and chronic illness/disability. they can be affected because it is hard to tell the body changes r/t their condition and those that are r/t normal body development. 
- loneliness, isolation, and depression can occur when these changes make the adolescent feel different than their peers. 

- Megan ]]> 2022-03-18 03:01:40 UTC https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2101219547 https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2101392899 When a child member is diagnosed with or is living with a chronic illness, there may be negative impacts on the child's siblings. As mentioned above, siblings may experience learning difficulties at school for reasons such as:
- limited help with schoolwork ay home
-wanting to stay home from school with sick siblings
-reduced attention
-isolation from peers 
-lack of encouragement from family]]> 2022-03-18 05:50:15 UTC https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2101392899 https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2101399712 The parents of a child with a chronic illness can be strongly affected by the stress that accompanies the needs of the child. The child may need to have frequent medical appointments which can cause financial stress. Additionally, the child may require frequent modifications to and assistance with daily life tasks which can consume a lot more time that the parent may not have, especially if they have multiple kids, job, other commitments etc.]]> 2022-03-18 05:58:28 UTC https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2101399712 https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2101497194 Increased stress can occur when a child has chronic illness. This can be stress surrounding balancing work and personal life, finances to care for the child, time away from work to care for the child, balancing attention between other family members and friends as well as finding time for the parents to care for themselves. When a child has chronic illness this can disrupt the activities of daily life as well as the relationships within the family (for example between the mother and father if the care of the child causes them to neglect their own relationship to each other).
-Rae-Anne]]> 2022-03-18 07:42:06 UTC https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2101497194 https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2101616928 2022-03-18 09:29:38 UTC https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2101616928 https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2101674504 A child with illness subsequently spends a lot of time in a health care setting or admitted in the hospital which ultimately takes away from their 'childhood experience'. The child isn't at home, school or at a social gathering because they're sick. 

This can cause resentment towards one's condition as well as self worth. 

-Simran ]]> 2022-03-18 10:18:47 UTC https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2101674504 https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2102165256 A preschool age child who is undergoing chronic pain and long hospitalizations can delay development, including leading to speech impediments, a decrease in social skills, and reading/comprehensive skills. This can have a huge impact on the child with chronic illness as they will be unable to keep up socially, academically, and mentally with their age group.

-Natalie]]> 2022-03-18 15:48:14 UTC https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2102165256 https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2102233496 -they have increased worry/concern about their sibling
-less interaction with parents
-possible increased workload/chores around the house
-feel jealous they are not getting the same attention
-might act out to get attention from their parents
-have difficulty focusing during school as they are worried about their sibling
-depending on the developmental stage of the sibling they may regress back to previously learned skills in an attempt to get their parent's attention
-they may need to move to different care givers to watch over them

-Anna]]> 2022-03-18 16:36:13 UTC https://padlet.com/loreleijanzen2/1emdqnupdxmbylv8/wish/2102233496