Epilepsy and you: gratitude journal by

The sun is shining!

2015-06-11 10:10:46 UTC

Summer is here :)

My garden looks lovely

2015-06-11 10:11:43 UTC

Here's my lovely garden!

AmandaStoneman — 2015-06-11 10:58:29 UTC

I had a cup of tea made for me today

2015-06-11 11:04:26 UTC

Happy marriage

2015-07-20 10:46:44 UTC

I have a wonderful husband

I've just had a piece of delicious home made strawberry bakewell!

AmandaStoneman — 2015-07-20 12:53:23 UTC

Planning my 40th birthday party for next year.

AmandaStoneman — 2015-07-20 12:53:56 UTC

Had a good cup of tea and a chat at a friend's house, before the summer holidays start...

2015-07-22 14:22:57 UTC

I am grateful for my Mothers help in doing the shopping, she makes it so easy

2015-07-22 18:37:37 UTC

So grateful for all the help

2015-07-25 12:16:06 UTC

Have a wonderful Husband and Mum who've supported me 24/7 since I broke my arm in June. I couldn't have managed without them

Ain't jobs brilliant?

2015-07-26 10:13:56 UTC

After seven consecutive Christmas' at my local M&S and seven years trailing round the area for a permanent job, M&S took me on permanently in January. I can't get enough of it now.

Can't beat friends

2015-07-26 10:21:26 UTC

A sports-loving friend of me and my family knows of my condition and is more than willing to take me with him and his similar aged off-springs to football and rugby matches around northern England at every opportunity.

My parents

2015-07-26 10:27:17 UTC

The caring they do (of me) and the driving they do (for me). That is about the simplest way of describing what I'm grateful for - Otherwise I'd be hogging the board if went into detail.

2015-07-28 09:37:46 UTC

Understanding

My girls

AmandaStoneman — 2015-07-29 13:52:41 UTC

Are fantastic and I love them to bits. A cuddle with them always cheers me up!

Holiday

2015-07-29 14:15:42 UTC

In spite of lousy rain and howling winds we have just spent a great w/e camping with 2 of our boys and their own families camping in soggy N. Devon. On Saturday the sun did come out to compensate!!

For a good friend and neighbour who were both there for me yesterday after a visit to a new psychiatrist went badly. Sometimes it's better to et the help closer to home!!

2015-07-29 20:05:33 UTC

No seizures

2015-07-30 09:52:11 UTC

My girls too

2015-07-30 10:37:33 UTC

Despite having a grumpy Mum, my 3 and 6 year old daughters are absolute sweethearts and make me laugh even when I shouldn't

My bed

AmandaStoneman — 2015-07-30 15:12:09 UTC

We went camping in the rain too! I was so grateful to get home to my warm, dry and comfy bed!

Friends

2015-08-03 14:01:19 UTC

Always pleased to be in contact with a friend. They make the day shine brighter.

B-B-Q-

2015-08-06 10:34:30 UTC

Planning a b-b-q for friends on Saturday and the weather set for sunny! Great.

Old friends & New Plans

2015-08-09 20:51:47 UTC

Had a great night with old colleagues and have an interesting (career) proposal to think about.

My mum

2015-08-11 21:41:29 UTC

Walking

2015-08-12 09:14:30 UTC

I managed to take part in a walking Pilgrimage this past 10 days and shared great company, no seizures, beautiful countryside

This handsome chap!

AmandaStoneman — 2015-08-14 11:57:46 UTC

Birthday weekend

2015-08-19 13:58:21 UTC

Just spent a lovely weekend visiting my parents with husband and 9 year old daughter to celebrate dad's birthday on Sunday and mine the next day.....a weekend full of cake and laughter!!!

Family & friends

2015-08-19 14:28:25 UTC

Their constant love and prayers.

Friendship

2015-08-20 08:48:36 UTC

I am so blessed with good friends who know about and are supportive of my epilepsy and how it affects me. Thank you brian for being there when i needed you

2015-08-23 20:31:06 UTC

Harriet

Daughters Dog Found!

2015-08-25 11:46:39 UTC

Looking after our daughters dog has not been easy. He leapt our 6 foot fence twice and I was grateful we found him after several hours on both occasions. PTL!

Cycling & the feeling of freedom it gives me!

2015-09-01 21:10:05 UTC

AmandaStoneman — 2015-09-04 14:04:04 UTC

My sister-in-law is home safe and sound after a stint in hospital.

School!

AmandaStoneman — 2015-09-04 14:05:51 UTC

The kids are back, so it's back to some kind of routine :)

School Too!

2015-09-07 10:03:35 UTC

So pleased that school's restarted - 7 weeks is way too long when you're not driving!

A positive week

2015-09-19 22:44:22 UTC

I needed one - this week I'm happy for all sorts: my girls & their attitude to my epilepsy, Claire, golf, gym class and a great dinner out with my hubby. Lucky me 😊

Unexpected party

AmandaStoneman — 2015-09-21 08:24:16 UTC

I was invited to a party at the last minute, and caught up with some very old friends. It was great because it was so unexpected.

Holidays!

2015-09-26 11:11:21 UTC

Just returned from a very relaxed three week holiday. Fully refreshed to face the world again!

Just-being-me Day

2015-09-27 19:44:55 UTC

I had a great day mid-week, meeting up with a friend for a day at the NPG, browsing in Covent Garden and a nice lunch. Then caught up with another good friend in the evening for (more) food and a long overdue natter.

Girls night out & golf

2015-10-04 21:59:15 UTC

Making new friends & widening social circle. Really helps self esteem

Physiotherapy

2015-10-06 19:31:08 UTC

I was given a new physiotherapist this week and she's really pushing me with a structured exercise plan. Ouch but positive!

Rain dancing!

2016-01-20 11:04:05 UTC

Earlier today my two boys danced joyfully about, singing a rain dance to help the plants grow!

My family and better half

2016-01-20 20:14:37 UTC

So grateful for all they do and all they mean to me

My puppy

2016-01-22 16:41:17 UTC

Stanley my beautiful cocker spaniel pups bring so much joy into my life.

choir

2016-01-23 11:24:14 UTC

Having had a goog and enjoable practice yesterday.

making new friends

2016-01-23 12:07:50 UTC

yesterday I went up to London on my own (this kind of thing still makes me freak out) to do an application day for a volunteer program overseas - at first it was difficult because I didn't know anyone, but just by being myself and being more confident I made a really lovely friend who I will hopefully keep in touch with.

Mum

2016-01-23 15:22:03 UTC

knowing that whether its good or bad she is always there to listen no matter what time or place.

Having time with Daddy

2016-01-23 19:46:52 UTC

I finished a film with him during lunch time. It was lovely having time with Daddy.

New Job

2016-01-23 20:20:55 UTC

I am grateful to my new manager for offering me the job. It has been hard being jobless. It will be good to be busy again.

my brother

2016-01-24 17:17:07 UTC

for everything he does for me

Help at home

AmandaStoneman — 2016-01-25 10:03:37 UTC

Thanks to my lovely husband for cooking a delicious Sunday Roast, and to my children for doing the washing up!

my famil

2016-01-26 12:33:32 UTC

so important in my life, mum, dad, my brother and his wife and their young children have all done their best for me and, especially my neice annd nephew, kept me active!

Help

2016-01-26 16:10:57 UTC

I am grateful for all the help I have received this week.

My Job

2016-01-26 17:09:07 UTC

I work at a pre-school, and I am so grateful to have found a job without shift hours. I work from 8:15am - 3:30pm.

Dancing

2016-01-27 14:17:52 UTC

I went to a lindy hop class last night, which was so much fun. I felt really wobbly and didn't want to go, but I forced myself to and the result was great! Exercise really lifts your spirits, which I'm really starting to learn.

Old job

2016-01-27 16:33:37 UTC

Was made redundant from my previous job I believe mainly because they didn't like me. I have since secured a new job which I am loving. Was worried epilepsy and not being able to drive would make it really difficult to get another job

Positive w

2016-01-27 17:31:23 UTC

Agreed a message to be sent to work colleagues advising of the symptoms I may show during a seizure and the fact that it is unlikely I will be harmed. I had had a seizure people had no knowledge

Help at work.

2016-01-27 18:17:01 UTC

Agreed with manager to send a message to colleagues explaining symptoms of a complex focal seizure. Had one at work and nobody knew what was happening. They were worried and I was embarrassed. Happier now people know what may happen and how to deal with it

My wonderful boyfriend

2016-01-27 21:15:04 UTC

The one that always has may back and always supports me in everything I do. And listens to my rants!

My lift home

2016-01-28 16:56:36 UTC

After my day at work my wife drives more than five miles to pick me up. Better than a trip home with two buses and today it was raining

2016-01-28 16:56:41 UTC

My lift h

My friends

2016-01-28 20:54:54 UTC

I am so lucky to have good friends who look after me, always with compassion & humour

U3A - University of the Third Age -

2016-01-29 12:19:31 UTC

Attending their groups and multiple activities has been keeping me sane for the past three years

My Brother Malcolm

2016-01-29 17:04:06 UTC

For always managing to calm me down and make me feel welcome and loved no matter what

work

2016-01-31 04:10:57 UTC

for my colleague swapping shifts with me so that i can attend my hospital appointment

Aqua Aerobics

2016-01-31 12:14:10 UTC

A big thank you to my friend Ann for driving me to and from the swimming pool every week - and for keeping an eye on me during the session.

Son's football match

2016-01-31 18:40:41 UTC

The weather may have been extremely cold, windy and wet, but I forgot all about that when I watched my son's team win their football match 12-1.

My Family

2016-02-01 10:47:59 UTC

Dad and Mam always there if a problem arises, my brother is another who keeps me active as do my lovely niece and nephew, no time to relax there, keeps myself mentally strong.

Family

2016-02-02 14:35:26 UTC

My daughter who makes me smile every day.

Making people aware I have epilepsy

2016-02-03 11:34:07 UTC

As a result of the course, I put the embarrassment factor of having epilepsy behind me and told my work colleagues that I suffer and what to do if I have a "turn"....made me feel so much more relaxed and safe.

My Family

2016-02-04 20:59:10 UTC

My Caring and supportive family who are there for me, when I`m "not there" due to my seizures

Friends

2016-02-06 17:42:23 UTC

My lovely new friend who taught me how to make hair dreads out of felt! A lovely way to spend a rainy afternoon :)

In the water

2016-02-07 14:54:45 UTC

Swimming and tumble turns at the end of the lane, and swimming underwater is just beautiful gives me a sense of schievement. I am sensible, life guards and people around me know I have epilepsy. After the many years of swimming I have never had a seizure in the water, although I know the risks they are worth taking

Pancake Day

2016-02-08 14:52:11 UTC

I have a cold and not having a very good day today but am looking forward to tomorrow as my brother and his wife have invited me over to join them for pancakes! It will take me two hours to get there on the bus, and I will have to miss my weekly Tai Chi session, but it will be so nice to be included in this traditional event. Eating pancakes on your own is not the same.

I

2016-02-08 16:28:48 UTC

Son's Dance Success

2016-02-08 16:28:56 UTC

Two first and one third is pretty good going in UK street dance championships. He is so proud of what he has managed. We are so proud of all the work he has put into this.

Day off work

2016-02-10 14:25:03 UTC

I am having a nice day off work with my husband

Dental Treatment

2016-02-10 17:24:11 UTC

Had to laugh this morning...went for dental treatment and had to have a local anaesthetic - passed out and the team had to stop the treatment...saved £250 and managed to stay extremely calm - something epilepsy has taught me

My warm bed and good book :P

2016-02-10 19:29:01 UTC

Beautiful day today, frosty morning blue sky & Spring is on the way and I amfeeling happy.

2016-02-11 21:44:57 UTC

Big smile !!

Kev Dancing

2016-02-15 12:14:43 UTC

Went to see Kev dancing at a talent show in duo and crew performances. It was fantastic. So proud. Now looking forward to next performance

Skiing At Milton Keynes

2016-02-15 13:56:12 UTC

Yesterday I went skiing with my Husband - after not having skied for 13 years. It was great, looking forward to going again.

Yoga

2016-02-16 12:07:49 UTC

Had a lovely yoga class last week, which apparently is really good for epilepsy! Get's the blood to your brain :) usually find it hard to go out in evenings, but was deffo worth it when I got there.

I am having more time off work with my husband.

2016-02-16 17:25:10 UTC

Pilates

2016-02-17 09:21:48 UTC

Similar to the yoga post....thoroughly enjoying a 10 minute session every day and making such a difference to my relaxation, Just need to work on really bad sinus congestion now...anyone remember the Tunes tv ad...2nd class ticket to Dottingham please? That's what I sound like?!?

New Consultant

neilstirk — 2016-02-17 10:26:02 UTC

Saw a new registrar and using planning tools, had a great conversation and things look to be moving forward for first time in 15 years, heres hoping chronic pain may soon be controlled

Holiday

2016-02-20 16:25:23 UTC

I went away with my family last week to visit my brother at university. It was really fun to see him and I also brought a really good book as well.

Upbeat ...

2016-02-22 19:53:36 UTC

Lower dose of medication so far only minor things which may or may not be related to the epilepsy. Feeling brighter and my thinking seems clearer, sharper. Swimming and Yoga are excellent ... lovely time with my 3 beautiful grandchildren

Catching Up

2016-02-22 21:34:28 UTC

This course is helpful, encouraging me to pay some attention to my experiences of epilepsy.

Friends

2016-02-23 19:14:27 UTC

Spoke to a friend I haven't seen for more than a year. Going out next week

Not feeling as embarrassed

2016-02-24 16:22:03 UTC

I started a new job in a small company in January and purposely told them about my condition so they knew what to do if I had a turn as I call them. Had one in the office last week and they were fantastic and I didn't feel at all stupid or inferior.

Feeling proud!

AmandaStoneman — 2016-02-26 10:36:39 UTC

My daughter got her Bronze swimming award yesterday. And I have joined a choir - I'm making new friends and feel great after a good session of singing!

CBT Visit

neilstirk — 2016-02-26 16:23:05 UTC

Started my second course of CBT, turned into a blubbering idiot :-) But I am very hopeful that it will give me the get up and go to get on with my life again

Dad now home

2016-02-26 21:16:24 UTC

For last 7 wks my elderly father has been in hospital. For 7 wks I have been constantly explaining that I do not drive and that it takes me at least an hour to get to the hospital. For 7 wks I have been visiting and working whilst not eating properly. Dad is now home and my G P rang to ask how I AM as she didn't realise Dad was ill. She is the only person to ask after ME - I am grateful for having such a caring GP.

Gym

2016-02-27 11:18:40 UTC

Went to the gym for the first time with my GP referal scheme (cheaper gym if you have epilepsy anyone!) which was super fun, as well as hard work ;)

Sunny Day Blue Sky

2016-02-28 19:28:48 UTC

The sunshine always makes me feel happier. Then going for a walk in the fields with my husband of many years, when I think of these simple everyday things I realise that I am lucky. Today I picked up my guitar and played a few chords.

Zumba

2016-02-29 15:37:31 UTC

I started a new Zumba class at the Gym - It is fun and feel better afterwards.

Forum4E

2016-03-01 12:09:42 UTC

Joined this group on website. Many people who suffer exactly the same as me. Fantastic to have others available to talk

Help Sought

neilstirk — 2016-03-02 14:57:47 UTC

Saw my psychiatrist and finally told someone what happened to me 16 years ago. Obviously very private but it turns out I have PTSD and will get help to overcome this. A long hard road ahead but happiness will be mine :-)

Epilepsy Nurse

2016-03-02 17:13:01 UTC

I am grateful for my epilepsy nurse today who took the time to answer all my questions and gave me much needed advice.

Birthday fun

2016-03-03 13:11:53 UTC

i went to blackpool with my other half sarah went to the dungeons and madam tousaddes. was the best birthday i had in years. also my father booked me a really nice hotel to stay in :)

Work

2016-03-08 18:41:37 UTC

Had a good conversation with my manager about the balance between performance, stress and illness

Friend

2016-03-08 19:09:33 UTC

Had a fantastic night on Saturday with my best friend. Over a year since I was out without my

Want a job

2016-03-19 18:24:48 UTC

I applied for a job this week .... completed the application for in a couple or so days .. including that tricky personal statment .. fingers crossed ...

My son passed his lorry driving today

2016-03-21 22:47:10 UTC

The day got changed

2016-03-21 22:48:19 UTC

I arranged to meet my sister today to spend the day at a local national trust house and garden. However when we arrived, I went on the bus and she got a lift there, we found it was closed for some restoration conservation work. We rescued the day by visiting a nearby garden centre for a coffee and cake and then walked back into town by the riverside, doing sister talk all the way, which was lovely.

Relaxing Day

2016-03-28 10:53:57 UTC

My daughter and her boyfriend came to our house and offered to make dinner for us:-). It was feet up and relax time,it was a very enjoyable meal too. That is something they can almost certainly do again!

Just being there

2016-03-31 20:30:08 UTC

To my gorgeous daughter & amazing friends who are also my bosses for their patience I am hard work!

Cinema

2016-04-03 11:11:11 UTC

I went to the cinema with my Husband to See Eddie the Eagle. It was funny, enjoyable night out.

My family

2016-04-03 17:35:37 UTC

Spending the day at home with my husband and 4 children, playing in the beautiful April sunshine.

My husband

2016-04-04 13:39:52 UTC

I thank God for having a wonderful husband that loves me and look after me.

My family and husband

2016-04-05 11:13:17 UTC

I am very grateful that I have such a supportive family and husband who take my health into consideration no matter what I do. Without them I'm not sure where I'd be today.

Hope

2016-04-05 15:29:23 UTC

I am grateful that I am going to the University College London Hospital in Sept. for an S.E.E.G procedure to find out if I am a suitable candidate for surgery for my Epilepsy.

We're getting there

2016-04-06 18:18:47 UTC

I'm grateful that I'm feeling more like myself since my medication change.

my best friend

nick46 — 2016-04-08 00:49:52 UTC

best mate just spent 4 days with me. What a great time we had. So lucky to have a friend like that. i can talk openly to him about my condition if necessary. However the friendship overrides the need. We just enjoy each others company and that makes us feel good.

So many wonderful people in my life

2016-04-08 21:33:27 UTC

Since last year's brain tumour and now symptomatic epilepsy, I've been touched by how many lovely, supportive people I have around me. Everyone from family to friends to neighbours to colleagues and parents of children I've taught in the past have been a massive source of love and support. Yes, it's been extremely traumatic and affected my confidence generally, but it makes you realise what's really important in life ; people.

My husband

2016-04-09 10:16:48 UTC

My husband is fantastic. He knows when I'm having a 'bad epilepsy day' and will do the little things that I sometimes struggle with. Or he will even make sure I go back to bed to rest while he keeps our 3 year old occupied. When our son was born he did all the night feeds which he did without complaint and didn't need to be asked he just did it. The man deserves a medal!

My

2016-04-09 12:53:06 UTC

My mother

2016-04-09 12:53:11 UTC

Who has moved in to my flat for a few weeks to help o

Wabt a job

2016-04-10 19:53:56 UTC

i had my interview on Friday ...i met lots of people i knew ..it was good to see them ,,time will tell about the job... they will call me on Tuesday fingers crossed,

Epilepsy and You Course

2016-04-15 18:18:14 UTC

I'm glad I signed up to do this

my

2016-04-20 18:31:06 UTC

My Jobs

2016-04-20 18:49:03 UTC

I love my jobs.

Bus drivers who take time to sit me down following a fit and ring the ICE number on my mo

2016-04-27 23:35:51 UTC

My employer

2016-04-29 09:18:03 UTC

I needed to catch up on this course and decided to book a day off. I told my employer why I was taking the day off and they said they would go 50/50 on my leave as it was for my well being - so in essence they have given me half a day off without it coming out of my annual leave entitlement. I'm extremely grateful to them as I was quite happy to just to take a day off.

Good Supportive Work Colleagues

2016-05-01 14:28:28 UTC

Not a great week due to a few things; not all epilepsy related, but grateful for the help that staff I work with have given me.

Feel appreciated a bit more

2016-05-11 22:18:42 UTC

Just finished my final exam yesterday for my accounting technicians. Just hope I get the results I would like to get. FINGERS CROSSED.

2016-05-17 19:32:45 UTC

Good week

2016-05-31 23:32:08 UTC

This week has felt like a few things have changed. I've recently gone out more when invited to places I would normally turn down. I have started to plan a few small goals to travel outside of my usual comfort zone in terms of driving. I've generally made myself either do more work or house work or get out more even when I didn't really feel like it. I have felt happier for doing it even though I wasn't convinced it would work. The getting out more is usually not a problem as I work everyday very long hours, but I have had a couple of days off this week and was told to make the most of them; I feel I have.

just starting this course today so hopeing it will help me cope better

2017-05-25 13:30:37 UTC

the course is great. Its easy to follow

goughmichael59 — 2017-06-03 11:17:52 UTC

Epilepsy and you course

2017-06-22 14:58:09 UTC

This course is just what I needed.

www.thnx4.org

goughmichael59 — 2017-06-29 14:30:11 UTC

My Epilepsy nurse

2017-07-07 12:51:24 UTC

He is always ready to help and reassure me.

This course

2017-07-13 13:58:55 UTC

It is making me think and take responsibility.

Friendships

2017-08-17 08:42:17 UTC

Went to computer class and will be making loads new friends

2017-08-18 20:26:31 UTC

Work colleagues checking in on my wellbeing

2017-08-23 15:25:50 UTC

A.A Sponsor

2017-08-25 14:28:26 UTC

Someone to talk too

Thinking back

2017-08-26 12:52:20 UTC

The course took me right back to the start of my epilepsy, then step by step, through marriage, children, later life, medicines taken, help received. I had forgotten many useful aspects of this history.

More and More

2017-08-26 13:53:45 UTC

For finding these videos and realising there's more help for epilepsy than I thought and how so much describes me.

Working on self esteem and believing I'm better than I keep thinking. Friends who have shown this, this weekend, while running Heritage Open Day. After worrying friends turned up to help and to transport. Strain turned to a clear head again.

2017-09-11 14:07:56 UTC

My Epilepsy Nurse

2017-09-23 12:17:28 UTC

This week I went to see my epilepsy nurse, she was able to reassure me and make me feel a lot more confident about my surgery.

Prayers

2017-09-24 14:20:46 UTC

Answers to many prayers this week, helping me with short term memory loss. For a letter sent by my specialist to confirm I had no sign of dementia as I'd been concerned family might misjudge my condition. All the info gleaned through Epilepsy Action and the course

2017-10-10 13:00:21 UTC

Having a lovely time with friends!

Received a letter from my specialist encouraging me after constantly receiving completely conflicting advice from A&E doctors and a GP

2017-11-08 18:09:34 UTC

which left me feeling discouraged and confused. I feel he understands me and I have his support in decisions I have made so now longer concerned what any other doctor thinks, I just follow my specialists advice who I like and trust.

Saw a new specialist - no notes from my GP, so he had to take me through my full history. He really listened and that made me feel involved and reassured.

2017-11-27 08:44:45 UTC

I may have ide

2017-12-26 14:52:09 UTC

No seizures this week

2018-02-05 10:55:30 UTC

People close to me...

2018-02-15 21:50:32 UTC

So grateful that I have an amazing boyfriend and family that are both willing to pick me up after some time away this coming weekend.
THANK YOU!

Final exam!

2018-02-28 15:12:19 UTC

I am extremely grateful that I have taken my final Montessori practical exam and that I have passed!

Hospital appointment

2018-03-04 14:07:00 UTC

Had
a great hospital appointment at the John Radcliffe on Thursday.

2018-03-06 12:45:22 UTC

Working on improving self-worth

2018-04-22 22:15:05 UTC

Improving my self worth

2018-04-22 22:15:44 UTC

Confidence to explain to others

2018-04-28 20:55:19 UTC

When I was first diagnosed with Epilepsy no one gave me any help in coping with it. For many years I hid it from people thinking that it would scare my friends away. I eventually plucked up the courage to explain to others and was surprised that they were curious rather than scared. This gave me lots more confidence and I have decided to complete this course to develop my skills further to make sure I can help myself and others to make the best of life and what it has to offer.

My attitude to risk

2018-05-10 20:46:30 UTC

Is to make a reasonable assessment but to take some risks rather than live in a cocoon which is ultra safe. Living in an ultra safe environment would be so boring that it would depress me as I would have to forgo many things such as cycling, cooking etc. I would rather take the risk.

Plant out. Some tubs. It was glorious in the sun. I feel safe in my house and garden. Last weekend. I had both sons and 4 grandchildren to stay.Wonderful.

2018-05-28 21:27:02 UTC

A friend rang asked how I am and offered me a lift.

My daughter gave me a guinea pig. He doesn't judge me and likes being strok

2018-05-28 21:44:06 UTC

College

2018-05-29 18:58:59 UTC

I'm happy that I completed my last college report today and have already finished my exams so there's less chance of me being stressed and having any seizures now

Independent travelling to work

2018-06-01 21:47:09 UTC

Cycling to work has given me a big boost in confidence as I am no longer tied to bus timetables. This is a big bonus as I am not allowed to drive due to my Epilepsy

My gratitude

2018-06-23 20:59:52 UTC

I'm super grateful for this course, to learn about my epilepsy to manage it daily.
To be able to focus on what I can do.
All the support from my professional team and all the love and support from friends and family.
Most of all I'm grateful to love and send myself and accept my condition xxx

My gratitude

2018-06-23 21:03:18 UTC

I'm so grateful for Gareth my epilepsy nurse.
He is super supportive and reassuring.
Although he is busy in his role ,he always takes the time to chat and discuss and really listens to me.
We decide together my best advice and he's teaching me how to live my with my epilepsy as it's a part of me and not all of me.
He really encourages to stay safe,be sensible and live my life to its fullest too.
He really helps me build my confidence.

My gratitude

2018-06-23 21:09:55 UTC

When I'm out with friends and they ask me how to recognise I'm in seizure and what to do if it happens too.
This is really kind and caring of them.
My friends and family who give me lifts and offer me lifts too help me too.
My ever increasing confidence on the bus and pushing myself out my comfort zone to go new places on the bus or try new walks when I'm out with Carter my dog.

My gratitude

2018-06-23 21:12:59 UTC

My amazing friends and family who accept me for me and love spending time with me.
They're interested in helping me and understanding my epilepsy and always tell me when I'm doing too much to remind me to slow down.
For Carter my dog who I love walking ,we get out in the fresh air and she senses if I'm not feeling well too

2018-07-09 05:54:42 UTC

I'Im

My gratitude

2018-08-11 21:51:27 UTC

My housemates that try so hard to understand and have told me that they are not bothered if I have a seizure in the house because they know what to do now after I have told them all the first aid. My parents have always been there for me throughout my epilepsy journey and I am eternally grateful

My gratitude

2018-08-20 17:02:27 UTC

My parents that have helped me through so much and have always supported me and believed in me!

I have the most amazing parents and the most wonderful partner and son they work hard at understanding my epilepsy . Patience hehehe yes im grateful for the understanding of my family

2018-08-21 11:27:28 UTC

My Family

2018-08-21 23:48:15 UTC

i have the best family there are always there for me when i have one and there make me smile when i am down there love me for who i am and there no i have epilepsy no matter what happenes there will always be there for me thou out thing.

my friends

2018-08-27 00:52:43 UTC

i have the best firends in the world there are always there for me when i have a fit and its so hard to see them seeing me have them but no matter what happens there are always thinking about me and asking me if im okay so i am grateful for them love them all

my life

2018-09-27 15:29:21 UTC

today i got a cancer check and i got the all clear. so for this i am grateful for life xx

Staying Punctual

2018-10-08 21:47:14 UTC

I have managed to stay close to my sleeping times and not falling asleep too late as sleep deprivation has contributed to many of my seizures.

Exploring

2018-10-10 13:13:26 UTC

I love the opportunity I've been given to live my life to visit so many wonderful and fascinating places around the world

My Life

2018-10-17 12:11:23 UTC

I liked looking at the different what epilepsy effects my life, from the smallest things to the biggest, things we never really think off

Support

2018-10-23 13:07:26 UTC

I am grateful for the support given to me from my medical team. They have helped me to manage my epilepsy and have really allowed me to manage my epilepsy. I have been given a choice on what medication I want to take whilst preparing for surgery.

Grateful

2018-10-25 11:37:24 UTC

Grateful that my calf strain has healed and I can go back to playing tennis this makes me feel apart of a team the people I play with are all so nice

NHS

2018-11-11 21:02:28 UTC

I can't put into words how grateful I am that I am getting access to such wonderful treatment. All the staff such as my epilepsy nurse, consultants and pharmacists have been so supportive & helpful.

Grateful

2018-12-08 13:36:59 UTC

Grateful

2018-12-08 13:38:18 UTC

I am grateful for my husband everyday. I am also grateful for my life everyday.

I am grateful for my life everyday. I am grateful for my job and people that understand my problems.

2018-12-15 10:56:46 UTC

My family

2018-12-17 13:58:20 UTC

I don't know what I would do without my family they have been there for since I was diagnosed with epilepsy ,

2018-12-17 21:47:46 UTC

grateful to everybody

Grateful

2018-12-23 20:36:54 UTC

Grateful

2018-12-23 20:38:32 UTC

I am so grateful

My Lovely family

2019-01-23 18:22:30 UTC

Since I was diagnosed with epilepsy my family has always been there for me I don't know what I would do without them I am so grateful

love you all loads <3 X

Extremely grateful to my epilepsy nurse June and epilepsy group friend for understanding me and listening while side effects have been too much for me to hand

2019-01-27 15:30:01 UTC

im grateful

2019-03-26 18:54:01 UTC

having my daughter emily shes my person my bestfriend emily is 16yrs old shes only person who knows what to do when im having a really bad seizure, which i trust her with my life.

2019-04-19 20:54:32 UTC

My husband who loves me unconditionally and my Epilepsy Nurse who is helping me get through quite a bad time with seizures.

My family - they are simply amazing. I rely on them for so much but i am trying to be more independent and try new things. Self-help books have also been awesome (Slight Edge, Shine, The Art of Being Brilliant, etc.)

2019-06-03 13:52:30 UTC

I'm grateful to my neurologist for calling me at home out-of-hours when my GP informed her I'd had a seizure. It had been the first for many years and I'd been discharged for some time... That call lifted me just when I needed it.

2019-07-04 20:02:39 UTC

Family & Friends

2019-07-08 15:54:10 UTC

They keep me focused especially my Slimming World Family. I was diagnosed in February 2019 and went straight to my group meeting. I couldn't have done it without them and continued to lose weight and won Man Of The Year in June. Thank you to you all xxx

My Husband.

annetteaspen — 2019-07-09 08:08:49 UTC

He's been on this journey with me through some rough times, but he's always supportive and loving. Even though his sleep is disrupted every night because of my seizures and the worry it creates. Thank you. x

My family

2019-07-09 11:23:33 UTC

My mum

christielorraine — 2019-07-10 09:01:52 UTC

amazing, supportive and strong

Karl

christielorraine — 2019-07-10 09:02:40 UTC

supportive and selfless guy. who put is whole into personal request

A place to live

2019-07-11 16:58:46 UTC

I'm really lucky my 2nd cousin is the landlord of my flat. Loads of people still have to live at home when adults. And i saw a homeless guy on the way home, makes me feel gratitude for having a roof over my head and a bed to sleep in.

Mum Dad and Laura

2019-07-12 09:27:10 UTC

They are all so good and supportive of me in whatever i do. Mum and dad give me money to live off.

I know my epilepsy isnt as bad as others.

2019-07-12 09:31:16 UTC

Family

2019-07-15 20:31:19 UTC

I'm grateful for my family as they have been a huge help since by diagnosis. It's been a huge shock for e everyone but with their help we seem to be getting by.

My friends and family

2019-07-16 09:39:50 UTC

They never treated me like ther

My nephew got married at the weekend. He arranged a place for us to stay for the wedding. Very grateful - it made a big difference to us.

2019-07-17 07:50:40 UTC

2019-07-17 18:01:03 UTC

My Boss
This week I had a couple of seizures at work. He looked after me, explained to people what happened without making a big deal and made me feel better about it.

took drugs on time and did some walking

christielorraine — 2019-07-18 08:17:30 UTC

Grandchildren

2019-07-18 13:55:23 UTC

Love seeing them grow up into the wonderful people I know they will be

2019-07-18 19:19:06 UTC

Made it through work today despite it being super stressful and having a slight lack of meds for the next few days.

summ

2019-07-19 16:43:48 UTC

Made it through work despite it being a stressful week and being the last week of work without having any seizures .

Seizure Free Week Again

2019-07-21 13:52:11 UTC

Another week with no Seizures. So, I am definitely very grateful for that. Especially when I read some of the stories and posts on here! I am also thankful that the AED's I have been prescribed seem to be working perfectly, I have been Seizure free for 246 days now.

Managed to spend more time with Rachael

2019-07-21 13:59:16 UTC

2019-07-26 19:22:34 UTC

Managed to get some time to myself despite everything going on.

2019-07-27 22:34:22 UTC

A seizure free week. I am also very grateful for a caring friend who I finally opened up to about my condition.

My Life

2019-07-31 11:16:03 UTC

I am very grateful for my life at the moment. I read so many things about how people are really struggling with their Epilepsy, but mine appears to be under control. I have never had another seizure since I was put on my AED's.

I did lose my job due to losing my license, but hey that's their loss! They lost one of their best trainers. It also gives me the chance to take on some new challenges. I wonder what I'll do next, where will I work, whaa wilaaI do. It's all very exciting.

OK, so it might be difficult for me as I am no longer a young man, but that's what makes it exciting, the challenge ahead.

I am still alive and kicking! I have started running and am managing 3 miles 3 times a week. So I am grateful for my health too. I am eating better and getting fitter and healthier every day.

We are all in this together. I am lucky, if anyone is struggling, feel free to get in touch and chat. I love meeting new people.

I have so much to give thanks for. It is really difficult to choose one!

2019-07-31 15:25:34 UTC

2019-08-02 09:56:08 UTC

I'm happy that I've been seizure free this week !

2019-08-02 22:19:32 UTC

I am grateful for a seizure free week.

This Week's Lesson

2019-08-05 07:53:28 UTC

I really enjoyed this week's lesson about work. I lost my job after losing my license, so this lesson was very interesting and I learned a lot. Here's to the future, whatever it brings ☺

Family

2019-08-05 19:13:47 UTC

I am so very lucky to have a loving and supportive family, and work with amazing colleagues.
I have my own home and lovely neighbours.
I can do things independently.

2019-08-08 09:59:36 UTC

I am grateful for my supportive and loving family. I know I don't say it enough and can be impatient when they ask after my health. I don't enjoy talking about it.

Family

2019-08-19 14:00:31 UTC

My wife and family have helped me deal with this diagnosis. I want to learn to talk to them more about how I feel about it but I'm not ready and/or don't know how to do this yet.

All the incredible people in my life

2019-08-19 16:44:15 UTC

Surrounded my a team of people who make life possible when it feels impossible, fun when its a drag and look after me when I need it (even though I don't like to admit it). Without you all, life would not be the incredible adventure it is.

This course has been so amazing, I am learning so much about epilepsy. I am 50, and have suffered on and off since I was four. But only now have the knowledge to talk to a doctor about MY EPILEPSY!

2019-08-22 15:31:31 UTC

Grateful

2019-08-31 00:11:20 UTC

I’m grateful for my family being around me when I’m struggling to cope with my seizures and mental health issues.

2019-08-31 19:29:19 UTC

I’m grateful to have such a fantastic support system around me. Being diagnosed with epilepsy recently has been a big shock but my family, friends and colleagues have helped me to see that I can still have a normal enough life despite my epilepsy.

Grateful

2019-09-07 23:04:34 UTC

Having a wonderful supportive group of people who push me to be better everyday.

2019-09-13 06:33:18 UTC

Im grateful that i started to feel more confident in myself thanks to the people around me

My family

2019-09-13 09:53:43 UTC

My husband and and my family x

2019-09-14 10:14:20 UTC

I am grateful for this course. I am coming to the end of it and have found it very informative. It's nice to know that there are other people in the same boat as me and great to hear that there are people with full seizure control thanks to the right AEDs. I look forward to that for myself. Thank you to those who made this course available to me.

I am Grateful For!

2019-09-15 11:51:54 UTC

My wife sticking by me through all the negativity that was brought on by the introduction of epilepsy medication and staying with me through the ups and downs!!!

Grateful for

2019-09-15 15:46:54 UTC

My husband, who takes care of me so graciously and well even when I know it's difficult for him

Miracle free appointment

2019-09-23 14:58:15 UTC

I am so grateful for there somehow being a free appointment at my GP's this afternoon for something related to bad side effects of my meds. Bless the NHS!

Being independent

2019-09-28 15:49:30 UTC

I successfully lived independently for a week with only one small seizure.

Friends I can talk to

2019-09-29 12:39:07 UTC

I had some very bad news yesterday, nothing related to epilepsy, but they are so empathetic and lovely that I was able to talk about all of it, which includes the fact that I can't travel right now because of the epilepsy. They never make me feel damaged or weird for this illness. So kind.

Change of scenery

2019-10-11 19:33:22 UTC

Went somewhere lovely for a few days. Did a lot less than I would have before, but a lot more than I'd thought possible. Something about it made me really turn a corner and start feeling positive about life again.

My work

2019-10-24 19:02:41 UTC

Even though it's far too much for me to cope with right now, I'm grateful that I have work I love and the chance to figure out how to manage it better.

photography

2019-11-02 12:50:00 UTC

I am greatful for my husband taking the time off during the holidays to help support me with the kids, this meant that whilst we were out i could take some pictures and get back into my photography happy place. Since my diagnosis last year and everyone's fears about me going out alone, i have put things like that on the back burner.

Birthday

2019-11-06 14:19:07 UTC

I'm thankful for the people ho have bought me gifts and sent me well wishes for my birthday, it helps to take away the focus that 3 days for today exactly 1 year ago i was diagnosed with epilepsy, therefore i am also grateful for the support i also reiceve.

Parkrun

2019-11-16 15:50:13 UTC

Last Saturday somebody walked with me and helped improve my time in walking by adding a bit of jogging.
This week I volunteered there for the first time.
I felt that someone had faith in me and it felt so good.

Patient colleagues

2019-11-20 23:20:30 UTC

I'm grateful for my patient work colleagues who a very big help to me.

Coffee and chat

2019-11-27 14:12:25 UTC

Day after I started this course I went Epilepsy coffee and chat.Felt comfortable there and found myself able to help as was as learn.

i will be forever thankful for the people around me who have supported me since day one

2019-11-28 12:51:15 UTC

2019-11-28 22:18:30 UTC

Diet
I have been looking to see if any foods can help with lowering my seizure risk but have not had any success.

Grateful

2019-12-05 23:45:15 UTC

This year has been stressful and knocked me for six. Diagnosed as a coeliac (out of the blue) and 4 seizures. Last one was on bus which was full and ended up in A&E and neuro review. Started on new meds and follow-up planned in the new year. Work has been nice but had appraisal today and was slightly worried about outcome. Went ok so glad but must focus more over the next year and be more organised.

Support

2019-12-06 13:51:08 UTC

I have great support from people around me, who drive me where I need to go and talk to me about how I feel. Doesn't matter what has happened to me people are still there for me.

My support

2019-12-07 15:59:12 UTC

My family, friends and the medical care I've received.

Explanation

2019-12-11 16:20:37 UTC

Reading the start of this session I feel certain things about myself may be explained e.g feeling sad.

2019-12-12 10:33:48 UTC

Side effects
Have just discovered that a number of things that have been problems over the last few years could be side effects from medication. Great relief. Wouldn’t have known if it hadn’t been for this course. Will talk to my neurologist about it next time I see him.

support

2019-12-14 11:52:20 UTC

i have brilliant epilepsy nurses that are there to reassure me or deal with any concerns i have regards seizures or medication.

2019-12-18 16:59:23 UTC

I am grateful for the stopp approach I don't remember it when needed but it can help me afterwards. Although I still need to it learn off by heart.

2019-12-18 21:18:36 UTC

My family help me with my epiplsey

No Seizures this week

2019-12-23 16:51:33 UTC

Self explanatory really, each week without a seizure feels like a good week.

Heading off to Sri Lanka e

2019-12-23 16:53:26 UTC

To see a dear old friend, and meet up with my son who is en route back from Australia

New Neurologist

2019-12-23 16:54:24 UTC

Not yet got a date, but looking forward to starting with him in the New Year

Going Skiing

2019-12-23 16:55:25 UTC

With one of my best friends and his family; and my cousin and his daughter. Off to Switzwerland, which should be awesome, if a little worrying temperature wise so close to going to Sri Lanka

Stopp

2019-12-26 19:13:15 UTC

I grateful for the stopp strategy.

website

2020-01-04 17:04:36 UTC

I'm grateful for the epilepsy action website's learning resources.

2020-01-06 10:57:39 UTC

Stress reduction
This course is doing wonders for me. We went over to Belgium for Christmas by Eurostar, lots of potential for problems with train travel both sides of the Channel due to strike action. Wasn’t worried at all! Sad to say things life not that easy at home but it is lovely to feel that I am making progress.

2020-01-06 21:45:20 UTC

I'm grateful for my family and my friends for their help and support over the years not just with my epilepsy but understanding and supporting me when it affects my mental health

2020-01-12 15:19:53 UTC

Thanks epilepsy action

I feel I am not alone and more things are explained to me.

2020-01-15 14:35:48 UTC

I am grateful for my friends and family with their support in my return to university and helping me get through my exam.

Parkrun

2020-01-20 20:01:00 UTC

I have been walking 5k Parkrun and through the encouragement of my husband and others I am gradually improving my time. Before last year I wouldn't have considered trying this.

2020-01-21 15:18:36 UTC

This course has got me looking at more details about my Epilepsy. Now have far more confidence. Feel able to look outwards instead of retreating inwards. Thank you Epilepsy Action.

I got the train alonw

2020-01-23 14:01:37 UTC

Watercolour course

2020-01-23 16:54:37 UTC

I started doing this at my local library. I was a bit apprehensive as I am not a great artist but was so glad that I went as we are learning basics to start with

I did really well at Parkrun and doing walks alone. Dance classes brilliant but my knees are getting sore so I think that I need to slow down a bit!

2020-01-23 17:14:26 UTC

my family and my partner

2020-01-24 09:22:35 UTC

im grateful to all my family and my partner he works nights but still looks after me during the day does all the shopping etc as i currently will not leave house because of the fear of having a seizute

2020-01-28 00:10:12 UTC

Decluttering
I am so glad that I made a New Year's resolution to de-clutter. I feel as though the extra work has rewarded me by making me feel more satisfied and relaxed.

2020-01-28 23:30:10 UTC

Keeping a journal
I have always loved making lists and ticking jobs off as I do them. Having extra days to do things while my classes were closed made me get too ambitious with my plans. I am happy with my achievements but realise that I should only try to perform one task a day, ideally.

2020-01-30 00:11:19 UTC

Nice knowing I'm not alone!

Since starting this course and seeing others are in very simular situations ie, depression, tiredness and memory problems makes me feel less alone.

Feeling great ive woken up seizure free as ive had a few these last two weeks and they are starting to drain me. This course has also reminded me I am not alone with worries, depression, memory loss and being deflated all the time.

2020-01-30 13:25:35 UTC

my son

2020-02-01 15:49:31 UTC

my son has his passing out parade for the army he starts phase 2 training after this week he has off

2020-02-09 14:59:18 UTC

I've not had a good week! My vitamin d levels are low from recent blood work I had done. I believe this isn't helping my mood. Always a fresh week ahead though so fingers crossed

2020-02-19 17:34:09 UTC

I started to do a few hours returned to phased basis after 18months away!,

Family and medical professionals

2020-02-25 12:51:15 UTC

I feel grateful to my immediate family for the support they have given me regarding my epilepsy. I still find it difficult to speak to others about my epilepsy, and feel there is a stigma attached to it. Lately I have become more accepting of things, and try to make healthy life choices. I am grateful to medical professionals for any help and advice they can give me.

My epilepsy isn't as bad as some others

2020-03-01 20:26:36 UTC

I am just grateful that my epilepsy is quite infrequent, which means I don't have seizures too often. Whilst it has been and can still be traumatic at times, I am still able to almost live my life to the full. For that I'm very grateful. I turn this into an opportunity to give back to the epileptic community by supporting local people at events.

My husband

2020-03-01 21:12:31 UTC

I’m grateful for my husband today and everyday. He’s perfect.

Another week seizure free

2020-03-04 14:17:33 UTC

I don’t like to count the days weeks etc as we all know what can happen
But positive

Response to a blog

2020-03-04 17:21:26 UTC

I wrote a blog recently about my life with epilepsy. This morning a lady from work emailed to say thank you - her husband has just been diagnosed and the blog helped. Her message made the whole thing worthwhile.

Sympathetic GP

2020-03-06 17:19:13 UTC

Despite my best efforts, this is all getting the better of me, and my mood has spiralled down. Luckily I got in to see a lovely GP very quickly and she has started helping me, scheduling followups, and looking after me when I can't really look after myself very well at all.

Moving on!

2020-03-11 16:22:14 UTC

I'm grateful for some important news I received recently, that will help me move on with my life. This has been something that has impacted upon my life and family significantly in the past year or so, and although the news is not the end of the matter, it means I can now look to the future with greater hope and optimism.

2020-03-27 01:04:13 UTC

I'm actually happy there's some downtime because of the coronavirus. It means I can get some study done and relax a bit more.

Colleague Help

robertcresswell — 2020-03-28 09:44:21 UTC

Had my first daytime seizure at lunchtime having lunch with a colleague before the virus restrictions.She was great very understanding and helped. I was pleased she understood and cared. I had them previously at night time. The restaurant were great too and cared.

2020-03-28 13:43:42 UTC

Had a seizure recently in library. I was really embrassed and took three weeks to pluck up the couage to go back to the library. They treated me as they did prior to me having a seizure. I am grateful for their care during my seizure as apparently I stopped breathing and they worked together to keep me safe until the ambulance came

2020-04-04 11:34:11 UTC

Seizure free
I have had no seizures despite the stress of this virus. I also have autism so this virus is really stressful for me with queuing everywhere and people generally on high alert. I am grateful for no seizures.

Passed online Course!

2020-04-05 11:59:16 UTC

Got the result yesterday, and have passed both parts of my course (Principles of Care Planning). Couldn't of done this without the encouragement from my Wife. Not one seizure while doing the course

Support

2020-04-08 15:21:03 UTC

I'am grateful for the support from my Wife. Glad to have mates which I can count as 'True Friends'.

Wonderful people

2020-04-20 14:38:08 UTC

I have been greatly blessed by having supportive employers, family and friends; that has enabled me to live a 'normal' life. Well done and a big thank you.

New Meication

2020-04-28 18:33:43 UTC

My epilepsy nurse recommended a new drug to the consultant which seems to be working. Fingers crossed but they are less severe and I am conscious. Please may it continue.

Grateful for my very patient husband who copes with my mood swings.

2020-04-30 10:03:52 UTC

2020-05-01 12:00:53 UTC

I am grateful my job are keeping me on till I get a start date from my new one which has been postponed due to coronavirus

2020-05-05 11:03:31 UTC

Rainy day
I am enjoying doing my course...thank you🌻

Family support during lockdown

2020-05-06 09:54:54 UTC

My parents have been really helpful during Corona lockdown, it's really hard to get delivery/click & collect slots for groceries etc so we've all been working together, if my husband & I get a delivery slot we check whether my parents want to add anything to our list & if they get a slot they do the same for us. Also they've helped collecting my prescriptions, my chemist is quite near my parents' house so if they know my prescription is due they go & get it (sometimes dad was queuing for an hour!) then we'd collect it from my parents' house when we went to pick up or drop off groceries.

2020-05-08 15:41:43 UTC

Family and my job

2020-05-13 09:54:12 UTC

The chance to learn about my type of epilepsy.

Lovely sun

2020-05-16 18:33:53 UTC

So grateful that Lord is providing much lovely weather. I am grateful for his love and care for me. John 3.16

Confidence

2020-05-18 06:45:13 UTC

During lockdown and being on sick I have done learning courses on different subjects and found that learning and reading has boosted my confidence

The beautiful walks we have found nearby in this time of lock down.

2020-05-20 09:22:29 UTC

Walk

2020-05-24 18:49:30 UTC

Managed to walk without sticks and enjoy nature.

Sunshine, flowers, birds and bugs.

2020-05-27 15:23:11 UTC

Nature

2020-06-01 10:25:16 UTC

Enjoying the sunshine and nature while walking.

My therapist

2020-06-04 13:59:53 UTC

I am so grateful to my therapist who has been giving me a phone call .
She is really helping me through this rubbish time at the moment and keeping my stress levels low

Bird watching

2020-06-07 16:16:01 UTC

Watching the birds with their juveniles- woodpeckers, blackbirds.

Friends & family

2020-06-12 09:08:00 UTC

I am grateful to have such a good support network around me. My family are learning new things every day about my epilepsy and so are my friends. They are all doing this at their own will to make sure whoever I’m around knows what to do if anything should happen to me.

Just Started This Course

2020-06-12 16:10:48 UTC

I already feel less alone <3

My Energy

2020-06-14 16:03:15 UTC

I felt well enough to cook lunch and dinner for my partner today. And made him hot drinks whilst he applied for a job. My amazing partner is often my carer so to be able to do something for him for a change is great for my mental health - he didn't mind too much either. Everyone was a winner today!

2020-06-15 10:06:36 UTC

My family and friends. The house that I currently live in. The fact that my current work is understanding about my epilepsy condition.

2020-06-17 20:46:08 UTC

I'm so grateful for my 2 lovely boys and my loving husband. X

littlechick2002ad — 2020-06-17 20:54:59 UTC

I'm so grateful for my family near and far. For my 2 boys my husband.

Epilepsy and You

2020-06-17 21:26:06 UTC

Thank you to Epilepsy Action for such a great course.

What went well.

2020-06-18 09:18:25 UTC

I've been having good conversations with a friend of mine in this current Covid-19 situation.

Holiday photographs

2020-06-22 10:57:58 UTC

Able to reflect on our previous holidays in this covid-19 period.

What was very useful information for me.

2020-06-23 02:29:59 UTC

Learning about the different types of seizures that there are, was a really big help for me this week. It helped me, to understand better, what might be the actual triggers for my seizures!

Family

2020-06-23 02:31:25 UTC

I'm so lucky to have the parents that I've got. 🥰

Afternoon off work

2020-06-28 10:56:49 UTC

I hadn't been at all well and my manager gave me the afternoon off work and told me to go and enjoy the sunshine, so I did.

No seizures

2020-06-28 11:01:03 UTC

I've done 6 days without a seizure for the first time since March.

Positivity

2020-06-29 10:01:54 UTC

My confidence and self-esteem is increasing, making me more sure of myself.

My family

2020-06-29 16:24:44 UTC

Grateful for having my family around me and all being relatively healthy.

Hi all. Not been on as been hectic. Life.

littlechick2002ad — 2020-06-29 22:40:42 UTC

Started my action plan again. Not very hopeful of the losing weight. Lol. So going with redecorating the youngest. As really want to do that. What does everyone think. Thumbs up or down. I'm hopeful.

What's going well

2020-07-06 13:17:22 UTC

I'm becoming more confident in socialising with others!

Grateful for

2020-07-06 13:18:10 UTC

All I've managed to achieve so far in life

Medical phone calls done

2020-07-06 16:25:21 UTC

I had the week off which gave me time to get through all the medical phone calls I needed to make. Had a lovely chat with my Epilepsy Nurse and came away from the phone calls feeling motivated and with a sense of achievement.

Going out with my friends

2020-07-08 13:16:42 UTC

Having my husband and 6 year old daughter

2020-07-10 11:32:31 UTC

I am grateful that I have my husband and my daughter yasmin. I know when my fits are coming on, and my daughter knows what to do, I don't have grand mall fits anymore and I'm grateful for this also.

Being here today

2020-07-10 11:41:10 UTC

I am grateful for being here today and being able to make my own coffee and do house work. Also that my fits aren't to bad. As there are people that have very bad fits and don't know when they are coming on.

epilepsie — 2020-07-12 15:26:22 UTC

2020-07-13 11:31:40 UTC

My Husband and Kids

2020-07-17 12:16:58 UTC

I am grateful for having my daughter to keep me company as my husband works.

Work

2020-07-19 10:44:19 UTC

enjoying returning back to work

Family

2020-07-19 10:52:20 UTC

I had my bother and cousin round my house for a lovely meal the other day 😋

Just started this course, nice to know there are other people like me with this condition, always felt so lonely and misunderstood

2020-07-23 10:38:38 UTC

littlechick2002ad — 2020-07-25 18:45:36 UTC

So grateful for the lovin husband and beautiful boys I have. Grateful for the rain watering my garden. Even tho I did get caught in it 😅

2020-07-27 12:55:47 UTC

Being with my family and being able to stay with yasmin and making myself coffee

I’m feeling really grateful for the sound of the wind outside right now. And for this picture of a fish and my partner wearing a toilet roll.

2020-07-28 17:35:45 UTC

Can't beat friends

robertedwardsclarke — 2020-07-31 10:30:04 UTC

2020-07-31 12:48:00 UTC

My week didn't go to well, had a few non epiltic fits

littlechick2002ad — 2020-08-02 12:27:49 UTC

I am grateful for pain relief at the mo. Sad to say I have injured my back. So the 1 side is killing. I lifted my 8 year old when he is a little 2 heavy for me.

Grateful for family ❤❤

littlechick2002ad — 2020-08-02 13:06:16 UTC

2020-08-10 10:37:30 UTC

Looking forward to my Stay-cation :-)

Getting Crafty

2020-08-10 23:19:42 UTC

I made an amazing rosette today, it will be used on our website and social media as a sample to potential customers :)

Ponies

2020-08-10 23:28:05 UTC

My little Cob decided to drink some water which hay had been soaking in today and when he looked up after drinking it, his top lip curled up as if to say "That was awesome!" He is also getting used to me putting suncream on his nose and putting fly spray on him as he doesn't like the noise of the bottle.

Mental Health

2020-08-11 17:04:18 UTC

I didn't kill myself

My friends

2020-08-12 10:45:09 UTC

They are the most amazing support system. Looking after me and supporting my family too when we all have a wobble

the NHS

2020-08-12 12:27:01 UTC

Lovely therapist who's helping me through a very tough time right now. I had to sit on a waiting list but nowhere near as long as I thought I would, and worth every minute. She's a thousand times better (for me at least) than some I've paid to see. Bless the NHS!!!

Walking my dog

2020-08-14 14:35:56 UTC

Even on my most tired days she gets me out of the house, either to sit in the garden with her or a walk together

My wonderful wife

2020-08-18 10:21:01 UTC

I'm grateful for her smile every morning, her support throughout sunny and rainy days, her jokes, her hugs and her being here always. I love you Jo!

Lovely weekend.

2020-08-18 18:04:08 UTC

Curled up on the sofa with my fella. Listening to the rain outside and watching the snooker. Simple pleasures.

I’m feeling strong to carry on without the support of my therapist now. I’ve had now tonic seizures for 12 months

2020-08-21 08:38:16 UTC

Good news

2020-08-21 09:39:01 UTC

Had some brilliant news today, Feel less anxious cause of it.

Country pub

2020-08-23 12:20:18 UTC

I visited a great pub for lunch with family. A real treat.

Baking

2020-09-07 13:00:53 UTC

I made a chocolate cake this week. Haven’t been up to cooking for a while. Shared it with the family

My Partner and Family

2020-09-07 14:01:44 UTC

My seizure numbers have increased these last few weeks/ months but I'm grateful for my partner and family for their support and for encouraging me to keep going each day :)

Grateful

2020-09-12 16:22:22 UTC

I’ve just started this course but then had very bad fit (first in 6 months). I was feeling really depressed afterwards but after few days and going through my course I feel absolutely wonderful, I now realise what prompted it and how I can try and cope better next time. It’s so good listening to other people’s stories; first time in years I don’t feel alone , 🙏🏼

My neurologist appointment

2020-09-15 15:28:45 UTC

I have a video consultation with a new doctor soon. Hoping he can help control my seizures

Pleased

2020-09-22 08:43:33 UTC

Im so pleased to have come across this course and Epilepsy Action, it’s helping me in so many positive ways.

Lucky to live here

2020-09-22 16:35:49 UTC

lucky to live somewhere with warm people. The man at the veg stall let me off for not having enough change by 35p today.

Feeling good

2020-09-25 19:42:13 UTC

This week I’ve had no seizures, I’ve been sleeping well and feeling quite good

Family

2020-09-27 07:47:54 UTC

We ordered a take away, sat at the dining table for hours and chatted , laughed and reminisced. It reminded me of what I used to be able to do and gave me the inspiration to find new adventures

2020-10-09 11:32:19 UTC

My family is happy and healthy

Feeling good I’ve had no seizures

2020-10-11 15:36:33 UTC

recently and feel quite well rested

The sun is shining!

johnsondon1 — 2020-10-14 18:57:02 UTC

Summer is here :)

2020-10-28 16:13:51 UTC

My family
Thanks to all my family son daughter and husband if not for them I don't know how I could cope , expressly when I have a seizure

2020-11-03 15:59:24 UTC

A good birthday

I received a job offer and so did my wife!

2020-11-05 10:42:58 UTC

After a long and stressful period of living off our savings, we both received job offers. It's good to be back on track.

Mood improvement

2020-11-09 15:22:00 UTC

Ready to start doing this course again. A little bit goes a long way

Knitting. It’s been a great way to de stress and I’m gradually getting better at it

2020-11-09 15:56:51 UTC

2020-11-13 10:24:05 UTC

my husband and son always there to help me i am lucky

2020-11-15 17:05:12 UTC

Grateful to be happy in my life. Lovely pets, space and fresh air

2020-11-15 18:01:52 UTC

I've had a lovely walk, a lovely run in the rain 🏃‍♀️. I've had a bowl of soup and the heating is on. Dog is asleep on my knee.. Peacefully blissful Sunday

2020-11-20 11:52:02 UTC

Husband
I'm grateful to meet my husband as now this have got brighter.

Wonderful

2020-11-20 12:33:36 UTC

I’m greatful because my son drawn me a picture of me and him.

2020-11-20 16:44:22 UTC

I was able to speak with my mum on the phone today

2020-11-23 10:07:00 UTC

Grateful for a roof over my head and my pets for helping me through yet another day of covid restrictions. When you only interact with other humans at your workplace, the noisy, messy bedlum which is home is very loved!!

2020-11-23 12:51:38 UTC

Meeting my husband and having him around me

Just on second week of this course and had 2nd Zoom call last week. Certainly helps to see how others are coping and good not to feel so alone with the condition

2020-11-26 15:44:18 UTC

2020-11-26 21:13:01 UTC

Comfy bed snuggled down with my dogs 😴❤️

starting to believe in Me

2020-12-03 16:15:50 UTC

thanks to this course i think epilepsy and I after 44years of being enemies might start to be friends .HOPEFULLY

Being indoors when it's absolutely freezing outside!

2020-12-03 17:31:29 UTC

Talked about worries about my job to my manager. Now realise I'm not responsible for all that doesn't get done so I don't feel so anxious.

2020-12-04 14:10:37 UTC

2020-12-09 18:14:58 UTC

Independent living
I Kent on someone for emotional support and they couldn't cope. I'm grateful for my abity to shake myself off and remain independent. I won't make the same mistake again

My son

2020-12-15 20:39:03 UTC

He has done so well this year, considering what we are all going through, im so proud of him and how he has handled everything ❤

My partner

2020-12-16 12:47:04 UTC

For knowing when I need someone to vent to when thing get tough. Soon to be new parents, its a nervous and exciting time all in one!

Learning our new puppy tricks

2020-12-31 14:55:14 UTC

Our puppy makes me feel happy

New Year

2021-01-02 14:39:23 UTC

Felt great to connect with friends and loved ones albeit by whatsapp mostly! I have isolated myself so much after learning I had seizures and the effects of the medications...still on trial!

Motivation

2021-01-04 10:30:38 UTC

Commitment to keep learning about my epilepsy even though it's hard to face

2021-01-07 21:55:25 UTC

Close friends
I can send them a ranty text and they respond in true form! 😂

Back to work woo hoo

2021-01-11 21:25:22 UTC

Back to work today after a few months off. Can’t remember a thing but my team are so supportive. Need all the luck to hopefully be able to remember once retrained.

2021-01-17 11:27:00 UTC

Struggled back at work (first week back after sickness leave)
Really tried my hardest but I am so glad I didn’t get upset about this and next week can only be better.... finger crossed

g

2021-01-21 15:08:45 UTC

More Confident.

2021-01-21 21:07:17 UTC

Pushing for help from doctors and epilepsy nurse who seemed to forget appointments with tablet change.

2021-01-24 17:00:32 UTC

So Grateful for my little puppy x

2021-01-31 20:06:08 UTC

Stages

2021-02-14 13:35:16 UTC

Having my mum helping me with little positive remarks to control my anxiety which start my seizures.

My best friend

2021-02-17 01:22:42 UTC

She has supported me through a really tough time

2021-02-24 06:30:53 UTC

Staying positive
My family gave me an e-bike after my 3rd seizure, so generous.

Enjoying the countryside

2021-02-28 20:55:35 UTC

A good friend and I cycled through the villages

Just finished the first day of my phased return at work.

2021-03-01 14:15:35 UTC

I’m tired but I think it went OK.

I’m grateful for the sun shining right now and the birds singing outside.

2021-03-17 14:34:17 UTC

I’ve promised myself I’ll work on my course and then go for a nice walk in the sunshine.

My friends

2021-03-21 18:09:56 UTC

LOvely walk yesterday since my daughter and walking buddy has gone away to work . Friend also said she would drive me to garden centre or even to my parents if needed ..

Feeling less anxious.

2021-03-24 12:56:47 UTC

I’ve been feeling more positive this week and enjoying a new task my boss has set me.

Finished a really good book

2021-03-27 13:28:40 UTC

I'm grateful to my therapist. She has been the support I didn't know I needed and helped me through a really dark time.

2021-03-27 13:32:40 UTC

Spring is springing

2021-03-31 11:55:56 UTC

THe change in weather has really improved my mood! My garden looks good (even if I do say so myself!) Andy I’m trying to take time to me mindful, sit outside and enjoy the natural beauty.

Enjoying being out in my garden

2021-03-31 20:37:30 UTC

I managed to mow the lawn yesterday after work. Two tiring tasks and although really tired I had a strong sense of achievement.

The library is open again

2021-04-04 16:33:53 UTC

I have something new to read!

Getting out

2021-04-04 16:42:48 UTC

Collecting my library books and going for a walk in the sunshine

Sunny days

2021-04-06 14:45:17 UTC

Glimpse of summer to come, lots of gardening and family time..

Success

2021-04-06 16:49:13 UTC

So happy that I managed to finally solve an IT problem that has been bugging me.

My Two Grandsons

2021-04-07 14:20:12 UTC

Every time I see them it makes me feel a Million Dollars. The love from them makes everything worthwhile.

A challenging but rewarding day in the Garden.

2021-04-11 08:03:34 UTC

I’ve had a tough week at work and was feeling really down as things had been going well. Yesterday my husband and I worked in the garden and the transformation really boosted my mood! Can’t wait to get some lovely flowers for our pots and borders!

Positive

2021-04-11 11:16:41 UTC

I applied for a job this week

Decorating my kitchen and it's almost finished. Also playing tennis outside recently

2021-04-14 14:18:36 UTC

Concentration

2021-04-21 13:12:31 UTC

Instead of doing all those things around the house that needed doing, at the weekend I sat down and read two books, and didn't even feel guilty. I am grateful that I had the concentration to do that, even though I then had three seizures on Monday.

Being outside in the sunshine and driving with the sunroof opened

2021-04-26 12:23:02 UTC

Out and about

2021-05-03 13:29:19 UTC

Able to leave the house for the first time in a while. Went to an exhibition and walked down the hill in the sunshine. Felt exhausted but happy when I got home.

Plants

2021-05-09 14:26:03 UTC

The lettuce seeds on my kitchen windowsill have just sprouted.

Reading

2021-05-16 15:18:54 UTC

I'm on my third book of the week

My son and family

2021-05-24 22:02:59 UTC

I have had a good weekend with my son takin him swimming with his granny... to the park with his friend and the cinema with with his cousin and staying at my mums with him havin dinner with my family very blessed ❤

2021-06-17 12:41:54 UTC

I did all my washing today and tidied up the entire house

My Flat!

sulizarke — 2021-07-04 20:57:17 UTC

I love that it has a private entrance & private back garden. I also love that its in a quiet location (quiet road) with friendly, quiet & nice neighbours. I also that I'm able to hear & watch birds!

My Flat

sulizarke — 2021-07-04 21:08:20 UTC

I love the fact that it has a private garden & entrance. I also love that its in a quiet location on a quiet street. That I'm able watch hear & watch birds - it so wonderful to hear them sing!

Hen Do

2021-07-13 17:26:10 UTC

I’m grateful that I managed to attend my friends Hen Do, take part in the organised games and dance a little. :-)

2021-08-02 10:57:53 UTC

Went on trip to York at weekend with a couple of friends and it was awesome

Being Alive

2021-08-02 19:47:12 UTC

So grateful for having my family who looked after me when I had a break down a few years ago and nearly died while being in a coma for a week.

Am Alive and Grateful.

2021-08-04 17:06:12 UTC

I am so lucky to be alive and taking each day as it comes, because I had a break down in 2018 and ended up in a coma for a week and nearly died. My family where really good to me and looked after me advising me what to do, and I slowly got back to myself.

Meeting up with my cousin and family friend.

2021-08-08 16:11:49 UTC

Went with my mum to see my cousin and a family friend for a bite to eat and drink in a local Wetherspoon's not far from where I live, was great to see them and catch up too.

2021-08-09 15:27:23 UTC

I have a wonderful supportive husband and daughter x

Alvin

2021-08-11 21:35:35 UTC

I am grateful for my lovely little boy Alvin.

Recharged the batteries

2021-08-13 15:05:40 UTC

Went on a 3 day break with my partner Leeann to Ballyliffin in Donegal, Ireland. Absolutely beautiful part of the world with stunning beaches and scenery. Before the trip i was feeling sick with seizures having up to 12 per day for around 5 weeks and severe headaches. For the 3 days we were away i had nothing but a clear head and no seizure which was so good. If there is a god he must have been looking after me that few days. I after been blessed with a great girl in Leeann who has to put up with a lot and 3 great kids between us.

Grateful

2021-08-14 13:41:14 UTC

I am grateful that I have a supportive family and an understanding manager

Geocaching

2021-08-16 14:55:32 UTC

Went out for breakfast & on a Geocaching trip with my friend Vickie. Took us to new places and found beautiful woods and parks we had not visited before. We also managed to find a reasonable number of caches with the weather staying mainly dry. If you see people hanging around outside & they don’t look like they are the type to be up to no good they may be on an online treasure hunt - like me! 😊

Visiting Nan

2021-08-16 19:02:26 UTC

I had a lovely day visiting my Nan in her care home in Waterloo called "Woolston Mead", she is not in good health but knows who I am and it was lovely to see her even though she slept while I was their and woke up just has we had to leave.

Tea out with Family

2021-08-16 21:48:20 UTC

Went for my tea out with my Mum and Sister to a lovely pub called "The Grapes" which is a sizzler and we got their about 4pm to get a deal before 5pm, I had a subloader with tandori chicken/mint yoghurt and salad along with chips and side salad with blackcurrant cordial. My mum and sister had the same scampi /chips and peas with tartar sauce and afterwards apple crumble with ice cream and a jug of custard with a blackcurrant and soda both for £4.99 great deal and all for under £20.00 what lovely food and treated to off mum before going home.

Fantastic support

2021-08-22 14:29:07 UTC

I a, grateful for the support and understanding that I have from my friends and family.

Tai Chi

2021-08-25 21:54:30 UTC

I am so happy that I was able to get back to my Tai Chi lessons this year at the local leisure centre where I was attending for 3 years before the lockdown, and I am gradually getting the routine back in my head but enjoy doing it for my epilepsy and meeting new friends to socialise with.

Visited Albert Dock.

2021-08-29 15:33:11 UTC

On Saturday 28th August 2021 I met my friend at 12pm and we both got the train to a stop called Moorfields in the City Centre, we then went for a drink in a cafe called Pret Manger where I had a decaf cappuccino and bought my friend a bottle of water which the girl put through by accident-hehe so much so my friend got a free crossiant to eat. From their we went to the Albert Dock and had some dinner in a pub called "The Pump House" but when we ordered we never knew their was a 50minute wait with the bank holiday, never the less hours still got rushed through even though others had waited longer, afterwards went a walk around the Albert Dock and had a look in some shops where I bought some salted peanut chocolate to eat after with my mum and sister. We then walked into Liverpool One and towards central station but went for a drink in a bar called the "Head of Steam" before getting the train home and then the bus.

My Wife

2021-09-02 15:53:11 UTC

Who has been my rock for over forty years. My main carer she has enabled me to have an almost normal social life & always been there to make sure I attend appointments, whether they be health or fundraising, by being my personal taxi! Always being there for my personal needs or being the spur to encourage the epilepsy support group. I owe her my life, she is my life.

I have a fantastic and supportive son

2021-09-04 08:44:19 UTC

Mums 65th Birthday

2021-09-04 19:47:55 UTC

Spending time with mum on her 65th Birthday which was on Wednesday 1st September, gave her cad and gifts between us and big box of chocolates too. Took her out for the day to a place called Ormskirk for a coffee and then got small shop in Morrisons before taking her for a meal at 5pm.

Health Assessment

2021-09-07 11:09:48 UTC

Went for a health assessment to my local leisure centre at 11am with Mum, seen Glen one of the personal trainers who put me on a sports timetable to do at my own leisure and my goal was to keep fit and lose more weight.

Studying Epilepsy Courses

2021-09-08 15:43:11 UTC

I found studying the Epilepsy Courses I have done so far very interesting and they have helped me get a better understanding of my condition, I hope to achieve a certificate of some kind afterwards for if I ever take up doing voluntary work and help people who want to make friends with myself.

Colouring Book.

2021-09-09 15:53:31 UTC

While sitting here most nights I like to pick my colouring books up and choose which patterns or pictures to colour in with my colouring in pencils.
I also like to colour in with my felt tip pens and colour the stained glass book or other patterns and pictures to keep me calm and decided which colours to choose.

Leisure and Tourism

2021-09-10 10:47:55 UTC

When I left High School I went on to the Sixth Form College that was attached to the school and decided to study Intermediate Leisure and Tourism with a few people from my school year who I had known for so long, I attended different classes with different tutors and learned quite a lot about the industry but at that time in my life I hit a few obstacles with my epilepsy and could not do most of the work that I really loved and enjoyed. However I did really well to my knowledge and got the top mark which was a "distinction".

Different Work Places.

2021-09-13 17:24:47 UTC

During high school I took part in different work placements to give me an insight to what it would be like in the big wide world when I got older, I worked in British Gas/Archbishop Beck School Office/Different Letherby and Christopher Events for sports and a day in a travel agents calleFirst choice.
When I left high school I got a Saturday job in a bakery called sayers, and not longer after I done office work in a place called working links. I then went through a work placement in town called JHP and they got me a years job has a administration assistant in John Moores Art and Design school where I did different day courses and got certificates, after leaving their I then got sick with my epilepsy and throughout the years I have had different voluntary work and done different courses with the hope of staying in a permanent job position but unfortunately with my health I always seem to hit a obstacle of some kind or not get to where I want, hopefully my dream will come true eventually.

2021-09-13 23:01:38 UTC

I feel BLESSED for the family, friends, NHS staff in my life who support me 💜

Massage

2021-09-15 13:02:43 UTC

Today 15th September 2021 I have a Full body massage booked at 4pm with a masseur named Lucia, it is at a local shop called "Buddha Therapies".
I recently started going their after the lockdown was shifted, and make it every 5 or 6 weeks depending on how I feel. They also do different courses to study which I might look into so I have the experience and knowledge to do.

Neurology appointment

2021-09-16 11:26:51 UTC

Today I received my first face to face Neurology appointment where I’m hoping to get some answers and maybe some more tests to identify why my seizures have returned with some horrendous side effects after 26 years seizure free!

I'm so blessed to have 2 of the most precious children a Dad could ever want. I can't be with them all the time as mum and I are no longer together. I love them both with all my heart and i'll always be here for you.

2021-09-16 18:49:00 UTC

Fresh Start

2021-09-16 19:06:02 UTC

Hoping for a fresh start with my 2 children soon and look forward to better healthier days

Love you mum

2021-09-16 19:28:15 UTC

I'm grateful for good neighbours. Half a mile away but being able to help them out of tight spots makes me feel a little bit worthy of my space on the planet... especially when I feel stupid and worthless at times

2021-09-17 13:58:23 UTC

Grateful for friends family and music

2021-09-17 19:29:03 UTC

2021-09-17 19:29:58 UTC

Grateful for friends family and music

Riding My Bike

2021-09-18 19:54:45 UTC

When I was 7 my Grandad bought me a new bike and it had the stabilisers on the back so it felt safe when riding it, it was a lovely silver bike and it was called "Debbie".
When staying in my Nan and Grandad's of a weekend he use to take me over to a park called "Croxteth Hall and country Park", where he would give me advice and tips of how to ride a bike. So this particular day when we went he took my stabilisers off and I learned how to ride a bike when I was 7 years old, it felt great and from that day I have never forgot it stays within side of me and hope to get back riding one eventually with a helmet on.

Friends

2021-09-20 09:15:06 UTC

Grateful to spend the evening with an old friend.

Permission to be angry

seanmullan — 2021-09-27 17:54:18 UTC

I was working through an Epilepsy work book today. It made me look at my goals and I struggled. To cut a long story short, this made me angry. I needed to get angry as it made me look specifically at what was making me angry but I was afraid to say out loud or write down. The things, situations, circumstances that have held me back. The things holding me back now. Things that might back in the future.

i am thankful for having the pointer that allowed me to put words to things and for having the support to let these things out in a safe and supported space.

Sister's 35th Birthday.

2021-10-03 22:15:35 UTC

I woke up on 25th September 2021 when it was my sister's birthday and she picked the cards up from the floor to open, I then brought my gifts down to give her and Mum done the same.
We then had a mug of tea and some breakfast before she opened her cards and started to open her gifts which she loved, had a coffee and listened to some birthday songs on my tablet from Spotify in the conservatory while chatting to our Nicola. Not long after we then had some dinner and a mug of tea, she opened some more gifts before going to see what she was wearing and to get a shower. I then went to see what I was wearing and to sort my handbag out, about 5:30pm we left ours and our Nicola drove us to "The Stanley Arms" in Aughton for a meal which I booked for 6pm. We then got their and I decided to have the lasagne and so did our Nicola, Mum had fish and chips with mushy peas and I had two glasses of blackcurrant cordial and Mum and my sister had orange britvic 55. Around 7:45pm she then drove us back home, and opened her gift between us which was the chocolates and she loved them with being a big box.

I did nothing to day

seanmullan — 2021-10-03 22:17:26 UTC

Absolutely nothing. And I loved every relaxing minute of it.

Cross Stitch Packs.

2021-10-05 18:59:19 UTC

One of the activities I like to do in my spare time or when I get chance is cross stitch, especially in the winter months when the nights are getting darker.
I have already completed quite a few different packs and framed them, and am in the middle of finishing off another one which hopefully will be done soon and then I will look for a frame.
I have other packs to do after that which are big or small, and hope to complete quite a few of them too.

Dancing

2021-10-06 19:35:03 UTC

When I was little and went to my local infant and junior school called "Holy Name" I was friends with 3 sisters who lived nearby and my mum was friends with their mum too, so every so often I would get a lift home from their dad and go to a local dance school called "Premier" where I learned tap and ballet which was also good to do at the time and got a small bronze medal along with a certificate too.

Golf

2021-10-10 09:02:25 UTC

I played a fantastic round of golf this week.

Different Voluntary Work.

2021-10-11 11:37:51 UTC

After trying my best to get a job when I was younger, I then went and enquired about doing some volunteer work.
I first done some voluntary work with the WRVS -(Women's Royal Voluntary Service) where I worked in the local shop and then stocked the trolley to go around the wards to see if patients wanted any goods or accessories, I then done voluntary in the main hospital - (Aintree University Hospital) and worked in a mobile office unit at the back doing I.T and admin work for the disability coordinator it was their I met my friend Colette who I have been friends with ever since.
After becoming unwell again with my epilepsy for a few months I then tried volunteer work in the Walton Neurology Hospital and done meeting and greeting for any of the visitors going to clinics or visiting family/friends on wards where I had the experience of already being a patient.
From their I then tried volunteering in a local women's group who got pregnant early and done some admin work on the reception area for a few hours, I then had another bad time with my health for a few months.
So most of the time I tried doing different volunteer work in places but some how I became unwell with my epilepsy and would have to start all over again doing different courses, doing different volunteer work or trying to do activities with different groups that kept my mind going and still to this day I am doing the same but feel much better in myself and my epilepsy is more under control with doing this course and the help of family and friends who I like to keep in touch with and hope to visit when things get gradually back to normal.

Course

2021-10-11 13:55:54 UTC

I am grateful to be allowed to undertake this course. I appreciate the cost and effort which has gone into designing it.

2021-10-12 18:54:32 UTC

I decided I am not going to let this beat me

Getting There …..

2021-10-12 19:06:35 UTC

I found being diagnosed with Epilepsy really difficult. I have never been the person with an illness. I have always been the strong and positive one, always doing some crazy fund raising or ultra challenge. When I found out, I sunk into fear and low self esteem, I couldn’t be bothered with my sports and I felt everyone was looking at me saying there is the one that needs to be watched over.
I am finally getting past my fears and proving I can live the same life just with tablets to manage my epilepsy. It’s hard as I don’t have as much energy and definitely more fatigued but hey things could be ALOT worse xx
A positive attitude and happy thoughts always help.

My frens

2021-10-15 16:32:08 UTC

When, I spend some time with my family and friends I feel so happy

Walk and Drink.

2021-10-23 22:02:19 UTC

Went for a walk to the local pub called "The Vikings Landing" on Saturday 23/10/21 with my Sister Nicola, we then had a cheesy ciabatta bread each and I had a small cappuccino and my sister had a pint of lime soda.
We then sat for a hour and chatted calmly about the way we had a lovely time on holiday and that am looking at doing more courses or other places to visit and mix to make new friends, then we walked back home and chilled the rest of the day.

Visited a Tai Chi Friend.

2021-10-31 20:29:27 UTC

On Friday 29th October I had booked in on the mobile volair app to do my low circuit at 11:15am, so I got up at 9:30am and had my breakfast which was porridge and nuts, I then got dressed and just before I left to get the bus our Nicola woke up so we briefly spoke and left mum sleeping in bed.
I then went to get the bus to my leisure centre in Kirkby and Glen had arrived to do the class, not very many attended but it was enough for him to teach. Turned out really good fun and afterwards bought Paul and Carol a Cappuccino from the coffee wagon before going to visit my friend Dolly who I know from Tai Chi, she had done Butter nut Squash soup with 2 slices of rye bread and a mug of tea then afterwards chicken salad with a dressing and a mug of coffee to drink while we chatted and catched up.

2021-11-18 16:32:07 UTC

I feel so blessed having such a supportive, understanding husband. He is my rock. He's a diamond.

I am grateful I have found this support group. I felt so alone before.

2021-11-18 16:54:02 UTC

I am grateful to my daughter ,she has been my rock without her I wouldn't have got where I am now

2021-11-25 21:59:04 UTC

2021-11-27 16:12:46 UTC

I had an EEG this week, I know await the results

I have no seizures and am feeling more at peace with myself emotionally and psychologically. I feel hopeful about my future for the first time and am looking forward to hopefully getting my driving licence back in 10 months, finger's crossed!!

2021-12-01 14:18:51 UTC

Old Friends

2021-12-01 16:02:40 UTC

Have been to see an old friend today and chatted about our youth. Made me feel more positive about the future and less anxious!

Challenging myself

2021-12-03 11:43:15 UTC

I have completed some different tasks independently this week that I have put off doing and have felt more confident and less worried doing them, which is a bonus too!

Moving forwards!

2021-12-06 14:34:15 UTC

I am grateful for my husband and his understanding whilst I come to terms with my diagnosis and life changing past year!

I am grateful for my family who still love me even when I am grumpy and exhausted because my epilepsy just makes me crazy tired.

2021-12-06 19:10:32 UTC

Feeling more confident!

2021-12-07 12:45:17 UTC

I am grateful for being able to access this course and learn more about my condition, which in turn has increased my overall confidence and lessened my feelings of isolation. Knowledge and understanding is very empowering!

Family!

2021-12-09 12:47:52 UTC

I am grateful for my family, especially my husband and children who support and love me whatever, throughout the roller coaster ride in life I am on at the moment!

My dog!

2021-12-09 13:22:41 UTC

She has been part of my life for 15 years and is still a big part of my daily routine. She walks much more slowly now, but be still go out together each day whatever the weather!

Windy walk with the dog!

2021-12-10 13:56:13 UTC

Had a blustery walk with my dog this morning, then brushed up leaves outside.
Being active outside in the fresh air is really good for my mind and soul!

Christmas with the family!

2021-12-13 11:55:56 UTC

We are all hopefully gathering for Christmas lunch at my daughters house. She had to cancel her plans for hosting last year in her new home and is very excited about it now!

Epilepsy Action!

2021-12-13 12:20:45 UTC

I am grateful for this course and the understanding of the helpline volunteers who guided me to realise that I am not alone and this helped me accept my diagnosis!

Gratitude

2021-12-15 11:23:29 UTC

I'm grateful I had a good night's sleep and while I had a seizure it was incredibly mild which shows my new medication is working but may need increasing slightly again, but this gives me hope that I will become seizure-free and get my driving licence back

Feeling hopeful

2021-12-15 11:27:52 UTC

New Year New Life

2022-01-02 21:16:51 UTC

I am grateful for making it through to the new year after all the scares and close calls I had last year, as well as hopeful that I will succeed in my first year at university.

dawn today

2022-01-03 11:48:21 UTC

I saw the sun rise over the sea this morning.

Over the last week I am grateful that my new epilepsy medication is working. I've had no seizures and feel very peaceful inside my head, heart and stomach. My anxiety levels have dropped significantly - yahoo!!!!

2022-01-06 11:30:55 UTC

I am grateful to still be seizure free on my new medication

2022-01-10 10:28:52 UTC

Left the house

2022-01-14 16:24:50 UTC

Walked around a lake, water frozen, gulls sitting on top. Sun shining, passers by said hello

Delayed xmas pressies

2022-01-21 14:54:45 UTC

I saw my son for the first time this year - my choice due black depression in December, unable to see or speak or text anyone. Medications changed again back to feeing "normal" He delivered our presents including handmake ones from grand children

University

2022-01-24 21:26:58 UTC

I'm grateful that my first semester of University has gone generally well despite the scares and stress during it, hopeful for a successful year into the second semester.

Snowdrops

2022-01-28 17:03:32 UTC

Working in garden in sunshine and my husband pointing out the snowdrops. Simply magic

weekend

2022-01-30 21:05:40 UTC

Got to meet up with friends John and Linda and had a nice lunch

Planning my 60th Birthday

2022-01-30 21:28:01 UTC

My 60th Birthday is on the 15th February looking forward to holiday in Oban

coped well with hospital appointments. enjoyed the ride in the sunshine. Noticed snowdrops and crocus. Saw my Grandkids first time this year

2022-02-08 16:03:34 UTC

made it!!

2022-02-24 16:04:16 UTC

managed to get to see grandkids and enjoy their birthday celebrations

seeds growing

2022-03-15 16:47:14 UTC

garden coming to life new colour and growth every day

family

2022-04-06 10:58:01 UTC

visit from my son and grandson. having both sons together for coffee and croissant

I am so lucky...

2022-04-13 19:18:54 UTC

...to have a partner that isn't phased at all by me being epileptic - she accepted it long before I did. I can't imagine life without her.

Went out for coffee this morning

2022-04-14 14:48:39 UTC

Had a lovely toastie and tea with my friend and my partner. Starting to feel a lot more 'with it' since my last seizure so I was able to enjoy it!

Got a new job

2022-04-15 13:22:46 UTC

Finally went out and applied for a new job to get myself out the house and recently got offered one locally. So I am excited to be getting back to work after everything that has happened over the last year.

I'm gonna be an uncle.

2022-04-15 18:37:28 UTC

Got the news from my brother this week that he and his partner are having their first child together this year I'm so happy for them. Considering everything that has happened over the last 2 years and my condition kicking in with a vengeance its always good to hear about new life entering the family.

Passed all my Assessments so far

2022-04-16 09:52:41 UTC

Nearing the end of my first year of University and so far have passed every assessment given to me so far. Happy at least in one thing for a change I'm actually doing well in so far not perfect but passing.

I am grateful to finaly get a diagnosis and have things cleared up for me

2022-04-27 15:58:31 UTC

Still lacking confidence going out on my own I've tonic - clonic seizures so no warnings what so ever and every seizure it's either severe head injuries or cuts or bruises I don't know who anyone including my partner or kids for agood while and always try wandering away as don't know anything I've also anxiety and depression looking to speak to some one who suffers similar as cut ties with friend's just want abit of my confidence back thanks for reading

2022-05-18 08:54:05 UTC

made it to watch

2022-05-24 10:25:20 UTC

got to leave the house and watch my granddaughter perform in gymnastics competition

Me and my husband

2022-05-26 14:11:36 UTC

Yesterday 10 years ago we moved into our first place at 21. Now we are married with 3 children. Very proud of how far ive come and i couldnt of done it without him.

Work

2022-06-27 13:50:04 UTC

I'm glad I have been able to get back into work and socialise with a lot more people than I otherwise might not have been great for mental health.

I'm grateful for...

2022-07-09 21:45:19 UTC

this course. And other resources helping me to understand what's going on with my body, and how I can try to manage it - even when doctors aren't sure of that yet!

Holiday

2022-07-11 12:39:51 UTC

I finally going abroad after a mental year I'm gonna enjoy sun and sea for the first time in 3 years I'm so happy I can finally do something like that again.

My parents, my dogs and plants!

2022-07-11 22:48:23 UTC

Music, kind people, auto-fill on email apps!

2022-07-21 20:30:49 UTC

Rugby

2022-08-15 16:39:08 UTC

I’m grateful to realise after my seizures how lucky I am to be able to do things like play rugby which is a passion of mine.

Family

2022-09-10 16:45:07 UTC

I am grateful to spend time with my family

My 3 cats!

2022-10-16 15:00:59 UTC

All different personalities and attitudes, they bring me so much joy!

Lovely son

2022-10-17 10:56:24 UTC

I'm grateful for my lovely baby boy and the joy he gives me and the hope I get that I ain't alone

Getting out

2022-10-17 11:05:37 UTC

Since having a tonic clonic seizure on the ward where i work as a nurse in January I've been having a seizure a week - ish. Having been diagnosed with Epilepsy at 16 and being fairly well controlled on carbamazepam I've lived and managed my Epilepsy fairly well loosing a few teeth along the way.
However my sodium level started dropping which is apparently a side effect of carbamazepam. I also recently lost my brother to traumatic suicide so think stress has had a big impact.
Since January I've tried several different medication. Had frequent, unpredictable seizures- one in the middle of the road and been off work not really leaving house alone.
But last week I did. I met my cousin that lives away and I hadn't seen in ages in the city. It was really lovely to see her and I got the bus back on my own. I also have a star of a 5 year old daughter and lovely (most of time) husband and generally am coping but it's challenging.

Epilepsy, Brain Damage, Heart Scenario and You

2022-11-09 08:00:25 UTC

Great children, Confident Children

My Garden looks lovely, bird life.

Orchard finally sorted.

Catherin, In Love.

My wonderful partner

2022-11-09 10:12:06 UTC

I'm so greatful for the lovely man I have by my side, who proposed to me last week! Very greatful for him!

Seizure free

2022-11-10 12:20:55 UTC

I'm currently over 3 years seizure free

For being alive still and being able to see my beautiful Fluff balls

2022-11-14 11:58:57 UTC

2022-11-25 17:45:22 UTC

I am feeling happier as I have moved and I am getting out and about more with my daughter

Enjoyed playing rehearsal for Newport Orchestra Christmas concert

2022-12-02 15:15:54 UTC

Epilepsy Action

2022-12-18 13:53:23 UTC

For being there. Epilepsy is such a silent, misunderstood condition with little funding. It's not just about the seizures, you've got to live with it. I've had the condition for 30 years but since January it's worsened and I've hardly left the house alone. Without Epilepsy Action there's very little practical and emotional support specific to the condition, keep up the good work.

Yoga

2023-02-06 23:01:38 UTC

I've done some yoga today and we had a night out child free on Saturday night. It was lovely to see family- a rare occasion but great to get dressed up and have time together. I know alcoholic drinks are definitely a trigger but can get away with 1-2 glasses of real wine but am really enjoying non alcoholic options available.

Seizure

2023-02-06 23:08:57 UTC

Had one last week after 6 weeks. I feel really disappointed as am on 3 new drugs but it's the longest I've been in 12 months. I was reading to my 5 year old at the time and she was a superstar. Made sure Mummy had pillow under head, went and got Daddy but was so calm.

Reaching out

2023-03-02 09:16:45 UTC

It's been a really challenging few years. I feel like I'm getting somewhere then another cluster of seizures. This year I've been unable to work but have reached out for support where available which has given me an element of control and kept me going although not always easy sometimes necessary. Last Saturday we we're invited to a party. So lovely to get dressed up and be amongst lovely people that we're pleased to see me. We also had fish and chips in front of the fire with my elderly Dad which made him happy and had a night in a lovely hotel by the sea with my husband and daughter. Spending time alone with my daughter has been impossible lately. With lots of safety planning we had a great few hours on the beach. All of these opportunities have given me happiness, confidence and the will to carry on.

Relieved

2023-03-02 14:50:20 UTC

I'm grateful that my blood test results all came back fine, I'm in good health

my beautiful girls who mean everything to me.

2023-03-05 11:47:11 UTC

No seizures this week which is positive. Have done some lovely spring craft with my daughter and a friend came round for hours of coffee, chocolate and chat which was lovely.

2023-03-12 21:49:41 UTC

Struggling

2023-03-16 09:11:22 UTC

Had a seizure this week and have slept most of it. Got to speak to consultant and he's putting up my medication so guess that's positive- hope! I managed to do some cooking with my daughter yesterday which was fun.

Family

2023-04-17 20:10:32 UTC

Had some lovely time with my husband and 5 year old star of a daughter during Easter holidays. Been out alone on my bike today which was liberating.

Independence

2023-04-28 07:48:54 UTC

So important this week I've had some whilst my husband worked away I managed to arrange pickups of my Daughter from school. I've picked her up most afternoons with a friend which feels like I have a role and am important. I've also done some gardening in the sunshine.

2023-05-09 16:21:51 UTC

My memory is improving and focal awares have returned to normal after a few weeks of being a pest. Nanoo Nanoo

I'm grateful to have such an amazing friend who has supported me following my seizure earlier in the year. He has become my official taxi service and nothing is to much trouble, I will never be able to thank him enough!

2023-06-20 14:13:57 UTC

getting through. rough week but managed to prepare and eat Sunday meal with family

2023-07-03 13:40:11 UTC

Tai Chi

2023-07-30 21:55:48 UTC

Going to my tai chi lesson which I have learned for the last 6 years and sitting down with a knee brace to help my inflamed knee, also doing a seminar on Monday for 3 hours with breaks.

KFC

2023-07-30 23:11:34 UTC

Visited the KFC restaurant near where I lived with my sister for our tea, got a fillet tower box meal and my sister got a 2 piece colonel meal. Enjoyed it and it was delicious.