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Muscular dystrophy is a group of genetic diseases that lead to loss and weakness of muscle mass. There are different types of muscular dystrophy that can manifest in different ways and occur at different stages of life. It is mainly due to mutations in genes that are responsible for producing proteins and building muscles. There is currently no cure for muscular dystrophy, but there are medications and therapy options that can help slow the progress of the disease.

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KidsHealth discusses the symptoms for parents to look for, the treatment they can seek for their kids, and lays out the progression of the disease. There is a section that discusses how to help so that parents can get teamed up with different medical specialists.

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Muscular dystrophy is a disorder that weakens a person’s muscles over time. People who have the disease can gradually lose the ability to do everyday tasks.

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Parent Project Muscular Dystrophy is a great resource for parents looking for ways to make an impact or improve the life of their child who is suffering from MD. There are several resources including a daily living resource page which has sections about advocacy, disability rights, and accessibility suggestions.

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Donate to PPMD and directly impact our mission to end Duchenne, by helping us accelerate research, raise our voices to impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies.
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Stay up-to-date on simple actions you can take to help ensure that the Duchenne community has a voice in both federal and local politics, and in conversations with regulatory agencies that directly impact everyone living with Duchenne.
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Join The Duchenne Registry

When you join The Duchenne Registry, you are strengthening the power of a 10-year-old network of patient-powered data that will be used to improve care for people living with Duchenne and increase our understanding of the disorder.
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Parent Project Muscular Dystrophy fights to end Duchenne. We accelerate research, raise our voices to impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies.

Join Us for the Fall PPMD Lighthouse Workshops!

We're excited to announce the return of PPMD Lighthouse Workshops this fall! These workshops provide a safe and supportive space for primary caregivers, as well as spouses and partners of individuals with a Becker diagnosis,...

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CDCC Spotlight: Helen DeVos Children's Hospital

Open Doors Creating Connection At a routine multidisciplinary clinic appointment, individuals meet their neuromuscular provider, subspecialists, and ancillary staff. But what if you were able to add "meeting other kids and families" to the list...

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Sam's Night Has Another Record-Breaking Year, Raising Over $1,400,000 for PPMD

This year's 18th annual Sam's Night event, hosted by the Killian Family in Dallas, TX, set yet another fundraising event record for PPMD, bringing in more than $1,400,000! Sam's Night (formerly Sam's Family Fun Day)...

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Parent Project Muscular Dystrophy (PPMD) fights to end Duchenne muscular dystrophy. We accelerate research, raise our voices to impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies.

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The Muscular Dystrophy Association is the #1 voluntary health organization in the United States for people living with muscular dystrophy. The website lists ways to get involved, services, and community education.

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MDA is the #1 health nonprofit advancing research, care and advocacy for people living with muscular dystrophy, ALS, and related neuromuscular diseases.

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This website is a government website and offers an abundance of information including living with muscular dystrophy, specifics about testing and treatment, and statistics. It also has many resources including patient handouts and ways to get connected with professionals. The variety of information and resources available through this site makes it a great resource.

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MedlinePlus links to health information from the National Institutes of Health and other federal government agencies. MedlinePlus also links to health information from non-government Web sites. See our disclaimer about external links and our quality guidelines.

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MedlinePlus links to health information from the National Institutes of Health and other federal government agencies. MedlinePlus also links to health information from non-government Web sites. See our disclaimer about external links and our quality guidelines.