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SPICT helps identify people with deteriorating health due to life shortening conditions so they can be offered early palliative care and future care planning.

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SPICT™ helps identify people with deteriorating health due to advanced conditions or a serious illness, and prompts holistic assessment and future care planning. SPICT™ is available in multiple translations. SPICT-4ALL™ uses non-medical language.

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Supportive and Palliative Care Indicators Tool

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This PCOC is easy to read and understand for patient and family

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Resources that support shared decision-making for people with serious health conditions.

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Clinical Excellence Queensland | Queensland Health

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The Care Companion Toolkit contains resources that support shared decision-making for people with serious health conditions.

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Helping people with long term breathlessness to live well. Resources, techniques and informations for patients, carers, and clinicians to manage breathlessness.

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Palliative Care ECHO is a series of interactive case based virtual mentoring sessions that address a range of palliative care topics. Discussion of deidentified patient cases and 10 minute lectures aim to increase palliative care knowledge, skills and confidence in primary care health professionals.

Currently, monthly sessions are held via Zoom on the third Tuesday of every month - 1pm to 2pm (AEST). We expect additional sessions will be run in the coming months.

Sessions consist of:

Since 2022, Palliative Care ECHO has been joined by attendees from different parts of Australia and the world. This map shows the locations of some of these attendees.

How does it work?

Project ECHO (Extension for Community Health Outcomes) is a virtual knowledge-sharing network designed to create a 'learning loop' between health professionals with the aim of increasing knowledge and access to health care in local communities.

What are the benefits?

A virtual network to share palliative care knowledge & experiences

An opportunity to connect with a specialist palliative care team

Improve local workforce capacity and delivery of high-quality palliative care

Improve access to effective palliative care for communities with limited access to specialist services

Promote choice for people with a life-limiting illness while increasing quality of life and reducing pain and discomfort

Increase job satisfaction and promote peer support and engagement between primary health services

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Palliative Care ECHO is a series of interactive case based virtual mentoring sessions that address a range of palliative care topics. Discussion of deidentified patient cases and 10 minute lectures aim to increase palliative care knowledge, skills and confidence in primary care health professionals.

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After-hours palliative care support for clinicians - Health professionals

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If a person’s care is already being managed by a palliative care service, they should always be contacted first for advice regarding care and symptom management. However, if the person does not have a palliative care service or their service is not available after hours, contacting a palliative care support service in your jurisdiction is the next step.

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PalliBytes are a suite of palliative care microlearning modules for the health and aged care workforce.

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Education programs to support development of capacity in understanding and responding to change, loss and grief.

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Loss and change are part of life. Grief is a normal response to these losses. We design and support a unique range of grief education programs that build resilience and wellbeing.

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Supporting a child through grief and loss

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Supporting a child through grief and loss

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Children can be deeply affected by loss

They may experience many emotions like:

What you can do to help

Here are some tips to help you support a child who is experiencing grief and loss:

Offer support, reassurance and comfort

Find time to do enjoyable things together

Acknowledge or help them name or identify their feelings

Let them know they are loved and will always be cared for

Assure them that what's happened is not their fault

Help them create a diary, memory box or special book to remember the person

Maintain normal routines to help them feel secure

Let them know that it's ok to play, be happy and have fun

Allow them to ask questions and talk about their loss as much as they want to

Encourage them to talk to a caring adult if they feel uneasy talking to you

Provide clear and age appropriate answers to their questions

Keep things as familiar as you can (school, pets and household possessions)

Talk about your feelings and how you've been coping with them

Try to include them in decision-making when it directly affects them

Inform the school of what's happened so they can provide additional support

Tell them that it is ok to be happy when they have a good memory of the person

Help them find ways to express their feelings through play, writing, drawing, music

Encourage them to spend time with friends

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Supporting a child through grief and loss

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They may experience many emotions like: Here are some tips to help you support a child who is experiencing grief and loss: Offer support, reassurance and comfort Find time to do enjoyable things together Acknowledge or help them name or identify their feelings Let them know they are loved and

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Information for people and families about symptoms covered in the SAS tool

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Writable PDF document to support communication with healthcare team for people with disability and/or communication challenges

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An easy-English booklet providing information on what happens when someone dies.

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A series of short animated films following our hero Sean as he embarks on various journeys of understanding around palliative care.

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Featuring the voice of multi-talented Sean Choolburra, the IPEPA animated series is five short films starring our hero, Sean. Sean embarks on five journeys o…

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Supportive Care Needs Assessment Tool for Indigenous People

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Supportive Care Needs Assessment Tool for Indigenous People

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The SCNAT-IP is an evidence-based supportive care needs assessment tool which accommodates the language, customs and culture-specific needs of Indigenous people with cancer.

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Supportive Care Needs Assessment Tool for Indigenous People

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Residential Aged Care End of Life Care Pathway

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Residential Aged Care End of Life Care Pathway

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PBS Prescriber Bag for Terminal Phase Symptoms

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PBS Prescriber Bag for Terminal Phase Symptoms

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Compassionate Communities is a globally recognised approach to improving the end-of-life experience for people by mobilising local networks, groups and services to be more conscious, aware and equipped to offer support.

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Compassionate Communities are communities in which everyday people play a stronger role in the care and support of people as they age and at the end of life.

Compassionate Communities is a globally recognised approach to improving the end-of-life experience for people by mobilising local networks, groups and services to be more conscious, aware and equipped to offer support. This approach is active in multiple countries around the world and was found to be a feasible option for people in Australia through a NOUS feasibility report commissioned by the federal government in 2018.

The GroundSwell Project has been active in the growth of the Compassionate Communities movement in Australia and this public health approach to end of life underpins all of our programs and services.

In 2018, The GroundSwell Project, initiated the National Compassionate Communities Forum in effort to learn more and in turn, further the capacity for this movement to grow in Australia. After working with 9 different community groups, we have learnt a huge amount about what it takes for communities to develop this work and build capacity to better support each other at the end of life.

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Compassionate Communities - The Groundswell Project

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Compassionate Communities are activated networks with the knowledge and capabilities to support each other at end of life. Download our Compassionate Communities toolkit and research report.

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National Palliative Care Service Directory

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National Palliative Care Service Directory

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Palliative Care Australia (PCA) is the national peak body for palliative care and provides information for patients and families regarding palliative care services

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National Palliative Care Service Directory

Palliative care will help you manage your illness, particularly pain and symptoms so you can continue to live life as well as you can while dealing with your illness. Palliative care can help at any time from a diagnosis of a life-limiting illness and is available to people of all ages. Sometimes people receive palliative care while they are also accessing curative treatment for their illness. Palliative care will help you manage the journey of a life-limiting illness to maximise your quality of life until death. The amount of time on this journey will vary from person to person. Palliative care will also support your loved ones in their caring role and also in grief and bereavement.

For more information about paediatric palliative care, click here.

How do I get it?

Health professionals including General Practitioners and Allied Health Practitioners can provide a level of palliative care. If your symptoms become complex, you may benefit from a referral to a Specialist Palliative Care Service.

To find a service in your local area please visit the National Palliative Care Service Directory.

Palliative care is available to anyone with a life-limiting illness, not just cancer patients. People living with dementia, chronic conditions or degenerative conditions can access palliative care.

How much does it cost? and who provides it?

Most palliative care services are free, but there may be some costs associated with the care that you receive.

Palliative care is multidisciplinary team care - so care is shared between a range of providers from palliative medicine physicians and specialist palliative care nurses to General Practitioners, other nurses, allied health professionals, social workers and other professionals such as pharmacists and palliative care volunteers.

There are a lot of common misconceptions about palliative care. Click here to find answers to some of the more frequently asked questions.

Who will help my family when I am gone?

Palliative care also supports carers and family members. There are a number of support services for people who are grieving. There is information in the 'I am a Carer' section which will help your carer/s find information to help them.

For more information about palliative care and what it means to you, click on the links below. These pages are also available to download.

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Promoting quality palliative care since 1991

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Paediatric Palliative Care Education Hub

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Paediatric Palliative Care Education Hub

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Provides quality information, and resources about paediatric palliative care as well as a National Service Directory.

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Carer Help - Medication Template and Handling Medicines Factsheet

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Carer Help - Medication Template and Handling Medicines Factsheet

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GP Pharmacological Management of End of Life Symptoms in Residential Aged Care

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GP Pharmacological Management of End of Life Symptoms in Residential Aged Care

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PallConsult Learning Packages - Infusion and Syringe Pumps

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PallConsult Learning Packages - Infusion and Syringe Pumps

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LGBTQI+ Health Australia: Inclusive Palliative Care eLearning

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LGBTQI+ Health Australia: Inclusive Palliative Care eLearning

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Welcome to the 'Introduction to LGBTIQ+ Communities' eLearning module.

This eLearning module is the first of four developed by LGBTIQ+ Health Australia about delivering LGBTIQ+ inclusive palliative care.

In completing all four modules, you will learn about:

These modules are designed to improve access and outcomes for LGBTIQ+ people requiring palliative care. They have been developed in a process of co-design with LGBTIQ+ communities and subject matter experts, as well as drawing on research.

This eLearning module will introduce you to LGBTIQ+ people and communities. It is designed for you to learn how to:

Recognise the diversity of LGBTIQ+ communities, including variations of sex characteristics, gender identity and sexual orientation

Describe how lived experience and identity can shape how easy or difficult it is to access appropriate healthcare

Describe the history of LGBTIQ+ communities, including experiences during the HIV/AIDS crisis

Recognise how a lifetime of discrimination can impact health and access to healthcare services

The module will appear as a pop-up window when opened. Each module will take 1 - 1.5 hours, depending on whether you complete the workbook activities.

Welcome to the 'Barriers to Providing & Receiving Palliative Care' eLearning module.

This eLearning module is one of four developed by LGBTIQ+ Health Australia about delivering LGBTIQ+ inclusive palliative care.

In completing all four modules, you will learn about:

These modules are designed to improve access and outcomes for LGBTIQ+ people requiring palliative care. They have been developed in a process of co-design with LGBTIQ+ communities and subject matter experts, as well as drawing on research.

This eLearning module will explore the barriers to providing and receiving palliative care for LGBTIQ+ people. It is designed for you to learn how to:

Describe the barriers experienced by LGBTIQ+ people accessing palliative care

Understand the impact these barriers have on LGBTIQ+ people and their significant others

Apply your understanding of barriers to case studies

Recognise the role healthcare providers have in addressing barriers to palliative care for LGBTIQ+ people

The module will appear as a pop-up window when opened. Each module will take 1 - 1.5 hours, depending on whether you complete the workbook activities.

Welcome to the 'Enablers for LGBTIQ+ people in palliative care' eLearning module.

This eLearning module is one of four developed by LGBTIQ+ Health Australia about delivering LGBTIQ+ inclusive palliative care.

In completing all four modules, you will learn about:

These modules are designed to improve access and outcomes for LGBTIQ+ people requiring palliative care. They have been developed in a process of co-design with LGBTIQ+ communities and subject matter experts, as well as drawing on research.

This eLearning module will explore the barriers to providing and receiving palliative care for LGBTIQ+ people. It is designed for you to learn how to:

Describe enables for LGBTIQ+ people accessing palliative care

Understand the impact these enablers have on LGBTIQ+ people and their significant others

Apply your understanding of enablers to case studies

Recognise the role of health care providers in providing inclusive palliative care for LGBITQ+

The module will appear as a pop-up window when opened. Each module will take 1 - 1.5 hours, depending on whether you complete the workbook activities.

Welcome to the 'Having end-of-life planning conversations' eLearning module.

This eLearning module is one of four developed by LGBTIQ+ Health Australia about delivering LGBTIQ+ inclusive palliative care.

In completing all four modules, you will learn about:

These modules are designed to improve access and outcomes for LGBTIQ+ people requiring palliative care. They have been developed in a process of co-design with LGBTIQ+ communities and subject matter experts, as well as drawing on research.

This eLearning module will explore the barriers to providing and receiving palliative care for LGBTIQ+ people. It is designed for you to learn how to:
The module will appear as a pop-up window when opened. Each module will take 1 - 1.5 hours, depending on whether you complete the workbook activities.

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lgbtiq+ health australia: lgbtiq+ palliative care

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Welcome to the 'Introduction to LGBTIQ+ Communities' eLearning module. This eLearning module is the first of four developed by LGBTIQ+ Health Australia about delivering LGBTIQ+ inclusive palliative care. In completing all four modules, you will learn about: These modules are designed to improve access and outcomes for LGBTIQ+ people requiring palliative care.

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Quick guide to your first conversation in palliative care

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Quick guide to your first conversation in palliative care

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A bereavement support tool which provides bereavement information, tools and resources, from the Australian Centre for Grief and Bereavement.

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This training program for medical practitioners and students, nurses and allied and other health professionals focuses on the law relating to end of life decision-making.

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This training program for medical practitioners and students, nurses and allied and other health professionals focuses on the law relating to end of life decision-making. There are 13 modules:

The role of law in end of life care

Capacity and consent to medical treatment

Withholding and withdrawing life-sustaining treatment

Advance Care Planning and Advance Care Directives

Substitute decision-making for medical treatment

Legal protection for administering pain and symptom relief

Children and end of life decision-making

Futile or non-beneficial treatment

Emergency treatment for adults

Managing conflict

Voluntary assisted dying

Aboriginal and/or Torres Strait Islander peoples and end of life law

Inclusive end of life decision-making for diverse populations

To begin, please select your discipline from the courses below, and enrol in that course. If you are not a medical practitioner, medical student, nurse or allied health professional we recommend you select the Medical practitioners and students course. Please note you only need to complete one of these courses to complete the End of Life Law for Clinicians training.

To access modules relevant to your discipline, select from the options below.

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This training program for medical practitioners and students, nurses and allied and other health professionals focuses on the law relating to end of life decision-making.

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This opioid equianalgesic calculator is designed for specialist and general medical practitioners as well as for medical students, nurses and allied health practitioners engaged in the care of patients with persistent pain.

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This opioid equianalgesic calculator is designed for specialist and general medical practitioners as well as for medical students, nurses and allied health practitioners engaged in the care of patients with persistent pain. Developed by the Faculty of Pain Medicine, Australian and New Zealand College of Anaesthetists (FPM ANZCA), this opioid equianalgesic calculator is an essential clinical tool simplifying the calculation of equianalgesia expressed as total oral morphine equivalent daily dose (oMEDD).

This opioid equianalgesic calculator has also been developed as a smart phone application in both Apple and Android versions. Download it from the Apple App Store or get it on Google Play Store.

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This opioid equianalgesic calculator is designed for specialist and general medical practitioners as well as for medical students, nurses and allied health practitioners engaged in the care of patients with persistent pain.

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PainCheck uses AI, facial recognition and smartphone technology to automate pain assessment.

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PainChek's Universal pain assessment tool combines AI, facial analysis technology and the NRS to enable best practice pain management for all people everywhere.

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Specific questions you can use to discuss these issues are:
F: What is your faith or belief?

Do you consider yourself spiritual or religious?

What things do you believe in that give meaning to your life?

I: Is it important in your life?

What influence does it have on how you take care of yourself?

How have your beliefs influenced your behavior during this illness?

What role do your beliefs play in regaining your health?

C: Are you part of a spiritual or religious community?

Is this of support to you and how?

Is there a person or group of people you really love or who are really important to
you?

A: How would you like me, your healthcare provider, to address these issues in your healthcare?

General recommendations when taking a Spiritual History include:

1. Consider spirituality as a potentially important component of every patient's physical well being and mental health.

2. Address spirituality at each complete physical examination and continue addressing it at follow-up visits if appropriate. In patient care, spirituality is an ongoing issue.

3. Respect a patient's privacy regarding spiritual beliefs; don't impose your beliefs on others.

4. Make referrals to chaplains, spiritual directors, or community resources as appropriate.

5. Be aware that your own spiritual beliefs will help you personally and will overflow in your encounters with those for whom you care to make the doctor-patient encounter a more humanistic one.

© 1999 Christina Puchalski, M.D. Reprinted with permission from Christina Puchalski, M.D.

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F: What is your faith or belief? Do you consider yourself spiritual or religious? What things do you believe in that give meaning to your life? I: Is it important in your life? What influence does it have on how you take care of yourself? How have your beliefs influenced your behavior during this illness?

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CareSearchgp App - CareSearch Activity - Our Work - About Us

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A tool to support health professionals to use the communication skills that they have learned in the clinical setting.

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App From VitalTalk Build your communication superpowers

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This app supports health professionals and carers providing palliative care at home.

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Apple and the Apple logo are trademarks of Apple Inc., registered in the U.S. and other countries. App Store is a service mark of Apple Inc.
Google Play and the Google Play logo are trademarks of Google LLC.

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caring@home project; caring at home project

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An app developed to help healthcare professionals communicate with patients from Culturally and Linguistically Diverse (CALD) backgrounds.

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NSW Government - Multicultural Health Communication Service

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CALD Assist is a free app downloadable from Apple App store and Google play Store, which can assist clinicians communicate with people with limited English proficiency. Developed by Western Health in partnership with CSIRO, CALD Assist does not replace professional interpreters, but can assist overcome basic language barriers when interpreters are not available.

The app features:

more than 200 commonly used phrases in low risk/basic care areas, professionally interpreted into ten languages, plus English

language groupings into seven health areas: COVID-19; dietetics; occupational therapy; physiotherapy; podiatry; speech therapy and nursing

translated phrases supported by images, video and audio recordings

Evaluations of CALD Assist published in peer-reviewed journals have demonstrated improved patient and provider experience, as well as improved provider and patient satisfaction.

The app has been successfully piloted in three NSW Local Health Districts and is recommended for use within NSW Health low risk communication inpatient settings. It is not recommended for use in Emergency departments or in areas where there is currently no specific translated health content including maternity, oral health, paediatrics and mental health.

For more information about this app visit to Victoria Western Health or CSIRO

Please contact us on SESLHD-CALDAssist@health.nsw.gov.au
CALD Assist Promotional Video Apple App store Google play Store

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CALD Assist is a free app downloadable from Apple App store and Google play Store, which can assist clinicians communicate with people with limited English proficiency. Developed by Western Health in partnership with CSIRO, CALD Assist does not replace professional interpreters, but can assist overcome basic language barriers when interpreters are not available.

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ELDAC End of Life Law Toolkit

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The Legal Toolkit provides practical information about the law at end of life for the aged care sector. It contains useful resources on end of life legal issues commonly encountered in aged care to help you to know the law and to support your practice.

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Palliative Care Australia's (PCA) Discussion Starter series and Card packs have been developed to reach into communities to normalise early conversations about the end-of-life, rather than waiting until more time-critical or medical-focused discussions need to occur. The resources have been developed to help Australians work out what's right for them if they were to become very sick or at the end of their lives.

While the design, order of sections and some of the information may have been adapted or updated across resources, they all can be used to get you started in this important discussion.

PCA thanks The Conversation Project and the Institute for Healthcare Improvement in Boston, MA, USA. Their Conversation Starter Kit is in many ways the inspiration for the original 2015 Discussion Starter. PCA also respectfully acknowledges that the Dying to Talk Discussion Cards was guided by Coda Alliance's Go Wish card game developed with the Archstone Foundation.

This Discussion Starter and card pack has been developed for Aboriginal and/or Torres Strait Islander peoples and their community, and...

The What Matters Most for Older Australians Discussion Starter and card pack has been developed for older people using aged...

This Discussion Starter and card pack has been developed by Palliative Care Australia (PCA), and trialled in collaboration with the...

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Palliative Care Australia's (PCA) Discussion Starter series and Card packs have been developed to reach into communities to normalise early conversations about the end-of-life, rather than waiting until more time-critical or medical-focused discussions need to occur. The resources have been developed to help Australians work out what's right for them if they were to become very sick or at the end of their lives.

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Information about advance care planning laws in each Australian state and territory.

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PCOC Palliative Assessment and Clinical Response form

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PCOC Palliative Assessment and Clinical Response form

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A useful guide to help when completing a Symptoms Assessment score.

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Palliative Care Outcomes Collaboration (PCOC) Assessment Tools

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Palliative Care Outcomes Collaboration (PCOC) Assessment Tools

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PCOC captures clinical meaningful information from across palliative care patient's disease trajectories using benchmarking tools.

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Assessment forms - University of Wollongong – UOW

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Every patient has the right to effective treatment and management for pain and symptoms. In addition to palliative outcomes and profile programs, PCOC uses five clinical assessment tools to help identify and manage these common symptoms.

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Supportive and Palliative Care Indicators Tool (SPICT) used to help identify people whose health is deteriorating. Assess for unmet supportive and palliative care needs. Plan care.

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Supportive and Palliative Care Indicators Tool (SPICT™) The SPICT™ is used to help identify people whose health is deteriorating. Assess for unmet supportive and palliative care needs. Plan care. L…

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The palliMEDS app familiarises primary care prescribers with eight palliative care medicines that have been endorsed by the Australian & New Zealand Society of Palliative Medicine (ANZSPM) for management of terminal symptoms.

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Apple and the Apple logo are trademarks of Apple Inc., registered in the U.S. and other countries. App Store is a service mark of Apple Inc.
Google Play and the Google Play logo are trademarks of Google LLC.

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caring@home project; caring at home project

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The Palliative Care Education Directory

PaCE is a resource directory for educators and health and aged care providers. Access relevant palliative care education resources direct to your device.

Palliative Care Workforce Development

Hear from Project Lead Distinguished Professor Patsy Yates AM on the development of the PaCE App.

Features

PaCE has been built to link learning resources to palliative care capabilities for the following groups:

How to use PaCE

To find out more about how to use the PaCE Directory App, watch this short video.

The PaCE Directory App includes resources from all the National Palliative Care Projects.

The Palliative Care Education and Training Collaborative acknowledges and pays our deepest respect to the past, present and future Traditional Custodians and Elders of the many lands on which we work and live, and the continuation of cultural, spiritual and educational practices of Aboriginal and Torres Strait Islander peoples.

We respectfully acknowledge the cultural sensitivities surrounding Sorry Business, Sad News and 'finishing up'.

Aboriginal and Torres Strait Islander peoples are advised that this website and resources linked may contain images, videos and voices of people who have passed away.

Create a shortcut

Once you have opened PaCE on your device, you can add a shortcut to the app.

Follow the instructions below for your preferred internet browser:
* Chrome: Tap the menu icon (three dots in the upper right-hand corner) and tap Add to homescreen.
* Safari: Tap the Share button on the menu bar, then tap on Add to Home Screen
* Edge: Tap on the horizontal three dots icon for the options menu, select the option Add to homescreen
* Firefox: Tap the menu button (either below the screen on some devices or in the upper right of the browser), then tap on page. Tap Add Page Shortcut.

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PaCE is a resource directory for educators and health and aged care providers. Access relevant palliative care education resources direct to your device. Hear from Project Lead Distinguished Professor Patsy Yates AM on the development of the PaCE App.

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CareSearch palliative care knowledge network

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CareSearch palliative care knowledge network provides access to evidence and tools for health professionals and information about death and dying for the whole community.