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Learning Experience Designer
Northeastern University

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Research on pediatric transplantation originates from the experience. The experience is the response to the effort in developing an educational plan. The stories on kidney transplantation, create the influence to learn, especially as the recipient. Transplant recipient Simon Valencia-Devin was one out of the 7 who survived leaving the NICU into the treatment because his end-stage renal failure began at 29 weeks. This research is to apply the information and to support the continuous effort in end-stage renal transplant education.

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Pediatric Kidney Transplantation Education

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"FOCUSED EFFORTS DESPITE THE CHALLENGES" - Uptal D. Patel, MD

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The purpose of this research is to support pediatric kidney transplantation by exploring how to educate prospective transplant recipients and caretakers. This education can help strengthen transplant readiness in preparing families for transplantation as the selected treatment for end-stage renal disease.

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The challenge of transplant therapy is learning what has been provided by the teams of doctors. This information is not enough as the recipient and caretaker are preparing for these therapies. The problem is the absence of education on how to train and establish confidence in preparation for these treatments. The family and caretakers must incorporate new self-training techniques in managing these treatments.

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Future research is needed to identify methods to bring kidney transplant education to all members of the transplant community. The goal is to continue to strengthen the confidence in preparing for these treatments and therapy lifestyle. Transplantation training and education have the opportunity to save lives. Recipients and caretakers will be physically and emotionally prepared.

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Pediatric transplantation has grown as the selected treatment of choice offered to children with end-stage renal failure. This research is significant because it examines what transplantation recipients and caretakers are provided in terms of educational support. The need for more opportunities for educational support exists, applying this research into a plan will help educate prospective transplant recipients and caretakers.

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Chronic Kidney Disease - (CKD) means your kidneys are damaged and can’t filter blood the way they should. The disease is called “chronic” because the damage to your kidneys happens slowly over a long period of time. This damage can cause wastes to build up in your body. CKD can also cause other health problems.
End-Stage Renal Disease - (ESRD) is when the kidneys are functioning below 10 to 15 percent of their normal capacity. This is called kidney failure. End stage renal disease develops from chronic renal disease as it progresses into an advanced state. When functioning properly, the kidneys are responsible for filtering out excess fluid and waste from the body.
Renal Replacement Therapy - (RRT) replaces nonendocrine kidney function in patients with renal failure and is occasionally used for some forms of poisoning. Techniques include continuous hemofiltration and hemodialysis, intermittent hemodialysis, and peritoneal dialysis. All modalities exchange solute and remove fluid from the blood, using dialysis and filtration across permeable membranes.
Peritoneal Dialysis - Peritoneal dialysis uses the peritoneum as a natural permeable membrane through which water and solutes can equilibrate. Compared to hemodialysis, peritoneal dialysis is, less physiologically stressful, does not require vascular access, can be done at home and allows patients much greater flexibility.
Kidney Transplant - A kidney transplant is a surgical procedure to place a healthy kidney from a living or deceased donor into a person whose kidneys no longer function properly.

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Kidney Transplantation _Mayo Clinic 2:2020

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Based on this literature review, the next steps would be to conduct research to identify the educational components that would be needed to support recipients, caretakers, and families.

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EDUC815 Next Steps & Future Direction.V02 

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The medical industry, together with education and technology, has provided advancement in the medical treatment process. Research supporting pediatric kidney transplantation education, an action plan is to combine the learned experiences and to put forward the knowledge of post kidney transplantation best practices.
This research is to strategically gather studies and recipients and caretakers’ experiences on transplantation outcomes.

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When it comes to medical treatments there are extraordinary amounts of medical information made available for general medical awareness.

This awareness provides prospective patients and caretakers a vision of what to anticipate. Perspective patients and caretakers can learn more on the subject related to the treatment by gaining some feedback from doctors and hospital personal, in person. Current studies on preparation for a medical procedure are tied to only determining and or distinguishing when somethings goes wrong. For this research, it is connected to kidney rejection and the causes specific to kidney rejection, post kidney transplant. The information available should cover more than knowing about the procedure. We need more research and deliveries on the experience of preparation.