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The Marc Junior foundation has the two-fold mission of spreading awareness for DIPG and funding research for its cure. Be a part of us.

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The Symptoms of DIPG You Should Be Aware Of

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Symptoms of DIPG can get intense a month before diagnosis but can also appear up to six months before. It is advisable to seek medical help asap.

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DIPG Treatment: What Are the Options Available?

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DIPG Treatment: What Are the Options Available?

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No cure has been found for Diffuse Intrinsic Pontine Glioma (DIPG) yet but efforts are being made to find a cure. However, there are steps that can be taken to ensure that your child goes through less pain.

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No cure has been found for Diffuse Intrinsic Pontine Glioma (DIPG) yet but efforts are being made to find a cure. However, there are steps that can be taken to ensure that your child goes through less pain. Let's understand what is the current scenario and why certain conventional treatment options do not work permanently.

Unlike other tumors, DIPG cannot be removed through surgery. DIPG occurs in the pons of the brain stem. A medical professional cannot conduct surgery in that part without damaging the brain tissue surrounding it, making surgery highly dangerous.

DIPG is not a well-defined tumor. It spreads between brain cells and has no definite boundaries. It also grows rapidly. This is another reason why surgery is not possible.

However, sometimes, when MRI scan results are atypical, a medical professional may need to perform a biopsy and extract a small part of the tumor for diagnosis. Also, surgery may be performed in case of hydrocephalus (build-up of pressure in the brain due to DIPG). Endoscopic third ventriculostomy (ETV) is performed to treat this condition. When this is not possible surgery may be performed to place permanent shunts in the brain.

Radiation therapy is only a temporary form of treatment and the only one that can make the DIPG tumor shrink.

Radiation therapy can help provide relief from various symptoms of DIPG like nausea, fatigue, imbalance, loss of muscle movement, blurry vision etc.

After a short span of time, the tumor will begin to grow again. On average, radiation therapy increases the survival time of a DIPG patient by three months.

# data[].attributes.attachment_link.title
DIPG Treatment: What Are the Options Available?

# data[].attributes.attachment_link.description
No cure has been found for Diffuse Intrinsic Pontine Glioma (DIPG) yet but efforts are being made to find a cure. However, there are steps that can be taken to ensure that your child goes through less pain. Let's understand what is the current scenario and why certain conventional treatment options do not work permanently.

# data[].attributes.body
The Marc Junior foundation has the two-fold mission of spreading awareness for DIPG and funding research for its cure. Be a part of us.

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We are unwavering in our commitment to the families facing a DIPG, ensuring they have educational information to best understand the diagnosis. We understand the devastation this diagnosis brings and we hope to offer families support during this journey.

On behalf of the Marc Jr Foundation, we present you this gift. This may be used in any way you choose that can benefit you and your child. With the trauma of being informed that a child has a DIPG brain tumor come many expenses and endless searching for information. Whether it is monetary, a tablet, or another gift, our foundation is honored to help you in some way. It is a hard reality that a parent or caretaker should endure the pain and grief that accompany a DIPG, and to see a young beautiful child suffer.

Marc Jr Foundation has parents, relatives, and friends that have lost children to a DIPG. We have experience with the challenges and lack of information of this disease. We have searched within our own experiences to find a mission that can best help families, caregivers, and researchers affected by this very rare diagnosis.

In the future, if you feel any reason to reach out to us for continued support regarding this disease, we are always open to share our own experiences and knowledge about the life changing struggle that you are facing.

Today, the Marc Jr Foundation's educational iPads are pre-loaded with resources to help parents navigate this difficult diagnosis. The Foundation is working with doctors, social workers, and other Foundations, as we realized how important it is to have information readily available regarding treatment and support for the families facing a DIPG. The Marc Jr pre-loaded iPads will have applications including, but not limited to, the following:

Butterfly
Children and their families enrolled in The Butterfly Program are able to access supportive services including nursing, social work, chaplaincy, and expressive therapy while receiving curative and therapeutic medical interventions aligned with their goals of care. The focus of the program is solely on the quality of life for the child, and their families.

Children With Limited Life Waiver (Denver only)

Children's Brain Tumor Foundation
The Family 2 Family (F2F) Mentor Program connects caregiver, survivor, and bereaved caregiver mentors to families who are seeking peer support.

Super Sibs
Sibling Comfort and Care - Our SuperSibs Comfort and Care Program provides tools to help siblings during and long after this life challenge.

ACCO Free Books
Offer quality materials for children and families who are dealing with childhood cancer.
Recommended -Understanding the Journey: A Parent's Guide to DIPG

DIPG Warrior
DIPG Warrior is The Cure Starts Now's way to help your family and friends through:awareness, support, fundraising, and more than anything, honoring your DIPG Warrior.

DIPG Registry
The International Diffuse Intrinsic Pontine Glioma (DIPG) Registry is a collaborative effort by physicians and researchers from North America, Europe, and Australia to centralize and standardize the collection of clinical data and tumor samples from DIPG patients. The goal of this effort is to support innovative research and ultimately find acure for DIPG.

The Children's Brain Tumor Tissue Consortium
Bringing together leaders in pediatric brain cancer research through cutting-edge technology to innovate, collaborate and share data.

Mealtrain
mealtrain.com simplifies the organization of meal giving around significant life events. We strive to simplify and promote interpersonal relationships between friends, families, and neighbors through meals.

Cancer Support Community
Providing comprehensive care - including counseling, support groups, nutrition, exercise and education - for cancer patients and their loved ones.

Caringbridge
A CaringBridge website is a personal health journal, rallying friends and family during any type of health journey. Start a free CaringBridge website today.

Clinicaltrials.gov
ClinicalTrials.gov is a registry of clinical trials. It is run by the United States National Library of Medicine (NLM) at the National Institutes of Health, and is the largest clinical trials database

DIPG.org
Offer facts regarding dealing with a Diagnosis of DIPG

Monkey In My Chair
Monkey in My Chair is a program originally developed in honor of Chloe Watson Feyerherm for pre-school and elementary aged children who are away from school because of a cancer diagnosis. As a result of Chloe's experience, her mother, teachers and community got together to develop the Monkey In My Chair program through the efforts of their newly established charity, the Love, Chloe Foundation. In 2011, in an attempt to have the program complement cancer research efforts, the Love, Chloe Foundation partnered with The Cure Starts Now Foundation to offer the program to a wider audience, thus increasing both awareness and donations to not only support the program but also fund the cure for cancer.

Google Calendar
Google Calendar application allows users to create personal or public calendars and share calendars. Calendar sharing means that it's easier to share information such as doctor appointments and invitations with family members across their devices.

One Note
OneNote is your digital notebook for capturing and organizing everything across your devices. Jot down your ideas, keep track of doctors and meeting notes, clips from the web, or make a to-do list, store voice files to refer to later as well as draw and sketch your questions or ideas.

Office Lens
Office Lens allows you to scan and import business cards from your iPad to OneNote. It will save as a picture and read the business cards and have them converted into digital contacts in your address books- great for when you're going between appointments and you do not want to misplace a business card.

Facebook Groups
DIPG Parents Only Sanctuary
DIPG Awareness for Family and Friends
DIPG Research

Through the hard work and dedication of DIPG parents and volunteers this iPad has been provide to you in the hopes of offering "social support". Some apps will offer informational support while others will be gathering data or the latest news on DIPG. And others will give practical help like driving to and from doctor appointments, cooking, cleaning, grocery shopping and child care. We offer you this information in the hopes it will be viewed as help given to you about things we believe have given our child hope for a better quality of life and we hope it makes you feel loved, cared for and understood.

Taking Care of Yourself

Watching your child battle cancer can, in so many ways, be as hard as fighting it yourself. It can be painful to see them struggle and you may hide your feelings of anger, fear or helplessness because you don't want to upset them. As members of your DIPG community, we encourage you to talk about your feelings. Connecting with other DIPG families can be a huge source of support, so we encourage you to please consider visiting and/or joining the suggested DIPG/cancer supporting communities (see above).

If you have questions about any of our programs, please reach out to us at info@marcjr.org. We will be happy to speak to you.

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Educational Information - DIPG | The Marc Jr Foundation

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We are unwavering in our commitment to the families facing a DIPG, ensuring they have educational information to best understand the diagnosis. We understand the devastation this diagnosis brings and we hope to offer families support during this journey. On behalf of the Marc Jr Foundation, we present you this gift.

# data[].attributes.body
The Marc Junior foundation has the two-fold mission of spreading awareness for DIPG and funding research for its cure. Be a part of us.

# data[].attributes.attachment_link.title
The Symptoms of DIPG You Should Be Aware Of

# data[].attributes.attachment_link.description
Symptoms of DIPG can get intense a month before diagnosis but can also appear up to six months before. It is advisable to seek medical help asap.

# data[].attributes.body
The Marc Junior foundation has the two-fold mission of spreading awareness for DIPG and funding research for its cure. Be a part of us.

# data[].attributes.attachment_link.readable_text
You are welcome to make a one-time donation, of any amount, but we are encouraging you to consider a monthly recurring donation of a minimum of $10. Your donation is tax deductible. There is no obligation, and you can cancel at any time by simply emailing mjdonate@marcjr.org

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Marc Jr. Donations | Marc Jrs Foundation | Family Support | DIPG

# data[].attributes.attachment_link.description
You are welcome to make a one-time donation, of any amount, but we are encouraging you to consider a monthly recurring donation of a minimum of $10. Your donation is tax deductible. There is no obligation, and you can cancel at any time by simply emailing mjdonate@marcjr.org

# data[].attributes.body
The Marc Junior foundation has the two-fold mission of spreading awareness for DIPG and funding research for its cure. Be a part of us.

# data[].attributes.attachment_link.readable_text
Diffuse Intrinsic Pontine Glioma (DIPG), is a type of a brain tumor that majorly affects children below the age of ten. This aggressive brain tumor that spreads quickly has no cure. Radiation treatment only temporarily helps alleviate the symptoms. Just like we don't have answers on how to cure it, we don't exactly know what causes DIPG. Finding the cause will advance our efforts in finding the cure.

Some cancers are caused due to environmental factors like exposure to radiation or smoking while others are caused because of inherited genes. In the case of DIPG, there is no evidence that supports these two causes.

According to studies, DIPG formation may be linked to the development of the brain. Certain cells in the brain are present in a higher concentration in the development stages. Research suggests that these cells are responsible for causing DIPG. As we mentioned before, DIPG affects children and this could be the answer to why.

Furthermore, scientists who have studied DIPG, have identified the epigenetic and genetic mutation in the pons. When cells, that use DNA to create new cells or to carry out various functions in the body, are unable to do so because the DNA becomes damaged, it is called genetic mutation. These mutated cells are why cancers are caused. Through genetic sequencing, researchers have learned more about the exact genetic mutations that cause DIPG. More studies are underway.

Dr. Eric Raabe, at John Hopkins University, is studying the effect of this genetic mutation on the formation of DIPG. He has found in DIPG, the cancerous cells multiply more than necessary which makes the tumor grow quickly. Through his reach, Dr. Raabe found that the overactive behavior of an enzyme called TET causes the cancer cells to multiply more than necessary. This may be the cause and targetting the enzyme may help in finding a cure.

Join Marc Jr Foundation's efforts to spread awareness about DIPG and fund research to find a cure for it. So that the next time, when we talk about DIPG, we can talk about DIPG survivors.

# data[].attributes.attachment_link.title
What Causes DIPG? Let's Try & Get Some Answers

# data[].attributes.attachment_link.description
Diffuse Intrinsic Pontine Glioma (DIPG), is a type of a brain tumor that majorly affects children below the age of ten. This aggressive brain tumor that spreads quickly has no cure. Radiation treatment only temporarily helps alleviate the symptoms. Just like we don't have answers on how to cure it, we don't exactly know what causes DIPG.

# data[].attributes.body
The Marc Junior foundation has the two-fold mission of spreading awareness for DIPG and funding research for its cure. Be a part of us.

# data[].attributes.attachment_link.readable_text
You are welcome to make a one-time donation, of any amount, but we are encouraging you to consider a monthly recurring donation of a minimum of $10. Your donation is tax deductible. There is no obligation, and you can cancel at any time by simply emailing mjdonate@marcjr.org

# data[].attributes.attachment_link.title
Marc Jr. Donations | Marc Jrs Foundation | Family Support | DIPG

# data[].attributes.attachment_link.description
You are welcome to make a one-time donation, of any amount, but we are encouraging you to consider a monthly recurring donation of a minimum of $10. Your donation is tax deductible. There is no obligation, and you can cancel at any time by simply emailing mjdonate@marcjr.org

# data[].attributes.headline
The Symptoms of DIPG You Should Be Aware Of

# data[].attributes.subject
The Symptoms of DIPG You Should Be Aware Of

# data[].attributes.body
Awareness about the not-much-talked-about Diffuse Intrinsic Pontine Glioma (DIPG) can help in the diagnosis and pain-relieving treatment of the disease. These glial tumors, that are found at the base of the brain are most common in children.

# data[].attributes.attachment_link.readable_text
The Symptoms of DIPG You Should Be Aware Of Awareness about the not-much-talked-about Diffuse Intrinsic Pontine Glioma (DIPG) can help in the diagnosis and pain-relieving treatment of the disease. These glial tumors, that are found at the base of the brain are most common in children. A related condition called "hydrocephalus" wherein fluid builds-up in the brain also causes pressure in the brain. Problems with eye movement, vision, and control: DIPG occurs in the "pons" of the brainstem, causing pressure on the cranial nerves that originate from that part of our brain. These nerves control the facial muscles that are used to move the eyes. Other symptoms of DIPG related to the eyes are double vision, drooping of the eyelids and inability to completely shut the eyes. These are the major Dipg Tumor Symptoms : Difficulty in swallowing and chewing: The cranial nerves that originate from the pons, also control the facial muscles which are used to chew and swallow food. Difficulty in performing these two functions are one of the first red flags. Problems in balance: The balance system of the human body works when the inner ear, brain, muscles, joints and the eyes function unimpaired together. DIPG hampers their functioning. Headaches: It causes headaches, especially in the morning. As the tumor enlarges, it causes pressure and pain in the brain. Nausea and vomiting: Both these symptoms are a result of the increased pressure inside the brain. Other symptoms like fatigue, anxiety, deafness, difficulty in urinating, problems in walking, weakness in the limbs, clumsiness, difficulty in sleeping are also present. Symptoms can get intense a month before diagnosis but can also appear up to six months before. As DIPG is a rapidly-growing tumor the symptoms can get worse quickly. It is advisable to seek medical help as soon as possible. The Marc Junior Foundation has been dedicated to spreading awareness about DIPG, funding research for its cure and encouraging the participation of the people in helping th

# data[].attributes.attachment_link.title
The Symptoms of DIPG You Should Be Aware Of

# data[].attributes.attachment_link.description
The Symptoms of DIPG You Should Be Aware Of Awareness about the not-much-talked-about Diffuse Intrinsic Pontine Glioma (DIPG) can help in the diagnosis and pain-relieving treatment of the disease. These glial tumors, that are found at the base of the brain are most common in children.

# data[].attributes.body
Get in touch with us at Marc Junior Foundation to make this world a better place to live and help the families facing DIPG

# data[].attributes.attachment_link.readable_text
Diffuse Intrinsic Pontine Glioma (DIPG), is a type of a brain tumor that majorly affects children below the age of ten. This aggressive brain tumor that spreads quickly has no cure. Radiation treatment only temporarily helps alleviate the symptoms. Just like we don't have answers on how to cure it, we don't exactly know what causes DIPG. Finding the cause will advance our efforts in finding the cure.

Some cancers are caused due to environmental factors like exposure to radiation or smoking while others are caused because of inherited genes. In the case of DIPG, there is no evidence that supports these two causes.

According to studies, DIPG formation may be linked to the development of the brain. Certain cells in the brain are present in a higher concentration in the development stages. Research suggests that these cells are responsible for causing DIPG. As we mentioned before, DIPG affects children and this could be the answer to why.

Furthermore, scientists who have studied DIPG, have identified the epigenetic and genetic mutation in the pons. When cells, that use DNA to create new cells or to carry out various functions in the body, are unable to do so because the DNA becomes damaged, it is called genetic mutation. These mutated cells are why cancers are caused. Through genetic sequencing, researchers have learned more about the exact genetic mutations that cause DIPG. More studies are underway.

Dr. Eric Raabe, at John Hopkins University, is studying the effect of this genetic mutation on the formation of DIPG. He has found in DIPG, the cancerous cells multiply more than necessary which makes the tumor grow quickly. Through his reach, Dr. Raabe found that the overactive behavior of an enzyme called TET causes the cancer cells to multiply more than necessary. This may be the cause and targetting the enzyme may help in finding a cure.

Join Marc Jr Foundation's efforts to spread awareness about DIPG and fund research to find a cure for it. So that the next time, when we talk about DIPG, we can talk about DIPG survivors.

# data[].attributes.attachment_link.title
What Causes DIPG? Let's Try & Get Some Answers

# data[].attributes.attachment_link.description
Diffuse Intrinsic Pontine Glioma (DIPG), is a type of a brain tumor that majorly affects children below the age of ten. This aggressive brain tumor that spreads quickly has no cure. Radiation treatment only temporarily helps alleviate the symptoms. Just like we don't have answers on how to cure it, we don't exactly know what causes DIPG.

# data[].attributes.body
Get in touch with us at Marc Junior Foundation to make this world a better place to live and help the families facing DIPG

# data[].attributes.attachment_link.title
The Symptoms of DIPG You Should Be Aware Of

# data[].attributes.attachment_link.description
Symptoms of DIPG can get intense a month before diagnosis but can also appear up to six months before. It is advisable to seek medical help asap.

# data[].attributes.body
Get in touch with us at Marc Junior Foundation to make this world a better place to live and help the families facing DIPG

# data[].attributes.attachment_link.title
The Symptoms of DIPG You Should Be Aware Of

# data[].attributes.attachment_link.description
Symptoms of DIPG can get intense a month before diagnosis but can also appear up to six months before. It is advisable to seek medical help asap.

# data[].attributes.body
Get in touch with us at Marc Junior Foundation to make this world a better place to live and help the families facing DIPG

# data[].attributes.attachment_link.readable_text
You are welcome to make a one-time donation, of any amount, but we are encouraging you to consider a monthly recurring donation of a minimum of $10. Your donation is tax deductible. There is no obligation, and you can cancel at any time by simply emailing mjdonate@marcjr.org

# data[].attributes.attachment_link.title
Marc Jr. Donations | Marc Jrs Foundation | Family Support | DIPG

# data[].attributes.attachment_link.description
You are welcome to make a one-time donation, of any amount, but we are encouraging you to consider a monthly recurring donation of a minimum of $10. Your donation is tax deductible. There is no obligation, and you can cancel at any time by simply emailing mjdonate@marcjr.org

# data[].attributes.body
The Marc Junior foundation has the two-fold mission of spreading awareness for DIPG and funding research for its cure. Be a part of us.

# data[].attributes.attachment_link.readable_text
You are welcome to make a one-time donation, of any amount, but we are encouraging you to consider a monthly recurring donation of a minimum of $10. Your donation is tax deductible. There is no obligation, and you can cancel at any time by simply emailing mjdonate@marcjr.org

# data[].attributes.attachment_link.title
Marc Jr. Donations | Marc Jrs Foundation | Family Support | DIPG

# data[].attributes.attachment_link.description
You are welcome to make a one-time donation, of any amount, but we are encouraging you to consider a monthly recurring donation of a minimum of $10. Your donation is tax deductible. There is no obligation, and you can cancel at any time by simply emailing mjdonate@marcjr.org

# data[].attributes.body
The Marc Junior foundation has the two-fold mission of spreading awareness for DIPG and funding research for its cure. Be a part of us.

# data[].attributes.attachment_link.title
The Symptoms of DIPG You Should Be Aware Of

# data[].attributes.attachment_link.description
Symptoms of DIPG can get intense a month before diagnosis but can also appear up to six months before. It is advisable to seek medical help asap.

# data[].attributes.headline
The Symptoms of DIPG You Should Be Aware Of

# data[].attributes.subject
The Symptoms of DIPG You Should Be Aware Of

# data[].attributes.body
Awareness about the not-much-talked-about Diffuse Intrinsic Pontine Glioma (DIPG) can help in the diagnosis and pain-relieving treatment of the disease. These glial tumors, that are found at the base of the brain are most common in children.

# data[].attributes.attachment_link.title
The Symptoms of DIPG You Should Be Aware Of

# data[].attributes.attachment_link.description
Awareness about the not-much-talked-about Diffuse Intrinsic Pontine Glioma (DIPG) can help in the diagnosis and pain-relieving treatment of the disease.

# data[].attributes.body
DIPG – Diffuse intrinsic pontine glioma is a fast-growing glial tumor that forms cells called glial cells in a part of the brain stem called pons, which controls many of the body’s most vital functions such as breathing, blood pressure, and heart rate and the nerves and muscles that help us see, talk, hear, walk, and eat.

# data[].attributes.attachment_link.readable_text
DIPG - Diffuse intrinsic pontine glioma is a fast-growing glial tumour that forms cells called glial cells in a part of the brain stem called pons, which controls many of the body's most vital functions such as breathing, blood pressure, and heart rate and the nerves and muscles that help us see, talk, hear, walk, and eat.

Watch for these symptoms of DIPG DIPG - Diffuse intrinsic pontine glioma is a fast-growing glial tumour that forms cells called glial cells in a part of the brain stem called pons (the part of the brain just above the back of the neck and connected to the spine), which controls many of the body's most vital functions such as breathing, blood pressure, and heart rate and the nerves and muscles that help us see, talk, hear, walk, and eat. DIPG is a "high grade" malignant brain tumour. It is hard to treat and has a poor prognosis. It occurs in childhood in both boys and girls equally and is usually diagnosed between the ages of five and ten and does not generally appear in adults. But it can show up at any age in childhood. Symptoms of Childhood DIPG: The DIPG tumour grows at a rapid rate. Because the tumour affects the cranial nerves, some of the earliest signs of DIPG can be seen in the face like rapidly developing problems controlling eye movements, facial expressions, speech, chewing, and swallowing. The most common symptoms include: ● Facial weakness or drooping (usually one side): One side of the face may droop. Complications with the eyes (including, drooping eyelids, uncontrolled eye movements, double vision, blurred vision). Initial symptoms of DIPG include changes in the child's facial muscles involving the eyes and eyelids. The eyelids may droop and the child may not be able to close both eyelids completely. Double vision can also be a problem. Generally, symptoms affect both eyes, not just one. ● Problems with chewing and swallowing: One side of the face may droop. The child may suddenly develop problems hearing, chewing, and swallowing. Weakness in arms and legs: Symptoms can extend to the limbs, causing weakness in the arms and legs and making standing and walking more difficult. This will affect the daily movement of the child. Nausea, Headache, Vomiting: If the tumour causes a disruption in the flow of spinal fluid around the brain, it increases pressure inside the skull (hy

# data[].attributes.attachment_link.description
DIPG - Diffuse intrinsic pontine glioma is a fast-growing glial tumour that forms cells called glial cells in a part of the brain stem called pons, which controls many of the body's most vital functions such as breathing, blood pressure, and heart rate and the nerves and muscles that help us see, talk, hear, walk, and eat.

# data[].attributes.body
DIPG – Diffuse intrinsic pontine glioma is a fast-growing glial tumour that forms cells called glial cells in a part of the brain stem called pons

# data[].attributes.attachment_link.description
DIPG - Diffuse intrinsic pontine glioma is a fast-growing glial tumour that forms cells called glial cells in a part of the brain stem called pons (the part of the brain just above the back of the neck and connected to the spine), which controls many of the body's most vital functions such as breathing, blood pressure, and heart rate and the nerves and muscles that help us see, talk, hear, walk, and eat.

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5 Things About DIPG That Will Help Us Understand It

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5 Things About DIPG That Will Help Us Understand It

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Famous philosopher Voltaire said, “God gave us the gift of life; it is up to us to give ourselves the gift of living well.” It is difficult to have a positive outlook when your child is facing a rare tumor-like DIPG (Diffuse Intrinsic Pontine Glioma) but it is necessary.

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Famous philosopher Voltaire said, "God gave us the gift of life; it is up to us to give ourselves the gift of living well." It is difficult to have a positive outlook when your child is facing a rare tumor-like DIPG (Diffuse Intrinsic Pontine Glioma) but it is necessary. It is the quality of life that matters the most, no matter how long it is. When facing DIPG, one of the greatest challenges we face is the lack of knowledge about it. These seven things will help us understand it better.

1. DIPG affects children majorly, it is uncommon in adults.

About 300-350 cases of DIPG are diagnosed every year in the United States, out of which most are in children aged below ten. Both boys and girls are equally affected.

2. The disease occurs in a delicate area of the brainstem that controls critical body functions.

DIPG occurs in the "pons" of the brainstem of a person. The pons is a structure located in the upper part of the brainstem that controls functions like breathing, senses like hearing and taste, body balance, communication between different sections of the brain etc.

3. The symptoms of DIPG can appear suddenly.

A pontine glioma, DIPG grows rapidly. Some of the early symptoms include sudden hearing problems, nausea, headache, vomiting, problems with movements of the eyes and eyelids, weakness in the face and the limbs, loss of balance, problems in chewing and swallowing food among others.

4.A cure has not been found for DIPG yet.

Treatments like radiotherapy help with the symptoms of DIPG by shrinking the tumor but they do not cure it. Despite ongoing research, no definite cure has been found. Research conducted by Dr. Mark Souweidane of St. Baldrick has come close to finding a cure through injecting a high concentration of cancer-fighting drug directly into the tumor.

5.Awareness, acceptance and comforting can go a long way in helping to deal with DIPG.

is scarce, it is difficult for families facing DIPG to understand and face the disease. Accepting that your child is facing DIPG will help you comfort them and make it a little easier. Simple comforting techniques like giving them their favorite soft toys, cuddling with them under a blanket like Quility, or watching a superhero movie with them will help.

Visit :- 5 Things About DIPG That Will Help Us Understand It

# data[].attributes.attachment_link.title
5 Things About DIPG That Will Help Us Understand It

# data[].attributes.attachment_link.description
Famous philosopher Voltaire said, "God gave us the gift of life; it is up to us to give ourselves the gift of living well." It is difficult to have a positive outlook when your child is facing a rare tumor-like DIPG (Diffuse Intrinsic Pontine Glioma) but it is necessary.

# data[].attributes.body
Get in touch with us at Marc Junior Foundation to make this world a better place to live and help the families facing DIPG

# data[].attributes.attachment_link.readable_text
You are welcome to make a one-time donation, of any amount, but we are encouraging you to consider a monthly recurring donation of a minimum of $10. Your donation is tax deductible. There is no obligation, and you can cancel at any time by simply emailing mjdonate@marcjr.org

# data[].attributes.attachment_link.title
Marc Jr. Donations | Marc Jrs Foundation | Family Support | DIPG

# data[].attributes.attachment_link.description
You are welcome to make a one-time donation, of any amount, but we are encouraging you to consider a monthly recurring donation of a minimum of $10. Your donation is tax deductible. There is no obligation, and you can cancel at any time by simply emailing mjdonate@marcjr.org

# data[].attributes.body
Get in touch with us at Marc Junior Foundation to make this world a better place to live and help the families facing DIPG

# data[].attributes.attachment_link.readable_text
Our Mission

To offer educational and financial assistance to families facing a DIPG, and to fund research toward finding a cure.

Events

What Is A DIPG

Marc Jr Foundation Board and Volunteer Members

We have an outstanding group of talented, energized, caring team members. The Board and the Volunteers in the Marc Jr Foundation work to help families throughout the country facing a Diffused Intrinsic Pontine Glioma (“DIPG”).

Marc Jr Foundation Grant Program

We work closely with the social workers at the Children’s Hospitals around the country, identifying families in need of financial services. The Marc Jr Foundation provides services ranging from financial grants to families who are in need of help with co-pays to helping a family without life insurance pay for their child’s burial expenses. Our Board understands the unexpected costs associated with having a child diagnosed with terminal brain cancer.

Marc Jr Foundation Educational Information

We are unwavering in our commitment to not only the families facing a DIPG, but also to doctors and social workers, ensuring they have educational information to share at the time of diagnosis. We understand the devastation this diagnosis brings and we hope to offer families support during this journey. Today, the Marc Jr Foundation’s educational binders are an invaluable resource that help doctors and staff work together with the family to create a plan for the care of the child who has been diagnosed with DIPG cancer.

Marc Jr Foundation Research Program

With the help of Dr. Sujatha Venkataraman from Children’s Hospital Colorado, we are looking to fund ground-breaking DIPG research, and we are honored to be working alongside the Children’s Hospital of Colorado Researchers and their commitment to finding a cure for DIPG.

About Us

We are a 100%-based volunteer organization that helps families and hospitals around the country and because of the unique services offered by the Marc Jr Foundation and our commitment to the DIPG community, our services are becoming more in demand each day. We are hoping, with your help, to continue these services for families who so desperately need them. We look forward to working alongside you in making the DIPG community stronger and moving science toward a cure so that one day children can be DIPG free.

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Home | Marc Jrs Foundation | Family Support | DIPG

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Get in touch with us at Marc Junior Foundation to make this world a better place to live and help the families facing DIPG.

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